Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework

Title

Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework

Creator

Aultman JM; Raimer PL; Grossoehme DH; Nofziger RA; Ba A; Friebert S

Identifier

Publisher

Journal of Clinical Ethics

Date

2023

Subject

child; human; palliative therapy; empathy; caregiver; patient; extracorporeal oxygenation

Description

AbstractThere is a critical need to establish a space to engage in careful deliberation amid exciting, important, necessary, and groundbreaking technological and clinical advances in pediatric medicine. Extracorporeal membrane oxygenation (ECMO) is one such technology that began in pediatric settings nearly 50 years ago. And while not void of medical and ethical examination, both the symbolic progression of medicine that ECMO embodies and its multidimensional challenges to patient care require more than an intellectual exercise. What we illustrate, then, is a person-centered framework that incorporates the philosophy and practice of palliative care and care-based ethical approaches. This person-centered framework is valuable for identifying and understanding challenges central to ECMO, guides collaborative decision-making, and recognizes the value of relationships within and between patients, families, healthcare teams, and others who impact and are impacted by ECMO. Specifically, this person-centered approach enables caregivers to provide compassionate and effective support in critical, and often urgent, situations where conflicts may emerge among healthcare team members, families, and other decision makers. By reflecting on three cases based on actual situations, we apply our person-centered framework and identify those aspects that were utilized in and informed this project. We aim to fill a current gap in the pediatric ECMO literature by presenting a person-centered framework that promotes caregiving relationships among hospitalized critically ill children, families, and the healthcare team and is supported through the philosophy and practice of palliative care and clinical ethics.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

February List 2024

Collection

Citation

Aultman JM; Raimer PL; Grossoehme DH; Nofziger RA; Ba A; Friebert S, “Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework,” Pediatric Palliative Care Library, accessed July 21, 2024, https://pedpalascnetlibrary.omeka.net/items/show/19464.