Browse Items (346 total)
- Tags: Quality Of Life
Ameliorating Caregiver Burden in the Pediatric Palliative Population Utilizing a Psychophysiological Intervention
Tags: 2023, American Journal Of Hospice And Palliative Care, Anxiety/therapy, Beattie A, Caregiver Burden, Caregivers, Child, Cost Of Illness, diaphragmatic breathing, home care services, Humans, Informal caregivers, Palliative Care, Pediatrics, Quality Of Life, Respite Care, Restaino MR, rolestrain, September List 2024, Stress
Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration
Tags: 2019, Adaptation, Adolescent, Anthropology, Beecham E, Bluebond-Langner M, Brain Neoplasms/*psychology, Cancer, Child, Children, Coping, Cultural, enduring, Experiences, Female, Hargrave D, Health, Humans, Illness and Disease, Infant, Langner R, lived experience, Male, meta-ethnogrpahy, Metasynthesis, Method: interpretive methods, Oncology 2019 List, Parents/*psychology, Preschool, Psychological, psychosocial aspects, Qualitative Health Research, Qualitative Research, qualitative. Geographic: Taiwan, Quality Of Life, Quality of Life/*psychology, Resilience, Resistance, Survivorship, Young Adult
Pharmacological Interventions For Pain In Children And Adolescents With Life-limiting Conditions
Tags: 103-90-2 (paracetamol), 1095-90-5 (methadone), 1134-47-0 (baclofen), 124-90-3 (oxycodone), 125-56-4 (methadone), 133-16-4 (chloroprocaine), 1333-08-0 (benzocaine), 136-47-0 (tetracaine), 137-58-6 (lidocaine), 15307-79-6 (diclofenac), 15307-86-5 (diclofenac), 15687-27-1 (ibuprofen), 18010-40-7 (bupivacaine), 2017, 2180-92-9 (bupivacaine), 23142-53-2 (methadone), 24847-67-4 (lidocaine), 297-88-1 (methadone), 31121-93-4 (ibuprofen), 38396-39-3 (bupivacaine), 3858-89-7 (chloroprocaine), 40391-99-9 (pamidronic Acid), 437-38-7 (fentanyl), 52-26-6 (morphine), 52485-79-7 (buprenorphine), 527688-20-6 (ibuprofen), 53152-21-9 (buprenorphine), 55750-21-5 (bupivacaine), 56934-02-2 (lidocaine), 57-27-2 (morphine), 57248-88-1 (pamidronic Acid), 66376-36-1 (alendronic Acid), 73-78-9 (lidocaine), 74103-06-3 (ketorolac), 76-42-6 (oxycodone), 76-57-3 (codeine), 76-99-3 (methadone), 79261-49-7 (ibuprofen), 94-09-7 (benzocaine), 94-24-6 (tetracaine), Alendronic Acid/ct [clinical Trial], Alendronic Acid/dt [drug Therapy], Analgesia, Baclofen/ct [clinical Trial], Baclofen/dt [drug Therapy], Beecham E, Benzocaine/ct [clinical Trial], Benzocaine/dt [drug Therapy], Bluebond-Langner M, Bupivacaine/ct [clinical Trial], Bupivacaine/dt [drug Therapy], Buprenorphine/ct [clinical Trial], Buprenorphine/dt [drug Therapy], Candy B, Cerebral Palsy, Chloroprocaine/ct [clinical Trial], Chloroprocaine/dt [drug Therapy], Cochrane Database of Systematic Reviews, Codeine/ct [clinical Trial], Codeine/dt [drug Therapy], Diclofenac/ct [clinical Trial], Diclofenac/dt [drug Therapy], Drug Clearance, Drug Efficacy, Drug Safety, Fentanyl/ct [clinical Trial], Fentanyl/dt [drug Therapy], Functional Status, Howard R, Human, Ibuprofen/ct [clinical Trial], Ibuprofen/dt [drug Therapy], Jones L, Ketorolac/ct [clinical Trial], Ketorolac/dt [drug Therapy], Laddie J, Length Of Stay, Lidocaine/ct [clinical Trial], Lidocaine/dt [drug Therapy], McCulloch R, Methadone/ct [clinical Trial], Methadone/dt [drug Therapy], Morphine/ct [clinical Trial], Morphine/dt [drug Therapy], Neuropathic Pain/dt [drug Therapy], Nociceptive Pain/dt [drug Therapy], Osteogenesis Imperfecta, Oxycodone/ct [clinical Trial], Oxycodone/dt [drug Therapy], Pain Intensity, Pain Severity, Pamidronic Acid/ct [clinical Trial], Pamidronic Acid/dt [drug Therapy], Paracetamol/ct [clinical Trial], Paracetamol/dt [drug Therapy], Priority Journal, Psychological Well-being, Quality Of Life, Randomized Controlled Trial (topic), Rees H, Review, Risk Benefit Analysis, September 2017 List, Tetracaine/ct [clinical Trial], Tetracaine/dt [drug Therapy], Treatment Outcome, Vickerstaff V
Paediatric advance care planning in life-limiting conditions: Scoping review of parent experiences
Tags: 2022, Advance Care Planning, August 2022 List, Bennett HE, BMJ Supportive and Palliative Care, care behavior, Child, Cinahl, Comparative Study, Conversation, Decision Making, Duke S, Female, Human, Male, Medline, participatory research, Pediatrics, Quality Of Life, Review, Richardson A, sense of coherence, Systematic Review
Investigating the cost-effectiveness of videotelephone based support for newly diagnosed paediatric oncology patients and their families: design of a randomised controlled trial
Tags: 2007, Adolescent, Adult, Ambulatory Care/economics, Australia, Backlog, Barnett AG, Bensink M, BMC Health Services Research, Child, Child Health Services/economics, Cost Of Illness, Cost-Benefit Analysis, Hallahan A, Health Services Accessibility/economics, Hospital/economics, Humans, Irving H, Journal Article, Neoplasms/economics/therapy, Oncology Service, Parent-child Relations, Patient Satisfaction, Preschool, Quality Of Life, Randomized Controlled Trials/methods, Research Design, Rural Health Services/economics, Russell T, Scuffham P, Study Design, Telemedicine/economics/instrumentation, Theodoros D, Videoconferencing/economics, Wootton R
Pediatric palliative care-when quality of life becomes the main focus of treatment
Tags: 2013, Bereavement, Bergstraesser E, Chronic Disease, Communication, Decision Making, European Journal of Pediatrics, Family Health, Humans, January 2018 List, Palliative Care, Palliative Care/og [Organization & Administration], Patient-centered Care, Pediatrics/og [Organization & Administration], Quality Of Life, Spiritual therapies
Was there a plan? End-of-life care for children with life-limiting conditions: a review of multi-service healthcare records
Tags: 2014, Adolescent, Advance Directives, advance planning, Backlog, Beringer AJ, Child, child and family wishes, Child: Care, Health and Development, Communication, Decision Making, DNAR, Documentation, End Of Life, Female, Heckford EJ, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Neoplasms/mo [mortality], Parents, Parents/px [psychology], Patient Care Planning/og [Organization & Administration], Patient Care Planning/st [Standards], Pediatrics, Physician-patient Relations, Practice Guidelines As Topic, Preschool, Quality Of Life, Resuscitation Orders, Retrospective Studies, Review, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology], Time Factors
Experience of parents receiving results from a quality-of-life study in pediatric advanced cancer: A report from the PediQUEST study
Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study*
Enabling the transition to hospice through effective palliative care
Tags: 2005, Attitude To Death/ethnology, Backlog, Bomba PA, Case Management/organization & administration, Chronic Disease, Continuity of Patient Care/organization & Disease Progression, Hospice Care/organization & administration/psychology, Humans, Journal Article, Life Expectancy, Models, Needs Assessment, Organizational, Organizational Objectives, Palliative Care/organization & Professional Role, Prognosis, Quality Of Life, Referral and Consultation/organization & United States, The Case Manager
Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation
Tags: 2023, Adolescent, Article, Artificial Ventilation, August List 2025, Boss RD, Child, Cohort Analysis, Content Analysis, Counseling, Decision Making, Ding Y, Female, Henderson CM, home ventilation, Human, Intensive Care Unit, Jabre NA, Lanier CL, Length Of Stay, Male, McDermott A, Mercer A, Palliative Therapy, PEC Innovation, pediatric patient, Pilot Study, Quality Of Life, Question Prompt List, respiratory failure, Semi Structured Interview, Shepard J, Tracheostomy, Ventilators, Mechanical, Vo HH, Wilfond BS
A Pilot Study Of The Effectiveness Of Home Teleconsultations In Paediatric Palliative Care
Tags: 2012, Adult, Armfield NR, Bensink ME, Bradford N, Caregivers, Caregivers/px [psychology], Cohort Studies, Female, Health Services Accessibility, Herbert A, Humans, Journal of Telemedicine & Telecare, Male, May 2017 List, Middle Aged, Outcome And Process Assessment (health Care), Palliative Care, Palliative Care/mt [methods], Palliative Care/st [standards], Patient Satisfaction, Pedersen LA, Pediatrics/mt [methods], Pediatrics/st [standards], Pilot Projects, Prospective Studies, Quality Of Life, Referral And Consultation, Remote Consultation/ut [utilization], Rural Population, Smith AC, Young J
From the Child’s Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
End-of-life Decisions For Extremely Preterm Infants - A Matter Of Language, Gender And Education?
Tags: 2017, Acta Paediatrica, April 2017 List, Artificial Ventilation, Bührer C, Editorial, Education, Ethical Decision Making, Female, France, Gender, Germany, Human, Human Experiment, Infant, Italy, Language, Male, Physician Attitude, Prematurity, Prematurity/dm [disease Management], Priority Journal, Quality Of Life, Shared Decision-making, Switzerland, Terminal Care
Impact of compounded drugs on the caregivers' burden of home therapy management in pediatric palliative care: A descriptive study
Cost-effectiveness analysis of ziprasidone versus haloperidol in sequential intramuscular/oral treatment of exacerbation of schizophrenia: economic subanalysis of the ZIMO trial.
Tags: 2007, Administration, Adult, Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/ec [Economics], Backlog, Brief Psychiatric Rating Scale, Canas F, Clinical Drug Investigation, Combination, Cost Of Illness, Cost-Benefit Analysis, Diaz S, Drug Costs, Drug Therapy, Female, Haloperidol/ad [Administration & Dosage], Haloperidol/ec [Economics], Hospital Costs, Humans, IM, Injections, Intramuscular, Journal Article, Length of Stay/ec [Economics], Male, Oral, Perez-Sola V, Piperazines/ad [Administration & Dosage], Piperazines/ec [Economics], Quality Of Life, Rejas J, Research Design, Schizophrenia/dt [Drug Therapy], Schizophrenia/ec [Economics], Spain, Thiazoles/ad [Administration & Dosage], Thiazoles/ec [Economics], Treatment Outcome, ZIMO Trial Collaborative Group
Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor
Tags: 2006, Adolescent, Adult, Backlog, Bisogno G, Brain Neoplasms/psychology/therapy, Cardarelli C, Cereda C, Child, Faggin R, Female, Health Status, Humans, Italy, Journal Article, Laverda A, Male, Masiero L, Non-U.S. Gov't, Pediatric Blood & Cancer, PedPal Lit, Perilongo G, Quality Of Life, Questionnaires, Research Support, Survivors, Viscardi E
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Ethical considerations in end-of-life care and research
Tags: 2005, Backlog, Beneficence, Casarett D, Decision Making/ethics, Empirical Research, Ethics, Human Experimentation/ethics, Humans, Journal Article, Journal of Palliative Medicine, Mental Competency, Multi-site Ethics, Palliative Care/ethics, Psychological, Quality Of Life, Reproducibility of Results, Research, Research Subjects, Stress, Terminal Care/ethics
Development of a quality of life instrument for children with advanced cancer: The pediatric advanced care quality of life scale (PAC-QoL)
Pediatric oncology nursing research in low- and middle-income countries
Tags: 2020, Afungchwi G M, Alqudimat M R, alternative medicine, Burkitt lymphoma, cancer incidence, Cancer Survival, Caregiver, Caregiver Burden, caregiver burnout, Challinor J M, Cytotoxicity, Day S W, Developing World 2020 List, economic status, Fatigue, geographic distribution, gross national income, Health Care Personnel, high income country, Human, immune status, Impact of Events Scale, Infant Mortality, Kaposi sarcoma, lifestyle, low income country, malnutrition, Methodology, middle income country, nurse training, Nursing Care, Nursing Practice, nursing science, Nutrition, Pain, Palliative Therapy, Pediatric Oncology, pediatric oncology nursing, PostTraumatic Stress Disorder, Priority Journal, Quality Of Life, risk factor, Sepsis, Southeast Asian, Southern Europe, Stress, traditional medicine, treatment response
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
Late Effects of Treatment and Palliative Care
Tags: 147-94-4 (cytarabine), 154-93-8 (carmustine), 15475-56-6 (methotrexate), 15663-27-1 (cisplatin), 2017, 26035-31-4 (cisplatin), 59-05-2 (methotrexate), 69-74-9 (cytarabine), 7413-34-5 (methotrexate), 96081-74-2 (cisplatin), Advance Care Planning, Appetite Disorder, Banerjee A, Bone Density, Brain Tumor, Carmustine, Central Nervous System Tumor, Chang E, Childhood Cancer Survivor, Cisplatin, Constipation, Corticosteroid, Cytarabine, Diarrhea, Dyspnea, Endocrine Disease, Fatigue, Genetic Polymorphism, Goldsby R, Health Care Quality, Human, Incidence, Medical Decision Making, Medulloblastoma, Methotrexate, Morbidity, Mortality Rate, Mueller S, Nausea And Vomiting, Neuroectoderm Tumor, Neuropathic Pain, Neuropsychological Test, November 2017 List, Pain Assessment, Palliative Therapy, Patient Care, Pediatric Oncology, Phase 1 Clinical Trial (topic), Priority Journal, Psychosocial Disorder, Quality Of Life, Questionnaire, Radiation Injury, Respiration Depression, Seizure, Signal Transduction, Spasticity
Speaking a different language: Communication patterns of palliative care and pediatric intensive care unit providers during family conferences
Tags: 2017, audio recording, Ciriello A G, conference abstract, Controlled Study, December 2018 List, genetic transcription, Health Care Personnel, hopelessness, Human, Human Experiment, Language, Medical Information, October TW, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Quality Of Life, Retrospective Study, Speech, Thematic Analysis, Uncertainty
Evaluating Palliative Care Resources Available to the Public Using the Internet and Social Media
Tags: 2018, American Journal of Hospice & Palliative Medicine, Claudio CH, Cross Sectional Studies, Dizon ZB, Emotions, Facebook, Health Education, Health Information Evaluation, Human, Information Seeking Behavior, Internet Utilization, Medline, October TW, Palliative Care, Quality Of Life, Search Engines, September 2018 List, Social Media Utilization, Thematic Analysis, Twitter, videorecording, World Wide Web
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain
Tags: 1997, Backlog, Bruera E, Cohen SR, Humans, Journal Article, Longitudinal Studies, Mental Health, Mental Status Schedule, Mount BM, Multicenter Studies as Topic, Neoplasms/psychology, Palliative Care, Palliative Medicine, Provost M, Quality Of Life, Questionnaires, Reproducibility of Results, Rowe J, Sensitivity and Specificity, Tong K
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
Health-related Quality-of-life Outcome Measures In Paediatric Palliative
Care: A Systematic Review Of Psychometric Properties And Feasibility Of Use
The number of children worldwide requiring palliative care services is increasing due to advances in medical care and technology. The use of outcome measures is important to improve the quality and effectiveness of care.
AIM:
To…
Moving on from paediatric to adult health care: an initial evaluation of a transition program for young people with cystic fibrosis
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Adult, Age Factors, Backlog, Bibby H, Chronic Disease, Continuity Of Patient Care/organization & Administration, Craig SL, Cross-sectional Studies, Cystic Fibrosis/psychology/therapy, Female, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Male, Middle Aged, Patient Satisfaction, Program Development, Program Evaluation, Quality Of Life, Questionnaires, Sickness Impact Profile, Time Factors, Towns S
Because statistics don't tell the whole story: a call for comprehensive care for children with cancer
Tags: 2014, Adaptation, Backlog, Ca: A Cancer Journal For Clinicians, Cullen J, Data Interpretation, Decision Making, Delivery of Health Care, Grief, Humans, Integrated, Journal Article, Neoplasms, Palliative Care, Pediatrics, Professional-family Relations, Psychological, Quality Of Life, Social Support, statistical
Pediatric advance care planning (pACP) for teens with cancer and their families: Design of a dyadic, longitudinal RCCT
Tags: 2017, Adolescent, Advance Care Planning/og [Organization & Administration], Communication, Contemporary Clinical Trials, Curtin KB, Decision Making, Family/px [psychology], Female, Humans, Longitudinal Studies, Lyon ME, Male, Neoplasms/px [psychology], Okonkwo OC, Oncology 2018 List, Patient Preference/px [Psychology], Quality Of Life, Research Design, Single-Blind Method, Terminal Care/og [organization & Administration], United States, Wang J, Watson AE, Young Adult
A measure of the quality of dying and death. Initial validation using after-death interviews with family members
Tags: 2002, Aged, Asp C, Attitude To Death, Backlog, Byock I, Cohort Studies, Curtis JR, Death, Engelberg RA, Family, Female, Human, Interviews, Journal Article, Journal of Pain and Symptom Management, Male, Middle Age, Non-U.S. Gov't, Norris K, Patrick DL, Personal Satisfaction, Quality Of Life, Questionnaires/standards, Retrospective Studies, Support, Terminal Care
Utilization of palliative care consultations in pediatric oncology phase I clinical trials
Defining the Boundaries of Palliative Care in Pediatric Oncology
Tags: 2020, Article, Boss R D, Cancer Patient, Child, Childhood Cancer, Comfort, Content Analysis, Controlled Study, Cuviello A, Donohue P K, Female, genetic transcription, Human, Interview, Journal of Pain and Symptom Management, Major Clinical Study, Male, Mental Health, Nurse Practitioner, Oncology 2020 List, Palliative Therapy, pediatric oncologist, Quality Of Life, Raisanen J C, Skill, standardization, Terminal Care, Wiener L
Initiating Palliative Care Referrals in Pediatric Oncology
Research methodology: cancer cachexia syndrome
Limitation of Futile Therapy in the Opinion of Nursing Staff Employed in Polish Hospitals-Results of a Cross-Sectional Study
Tags: 2022, Adult, Attitude Of Health Personnel, Cesarean Section, Child, Cross-sectional Studies, Damps M, Gajda M, Human, International Journal of Environmental Research and Public Health, Kowalska M, Kucewicz-Czech E, March List 2023, Medical Futility, Nursing Staff, Poland, Quality Of Life, Surveys And Questionnaires
Self-requested euthanasia for children in Belgium
Tags: 2014, Active, Adolescent, Backlog, Belgium, Choice Behavior, Dan B, de Cléty Stéphan Clément, Decision Making, Europe, Euthanasia, Fonteyne C, Humans, Journal Article, Lancet, Mental Competency, Minors, Palliative Care, Patient Rights, Personal Autonomy, Quality Of Life, Voluntary, Wedge Argument, Young Adult