Browse Items (346 total)

Tags: 1999, Adult, Backlog, Decision Making, Euthanasia, Health Care Costs, Hospitalization, Human, Journal Article, Palliative Medicine, Passive, Quality Of Life, Randomized Controlled Trials, Teno JM, Terminally Ill

Tags: 2010, Admane S, Affect, Aged, Backlog, Billings JA, Blinderman CD, Carcinoma, Dahlin CM, Depression/epidemiology/prevention & control, Female, Gallagher ER, Greer JA, Humans, Jackson VA, Jacobsen J, Journal Article, Kaplan-Meiers Estimate, Linear Models, Lung Neoplasms/mortality/psychology/therapy, Lynch TJ, Male, Middle Aged, Muzikansky A, Non-Small-Cell Lung/mortality/psychology/secondary/therapy, Palliative Care, Pirl WF, Quality Of Life, Temel JS, Terminal Care, The New England Journal Of Medicine, Time Factors

Tags: 2022, 2023 SE1 - Parent Perspectives, Arje D, Caregivers, Children With Medical Complexity, Clinical Pediatrics, Cohen E, Esser K, Moore C, Orkin J, Parenting, Qualitative Research, Quality Of Life, Teicher J, Weiser N

Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome

Tags: 2011, Adolescent, Backlog, care goals, Ceneviva GD, Child, Decision Making, Felker P, Female, Goals, Hahnlen NC, Health Status, Humans, Infant, Journal Article, Journal of Palliative Medicine, Life-limiting Conditions, Male, Newborn, Palliative Care, Pediatrics, Preschool, Quality Of Life, Referral And Consultation, Shaffer ML, Tamburro R F, Therapeutic Processes, treatment decision making, Young Adult

Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J

Tags: 2011, AbouEzzeddine OF, Advance Care Planning, Advance Directives, Aged, Backlog, Boilson BA, Carter Kari A, Decision Making, DNAR, DNAR Outcomes, Family, Female, Freeman MR, Heart Failure/th [Therapy], Heart-Assist Devices, Humans, Interdisciplinary Communication, Journal Article, Left/th [Therapy], Male, Mayo Clinic Proceedings, Middle Aged, Mueller PS, Ottenberg AL, Palliative Care/mt [methods], Park Soon J, Patient Care Team, Quality Of Life, Referral And Consultation, Retrospective Studies, Right/th [Therapy], Severity Of Illness Index, Swetz K M, Ventricular Dysfunction, Withholding Treatment

Tags: 2003, Adolescent, Adult, Backlog, Child, Dhawan A, Female, Graft Survival, Heaton ND, Hepatolenticular Degeneration/pp [Physiopathology], Hepatolenticular Degeneration/su [Surgery], Humans, IM, Immunosuppression/ae [Adverse Effects], Journal Article, Liver Transplantation, Liver Transplantation/ae [Adverse Effects], Liver Transplantation/mo [Mortality], Liver/pp [Physiopathology], Longitudinal Studies, Maguire DD, Male, Mieli-Vergani G, Muiesan P, O'Grady JG, Quality Of Life, Rela M, Survival Analysis, Sutcliffe RP, Transplantation

Tags: 2014, adenotonsillectomy, apnea hypopnea index, Article, Arumugam S V, breathing difficulties, Child, Clinical Effectiveness, Continuous Positive Airway Pressure, Controlled Study, CPAP device, Down Syndrome, Epworth sleepiness scale, ess-c, Female, Follow Up, Human, International Journal of Pediatric Otorhinolaryngology, Kameswaran M, Major Clinical Study, Male, MPSI, MPSII, MPSIII, MPSIIIA, MPSIIIB, MPSVI, MPSVII, Mucopolysaccharidoses, Mucopolysaccharidosis, Murali S, osa-18, outcome assessment, Paramasivan V K, Pediatric obstructive sleep apnea, physical interventions, positive end expiratory pressure, Priority Journal, Quality Of Life, radiofrequency ablation device, Randomized Controlled Trial, sleep disordered breathing/su [Surgery], sleep disordered breathing/th [Therapy], Sudarsan S S, surgical interventions, Treatment Outcome

Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing

Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D

Tags: 2005, 80 And Over, A'hern R, Adult, Aged, Backlog, Broadley K, Cancer Care Facilities, DNAR, Female, Great Britain, Gwilliam B, Hardy J, Humans, Journal Article, Male, Medical Oncology, Middle Aged, Palliative Care/px [psychology], Patient Satisfaction, Pilot Projects, Quality Of Life, Questionnaires, Stevens A-M, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Treatment Outcome

Tags: 2005, Backlog, Data Collection/methods, Health Services Research/methods, Humans, Journal Article, Journal of Palliative Medicine, Outcome and Process Assessment (Health Care)/methods, Palliative Care/psychology/standards, Prospective Studies, Psychometrics/instrumentation/methods, Quality Of Life, Reproducibility of Results, Steinhauser KE, Terminal Care/psychology/standards, United States

Tags: 2 boys, 2014, Albano V, Augmentative and alternative communication, Autism, contact, Damiani R, De Pace C, DEVELOPMENTAL, Developmental-disabilities, Di Leone A, Disabilities, Education & Educational Research, environmental stimuli, Indices of happiness, keyboard emulator, microswitch-based programs, motor disabilities, Perilli V, physical intervention, Picture exchange communication systems, profound multiple disabilities, Psychiatry, Psychology, Quality Of Life, quality-of-life, Rehabilitation, Research In Autism Spectrum Disorders, Rett syndrome, Social, spectrum disorders, Stasolla F, stereotypies, tone and motor problems, Vocal output communication aid

Tags: 2006, Adolescent, Adolescent Transitions, Adult, Backlog, Chronic Disease, Chronic/complications/psychology/rehabilitation, Deurloo JA, Esophageal Atresia/complications/psychology/rehabilitation, Grootenhuis MA, Groothoff J, Hartman EE, Health Status, Hirschsprung Disease/complications/psychology/rehabilitation, Humans, Journal Article, Kidney Failure, Life Change Events, Neoplasms/complications/psychology/rehabilitation, Netherlands, Peer Group, Quality Of Life, Risk-Taking, Stam H, Survivors, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine

Tags: 2006, Adolescent, Backlog, Barrera M, Canada, Case-Control Studies, Central Nervous System Neoplasms/psychology, Child, Cranial Irradiation/adverse effects, Female, Health Status, Humans, Journal Article, Journal Of Clinical Oncology, Leukemia/psychology, Longitudinal Studies, Lymphoma/psychology, Male, Maunsell E, Morrison HI, Neoplasms/psychology/therapy, Quality Of Life, Shaw AK, Speechley KN, Survivors

Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics

Tags: 2004, 80 and over Child Comparative Study Cross-Cultural Comparison Cross-Sectional Studies Female Humans Male Middle Aged Psychometrics/, 830). Sick and well respondents were sampled from the general population, Adolescent Adult Aged Aged, and to test its main psychometric properties. The WHOQOL-BREF is a 26-item version of the WHOQOL-100 assessment. Its psychometric properties were analysed using cross-sectional data obtained from a survey of adults carried out in 23 countries (n = 11, as reflected by its four domains: physical, as well as from hospital, Backlog, clinical settings and clinical trials. Using data from the WHOQOL-BREF field trials, cross-culturally valid assessment of QOL, discriminant validity and construct validity through confirmatory factor analysis, indicate that the WHOQOL-BREF has good to excellent psychometric properties of reliability and performs well in preliminary tests of validity. These results indicate that overall, instrumentation, item-total correlations, Journal Article, Lotfy M, O'Connell KA, PedPal Lit, Psychological, Quality Of Life, Quality of Life Research, rehabilitation and primary care settings, serving patients with physical and mental disorders and with respect to quotas of important socio-demographic variables. The WHOQOL-BREF self-assessment was completed, Sickness Impact Profile World Health Organization%X Quality of life (QOL) assessments that are easily administered and which do not impose a great burden on the respondent are needed for use in large epidemiological surveys, Skevington SM, social and environment., the objectives of this work are to examine the performance of the WHOQOL-BREF as an integrated instrument, the WHOQOL-BREF is a sound, together with socio-demographic and health status questions. Analyses of internal consistency

Tags: 2011, Backlog, Child, Critical Illness, Gastrostomy, Humans, Intratracheal, Intubation, Jackson GP, Journal Article, Palliative Care, Patient Care Team, Physician-patient Relations, Pleurodesis, Professional-family Relations, Prognosis, Quality Of Life, Resuscitation Orders, Shelton J, Terminal Care, The Surgical Clinics Of North America, Tracheostomy

Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR

Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Aged, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease/psychology, Cohort Studies, Continuity Of Patient Care/organization & Administration, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, McDonagh JE, Middle Aged, Parents, Patient Satisfaction, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR

Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound

Tags: 2020, Abnormalities, Age Factors, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Şener Taplak A, Thematic Analysis, Time Factors

Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adult, American Journal Of Hospice And Palliative Care, Bereavement, Cancer, Child, Communication, Cousino MK, End Of Life, Focus Groups, Hospice Care, Humans, Hutchinson R, Palliative Care, Parents, Paul TK, Pituch K, Professional-family Relations, Quality Of Life, Sedig LK, Spruit JL, Time Factors

Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood

Tags: 2018, August 2018 List, Chambers L, Child, conference abstract, Controlled Study, Female, gardening, housekeeping, Human, Human Experiment, Leadership, Major Clinical Study, Male, McNamara K, Palliative Medicine, Palliative Therapy, Qualitative Analysis, Quality Of Life, Questionnaire, Scott R, Semi Structured Interview, shopping, Sibling, Skill, Staff, Volunteer

Tags: 2018, Adolescent, Adult, Advanced Cancer, anxiety, Bradford M, cancer pain, Cancer Patient, Child, conference abstract, Controlled Study, Disease Course, Female, Human, Journal of Clinical Oncology. Conference, Lau N, Major Clinical Study, Male, May 2019 List, Nausea, Palliative Therapy, Pediatric Quality of Life Inventory, Quality Of Life, Randomized Controlled Trial, Rosenberg AR, Scott S, Secondary Analysis, Speech, Steineck A, stress management, Yi-Frazier J P, Young Adult

Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal

Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B

Tags: 2014, Backlog, Children's Health Care, family functioning, Journal Article, Psychological, Quality Of Life, Sarigiani P, Schilling ML, Stress

Tags: 2000, Analgesics/therapeutic use, Backlog, Human, Journal Article, Journal Of The Royal College Of Physicians Of London, Pain/drug Therapy, Palliative Care, Practice Guidelines, Quality Of Health Care, Quality Of Life, Saunders J, Terminal Care

Tags: 2023, Article, Child, Cohort Analysis, daily life activity, Demography, disorders of mitochondrial functions, disorders of peroxisomal functions, Endocrine, metabolic & immune disorders drug targets, Female, Ferreira AC, Gastrostomy, Home Visit, Hospital Admission, Human, lysosome, Major Clinical Study, Male, Metabolic Diseases, Metabolic Disorder, Neurologic Disease, Noninvasive Ventilation, November List 2028, Outpatient, Paiva M, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, peroxisome, Quality Of Life, Santos S, Saraiva BM, School Child, Surgery, systemic disease

Tags: 2024, Adult, April List 2024, Article, Bereavement, care behavior, collaborative care team, Female, Health Care Access, Human, Knowledge, Male, Palliative Care, Palliative Therapy, Quality Of Life, Santiago-Warner S, Social Justice, Social Work, Social Work in Health Care, Social Work Practice, Social Worker

Tags: 2002, Acute Disease, Airway Obstruction/diagnosis, Backlog, Child, Endoscopy, Enteral Nutrition/methods, Female, Gastroesophageal Reflux/epidemiology/etiology/therapy, Gastrointestinal/adverse effects/methods, Gastrostomy/adverse effects/methods, Holmes K, Humans, Hydrogen-Ion Concentration, Journal Article, Journal Of Pediatric Surgery, Male, Monitoring, Nervous System Diseases/rehabilitation, Physiologic/methods/statistics & numerical data, Postoperative Complications/diagnosis/epidemiology/etiology, Preschool, Quality Of Life, Samuel M, Vomiting/diagnosis, Weight Gain

Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E

Tags: 2021, 2021 Special Edition - Oncology, BMJ Supportive and Palliative Care, Fuentes-Alabi S, leukaemia, Paediatrics, Plenert E, Quality Of Life, Salaverria C, Sung L, Supportive Care, Survivorship, symptoms and symptom management, Tomlinson GA, Vasquez R

Tags: 2022, 2022 Special Edition Low Resource Setting Issue, America, Animals, Birth, Birth defects, Brazil, Brazilian Archives of Biology and Technology, Chordata, Community of Portuguese Language Countries, Congenital Abnormalities, Congenital malformations, de Moraes AMSM, drug abusers, drug users, epidemics, Epidemiology, Eukaryotes, Favero GM, gestation, Guidelines, Health Care, high Human Development Index countries, Hominidae, Homo, Human Diseases, Latin America, Malformations, Mammals, Man, microcephaly, Mothers, Neonates, Palliative Care, Pregnancy, Primates, Quality Of Life, Recommendations, Saffi Junior MC, South America, upper-middle income countries, Vertebrates, Women

Tags: 2007, Artificial/ethics, Backlog, Humans, ICU Decision Making, Intensive Care Units, Isaacs D, Jacobe S, Journal Article, Journal of Paediatrics and Child Health, Kilham H, New South Wales, Pediatric, Quality Of Life, Respiration, Ryan MM, Spinal Muscular Atrophies of Childhood, Tobin B

Tags: 2005, Acute, Backlog, Benchmarking, Child, Conflict (Psychology), Cooperative Behavior, Decision Making, Female, Goals, Holistic Health, Humans, Interprofessional Relations, Journal Article, Journal of Pediatric Nursing, Leukemia, Male, Models, Myeloid, Nurse's Role, Nursing, Organizational, Palliative Care, Parents, Patient Care Team, PEDI Study, Pediatric Nursing, PedPal Lit, Philosophy, Quality Of Life, Rushton CH, Self Care, Self-Assessment, Uncertainty

Tags: 2019, Adolescence, Adolescent, Adult, Albrecht U V, Anthropometry, Article, Breathing, Child, chronic lung disease, Clinical Article, Controlled Study, Cystic Fibrosis, Disability, Dittrich A M, Dopfer C, February 2020 List, Female, Fuge J, Hansen G, Human, JMIR mHealth and uHealth, Junge S, Life Expectancy, life satisfaction, lung function, Male, mobile application, mobile phone, Nolte H, Pieper K, Quality Of Life, Questionnaire, responsibility, Ringshausen F C, Rudolf I, Sauer-Heilborn A, Self Care, Tummler B, von Jan U, Young Adult