Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention

Title

Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention

Creator

Burles M; Bally JMG; Holtslander L; Zimmer M; Hodgson-Viden H

Publisher

Children's Health Care

Date

2023

Subject

Child; Only Child

Description

ABSTRACT Parents of seriously ill children face complex experiences for which support is valuable. We evaluated the Keeping Hope Possible Toolkit with 16 parental caregivers to assess feasibility and acceptability using a quasi-experimental design. Participants used the Toolkit for two to four weeks, and completed quantitative measures of hope, self-efficacy, uncertainty, and distress pre- and post-intervention and a qualitative interview. The measures were appropriate, despite no significant differences across timepoints. Qualitatively, the Toolkit supported hope, positive experiences, and navigation of emotions, confirming acceptability and feasibility following minor refinement. Findings will inform future research and subsequent implementation within family-centered pediatric healthcare.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November List 2023

Collection

Citation

Burles M; Bally JMG; Holtslander L; Zimmer M; Hodgson-Viden H, “Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention,” Pediatric Palliative Care Library, accessed July 17, 2024, https://pedpalascnetlibrary.omeka.net/items/show/19361.