The association between environmental events and self-injurious behaviour in Cornelia de Lange syndrome

Title

The association between environmental events and self-injurious behaviour in Cornelia de Lange syndrome

Creator

Moss J; Oliver C; Hall S; Arron K; Sloneem J; Petty J

Publisher

Journal of Intellectual Disability Research

Date

2005

Subject

Adolescent Child; Child; Preschool; De Lange Syndrome/ep [Epidemiology]; Environment; Female; Humans; Male; Self-Injurious Behavior/di [Diagnosis]; Self-Injurious Behavior/ep [Epidemiology]; Self-Injurious Behavior/px [Psychology]; Severity of Illness Index; behavioral problems; De Lange syndrome; trajectory; characteristics; self-injurious behavior

Description

BACKGROUND: There has been limited empirical research into the environmental causes of self-injury in Cornelia de Lange syndrome. The present study examined the variability of self-injurious behaviour in Cornelia de Lange syndrome across environmental setting events. Additionally, the association between setting events and more specific environmental events was examined. METHOD: A descriptive analysis of observational data on eight children with Cornelia de Lange syndrome aged between 4 and 14 years was carried out. The association between self-injurious behaviour and four environmental setting events and between specific environmental events and setting events was examined using established statistical methods for observational data. RESULTS: Seven out of eight of the participants showed at least one form of self-injurious behaviour that was associated with a particular setting event. The study also demonstrated that the relationship between setting events and environmental events is extremely variable across individuals. CONCLUSIONS: Self-injurious behaviour in some individuals with Cornelia de Lange syndrome is associated with environmental events although the precise nature of the association warrants clarification. Using broad setting events as a methodological tool in isolation provides some insight into the role of specific environmental factors in maintaining self-injurious behaviour but the integrity of setting events must be established.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation

Moss J; Oliver C; Hall S; Arron K; Sloneem J; Petty J, “The association between environmental events and self-injurious behaviour in Cornelia de Lange syndrome,” Pediatric Palliative Care Library, accessed December 6, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16754.

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