Browse Items (908 total)
- Tags: Adult
All-cause mortality rates and home deaths decreased in children with life-limiting diagnoses in Denmark between 1994 and 2014
Tags: 2018, accident, Acta Paediatrica, International Journal of Paediatrics, Adolescent, Adult, all cause mortality, Article, automutilation, Child, Childhood Mortality, Chromosome Aberration, Congenital Malformation, Death, Denmark, Ekholm O, Epidemiology, Home, Human, Infant, Infant Mortality, International Classification of Diseases, Lykke C, Neoplasm, November 2018 List, Olsen M, Perinatal Death, Priority Journal, Schmiegelow K, Sjogren P
Always a burden? Healthcare providers' perspectives on moral distress
Tags: 2018, Adult, Archives of Disease in Childhood Fetal & Neonatal Edition, Attitude Of Health Personnel, Burnout, Davis PG, Female, Gillam L, Health Personnel/px [psychology], Humans, Intensive Care, Intensive Care Units, Janvier A, Job Satisfaction, Male, Morals, Neonatal, Neonatal/es [Ethics], Neonatal/px [Psychology], Neonatal/sn [Statistics & Numerical Data], October 2018 List, Prentice TM, Professional, Professional/et [Etiology], Professional/pc [Prevention & Control], Professional/px [Psychology], Psychological, Psychological/et [etiology], Psychological/pc [Prevention & Control], Qualitative Research, September 2018 List, Stress, Terminal Care, Terminal Care/es [ethics], Terminal Care/px [psychology]
An alternative in terminal care: results of the National Hospice Study
Tags: 1986, Adult, Aged, Backlog, Birnbaum H, Cancer Care Facilities, Comparative Study, Costs And Cost Analysis, Female, Greer DS, Health, Health Services Research, home care services, Hospices/classification/economics/organization & administration, Hospitalization, Human, Insurance, Journal Article, Journal Of Chronic Diseases, Kidder D, Male, Medicare/economics, Middle Age, Models, Mor V, Morris JN, Neoplasms/physiopathology/psychology/therapy, Non-P.H.S., Non-U.S. Gov't, Outcome And Process Assessment (health Care), Pain/epidemiology, Quality Of Life, Reimbursement/economics, Sherwood S, Support, Terminal Care/economics/organization & administration, Theoretical, U.S. Gov't, United States
An assessment of gender differences in the perception of benefit resulting from the loss of a child.
Tags: 2000, Adaptation, Adult, Aged, Backlog, Bereavement, Child, Esprey Y, Female, Gender Identity, Grief, Growth, Humans, Journal Article, Journal Of Traumatic Stress, Life Change Events, Longitudinal Studies, Male, Middle Aged, Perception, Polantinsky S, Psychological, Questionnaires, Sex Factors
An economic examination of private insurance claims among adolescents and young adults who were enrolled in hospice during the last year of life
Tags: 2018, Adolescent, Adolescent Health, Medicine and Therapeutics, Adult, Article, Cohrs AC, December 2018 List, Emergency Ward, Female, Health Care Utilization, Hospice Care, Hospital Patient, hospital service, Human, Keim-Malpass J, Length Of Stay, Leslie DL, Lindley LC, Male, preliminary data, primary medical care, private health insurance, Retrospective Study, Young Adult
An Exploratory Study into the Experience of Health Care Professionals Caring for Adolescents and Young Adults with Incurable Cancer
Tags: 2019, Adolescent, Adult, Article, Australia, Berger I, cancer center, challenges, enablers, Exploratory Research, Health Care Personnel, Health care professionals, Human, incurable disease, Joubert L, Journal of adolescent and young adult oncology., multidisciplinary, Oncology 2019 List, Semi Structured Interview, Thompson K, Young Adult
An international/multicentre report on patients with cystic fibrosis (CF) over the age of 40 years
Tags: 2008, Adolescent Transitions, Adult, Age Distribution, Aged, Assael B, Backlog, Canada, Castellani C, Cohort Studies, Corey M, Cystic Fibrosis/complications/epidemiology/physiopathology, Dodge JA, Female, Hodson ME, Humans, International Study Of Aging In Cystic Fibrosis, Italy, Journal Article, Journal of Cystic Fibrosis, Life Expectancy, London, Longevity, Male, Middle Aged, Minnesota, Retrospective Studies, Sex Distribution, Simmonds NJ, Survival Rate, Tullis E, Warwick WJ
An Online Educational Program Improves Pediatric Oncology Nurses' Knowledge, Attitudes, and Spiritual Care Competence
Tags: 2017, Adult, Attitudes, Bansal NK, Callahan MF, Child, Computer-assisted Instruction/mt [methods], Female, Health Knowledge, Hughes RG, Humans, Journal Of Pediatric Oncology Nursing, Male, McCarthy DO, Neoplasms/nu [nursing], Nurse's Role, Oncology 2017 List, Oncology Nursing/ed [education], Pediatric Nursing/ed [education], Petersen CL, Practice, Prospective Studies, Spiritual Therapies/nu [nursing], White-Traut R
An Order Protocol For Respiratory Distress/acute Pain Crisis In Pediatric Palliative Care Patients: Medical And Nursing Staff Perceptions
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family,…
Tags: 2016, Acute Pain/therapy, Adolescent, Adult, Advance Directives, Aged, Attitude Of Health Personnel, Bidet G, Canada, Child, Child Preschool, Daoust L, Ducruet T, Duval M, Female, Humans, Humbert N, Infant, Infant Newborn, Journal of Palliative Medicine, Male, March 2016 List, Medical Staff Hospital/psychology, Middle Aged, Nursing Staff Hospital/psychology, Palliative Care/standards, Pediatric Nursing/standards, Practice Guidelines As Topic, Respiratory Distress Syndrome Adult/therapy, Surveys And Questionnaires, Toledano B, Young Adult
An update on the leukodsytrophies
Tags: 2001, Adult, Backlog, Boespflug-Tanguy O, Brain Diseases, Child, Current Opinion in Neurology, Diagnosis, Differential, Diseases/diagnosis/genetics, Glial Fibrillary Acidic Protein/genetics, Hereditary Central Nervous System Demyelinating, Human, Inborn/diagnosis/genetics, Journal Article, Metabolic, Myelin Proteolipid Protein/genetics, P.H.S., Schiffmann R, Support, U.S. Gov't
Analgesic effect of the synthetic cannabinoid CT-3 on chronic neuropathic pain: a randomized controlled trial
Tags: 2003, Adult, Analgesics, Backlog, Burstein S, Chronic Disease, Conrad I, Cross-Over Studies, Double-Blind Method, Female, Hoy L, Humans, Hyperalgesia/complications/drug therapy, JAMA, Journal Article, Karst M, Male, Middle Aged, Non-Narcotic/therapeutic use, Non-U.S. Gov't, Pain Measurement, Pain/complications/drug therapy, Research Support, Salim K, Schneider U, Tetrahydrocannabinol/analogs & derivatives/therapeutic use
Analysis of the circumstances at the end of life in children with cancer: Symptoms, suffering and acceptance
Tags: 2003, Adolescent, Adult, Backlog, Brain Neoplasms/therapy, Child, Childhood Cancer, Death, Dying, Female, Fujii Yuji, Hongo T, Humans, Infant, Inoue N, Journal Article, Leukemia/therapy, Lymphoma/therapy, Male, Neoplasms/psychology, Neoplasms/therapy, Ohzeki T, Okada S, Oncology at EOL, palliative terminal care, Pediatrics International, Preschool, psychological support, Social Support, symptoms and suffering, Terminal Care, Watanabe C, Yajima S
Annual summary of vital statistics: 2008
Tags: 2011, Adolescent, Adult, Age Distribution, Backlog, Birth Rate/trends, Child, Female, Guyer B, Humans, Infant, Infant Mortality/trends, Journal Article, Male, Maternal Age, Mathews TJ, Minino AM, Mortality/trends, Newborn, Osterman MJ, Pediatrics, Preschool, Strobino DM, United States, Vital Statistics, Young Adult
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Anti-parkinson drugs in the Batten-Spielmeyer-Vogt syndrome; a pilot trial
Tags: 1982, Adolescent, Adult, amantadine, Amantadine/therapeutic use, Antiparkinson Agents/therapeutic use, Benserazide/therapeutic use, Clinical Neurology and Neurosurgery, Drug Combinations/therapeutic use, Humans, Levodopa/therapeutic use, Lipidoses/drug therapy, madopar, NCL3, orfenadrine, pharmacologic intervention, Psychoses Substance-Induced/etiology, Syndrome, tone and motor problems, van der Zee H J, van Nieuwenhuizen O, Zweije-Hofman I L
Anticipating death in children and adults with childhood onset severe central nervous system impairment: A case series review
Anticonvulsant drugs for migraine prophylaxis
Antiepileptic drug therapy for adults: when to initiate and how to choose
Tags: 2002, Acetic Acids/adverse effects/therapeutic use, Adult, Amines, Anticonvulsants/adverse effects/therapeutic use, Backlog, Carbamazepine/analogs & derivatives/therapeutic use, Cyclohexanecarboxylic Acids, Epilepsy/drug therapy, Fructose/analogs & derivatives/therapeutic use, gamma-Aminobutyric Acid, Humans, Isoxazoles/therapeutic use, Journal Article, Mayo Clinic Proceedings, Nipecotic Acids/therapeutic use, Non-U.S. Gov't, Piracetam/analogs & derivatives/therapeutic use, Propylene Glycols/adverse effects/therapeutic use, Recurrence, Research Support, Risk Factors, Sirven JI, Treatment Outcome, Triazines/adverse effects/therapeutic use
Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Tags: 2019, Adult, anxiety, Article, Bereavement, Center for Epidemiological Studies Depression Scale, Child, Controlled Study, Denmark, Depression, Education, Ekholm O, Father, Female, Human, Journal of Pain and Symptom Management., Lykke C, Major Clinical Study, Male, Mother, Olsen M, Palliative Therapy, Questionnaire, Schmiegelow K, September 2019 List, single (marital status), Sjogren P, Young Adult
Anxiety and depression in parents 4-9 years after the loss of a child owing to a malignancy: a population-based follow-up.
Tags: 2004, Adult, Age Factors, Aged, Anxiety Disorders/etiology, Backlog, Bereavement, Case-Control Studies, Child, Death, Depression/etiology, Female, Henter JI, Humans, Journal Article, Kreicbergs U, Longitudinal Studies, Male, Middle Aged, Morbidity, Neoplasms, Non-U.S. Gov't, Onelov E, Parent-child Relations, Preschool, Psychological, Psychological Medicine, Research Support, Risk Factors, Steineck G, Stress, Valdimarsdottir U
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Tags: 2010, Adaptation, Adolescent, Adult, Anxiety/epidemiology/etiology/psychology, Backlog, Bereavement, Child, Depression/epidemiology, Female, Henter JI, Humans, Infant, Jalmsell L, Journal Article, Kreicbergs U, Male, Neoplasms/psychology, Newborn, Onelov E, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Psychological, Quality Of Life, Steineck G, Sweden/epidemiology, Terminally Ill/psychology, Young Adult
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Are we on the same page? Exploring pediatric patients' involvement with advance care planning
Tags: 2023, Aasen ERHV, acquired immune deficiency syndrome, Adolescent, Adult, Advance Care Planning, Caregiver, Child, Cystic Fibrosis, Emotion, Female, Human, Journal of Pain and Symptom Management, June 2022 List, Lee A, Male, Medline, Neurology, oSovik ML, outcome assessment, Palliative Therapy, Patient Participation, pediatric patient, Randomized Controlled Trial (topic), Review, Stordal K, Systematic Review, Young Adult
Assessing Ethics Knowledge: Development of a Test of Ethics Knowledge in Neonatology
Tags: 2018, Adult, April 2019 List, Assessment, Berson ER, Cummings CL, Decision Making, Ethics Medical/education, Feldman HA, Female, Geis GM, Humans, Internship And Residency, Journal of Pediatrics, Kesselheim J C, Male, Medical Education, Medical Ethics, milestones, Neonatology/education, professionalism, Psychometrics/education, Surveys And Questionnaires
Assessing mothers' attitudes about the physician's role in child health promotion
Tags: 1996, Adolescent Transitions, Adult, American Journal Of Public Health, Attitude To Health, Backlog, Bigelow C, Charney E, Cheng TL, Child, Child welfare, DeWitt TG, Female, Health Promotion, Humans, Journal Article, Kumar S, Massachusetts, Mothers/psychology/statistics & numerical data, Physician's Role, Preschool, Questionnaires, Savageau JA
Assessing the clinical importance of symptomatic improvements. An illustration in rheumatology
Tags: 1993, 80 And Over, Activities of Daily Living, Adult, Age Factors, Aged, Archives Of Internal Medicine, Arthritis, Arthritis/physiopathology, Attitude To Health, Backlog, Female, Health Status, Health Status Indicators, Humans, Journal Article, Lorig K, Male, Middle Aged, Osteoarthritis/physiopathology, Quality Of Life, Redelmeier DA, Rheumatoid/physiopathology, Self-Assessment, Severity Of Illness Index
Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation
Tags: 2019, Adolescence, Adolescent, Adult, Albrecht U V, Anthropometry, Article, Breathing, Child, chronic lung disease, Clinical Article, Controlled Study, Cystic Fibrosis, Disability, Dittrich A M, Dopfer C, February 2020 List, Female, Fuge J, Hansen G, Human, JMIR mHealth and uHealth, Junge S, Life Expectancy, life satisfaction, lung function, Male, mobile application, mobile phone, Nolte H, Pieper K, Quality Of Life, Questionnaire, responsibility, Ringshausen F C, Rudolf I, Sauer-Heilborn A, Self Care, Tummler B, von Jan U, Young Adult
Associated Factors of Psychological Distress among Japanese NICU Nurses in Supporting Bereaved Families Who Have Lost Children
Tags: 2018, Adaptation Psychological, Adult, Bereavement, Bereavement Care, children's deaths, Female, Hospice Care/psychology, Humans, Infant Newborn, Intensive Care Neonatal, Intensive Care Units Neonatal, Kitao M, Kobe Journal of Medical Sciences, Male, March 2019 List, Neonatal Nursing/education, Nicu, Nurses, Nurses Neonatal/education/psychology, Pediatricians/psychology, Psychological Distress, Setou N, Stress Psychological, Surveys And Questionnaires, Takada S, Yamamoto A
Association between opioid prescribing patterns and opioid overdose-related deaths
Tags: 2011, Acute Disease, Adolescent, Adult, Aged, Analgesics, Backlog, Bair MJ, Blow FC, Bohnert AS, Case-Control Studies, Chronic Disease, Cohort Studies, Drug Prescriptions/statistics & numerical data, Female, Ganoczy D, Humans, Ilgen MA, JAMA, Journal Article, Male, McCarthy JF, Middle Aged, Opioid/administration & dosage/poisoning, Overdose/epidemiology, Pain/drug Therapy, Physician's Practice Patterns/statistics & numerical data, Risk, United States/epidemiology, Valenstein M, Veterans/statistics & numerical data, Young Adult
Association between religious and socio-economic background of parents of children with solid tumors and DNR orders
Tags: 2014, Adolescent, Adult, Backlog, Child, Decision Making, Education, Female, Follow-up Studies, Hakim F, Hileli I, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Parents, Pediatric Blood & Cancer, Postovsky S, Preschool, Prognosis, Religion, Resuscitation Orders, Retrospective Studies, Socioeconomic Factors, Survival Rate, Weyl Ben Arush M, Young Adult
At the crossroads: making the transition to hospice
Tags: 2004, Adult, Aged, Backlog, Bradley E, Caregivers/psychology, Cherlin E, Connecticut, Curry L, Decision Making, Family Relations, Female, Hospice Care/psychology, Humans, Interpersonal Relations, Johnson-Hurzeler R, Journal Article, Male, McCorkle R, Middle Aged, Narration, Neoplasms/nursing, Non-P.H.S., Non-U.S. Gov't, Palliative & Supportive Care, Palliative Care/psychology, Parent-child Relations, Questionnaires, Research Support, Schulman-Green D, U.S. Gov't
Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe
Tags: 2009, Adolescent, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Canobbio MM, Child, Congenital/therapy, Continuity Of Patient Care, Europe, Fernandes SM, Fleck D, Heart Defects, Hilderson D, Humans, Journal Article, Kovacs AH, Linstead R, Meadows A, Moons P, Patient Transfer/statistics & numerical data, Pediatric Cardiology, Questionnaires, Retrospective Studies, Saidi AS, United States, Van Deyk K, Verstappen A
Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
Tags: 2003, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Data Collection, Decision Making, Ethics, Euthanasia, Female, Hardart GE, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care, Journal Article, Legal Guardians, Male, Medical, Mental Competency, Middle Aged, Morals, Newborn, Passive, Professional-family Relations, Religion and Medicine, Teaching, Truog RD, United States
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Attitudes on pain and opioid prescription practices in cystic fibrosis centers
Tags: 2017, 53663-61-9 (opiate), 8002-76-4 (opiate), 8008-60-4 (opiate), Adult, Analgesia, anxiety, Child, Chronic Pain, cyst, Cystic Fibrosis, drug combination, Female, Hollatz T, Human, January 2018 List, Laxova A, Life Expectancy, Male, Meyer KC, Mood, Mukadam Z, Nurse, Opiate, opiate addiction, Palliative Therapy, Pediatric Pulmonology, prescription, Prevalence, Quality Of Life, Questionnaire, sinus headache, thorax wall, Yang Y
Atypical antipsychotic use in treating adolescents and young adults with developmental disabilities
Tags: 2001, Adolescent, Adult, Antipsychotic Agents/adverse effects/therapeutic use, Backlog, Benzodiazepines, Canadian Journal Of Psychiatry, Female, Friedlander R, Humans, Journal Article, Klancnik J, Lazar S, Male, Mental Retardation/psychology, Movement Disorders/etiology, Pirenzepine/adverse effects/analogs & derivatives/therapeutic use, Psychotic Disorders/drug therapy/etiology, Risperidone/adverse effects/therapeutic use, Sex Factors
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
Autonomic breathing abnormalities in Rett syndrome: Caregiver perspectives in an international database study
Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K
Avoiding admission for afebrile pediatric sickle cell pain: pain management methods
Tags: 2006, Adolescent, Adult, Analgesics/therapeutic use, Anemia, Antisickling Agents/therapeutic use, Backlog, Child, Dumaplin CA, Humans, Hydroxyurea/therapeutic use, Infant, Journal Article, Journal Of Pediatric Health Care, Newborn, Pain Measurement, Pain/epidemiology/nursing/psychology/therapy, Patient Education, PedPal Lit, Preschool, Relaxation Techniques, Sickle Cell/mortality/nursing/psychology/therapy, United States/epidemiology
Balloon dilatation in esophageal strictures in epidermolysis bullosa and the role of anesthesia
Tags: 2017, Adolescent, Adult, Anesthesia, Article, Ates U, Balloon dilatation, Can O S, Child, Clinical Article, Clinical Effectiveness, colon interposition, digestive endoscope, Dindar H, Diseases of the Esophagus, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Ergun E, esophagus balloon, esophagus perforation, esophagus stenosis/co [Complication], esophagus stenosis/th [Therapy], feeding difficulties, Female, Gastrostomy, Gollu G, Human, Male, Patient Safety, Preschool Child, Priority Journal, Retrospective Study, School Child, surgical intervention, Young Adult