Browse Items (179 total)
- Tags: Major Clinical Study
Paediatric palliative care: Are we doing enough? a retrospective review of deaths over 5 years in an academic tertiary hospital paediatric intensive care unit
Tags: 2018, Adolescent, Adult, Advanced Cancer, Analgesia, Artificial Ventilation, Cancer Patient, Cause Of Death, Child, conference abstract, Controlled Study, Demography, Drug Withdrawal, Female, Human, inotropism, Koh PL, Life Sustaining Treatment, Major Clinical Study, Male, Malignant Neoplasm, Medical History, Medical Record, Neurologic Disease, Ng MCG, November 2018 List, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, pediatric patient, Resuscitation, Retrospective Study, tertiary care center
Paediatric Palliative Care in a Reference Centre of Inherited Metabolic Diseases
Tags: 2023, Article, Child, Cohort Analysis, daily life activity, Demography, disorders of mitochondrial functions, disorders of peroxisomal functions, Endocrine, metabolic & immune disorders drug targets, Female, Ferreira AC, Gastrostomy, Home Visit, Hospital Admission, Human, lysosome, Major Clinical Study, Male, Metabolic Diseases, Metabolic Disorder, Neurologic Disease, Noninvasive Ventilation, November List 2028, Outpatient, Paiva M, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, peroxisome, Quality Of Life, Santos S, Saraiva BM, School Child, Surgery, systemic disease
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Optimizing resource utilization: Palliative care consultations in critically ill pediatric trauma patients
Tags: 2023, Adolescent, Arteaga GM, Article, Baxter J, Child, Child Abuse, childhood trauma, Clinical Feature, Consultation, Controlled Study, Critically Ill Patient, electronic medical record, Elsbernd TA, February List 2024, Female, Goswami J, Human, Infant, injury, Intensive Care Unit, Klinkner DB, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Practice Guideline, Retrospective Study, Schiltz BM, School Child, special situation for pharmacovigilance, Surgery, toddler, Total Quality Management, Trauma Surgery and Acute Care Open, traumatic brain injury
Neurological palliative care in children
Tags: 2017, Adolescent, Adult, Child, Chromosome Aberration, Controlled Study, Female, Führer M, Home Care, Hospice, Human, Icd-10, Infant, Journal Of The Neurological Sciences, Major Clinical Study, Male, March 2018 List, Metabolic Disorder, Mortality, Neoplasm, nervous system malformation, Neurology, Palliative Therapy, Preschool Child, Retrospective Study, Statistics
Neonatal serious illness: operational definition
Tags: 2023, Article, BMJ Supportive & Palliative Care, Cause Of Death, Cohort Analysis, Controlled Study, Conversation, Female, Guttmann K, Hospital care, Human, Infant, Infant Newborn, Major Clinical Study, Male, Newborn, October List 2041, Palliative Therapy, Pediatrics, Prognosis, rank sum test, Retrospective Study, Silverman R, Terminal Care, Weintraub AS
Neonatal palliative care: A single site clinical audit
Tags: 2019, Bereavement Support, Broadbent A, Cause Of Death, Child, Clinical Audit, conference abstract, Delaney A, Female, Gill K, gold, Herbert A, Hong T, Hospital Admission, Human, Journal of Paediatrics and Child Health, June 2019 List, Major Clinical Study, Male, Mickan S, Moloney S, Music Therapy, Newborn, Newborn Death, Noyes M, Nursing Staff, Palliative Therapy, Physiotherapy, Retrospective Study, Scuffham P, seashore, Social Work, Speech, Terminal Care, Weir K
Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Tags: 2018, Alabama, Bakitas M, Boss R, Chi Square Test, Child, conference abstract, Controlled Study, Currie E, Dionne-Odom JN, Ejem D, February 2019 List, Female, health disparity, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, Medical Record Review, Mississippi, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, race, Resuscitation, Statistics, Terminal Care, Wolfe J
Multiple Complex Chronic Conditions And Pediatric Hospice Utilization Among California Medicaid Beneficiaries, 2007-2010
Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Tags: 2017, Adult, Article, Burnout, Correlation Analysis, Cross-sectional Study, Demography, Distress Syndrome, Dryden-Palmer KD, Female, Gibbons C, health practitioner, Hospital care, Human, Intensive Care, January 2018 List, Larson CP, linear regression analysis, Major Clinical Study, Male, Maslach Burnout Inventory Depersonalization Subscale, Middle Aged, Mishel Parent Perception of Uncertainty Scale, Morality, Neonatal Intensive Care Unit, Nurse, outcome assessment, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Priority Journal, Prognosis, Questionnaire, Rating Scale, Revised Moral Distress Scale, Terminal Care, tertiary care center, Uncertainty, Work, Young Adult
Medication utilization for symptom management by pediatric inpatients with cancer at end-of-life
Tags: 2019, Adult, anxiety, Benzodiazepine, Black person, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Davidoff A, Death, Decision Making, do not resuscitate order, Drug Therapy, Ethnicity, Female, Gender, Hospital Patient, Hospitalization, Human, Length Of Stay, Major Clinical Study, Male, manager, Massaro S, Medicaid, Multicenter Study, Nausea, Oncology 2019 List, Opiate, Pain, patient history of bone marrow transplantation, Pediatric Blood and Cancer, pediatric patient, Prozora S, Recipient, Retrospective Study, Shabanova V, solid malignant neoplasm, tumor diagnosis, University Hospital, Young Adult
Medical assistance in dying and minors-views of the Canadian pediatrician
Tags: 2019, Catena G, Child, conference abstract, Controlled Study, Conversation, Davies D, Disability, Female, Health Care System, Human, intractable pain, Major Clinical Study, Male, Medical Care, mental disease, October 2019 List, Paediatrics and Child Health (Canada), Pediatrician, Terminal Care, terminal disease
Mechanical Ventilation In Children With Life-limiting Conditions
Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult
Little lights: Hospital bereavement photography program
Tags: 2018, August 2018 List, Bereavement, Bishop C, Bryan D, burn, Child, Child Death, conference abstract, Controlled Study, E-mail, Emergency Ward, Female, Gestational Age, hospital personnel, Human, Infant, Journal of Palliative Medicine, Light, Major Clinical Study, mourning, Nurse Practitioner, Photography, respiratory therapist, Terminal Care, Vandergrift PS, Volunteer, Work engagement
Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative Study
Tags: 2023, Article, Brannon M, breast feeding, breast pump, Brito S, Cerebral Palsy, Chahin N, Children, clinical assessment, Cognitive Defect, Cohort Analysis, Comparative Study, Congenital Heart Disease, Controlled Study, do not resuscitate order, Donor Milk, extracorporeal oxygenation, Family Centered Care, February List 2024, Female, Fox J, gastrointestinal disease, Genetic Disorder, Gestational Age, health disparity, Hendricks-Munoz KD, Hospital Admission, hospital discharge, Human, hypoxic ischemic encephalopathy, incurable disease, Infant, kidney disease, lactation, learning disorder, Length Of Stay, Life limiting condition, Lung Disease, Major Clinical Study, Male, McCarthy K, Mohammed T, Mortality, Neonatal Intensive Care Unit, Neurologic Disease, Nubayaat L, Nunlist S, nutritional deficiency, Retrospective Study, Seizure, sensory dysfunction, Williams A, Xu J
Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Tags: 2020, Burnout, Child, Clergy, conference abstract, Controlled Study, Female, Friebert S, Health Care Delivery, Health Care System, Heitner R, Hospital Patient, Human, Journal of Pain and Symptom Management, Klick J, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Physician, Practice Guideline, registered nurse, Rogers M, Social Worker, Williams C
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
International Children's Palliative Care Network: A Global Action Network for Children With Life-Limiting Conditions
Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care
Tags: 2020, Adult, Anderson A K, Article, Burke K, Child, Cohort Analysis, Controlled Study, Coombes L H, Feasibility Study, Female, Human, interrater reliability, Major Clinical Study, Male, May 2020 List, Palliative Therapy, pediatric patient, Petruckevitch A, Prospective Study, Reproducibility, The American journal of hospice & palliative care., Uncertainty
Influencing the national debate on medical assistance in dying (MAID): Leveraging the canadian paediatric surveillance system (CPSP) to inform the position of the canadian paediatric society (CPS)
Tags: 2018, Adult, Archives of Disease in Childhood, Canada, Canadian, Child, Complication, conference abstract, Conversation, Death, Disability, Female, Human, joint, June 2018 List, Law, Major Clinical Study, Male, Medical Care, Moore-Hepburn C, Morbidity, Palliative Therapy, Pediatrician, public figure, Public Health, Rare Disease, Young Adult
Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer
Tags: 2017, Advanced Cancer, Al-Sayegh H, Ananth P, Child, Childhood Cancer, Clinical Trial, Cohort Analysis, Controlled Study, Death, Female, Health Care Utilization, Human, Ma C, Major Clinical Study, Male, Monsereenusorn C, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Rodriguez-Galindo C, Terminal Care, Wolfe J
Increasing Trend and Effects of Pediatric Palliative Care on Children with Non-Cancer Diagnoses
Tags: 2023, Analgesia, Article, Artificial Ventilation, August List 2028, Cancer Patient, Cancer Survival, Chang CH, Chen HL, Chen SH, Cheng SY, Child, Cohort Analysis, Controlled Study, Female, Human, Journal of Pain and Symptom Management, Lu FL, Major Clinical Study, Male, Morphine, Only Child, Palliative Care, Palliative Therapy, Retrospective Study, Survival, Terminal Care, trend study, ventilator, Wang CC, Wu ET, Yu Su M
Increasing access to children's palliative care education through e-learning: a review of the ICPCN experience
Tags: 2018, Article, Child, Children, Daniels A, Downing J, E-learning, Education, Female, Human, Human Experiment, International Journal of Palliative Nursing, July 2019 List, Language, Learning, Major Clinical Study, Male, mandarin, Nonhuman, Nurse, Paediatrics, Palliative, Palliative Therapy, Pediatrics, Skill, writing
Improving pediatric palliative care in a community-based setting through an ongoing education series
Tags: 2019, administrative personnel, Checklist, Child, Clergy, Comfort, community hospital, conference abstract, Conversation, do not resuscitate order, Dying, Education, Female, Hospice Care, Human, Likert scale, Major Clinical Study, Male, Moonat H, Needs Assessment, Nguyen L, Nurse, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pharmacist, Simulation, Social Worker, Texas
Implications of Pediatric Palliative Consultation for Intensive Care Unit Stay
Tags: 2019, Adolescent, Adult, Article, Caucasian, Child, child hospitalization, Childhood Cancer, Cohort Analysis, confidence interval, Controlled Study, Demography, Female, health Insurance, Hospital Admission, Human, Humphrey LM, Infant, Journal of Palliative Medicine, Length Of Stay, Major Clinical Study, Male, Miller R, Newborn, Palliative Therapy, Patient Referral, Pediatric Hospital, Pediatric Intensive Care Unit, Retrospective Study, Rossfeld ZM, September 2019 List, Tobias JD, Tumin D
Implementing Palliative care, based on family-centered care, in a highly complex neonatal unit
Tags: 2023, Article, Blanco DE, Camprubi CM, Cause Of Death, Child, Clotet CJ, Congenital Malformation, Controlled Study, February List 2024, Female, Human, intimacy, Jornal De Pediatria, Major Clinical Study, Male, Morillo PA, Mortality, Neonatal Intensive Care Unit, Newborn Death, Observational Study, Palliative Therapy, Prognosis, Retrospective Study, Riverola de Veciana A, Silla GJ, Terminal Care, Transitional Care
Implementation of Pediatric Palliative Care (PPC) in a Neonatal Intensive Care Unit (NICU) in St.Gallen
Tags: 2017, brain hemorrhage, Child, conference abstract, Death, Decision Making, Drug Withdrawal, Female, Gudrun J, Human, June 2019 List, Major Clinical Study, Male, Neonatal Intensive Care Unit, Newborn, newborn period, Palliative Therapy, Pregnancy, Susanne A, Swiss Medical Weekly, Switzerland, Trisomy 18
Implementation of an Innovative Palliative Care Screening Tool in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2023, Article, Child, Chronic Disease, Comorbidity, Congenital Malformation, Controlled Study, Deeter DM, Eckman ST, Even KM, February List 2024, Female, Freeman MC, Hodge CH, Human, Intensive Care, Journal of Palliative Medicine, Kerris EW, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pilot Study, Prospective Study, tertiary health care
Impact of Pediatric palliative care initiative at tertiary cancer care hospital of nepal
Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound
Impact of Palliative Care Integration on End-of-Life Outcomes in Pediatric Hematopoietic Cell Transplant
Tags: 2023, anxiety, Appetite, Baker JN, bleeding, bodily secretions, Child, conference abstract, Controlled Study, coughing, Cuviello A, Data Analysis, Demographics, Diarrhea, Distress Syndrome, do not resuscitate order, Documentation, Dyspnea, edema, Fatigue, Female, fever, hematopoietic cell, Hospice, Human, human cell, Intubation, Irritability, July List 2023, Levine DR, Lifespan, Major Clinical Study, Male, Medical Record Review, Nausea And Vomiting, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Retrospective Study, Surgery, Survival, Terminal Care, Transplantation, Transplantation and Cellular Therapy
Illness and end-of-life experiences of children with cancer who receive palliative care
Tags: 2018, Article, Artificial Ventilation, Baker JN, Blazin L, cancer center, cancer susceptibility, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Cost Effectiveness Analysis, data extraction, Death, DeMarsh S, Experimental Therapy, Female, Gushue CA, Hospice, Hospital Patient, Hospitalization, Human, Intensive Care Unit, invasive procedure, Jerkins J, Johnson LM, Kaye EC, Levine DR, Life Change Events, Lu Z, Major Clinical Study, Male, Morrison RR, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Personal Experience, phase 1 clinical trial, Quality Of Life, Resuscitation, Retrospective Study, Snaman JM, Sykes A
Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis
Tags: 2018, Article, Child, Death, Education, Female, Firn J I, Human, Human Relation, institutional care, Journal of Palliative Medicine, June 2018 List, Keefer P M, Kukora S K, Major Clinical Study, Male, Riotte CO, Staff, Statistics, Terminal Care, Thematic Analysis, United States, work environment
How Do Hospitalised Children Die? The Context of Death and End-Of-Life Decision-Making
Tags: 2023, Advance Care Planning, April List 2023, Article, Astigarraga I, Cardiovascular Disease, Carmona-Nunez A, Child, Childhood Mortality, Controlled Study, Decision Making, Demographics, Documentation, Drug Withdrawal, Female, Hospitalized Child, Human, Infant, Intensive Care Unit, Journal of Paediatrics and Child Health, Life Sustaining Treatment, Lopez-Bayon J, Major Clinical Study, Male, Martin-Irazabal G, Medical Record, Nervous System, Observational Study, Only Child, Palliative Therapy, pediatric patient, Respiratory Tract Disease, Resuscitation, Retrospective Study, Sanchez-Echaniz J, Serrano-Pejenaute I, Treatment Withdrawal, Zorrilla-Sarriegui A
Hospital admissions into paediatric palliative care: A retrospective study
Tags: 2019, Anales de Pediatria., Article, Barcelo M, Child, de Noriega Í, Death, Female, García-Salido A, Gastrostomy, Hospice Care, Hospital Admission, Hospitalisation, Hospitalization, Human, Major Clinical Study, Male, Martino R, May 2019 List, Paediatric hospitals, Palliative Care, Palliative Therapy, Patient Care, Pediatric Hospital, Perez M A, Puertas V, Respiratory System, Retrospective Study
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Tags: 2017, Bindels PJE, Cancer Epidemiology, Child, Controlled Study, Cross-sectional Study, Darlington ASE, Death, Distress Syndrome, Doctor Patient Relation, Fatigue, General Practitioner, Human, Human Versus Animal Comparison, Journal of Pain and Symptom Management, Major Clinical Study, Michiels EMC, Nonhuman, Oncology 2017 List, Pain, Palliative Therapy, Panic, Pieters R, Pluijm SMF, Powerlessness, Questionnaire, Sadness, Symptom, Thermometer, van den Heuvel-Eibrink MM, van der Geest IMM, van der Heide A
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Goals of Care Among Parents of Children Receiving Palliative Care
Tags: 2023, Article, August List 2032, Beight LJ, Bogetz JF, Boyden JY, Child, Chronic Disease, Cohort Analysis, Comfort, Controlled Study, Demographics, Feudtner C, Friebert SE, Hall M, Hill DL, Hinds PS, Human, JAMA Pediatrics, Johnston EE, Kang TI, life extension, Major Clinical Study, Male, Nye RT, Palliative Care, Palliative Therapy, Patient Care Planning, Quality Of Life, Wolfe J
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital