A two-year prospective study of the health-related quality of life of children with chronic illness--the parents' perspective

Title

A two-year prospective study of the health-related quality of life of children with chronic illness--the parents' perspective

Creator

Sawyer MG; Reynolds KE; Couper JJ; French DJ; Kennedy D; Martin J; Staugas R; Baghurst PA

Publisher

Quality of Life Research

Date

2005

Subject

PedPal Lit; Adolescent Asthma/physiopathology/psychology Child Chronic Disease Diabetes Mellitus/physiopathology/psychology Family Humans Parents/psychology Peer GroupQuality of Life Questionnaires Research Support; Non-U.S. Gov't Schools

Description

The aim of this study was to assess prospectively changes in the health-related quality of life (HRQL) of children and adolescents with diabetes, asthma or cystic fibrosis (CF). One hundred and twenty-two parents of children aged 10-16 years with asthma, diabetes, or CF were recruited from specialist paediatric clinics. Parents described their children's HRQL using the Child Health Questionnaire (PF98) at baseline, 6, 12, 18 and 24 months post-baseline. They reported that the general health of children with CF was significantly worse than that of children with asthma and diabetes at baseline. In other domains there were few differences between the HRQL of children in the three groups. In several domains, the HRQL of children with asthma or diabetes improved over the 2 years of the study. This improvement was less evident for children with CF.
2005

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

395-405

Issue

2

Volume

14

Citation

Sawyer MG; Reynolds KE; Couper JJ; French DJ; Kennedy D; Martin J; Staugas R; Baghurst PA, “A two-year prospective study of the health-related quality of life of children with chronic illness--the parents' perspective,” Pediatric Palliative Care Library, accessed September 24, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13771.

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