Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention
Title
Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention
Creator
Burles M; Bally JMG; Holtslander L; Zimmer M; Hodgson-Viden H
Identifier
Publisher
Children's Health Care
Date
2023
Subject
Child; Only Child
Description
ABSTRACT Parents of seriously ill children face complex experiences for which support is valuable. We evaluated the Keeping Hope Possible Toolkit with 16 parental caregivers to assess feasibility and acceptability using a quasi-experimental design. Participants used the Toolkit for two to four weeks, and completed quantitative measures of hope, self-efficacy, uncertainty, and distress pre- and post-intervention and a qualitative interview. The measures were appropriate, despite no significant differences across timepoints. Qualitatively, the Toolkit supported hope, positive experiences, and navigation of emotions, confirming acceptability and feasibility following minor refinement. Findings will inform future research and subsequent implementation within family-centered pediatric healthcare.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
November List 2023
URL Address
Collection
Citation
Burles M; Bally JMG; Holtslander L; Zimmer M; Hodgson-Viden H, “Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention,” Pediatric Palliative Care Library, accessed April 28, 2024, https://pedpalascnetlibrary.omeka.net/items/show/19361.