Promoting resilience among parents and caregivers of children with cancer

Title

Promoting resilience among parents and caregivers of children with cancer

Creator

Rosenberg AR; Baker KS; Syrjala KL; Back AL; Wolfe J

Publisher

Journal Of Palliative Medicine

Date

2013

Subject

Child; Female; Humans; Male; Young Adult; bereavement; Neoplasms; Terminal Care; Adult; Parents; Aged; Middle Aged; caregivers; Qualitative Research; Hospitals; Washington; Preschool; Psychological; Parent caregivers; Resilience; Urban

Description

BACKGROUND: Promoting resilience is an aspect of psychosocial care that affects patient and whole-family well-being. There is little consensus about how to define or promote resilience during and after pediatric cancer. OBJECTIVES: The aims of this study were (1) to review the resilience literature in pediatric cancer settings; (2) to qualitatively ascertain caregiver-reported perceptions of resilience; and (3) to develop an integrative model of fixed and mutable factors of resilience among family members of children with cancer, with the goal of enabling better study and promotion of resilience among pediatric cancer families. METHODS: The study entailed qualitative analysis of small group interviews with eighteen bereaved parents and family members of children with cancer treated at Seattle Children's Hospital. Small-group interviews were conducted with members of each bereaved family. Participant statements were coded for thematic analysis. An integrative, comprehensive framework was then developed. RESULTS: Caregivers' personal appraisals of the cancer experience and their child's legacy shape their definitions of resilience. Described factors of resilience include baseline characteristics (i.e., inherent traits, prior expectations of cancer), processes that evolve over time (i.e., coping strategies, social support, provider interactions), and psychosocial outcomes (i.e., post-traumatic growth and lack of psychological distress). These elements were used to develop a testable model of resilience among family members of children with cancer. CONCLUSIONS: Resilience is a complex construct that may be modifiable. Once validated, the proposed framework will not only serve as a model for clinicians, but may also facilitate the development of interventions aimed at promoting resilience in family members of children with cancer.
2013-06

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Citation

Rosenberg AR; Baker KS; Syrjala KL; Back AL; Wolfe J, “Promoting resilience among parents and caregivers of children with cancer,” Pediatric Palliative Care Library, accessed January 28, 2023, https://pedpalascnetlibrary.omeka.net/items/show/14726.

Social Bookmarking