When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices

Title

When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices

Creator

Wiener L; Zadeh S; Wexler LH; Pao M

Identifier

Publisher

Pediatric Blood & Cancer

Date

2013

Description

Managing end-of-life care (EoL) is always emotionally taxing. Honest discussions about prognosis and EoL decision-making are often delayed due to questions about the legal competence of adolescents and young adults (AYA) to make decisions for themselves [1], providers feeling unprepared or without adequate skills to guide EoL discussions, or parental concern that discussing plans, including life support options or presenting an EoL planning document may send the message that the medical team wishes to withdraw care or that death is imminent. Data suggest that allowing AYA involvement in EoL planning can help parents and healthcare providers make informed decisions, alleviate distress, avoid decisional regret, and perhaps improve the patient’s quality of life (QoL) by respecting their values, beliefs ,and preferences [2–4]. This commentary addresses recent progress in the field and focuses on how healthcare professionals can approach advance care planning (ACP) with AYA, involve their family members, and engage the entire health care team.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

July 2018 List

Pages

715-8

Issue

5

Volume

60

Collection

Citation

Wiener L; Zadeh S; Wexler LH; Pao M, “When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices,” Pediatric Palliative Care Library, accessed September 18, 2018, https://pedpalascnetlibrary.omeka.net/items/show/15174.

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