Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Title
Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Creator
Currie E; Boss R; Wolfe J; Dionne-Odom JN; Ejem D; Bakitas M
Identifier
Publisher
Journal of Pain and Symptom Management
Date
2018
Subject
infant; newborn; Mississippi; terminal care; palliative therapy; major clinical study; neonatal intensive care unit; conference abstract; medical record review; human; child; female; male; controlled study; resuscitation; statistics; chi square test; Alabama; health disparity; Louisiana; race
Description
Background: In 2013, 23,446 infants died in the U.S.. For infants hospitalized in the neonatal intensive care unit (NICU), advances in medicine have prolonged the lives of many infants who would not have previously survived, resulting in complex clinical scenarios that would benefit from the integration of pediatric palliative care (PPC). PPC is an interdisciplinary specialty that aims to provide the best possible quality of life for seriously ill infants and their families and involves comprehensive treatment of suffering. However, PPC is often underutilized in the NICU, integrated too late in the illness for the patient and family to fully benefit from PPC, or avoided completely. Access to palliative care in the U.S. varies across regions, with limited access to PPC in the Deep South. However, patterns of neonatal palliative care and the extent of disparities within neonatal PPC throughout the Deep South is unknown.
Citation List Month
February 2019 List
Collection
Citation
Currie E; Boss R; Wolfe J; Dionne-Odom JN; Ejem D; Bakitas M, “Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities,” Pediatric Palliative Care Library, accessed February 11, 2025, https://pedpalascnetlibrary.omeka.net/items/show/16018.