Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program

Title

Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program

Creator

Parravicini E; Daho M; Foe G; Steinwurtzel R; Byrne M

Identifier

Publisher

Journal of Perinatology

Date

2018

Subject

Palliative Care/mt [Methods]; Parents/px [Psychology]; Patient Comfort/st [Standards]; Adult; Female; Humans; Infant; Intensive Care; Male; Neonatal/og [Organization & Administration]; New York; Newborn; Patient Care Team/og [Organization & Administration]; Practice Guidelines as Topic; Prospective Studies; Qualitative Research; Surveys and Questionnaires; Young Adult

Description

OBJECTIVE: To assess the perception of parents concerning the state of comfort maintained in their infants born with life-limiting conditions and treated by a standardized neonatal comfort care program. STUDY DESIGN: Participants were parents (n=35 families) who elected comfort care for their newborns diagnosed with life-limiting conditions. Standardized comfort measures including family/infant bonding, warmth, nutrition/hydration and pain/discomfort management were provided to all infants. Parents consented to receive a questionnaire with quantitative response options and open-ended questions. RESULTS: Forty-two questionnaires (26 from mothers and 16 from fathers) were collected and analyzed. Most parents reported that their child was treated with respect, in a caring, peaceful and non-invasive environment. To the question 'Do you think that overall your baby received comfort' mode response was 'always'. CONCLUSION: Parents of infants with life-limiting conditions perceive that their babies experience comfort as a result of the care provided by the standardized Neonatal Comfort Care Program.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2019 List

Collection

Citation

Parravicini E; Daho M; Foe G; Steinwurtzel R; Byrne M, “Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program,” Pediatric Palliative Care Library, accessed May 27, 2022, https://pedpalascnetlibrary.omeka.net/items/show/16537.

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