Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation

Title

Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation

Creator

Rudolf I; Pieper K; Nolte H; Junge S; Dopfer C; Sauer-Heilborn A; Ringshausen F C; Tummler B; von Jan U; Albrecht U V; Fuge J; Hansen G; Dittrich A M

Identifier

Publisher

JMIR mHealth and uHealth

Date

2019

Subject

Adolescence; adolescent; adult; anthropometry; article; breathing; child; chronic lung disease; clinical article; controlled study; cystic fibrosis; disability; female; human; life expectancy; life satisfaction; lung function; male; mobile application; mobile phone; quality of life; questionnaire; responsibility; self care; young adult

Description

BACKGROUND: Cystic fibrosis (CF) continues to be the most common life-limiting chronic pulmonary disease in adolescents and young adults. Treatment of CF demands a high treatment time investment to slow the progression of lung function decline, the most important contributor to morbidity and mortality. Adherence is challenging in CF due to the high treatment burden and the lack of immediate health consequences in case of nonadherence. Lung function decline is particularly pronounced in the transition phase between 12 and 24 years of age. The improvement of self-management and self-responsibility and independence from parents and desire for normalcy are conflicting aspects for many adolescents with CF, which influence adherence to the time-consuming pulmonary therapy. Mobile health (mHealth) care apps could help to support self-management and independence and thereby reconcile seemingly conflicting goals to improve adherence, quality of life, and ultimately CF life expectancy.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

February 2020 List

Collection

Citation

Rudolf I; Pieper K; Nolte H; Junge S; Dopfer C; Sauer-Heilborn A; Ringshausen F C; Tummler B; von Jan U; Albrecht U V; Fuge J; Hansen G; Dittrich A M, “Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation,” Pediatric Palliative Care Library, accessed August 1, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16905.

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