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Tags: Taylor L

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The impact of clinical trial enrollment on specialty palliative care utilization in pediatric patients with high-grade gliomas

BACKGROUND: Palliative care (PC) provides numerous benefits for children with cancer. Pediatric patients with high-grade glioma (HGG) are particularly well suited for early PC involvement given their high symptom burden and poor prognosis. However,…

Tags: 2023, 2023 SE3 - Oncology, Child, Clinical Trial, Clinical Trials as Topic, Disease Progression, Franson AT, Glioma, Glioma/therapy/pathology, high-grade glioma, Humans, Palliative Care, Pediatric Blood and Cancer, Pediatric Brain Tumor, Roberts HJ, Spruit JL, Taylor L, Wang Y

Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study*

OBJECTIVE: To describe parent perspectives regarding the end-of-life experience of children with advanced heart disease. DESIGN: Cross-sectional multicenter survey study of bereaved parents. SETTING: Two tertiary care pediatric hospitals. SUBJECTS:…

Tags: 2014, Aiyagari R, Backlog, Balkin EM, Beke DM, Blume ED, Journal Article, Kulik T, parent professional relations, Pediatric Critical Care Medicine, Pituch K, Quality Of Life, Taylor L, Thiagarajan R, Wolfe J, Ziniel SI

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