Differences in characteristics of dying children who receive and do not receive palliative care

Title

Differences in characteristics of dying children who receive and do not receive palliative care

Creator

Keele L; Keenan HT; Sheetz J; Bratton SL

Publisher

Pediatrics

Date

2013

Subject

adolescent; Child; Female; Humans; infant; Male; retrospective studies; United States; Intensive Care Units; Palliative Care; Terminal Care; Cohort Studies; Hospital Mortality; cause of death; Age Factors; Length of Stay; Hospitals; Utilization Review; Neonatal; Palliative Care; Pediatric; Preschool; Newborn; location of death; Pediatric palliative care; complex chronic conditions

Description

OBJECTIVE: Comparing demographic and clinical characteristics associated with receipt of palliative care (PC) among children who died in children's hospitals to those who did not receive PC and understanding the trends in PC use. METHODS: This retrospective cohort study used the Pediatric Health Information System database. Children <18 years of age who died ≥5 days after admission to a Pediatric Health Information System hospital between January 1, 2001, and December 31, 2011 were included. Receipt of PC services was identified by the International Classification of Diseases, Ninth Revision code for PC. Diagnoses were grouped using major diagnostic codes. International Classification of Diseases codes and clinical transaction codes were used to evaluate all interventions. RESULTS: This study evaluated 24 342 children. Overall, 4% had coding for PC services. This increased from 1% to 8% over the study years. Increasing age was associated with greater receipt of PC. Children with the PC code had fewer median days in the hospital (17 vs 21), received fewer invasive interventions, and fewer died in the ICU (60% vs 80%). Receipt of PC also varied by major diagnostic codes, with the highest proportion found among children with neurologic disease. CONCLUSIONS: Most pediatric patients who died in a hospital did not have documented receipt of PC. Children receiving PC are different from those who do not in many ways, including receipt of fewer procedures. Receipt of PC has increased over time; however, it remains low, particularly among neonates and those with circulatory diseases.
2013-07

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

72-78

Issue

1

Volume

132

Citation

Keele L; Keenan HT; Sheetz J; Bratton SL, “Differences in characteristics of dying children who receive and do not receive palliative care,” Pediatric Palliative Care Library, accessed September 19, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14668.

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