Browse Items · Pediatric Palliative Care Library

Narrative Diaries in Paediatric Palliative Care: A Scoping Review

Aim: The aim of the study was to offer a comprehensive overview about literature on narrative diaries in paediatric palliative care. Methods: A scoping review was conducted in accordance with the methods of Arksey and O'Malley. Results: Among 83…

Tags: 2025, Acta Paediatrica, April List 2025, Benini F, Carraro C, Lazzarin P, Marinetto A, Santini A, Zanin A

A 15-year experience in pediatric palliative care: a retrospective hospital-based study

BACKGROUND: The current Italian scenario of pediatric palliative care (PPC) services is characterized by inadequate coverage of the territory. Therefore, it is important to improve the referral of patients to the most appropriate setting (community…

A Nationwide Study to Evaluate Accessibility to Specialized Pediatric Palliative Care in Italy-Patients, Needs, and Critical Issues: The PalliPed Study

Background: PalliPed is the first Italian nationwide project aimed at describing the characteristics of patients accessing specialized pediatric palliative care (PPC) and their families, in the main care settings (hospice, home care, and hospital).…

Tags: 2024, Adolescent, Agosto C, Albanesi B, Amarri S, Article, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Benini F, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, Child, Controlled Study, De Marinis MG, De Tommasi V, De Zen L, Di Nunzio S, Diagnosis, Divisic A, Dolcini A, family support, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Health Care Personnel, Home Care, Human, Iadelica A, Infant, Italy, Journal of Palliative Medicine, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Maternal care, Mazzoni E, Mercante A, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, October List 2024, Orofino R, Palliative Therapy, Paone G, Papa S, Patient Referral, Pediatrician, Pellegatta F, Peruselli C, Piccolruaz UV, Prenatal Care, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, terminal disease, Thaler M, Therapy, Tornesello A, Uez F, Vaccher S, Vezzoli C, Young Adult, Zanin A, Ziggiotto S

International consensus on sleep problems in pediatric palliative care: Paving the way

Objective Sleep problems constitute a common and heterogeneous complaint in pediatric palliative care (PPC), where they often contribute to disease morbidity and cause additional distress to children and adolescents and their families already facing…

Tags: 2024, Amarri S, Angelhoff C, Avagnina I, Baker J, Benini F, Bergstraesser E, Bernadá M, Bin-Hasan S, Blankenburg M, Bogetz J, Bruni O, Castronovo V, Catalano I, Ceranoglu TA, Chan K Ching C, Chong PH, complex healthcare needs, Consensus, Crabtree V, de Oliveira ISB, De Zen L, Downing J, Fagondes S, Farquhar M, Ferreira EAL, Ferreira R, Ferri R, Findling RL, Frühwald M, Goh DYT, Gradisar M, Gringras P, Hauch H, Hauer J, Huijer HAS, July List 2024, Keenan S, Kreicbergs U, Kudchadkar SR, Kuhn BR, Lacerda A, Lazzarin P, Li A, Li Shirley X, Lopes MC, Lopez JGDA, Marinetto A, Martino-Alba R, Matlen L, Mercadante S, Mercante A, Mindell J, Moreira GA, Narang I, Nilsson F, Nobili L, Noce S, Nosetti L, Nunes ML, Oliveira L, Owens J, Palliative Care, Papa S, Pediatric Palliative Care, Pizza F, Plazzi G, Ragsdale L, Rios M, Santini A, Santos CF, Sejersen T, Sheldon SH, Siden H, Simakajornboon N, Sleep, Sleep Medicine, sleep problems, Soster LA, Spruyt K, Stenmarker M, Strambi LF, Streuli J, Suh S, Traslaviña GAA, Verrillo E, Wang G, Wille J, Wolfe J, Wolfson AR, Zanin A, Zernikow B, Zhou ES

Rights of the Dying Child: The Nurses' Perception

Aim: The Charter of the Rights of the Dying Child was formulated as a professional guide for caring the child in the final stages. The study examines the nurses' degree of agreement with the Charter's principles and their perception of the…

The Intervention Areas of the Psychologist in Pediatric Palliative Care: A Retrospective Analysis

Infants, children and adolescents with life-limiting and life-threatening disease need long-term care that may change according to disease's natural history. With the primary goal of quality of life, the psychologist of pediatric palliative care…

Tags: 2022, Avagnina I, Benini F, biopsychosocial model, De Tommasi V, Frontiers in Psychology, intervention areas, Lazzarin P, Marinetto A, May 2022 List, Pediatric Palliative Care (ppc), Perilongo G, Psychologist, retrospective analysis, Santini A

International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS

CONTEXT: Since the publication of the IMPaCCT project in 2007, much effort has been made to develop new approaches to pediatric palliative care (PPC). Fifteen years later, it is time to redefine the standards in PPC. OBJECTIVES: An international…

COVID-19 in pediatric palliative care: what can we learn from the pandemic and possible future directions

INTRODUCTION: Patients in pediatric palliative care (PPC) live with multiple comorbidities which represent a risk factor for severe form of COVID-19. METHODS: This monocentric retrospective study was performed at the PPC Center of Padua (Italy).…

Tags: 2021, Annali dell'Istituto Superiore di Sanità, Avagnina I, Benini F, Child, COVID-19, Epidemiology, Giacomelli L, Grigolon E, Humans, Lazzarin P, March 2022 List, Palliative Care, Pandemics, Papa S, Retrospective Studies, SARS-CoV-2, Shahi A, Zanin A

Parents spend an average of nine hours a day providing palliative care for children at home and need to maintain an average of five life-saving devices

AIM: This Italian study investigated home-based palliative care for young children and how long it took parents to meet their needs. METHODS: The study population consisted of 33 families with a child under the responsibility of the Veneto Regional…

Tags: 2017, Acta Paediatrica, Benini F, Brugnaro L, Carers, Home-based Care, Lazzarin P, Life-limiting Diseases, November 2017 List, paediatric palliative care, Parents, Schiavon B

The Rights Of The Dying Child And The Duties Of Healthcare Providers: The "trieste Charter"

Tags: 2017, April 2017 List, Benini F, Child, Drigo P, Gangemi M, Health Personnel, Human Rights, Humans, Italy, Jankovic M, Lazzarin P, Manfredini L, Orsi L, Orzalesi M, Sellaroli V, Spizzichino M, Terminally Ill, Tumori, Vecchi R

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