Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective
Title
Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective
Creator
Petersen C; Schmidt S; Power M; Bullinger M
Identifier
Publisher
Quality of Life Research
Date
2005
Subject
Epilepsy; PedPal Lit; emotion; 'Independence'; 'Physical'; 'Social Exclusion') with acceptable internal consistency.; 'Social Inclusion'; 13-16 years) with different chronic health conditions (asthma; Adolescent Child Chronic Disease/psychology Disabled Children/psychology Europe Health Status Humans Pilot Projects Quality of Life/psychologyQuestionnaires Research Support; and cystic fibrosis) as well as their families were included. Data were analysed according to predefined psychometric and content criteria. Psychometric an alyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication'; and implement European instruments for the assessment of HRQOL of children and adolescents with disabilities and their families. The current paper describes the development and pilot testing of a chronic generic HRQOL measure. Using literature searches; Arthritis; atopic dermatitis; Cerebral Palsy; Diabetes; expert consulting and focus groups with children/adolescents and their families; items of the instruments were developed and translated into the respective languages. A pilot test with 360 children and adolescents was conducted. Children and adolescents (8-12; Non-U.S. Gov'tSickness Impact Profile%X Health-related quality of life (HRQOL) assessment in children and adolescents with chronic health conditions is increasingly considered as a relevant topic. The aim of the EU-funded DISABKIDS project is to develop; test
Description
2005
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
Journal Article
Citation List Month
Backlog
URL Address
Citation
Petersen C; Schmidt S; Power M; Bullinger M, “Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective,” Pediatric Palliative Care Library, accessed February 19, 2025, https://pedpalascnetlibrary.omeka.net/items/show/13769.