Parent Perspectives of Neonatal Intensive Care at the End-of-Life

Title

Parent Perspectives of Neonatal Intensive Care at the End-of-Life

Creator

Currie ER; Christian BJ; Hinds PS; Perna SJ; Robinson C; Day S; Meneses K

Identifier

10.1016/j.pedn.2016.03.023

Publisher

Journal of Pediatric Nursing

Date

2016

Subject

Intensive Care Neonatal/st [standards]; Palliative Care/mt [methods]; Parents/px [psychology]; Professional-family Relations; Terminal Care/px [psychology]; Adaptation Psychological; Adult; Bereavement; Decision Making; Female; Humans; Infant Newborn; Intensive Care Neonatal/td [trends]; Intensive Care Units Neonatal; Interviews As Topic; Male; Palliative Care/px [psychology]; Perception; Qualitative Research; Stress Psychological; Terminal Care/mt [methods]; United States

Description

This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. "Life and death in the NICU environment" emerged as the primary theme with the following categories: ups and downs of parenting in the NICU, decision-making challenges in the NICU, and parent support. Parents encountered challenges with areas for improvement for end-of-life and palliative care in the NICU. Further research is necessary to understand barriers with integrating palliative care and curative care in the NICU, and how NICU care affects bereavement and coping outcomes after infant death.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2017 List

URL Address

http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=27261370

Notes

Currie, Erin R
Christian, Becky J
Hinds, Pamela S
Perna, Samuel J
Robinson, Cheryl
Day, Sara
Meneses, Karen
S0882-5963(16)30004-5

Citation

Currie ER; Christian BJ; Hinds PS; Perna SJ; Robinson C; Day S; Meneses K, “Parent Perspectives of Neonatal Intensive Care at the End-of-Life,” Pediatric Palliative Care Library, accessed August 1, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11037.

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