End of living: maintaining a lifeworld during terminal illness

Title

End of living: maintaining a lifeworld during terminal illness

Creator

Wrubel J; Acree M; Goodman S; Folkman S

Publisher

Psychology & Health

Date

2009

Subject

Female; Humans; Male; Adult; Interviews as Topic; Questionnaires; Aged; Middle Aged; Attitude to Death; Terminally Ill/psychology; Neoplasms/psychology; Acquired Immunodeficiency Syndrome/psychology; San Francisco; New York City

Description

The narrative responses of 32 people with AIDS or cancer with survival prognoses of 6 months to a year to monthly interview questions about their daily lives were analysed with a team-based qualitative methodology. Two groups emerged: (a) a Maintained Lifeworld Group characterised by one or more of the following: continued engagement with family, friends, and community; the ability to relinquish untenable goals and substitute new, realistic ones; engagement in spirituality and a spiritual practice; and, (b) a Lifeworld Interrupted Group characterised by one or more of the following: relocation just before or during the study, cognitive impairment, commitment to untenable goals, ongoing substance abuse. Understanding how people with a terminal illness can maintain a lifeworld and experience well-being while also managing the physical challenges of their illness could help inform the support offered by professional and family caregivers to improve care recipients' quality of life.
2009

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

1229-1243

Issue

10

Volume

24

Citation

Wrubel J; Acree M; Goodman S; Folkman S, “End of living: maintaining a lifeworld during terminal illness,” Pediatric Palliative Care Library, accessed December 4, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14287.

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