Browse Items (291 total)
- Tags: Newborn
Diversity of Parent Emotions and Physician Responses During End-of-Life Conversations
Tags: 2023, Akkermans AA, Child, Child Parent Relation, Critical Illness, de Hoog M, de Vos MA, Death, Dijk PH, Emotion, Human, Kneyber MCJ, Linn AJ, Newborn, October List 2039, Pediatrics, Physician, Prins S, Psychology, Simons SHP, Smets EMA, van de Loo M, van Heerde M, van Kaam AHLC, van Woensel JBM
Driscoll Children's Hospital respiratory syncytial virus database: risk factors, treatment and hospital course in 3308 infants and young children, 1991 to 2002
Tags: 2004, Antiviral Agents/therapeutic use, Backlog, Databases, Factual, Fergie J, Hospitalization, Human, Humans, Infant, Intensive Care Units, Journal Article, Length Of Stay, Mechanical, Medical Records, Newborn, Pediatrics, Premature, Purcell K, Respiratory Syncytial Virus, Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology, Respiratory Tract Infections/drug therapy/physiopathology/virology, Ribavirin/therapeutic use, Risk Factors, Severity Of Illness Index, The Pediatric Infectious Disease Journal, Ventilators
Duration and morbidity of newly diagnosed idiopathic thrombocytopenic purpura in children: A prospective Nordic study of an unselected cohort
Tags: 2003, Adolescent, Backlog, Child, Cohort Studies, Elinder G, Female, Hedlund-Treutiger I, Hemorrhage/diagnosis/etiology/therapy, Henter JI, Humans, Idiopathic/complications/diagnosis/therapy, Infant, Jonsson OG, Journal Article, Male, Newborn, NOPHOITP Working Group, Platelet Count, Preschool, Prospective Studies, Purpura, Rajantie J, Risk Assessment, Rosthoj S, Scandinavia, Severity Of Illness Index, The Journal Of Pediatrics, Thrombocytopenic, Time Factors, Wesenberg F, Zeller B
Early neurodevelopmental outcomes of extremely preterm infants
Tags: 2016, Adhd, Biomedical Research, Brain/embryology/ physiopathology, Cerebral Palsy, Developmental Disabilities/etiology/ physiopathology, Diseases/ physiopathology, Extremely Premature/growth & development/physiology/psychology, Fetal Organ Maturity, Hintz SR, Humans, Infant, Intellectual Impairment, intraventricular hemorrhage, March 2018 List, Neonatology, Nervous System Diseases/etiology/ physiopathology, neurodevelopment, Neurodevelopmental Outcomes, Newborn, Premature, preterm birth, Risk Factors, Rogers EE, Seminars in Perinatology, sensory impairment, Survival Rate/trends, Very Low Birth Weight/growth & development/physiology/psychology, white matter injury
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions"
Tags: 2019, anxiety, Article, Brumarie L, Callahan K, Child Parent Relation, Cohort Analysis, Comfort, Congenital Heart Disease, Controlled Study, emotional attachment, Female, Health Care Quality, Human, Infant, Journal of perinatology : official journal of the California Perinatal Association., Male, Mental Stress, Newborn, November 2019 List, Palliative Therapy, Parravicini E, Prospective Study, Schechter S, Steinwurtzel R
Effect of severity of disability on survival in north east England cerebral palsy cohort
Tags: 2000, Archives of Disease in Childhood, Backlog, Birth Weight, Cause Of Death, Cerebral Palsy/mortality, Cohort Studies, Colver AF, Disability Evaluation, England/epidemiology, Female, Human, Hutton JL, Infant, Journal Article, Life Expectancy, Life Style, Mackie PC, Male, Newborn, Non-U.S. Gov't, Prognosis, Risk Factors, Sex Distribution, Support, Survival Rate
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Tags: 2019, Anales de Pediatria., Article, Barbieri G, Bellavia N, Bereavement Support, Bermudez Cortes M D M, Child, Controlled Study, Death, End-of-life Care, Female, Galera Minarro A M, Garcia-Marcos B P, Human, Human Experiment, Improvements, Male, Navarro M A, Newborn, Observational Study, October 2019 List, Paediatric, Palliative Care, Palliative Therapy, Parental Perspectives, Pediatrician, Pediatrics, Plaza Fornieles M, Questionnaire, Retrospective Study, Satisfaction, shared decision making, Survey, Terminal Care
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
Tags: 2018, Article, Aujoulat I, Bmc Pediatrics, Broux I, Brussels Capital Region, Cavatorta E, Charon A, Clinical Practice, Debauche C, Dussart A, Female, Flausch M, Gestational Age, Haumont D, Henrard S, Henrion E, Human, Infant, Johansson AB, Kalenga M, Langhendries JP, Lecart C, Major Clinical Study, Male, Marechal Y, Maton P, Mostaert A, Muller MF, Neonatologist, Neonatology, Newborn, Palliative Therapy, perinatal period, Prematurity, Qualitative Research, Questionnaire, September 2018 List, Sepulchre B, Terminal Care, Uncertainty, Van Herreweghe I, Van Overmeire B, Vanden ES, Verellen G, Vermeylen D, Vlieghe V, Wallonia
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Tags: 2015, Abortion, Adult, Aged, Alvarez-del-Rio A, Attitude Of Health Personnel, Attitude To Death, Decision Making, Euthanasia, Female, Fetal Diseases, Grether P, Humans, Induced/psychology, Infant, Lisker R, Loria A, Male, Mexico, Middle Aged, Newborn, Nurses/psychology, Palliative Care/psychology, Passive/psychology, Perinatal Care, Perinatal Death, Physicians/psychology, Pregnancy, Religion, Salud Publica De Mexico, Social Workers/psychology, Terminal Care/psychology, Young Adult
Establishing need for palliative care services for children/young people
Tags: 2003, Adolescent, Adult, Backlog, British Journal Of Nursing, Cause Of Death, Child, Child Health Services/organization & administration, Davies R, Epidemiologic Methods, Female, Humans, Incidence, Infant, Infant Mortality, Journal Article, Male, Mortality, Newborn, Palliative Care, Preschool, Wales/epidemiology
Ethics at the end of life in the newborn intensive care unit: Conversations and decisions
Tags: 2023, active euthanasia, Artificial Ventilation, Bioethics, Controlled Study, Conversation, Critically Ill Patient, Decision Making, Ethics, Gillam L, Human, Hydration, hypoxic ischemic encephalopathy, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Mercurio MR, Neonatal Intensive Care Unit, Neonatologist, Newborn, Nutrition, Resuscitation, Review, Seminars in Fetal and Neonatal Medicine, Treatment Withdrawal
Ethics Roundtable: How Much is Too Much?
Tags: 2023, American Journal of Hospice and Palliative Medicine, Carmi syndrome, Carter B, DiBartolomeo M, end-of-life, epidermolysis bullosa, Ethics, February List 2023, Gastric Outlet Obstruction, Hays J, Humans, Infant, Life-limiting Condition, Newborn, Palliative Care, Premature Ectodermal Dysplasia Pylorus/abnormalities, Theodoro MF
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Experience of Perinatal Death From the Father's Perspective
Experience with neonatal palliative care consultation at the Medical College of Wisconsin-Children's Hospital of Wisconsin
Extreme prematurity and parental rights after Baby Doe
Tags: 2004, Abnormalities, Backlog, Child Advocacy/legislation & jurisprudence, Civil Rights/legislation & jurisprudence, Disabled Persons/legislation & jurisprudence, Euthanasia, Humans, ICU Decision Making, Infant, Journal Article, Multiple, Neonatology/legislation & jurisprudence, Newborn, Parents, Passive/legislation & jurisprudence, Prejudice, Premature, Robertson JA, Texas, The Hastings Center Report
Facilitating Milk Donation in the Context of Perinatal Palliative Care
Tags: 2018, Article, Bereavement, breast feeding, breast milk, Cole JCM, Coursey AL, December 2019 List, Duren S, Farmer MC, Female, Human, Journal of obstetric, gynecologic, and neonatal nursing, Medical Decision Making, milk bank, Newborn, Oser M, Palliative Therapy, pregnant woman, Prince J, Rowlson M, Schwarz J, Spatz DL
Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China
Tags: 2022, acceptance, Adult, Aged, Analgesia, Article, Attitude, Barriers, Black BP, CARE, China, Chinese, Clinical, controlled, Death, decision, Education, emotional, Facilitators, Female, Frontiers in Pediatrics, guidance, Human, intensive, Kain VJ, Major, making, Male, middle, Multicenter, Neonatal, Newborn, Nurse, Nurses, October 2022 List, Palliative, Scale, script, simplified, Skill, Social, Song Y, study, Therapy, Unit, vocational, Well-being, Zhong Y
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Tags: 2022, Analysis, and, Article, Beltran SJ, CARE, Experience, Family, Female, for, guideline, Hamel M N, Human, Infant, intensive, Items, Male, meta, Meta-analyses, Neonatal, Newborn, October 2022 List, Palliative, Parent, Perception, Practice, Preferred, Psychological, Quality, Reporting, Review, Reviews, Satisfaction, systematic, The American Journal of Hospice & Palliative Care, Therapy, Unit, Units
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study
Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Grief and Bereavement Support for Families and Healthcare Professionals as Part of Integrated Care in Pediatric/Neonatal Intensive Care Units around the World (TH340A)
Tags: 2020, Bereavement Support, Bustamante G, Child, conference abstract, Controlled Study, Convenience Sample, Demography, Female, financial management, Gender, Grunauer M, Health Care Personnel, high income country, Human, Journal of Pain and Symptom Management, Male, March 2020 List, Neonatal Intensive Care Unit, Newborn, Newborn Death, Palliative Therapy, patient coding, Pediatric Intensive Care Unit, Perception, Prospective Study, Questionnaire, Statistical Significance, World Bank, Zambrano K
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Tags: 2015, Adolescent, Adult, Bradford N, Child, Communication, Critical Illness/px [psychology], Danby S, Ekberg S, Female, Health Personnel/px [psychology], Herbert A, Humans, Infant, Jbi Database Of Systematic Reviews And Implementation Reports, Male, March 2018 List, Newborn, Palliative Care/px [psychology], Parents/px [psychology], Preschool, Professional-family Relations, Qualitative Research, Yates P, Young Adult
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Home management of the dying NICU patient
Tags: 2003, Attitude Of Health Personnel, Backlog, Caregivers/standards, Craig F, Female, Goldman A, Holistic Health, Home Nursing, Humans, Infant, Intensive Care, Journal Article, Male, Neonatal/standards, Newborn, Palliative Care/organization & Administration, Parents/psychology, Patient Care Team/standards, Professional-family Relations, Seminars In Neonatology
Hospital care for children and young adults in the last year of life: a population-based study
Tags: 2003, Adolescent, Adult, Age Factors, Backlog, Bmc Medicine, Child, Chronic Disease/classification/mortality/therapy, DiGiuseppe DL, Female, Feudtner C, Hospital Mortality, Hospitalization/statistics & numerical data, Humans, ICU Decision Making, Infant, Journal Article, Length Of Stay, Male, Neff JM, Newborn, P.H.S., Palliative Care/organization & Administration, Preschool, Research Support, Terminal Care/utilization, Terminally Ill/statistics & numerical data, U.S. Gov't, Washington/epidemiology
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Hospital inpatient use in mainland Portugal by children with complex chronic conditions (2011 - 2015). [Portuguese]
Tags: 2019, Acta Médica Portuguesa, Adolescent, Article, Cancelinha C, cancer radiotherapy, Child, Controlled Study, Death, developed country, Female, Hospital Patient, Hospitalization, Human, Lacerda A F, Length Of Stay, Lopes S, Male, Mortality, national health service, Needs Assessment, Newborn, nonparametric test, October 2019 List, Oliveira G, Outpatient, Palliative Care, Palliative Therapy, pediatric patient, Portugal, Radiotherapy, Retrospective Study
How Do Neonatal Units Support Siblings Following Loss?-a National Survey
Tags: 2017, Archives of Disease in Childhood, Bereavement Support, Counselor, Doctor Patient Relation, England, Henderson R, Hospice, Human, Human Experiment, Minchella S, Model, Neonatal Intensive Care Unit, Newborn, Newborn Death, Nurse, Psychologist, September 2017 List, Sibling, Social Welfare, Terminal Care, Vasudevan C
How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care
Tags: 2022, Adult, Akkermans A, Article, CARE, Cherpanath TGV, Child, Clinical, Conflict, Conversation, critically, de Vos MA, decision, Emotion, Family, Female, Genetic, Health, Human, ill, intensive, Intensive Care Medicine, literacy, making, Male, Management, Morality, Newborn, Patient, Qualitative, Research, responsibility, Schultz MJ, September 2022 List, Smets EMA, Spijkers AS, transcription, Uncertainty, Unit, van de Loo M, van Heerde M, van Kaam AH, van Woensel JBM, Willems DL