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Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study*

OBJECTIVE: To describe parent perspectives regarding the end-of-life experience of children with advanced heart disease. DESIGN: Cross-sectional multicenter survey study of bereaved parents. SETTING: Two tertiary care pediatric hospitals. SUBJECTS:…

Tags: 2014, Aiyagari R, Backlog, Balkin EM, Beke DM, Blume ED, Journal Article, Kulik T, parent professional relations, Pediatric Critical Care Medicine, Pituch K, Quality Of Life, Taylor L, Thiagarajan R, Wolfe J, Ziniel SI

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