Browse Items (145 total)

Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E

Tags: 2018, April 2018 List, Article, Child, Clinical Article, de Vos MA, Disabled Children, Distress Syndrome, Ewals F, Female, Handicapped Child, Human, Human Experiment, Intellectual Impairment, Journal of Intellectual Disability Research., Male, Morality, Nurse, Only Child, Qualitative Research, Quality Of Life, Retrospective Study, Semi Structured Interview, van Goudoever JB, Willems DI, Zaal-Schuller IH

Tags: 2017, Brain Tumor, Cancer Patient, Child, Clinical Article, Female, Hematologic Malignancy, Human, Japan, Kizawa Y, Male, Multicenter Study, Nurse, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, Questionnaire, Yotani N

Tags: 2018, Adult, cancer center, Child, Clinical Article, conference abstract, Controlled Study, December 2018 List, Female, Human, Japan, Kizawa Y, Male, Palliative Therapy, Pediatric Blood and Cancer, Questionnaire, solid malignant neoplasm, Yotani N

Tags: 2019, Article, cancer center, Child, Childhood Cancer, Clinical Article, Ethics, Female, Friedman D N, Human, invasive procedure, Male, McCabe M S, Oncology 2019 List, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Physician, Resuscitation, Retrospective Study, Risk Benefit Analysis, Terminal Care, Voigt L P, Winter M C

Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V

Tags: 2017, Bosman DK, Case Management, Child, Clinical Article, Colenbrander DA, concrete, Coordination, Expectation, Female, Grootenhuis MA, Human, Interview, Jagt CT, January 2018 List, Kars MC, Male, Palliative Medicine, Palliative Therapy, Pediatrics, Qualitative Research, Schouten-Van Meeteren AYN, Thematic Analysis, van Delden JJM, Verberne LM

Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM

Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M

Tags: 2023, Adolescent, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Cross-sectional Study, Disease Management, Drug Therapy, European Journal of Pediatrics, February List 2024, Female, Guillen M, Human, Limonero JT, Male, nonparametric test, Palliative Therapy, Parent, Perception, psychologic assessment, Quality Of Life, sociodemographics, special situation for pharmacovigilance, Toro-Perez D, Vilarrubi SN, Voice

Tags: 2023, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Controlled Study, Cross-sectional Study, Demography, Emotion, emotional well-being, Female, Guillen M, health practitioner, Human, Limonero JT, Male, May List 2023, Navarro Vilarrubi S, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Perception, Pilot Projects, Pilot Study, psychologic assessment, School Child, Toro-Perez D, vision, Visual Analog Scale, Wellbeing

Tags: 2016, 7 dehydrocholesterol/ec [Endogenous Compound], 8 dehydrocholesterol/ec [Endogenous Compound], adaptive behavior, Adolescent, Adult, Aggression, Albert P, Article, Autism, automutilation, Behavior, Bianconi S, Bukelis I, Case Study, cerebrospinal fluid level, characteristics, Child, Child Rearing, childhood, cholesterol/ec [Endogenous Compound], Clinical Article, Cognition, delayed development, development, Developmental delay, Farmer C, Female, Human, Intelligence Quotient, Interpersonal Communication, Joseph L, Journal of Neurodevelopmental Disorders, Lanham D, Male, Observational Study, Parent, Porter F D, Preschool Child, Priority Journal, problem behavior, Sarphare G, Smith Lemli Opitz syndrome, Smith-Lemli-Opitz syndrome, Socialization, Stanford-Binet Intelligence Scale, Sterols, Swedo S, Thurm A, Tierney E, tone and motor problems, Trajectory, Unclassified Drug, Walking, Wassif C A, Wheeler C, Young Adult

Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M

Tags: 2023, absence of side effects, Adolescent, Archives of Disease in Childhood, Box D, buccal drug administration, Case Study, Child, Clinical Article, conference abstract, drug megadose, Drug Therapy, Dyspnea, Female, Fentanyl, Hain R, Hills M, Hospice, Human, Male, maximum permissible dose, mouth cavity, Neurologic Disease, October List 2032, Opiate, Pain, Palliative Care, Palliative Therapy, Retrospective Study, Taylor N, Woods S

Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult

Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J

Tags: 2018, Bereavement, Child, Clinical Article, conference abstract, Consterdine K, Consultation, Diagnosis, Female, Follow Up, genetic transcription, Human, Intensivist, Learning, Male, Memory, November 2018 List, Nurse, Pediatric Critical Care Medicine, Ryan C, Staff, Subramanian G, Terminal Care

Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing

Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy

Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales

Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T

Tags: 2018, Child, Clinical Article, Cohort Analysis, Comfort, Communication Skill, Critical Care Medicine, Curriculum, Death, Flint H, Human, Intensive Care, Legal Aspect, Likert scale, March 2018 List, maturation, Palliative Therapy, Poynter-Wong S, Prospective Study, Role Playing, Short SR, Simulation, Spike

Tags: 2016, Adolescent, Aksoy S, Akyol U, Article, aspiration scale, auditory response, Balance disorders, body equilibrium, characteristics, Child, Clinical Article, Controlled Study, Demir N, Dysphagia, Endoscopy, feeding difficulties, Female, Flexible endoscopy, hearing, hearing impairment, Hearing problems, Human, International Journal of Pediatric Otorhinolaryngology, Kuscu O, Male, Niemann Pick disease/di [Diagnosis], Niemann-Pick Disease, NPC, Otorhinolaryngology, penetration, postural imbalance, Preschool Child, Priority Journal, Prospective Study, pure tone audiometry, School Child, Senirli R T, stabilography, Swallowing, Swallowing disorders, tone and motor problems, Topcu M, Trajectory, vestibular system, Yigit O

Tags: 2019, Adolescent, Adult, Article, Barnett M, Bereavement, Brief Symptom Inventory, Caregiver, Child, Childhood Cancer, Clinical Article, Complicated Grief, Controlled Study, Female, Grief, Health Care Personnel, Human, Infant, Journal of Palliative Medicine, Madan-Swain A, Male, mental function, Oncology 2019 List, Perception, prolonged grief, Questionnaire, Reynolds N C, Schaefer M R, Spencer S K, support group, time of death

Tags: 2 hydroxypropyl beta cyclodextrin, 2018, 94035-02-6 (2 hydroxypropyl beta cyclodextrin), Adolescent, Adult, Alter K, Article, balance impairment, body equilibrium, case control study, characteristics, Child, Clinical Article, clinical evaluation, Comparative Study, coordination disorder, disease severity assessment, Farhat N, Female, gait disorder, Human, Human Development, intervention study, Journal of Child Neurology, Keener L A, Male, molecular stability, motion analysis system, Neurologic Examination, Niemann Pick disease, NIH NPC Neurologic Severity Scale, NPC, outcome assessment, performance, Porter F, Preschool Child, Priority Journal, Research, Retrospective Study, Sansare A, School Child, scoring system, spatiotemporal analysis, stabilography, Stanley C, tone and motor problems, Trajectory, Upper limb, vts 270, Young Adult, Zampieri C

Tags: 2024, Acta Paediatrica, ambivalence, Article, Clinical Article, Decision Making, Father, Female, Human, Infant Newborn, Intensive Care Units, Interview, Lamore K, Life Sustaining Treatment, Male, March List 2024, meaning-making, Medical Ethics, Mur S, Nandrino JL, Neonatal Intensive Care Unit, Newborn Intensive Care, Palliative Therapy, Parent, Prieur C, Qualitative Research, Rethore S, SaintDenny K, shared decision making, Storme L

Tags: 2016, Adult, Advance Care Planning, Article, assisted circulation, Child, Clinical Article, Decision Making, Fahlberg BB, Family, February 2018 List, Heart Failure, Heart-Assist Devices, Hospice Care, Human, Journal of Pain and Symptom Management, Kirkpatrick JN, Medicaid, Medical Specialist, Medicare, O'Connor NR, Palliative Care, Palliative Therapy, Patient Referral, Perception, Pisani BA, Qualitative Research, Sagin A, Self-Help Devices, Semi Structured Interview, Sundlof AL, telephone interview, ventricular assist device

Tags: 2019, Adolescence, Adolescent, Adult, Albrecht U V, Anthropometry, Article, Breathing, Child, chronic lung disease, Clinical Article, Controlled Study, Cystic Fibrosis, Disability, Dittrich A M, Dopfer C, February 2020 List, Female, Fuge J, Hansen G, Human, JMIR mHealth and uHealth, Junge S, Life Expectancy, life satisfaction, lung function, Male, mobile application, mobile phone, Nolte H, Pieper K, Quality Of Life, Questionnaire, responsibility, Ringshausen F C, Rudolf I, Sauer-Heilborn A, Self Care, Tummler B, von Jan U, Young Adult

Tags: 2019, Adult, Article, Awareness, Child, Childhood Cancer, Clinical Article, Controlled Study, De Clercq E, Education, Elger B, Female, Human, Journal Of Pediatric Oncology Nursing, Male, Nurse, Oncologist, Oncology 2019 List, outpatient care, Palliative Therapy, personnel shortage, Politics, Qualitative Research, Rakic M, Reimbursement, Rost M, Social Worker, Switzerland, Thematic Analysis, Wangmo T

Tags: 2018, Bereavement, care behavior, Child, Clinical Article, Comfort, conference abstract, Controlled Study, Curriculum, February 2020 List, Female, Human, Human Experiment, Jones A, Learning, Likert scale, Male, Medical School, medical student, pediatric oncologist, Pediatrics, preclinical study, Rolfes M, Starr S, Sunde K, Terminal Care

Tags: 2017, Analgesia, Araya E, Central Nervous System Tumor, Child, Chile, Clinical Article, Counseling, Diagnosis, Doctor Patient Relation, Female, Gallastegui A, health Insurance, Home Visit, Human, Leukemia, Lopez P, Nurse, Outpatient, Overall Survival, Palliative Therapy, Pediatric Blood and Cancer, private Practice, Psychologist, Rojas N, Rosas A, School Child, Telephone, Varela J

Tags: 2023, Adult, Article, August List 2046, BMC Palliative Care, Child, Chocarro-González L, Clinical Article, Controlled Study, Decision Making, Female, Gueita-Rodriguez J, Health Care System, Human, Male, Martino-Alba R, Multidisciplinary team, Organization, Palacios-Cena D, Palliative Care, Palliative Therapy, Patient Care Team, Pediatrics, Qualitative Research, Rico-Mena P, Sanz-Esteban I, Semi Structured Interview, Skill, Thematic Analysis

Tags: 2023, care behavior, Child, Clinical Article, conference abstract, Content Analysis, Critically Ill Patient, Decision Making, electronic medical record, Female, Gillam L, Human, Infant, Journal of Paediatrics and Child Health, July List 2023, Male, Neonatal Intensive Care Unit, Perception, Power J, Prentice TM, Semi Structured Interview, Sibling, Wellbeing

Tags: 2018, August 2018 List, Child, Clinical Article, conference abstract, Data Analysis, Death, Father, Female, Genetic Disorder, genetic transcription, Grounded Theory, Human, Human Tissue, Identity, immune deficiency, Interview, Leukemia, Loucka M, Male, Mother, Palliative Medicine, Palliative Therapy, Polakova K, Qualitative Research, risk factor, solid malignant neoplasm, Terminal Care, terminally Ill Patient

Tags: 2019, Annals of Intensive Care, Artificial Ventilation, bradycardia, Brain Death, Caregiver, Cause Of Death, Child, Chronic Disease, Clinical Article, conference abstract, cyanosis, Drug Withdrawal, edema, February 2020 List, Human, Hypotension, Le Bourgeois F, Male, Naudin J, Neurologic Disease, pallor, Pediatric Intensive Care Unit, petechia, Pierron C, Poncelet G, Prospective Study, respiratory failure, skin color, Sommet J, time of death

Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A

Tags: 2018, Adult, April 2018 List, Article, Byrne M, Child Parent Relation, Clinical Article, Daho M, Female, fluid intake, Foe G, Health Care Delivery, Health Care Quality, health program, Health Survey, Human, Infant, Infant Nutrition, Journal Of Perinatology, kangaroo care, Life Expectancy, life limiting disease, Male, Newborn, Newborn Care, Parental Attitude, parental behavior, Parravicini E, Patient Comfort, Peer Review, physical disease, Prospective Study, Self Report, standardization, Steinwurtzel R

Tags: 2023, Article, Awareness, Bedendo A, Beresford B, BMC Palliative Care, Child, Child Health Care, Clinical Article, Education, Feltbower RG, Female, Fraser LK, Funding, Hackett J, Hain R, Haynes A, Hinde S, Human, Human Experiment, Male, Murtagh F, Noyes J, October List 2040, Oddie S, Organization, Palliative Therapy, Papworth A, Phillips B, Qualitative Research, Semi Structured Interview, Specialization, Subramanian G, Terminal Care, Thematic Analysis, Vasudevan C, Walker G, Weatherly H

Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A

Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death