The search for social safety and comfort in families raising children with complex chronic conditions

Title

The search for social safety and comfort in families raising children with complex chronic conditions

Creator

Rehm RS; Bradley JF

Publisher

Journal Of Family Nursing

Date

2005

Subject

Child; Female; Humans; Male; United States; Adult; Interpersonal Relations; Social Adjustment; Family Nursing; Preschool; Adaptation; Psychological; Family/psychology; Parent caregivers; Chronic Disease/nursing/psychology; Developmental Disabilities/nursing/psychology; Leisure Activities

Description

Social consequences of raising children who were medically fragile and developmentally delayed (MF/DD) were explored in an ethnographic study of 20 families with school-age children. The overarching theme was the families' search for safety and comfort in social situations. Major categories comprising this theme included the need to anticipate and plan for the child's care; overcoming environmental, child-related, and attitudinal barriers; and finding social activities that were comfortable for all members of the family. When this search was successful, families could relax, and all members could participate in a variety of social encounters and activities; but when safety and comfort could not be achieved, families were likely to limit social activities or split the family so that the child who was MF/DD could be cared for while other family members participated in social events.
2005

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

59-78

Issue

1

Volume

11

Citation

Rehm RS; Bradley JF, “The search for social safety and comfort in families raising children with complex chronic conditions,” Pediatric Palliative Care Library, accessed October 19, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13378.

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