Browse Items · Pediatric Palliative Care Library

A call to action: the need to recognize the importance of sleep for children and adolescents in pediatric palliative care

Extract A global call to action was recently proposed to recognize sleep health as a foundation of human health [1]. The importance of good sleep and the negative impact of sleep deficiency on physical and emotional well-being have been extensively…

Tags: 2025, July List 2025, Mercante A, Owens J, Sleep

Towards new perspectives: International consensus guidance on dystonia in pediatric palliative care

Background Pediatric dystonias are associated with a broad spectrum of etiologies, resulting in a heterogeneous patient population in whom clinical presentation, evolution, and therapeutic needs may differ. These neurological symptoms are…

Tags: 2025, Benini F, Bernadá M, Coubes P, Drake R, European Journal of Paediatric Neurology, Fasano A, Fernandez-Alvarez E, Gemma M, Hauer J, June List 2025, Kreicbergs U, Lin JP, Lumsden DE, Mercante A, Nardocci N, Palomo-Carrión R

Specialized pediatric palliative care in Italy: where are we going? The Palliped 2022-2023 study

Abstract Background: The PalliPed project is a nationwide, observational, cross-sectional study designed with the aim of providing a constantly updated national database for the census and monitoring of specialized pediatric palliative care (PPC)…

Tags: 2025, Benini F, Child, Cross-sectional Studies, Di Nunzio S, Female, Humans, Italian Journal of Pediatrics, Italy, March List 2025, Mercante A, Palliative Care, Palliative Care/og [Organization & Administration], Papa S, Pediatrics, Pediatrics/og [Organization & Administration], Surveys And Questionnaires

A 15-year experience in pediatric palliative care: a retrospective hospital-based study

BACKGROUND: The current Italian scenario of pediatric palliative care (PPC) services is characterized by inadequate coverage of the territory. Therefore, it is important to improve the referral of patients to the most appropriate setting (community…

A Nationwide Study to Evaluate Accessibility to Specialized Pediatric Palliative Care in Italy-Patients, Needs, and Critical Issues: The PalliPed Study

Background: PalliPed is the first Italian nationwide project aimed at describing the characteristics of patients accessing specialized pediatric palliative care (PPC) and their families, in the main care settings (hospice, home care, and hospital).…

Tags: 2024, Adolescent, Agosto C, Albanesi B, Amarri S, Article, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Benini F, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, Child, Controlled Study, De Marinis MG, De Tommasi V, De Zen L, Di Nunzio S, Diagnosis, Divisic A, Dolcini A, family support, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Health Care Personnel, Home Care, Human, Iadelica A, Infant, Italy, Journal of Palliative Medicine, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Maternal care, Mazzoni E, Mercante A, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, October List 2024, Orofino R, Palliative Therapy, Paone G, Papa S, Patient Referral, Pediatrician, Pellegatta F, Peruselli C, Piccolruaz UV, Prenatal Care, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, terminal disease, Thaler M, Therapy, Tornesello A, Uez F, Vaccher S, Vezzoli C, Young Adult, Zanin A, Ziggiotto S

International consensus on sleep problems in pediatric palliative care: Paving the way

Objective Sleep problems constitute a common and heterogeneous complaint in pediatric palliative care (PPC), where they often contribute to disease morbidity and cause additional distress to children and adolescents and their families already facing…

Tags: 2024, Amarri S, Angelhoff C, Avagnina I, Baker J, Benini F, Bergstraesser E, Bernadá M, Bin-Hasan S, Blankenburg M, Bogetz J, Bruni O, Castronovo V, Catalano I, Ceranoglu TA, Chan K Ching C, Chong PH, complex healthcare needs, Consensus, Crabtree V, de Oliveira ISB, De Zen L, Downing J, Fagondes S, Farquhar M, Ferreira EAL, Ferreira R, Ferri R, Findling RL, Frühwald M, Goh DYT, Gradisar M, Gringras P, Hauch H, Hauer J, Huijer HAS, July List 2024, Keenan S, Kreicbergs U, Kudchadkar SR, Kuhn BR, Lacerda A, Lazzarin P, Li A, Li Shirley X, Lopes MC, Lopez JGDA, Marinetto A, Martino-Alba R, Matlen L, Mercadante S, Mercante A, Mindell J, Moreira GA, Narang I, Nilsson F, Nobili L, Noce S, Nosetti L, Nunes ML, Oliveira L, Owens J, Palliative Care, Papa S, Pediatric Palliative Care, Pizza F, Plazzi G, Ragsdale L, Rios M, Santini A, Santos CF, Sejersen T, Sheldon SH, Siden H, Simakajornboon N, Sleep, Sleep Medicine, sleep problems, Soster LA, Spruyt K, Stenmarker M, Strambi LF, Streuli J, Suh S, Traslaviña GAA, Verrillo E, Wang G, Wille J, Wolfe J, Wolfson AR, Zanin A, Zernikow B, Zhou ES

Pediatric Palliative Care: Insights into Assessment Tools andReview Instruments

The proper assessment of needs and outcomes in pediatric palliative care (PPC) is imperativeto ensure the best possible service to patients and families. However, given the multidimensionalnature of PPC, the low number of patients in this setting,…

Tags: 2023, assessment tools, Benini F, Children (Basel), Giacomelli L, Mercante A, October List 2043, Pain, Palliative Care, Papa S, Pediatric Palliative Care, Quality Of Life, Symptoms

International Project on Troublesome Symptoms in Paediatric Palliative Care Will Focus on Neuro-Irritability, Dystonia and Sleep Disorders

The World Health Organization describes paediatric palliative care (PPC) as the active total care of the child's body, mind and spirit and supporting their family.1 It should be established as early as possible and continued along the entire disease…

Tags: 2023, Acta Paediatrica, Avagnina I, Benini F, Dystonia, Giacomelli L, March List 2023, Mercante A, Palliative Care, Sleep Disorders

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