Browse Items (346 total)
- Tags: Quality Of Life
Factors important to patients' quality of life at the end of life
Tags: 2012, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Caregivers, Drug Therapy, Female, Follow-up Studies, Humans, Journal Article, Male, Meditation, Middle Aged, Models, Neoplasms, Nilsson ME, Pastoral Care, Physician-patient Relations, Prigerson HG, Prospective Studies, Quality Of Life, statistical, Terminal Care, Terminally Ill, United States, Zhang B
Considering quality of life in end-of-life decisions for severely disabled children
Involvement of nurses in end-of-life discussions for severely disabled children
Tags: 2018, April 2018 List, Article, Child, Clinical Article, de Vos MA, Disabled Children, Distress Syndrome, Ewals F, Female, Handicapped Child, Human, Human Experiment, Intellectual Impairment, Journal of Intellectual Disability Research., Male, Morality, Nurse, Only Child, Qualitative Research, Quality Of Life, Retrospective Study, Semi Structured Interview, van Goudoever JB, Willems DI, Zaal-Schuller IH
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Current Status of Intensive End-Of-Life Care in Children with Hematologic Malignancy: A Population-Based Study
Attitudes on pain and opioid prescription practices in cystic fibrosis centers
Tags: 2017, 53663-61-9 (opiate), 8002-76-4 (opiate), 8008-60-4 (opiate), Adult, Analgesia, anxiety, Child, Chronic Pain, cyst, Cystic Fibrosis, drug combination, Female, Hollatz T, Human, January 2018 List, Laxova A, Life Expectancy, Male, Meyer KC, Mood, Mukadam Z, Nurse, Opiate, opiate addiction, Palliative Therapy, Pediatric Pulmonology, prescription, Prevalence, Quality Of Life, Questionnaire, sinus headache, thorax wall, Yang Y
Pediatric palliative care utilization by decedent children: A nationwide population-based study, 2002-2017
Improving the Care of Children With Advanced Cancer by Using an Electronic Patient-Reported Feedback Intervention: Results From the PediQUEST Randomized Controlled Trial
Tags: 2014, Backlog, Child, Cook EF, Dussel V, Electronic Health Records, Feedback, Female, Feudtner C, Geyer JR, Humans, Intervention Studies, Journal Article, Journal Of Clinical Oncology, Kang TI, Male, Neoplasms, Orellana L, Palliative Care, Pilot Projects, Preschool, Quality Of Life, Sickness Impact Profile, Symptom Assessment, Treatment Outcome, Ullrich CK, Weeks Jane C, Wolfe J
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care
Tags: 2022, Alleviation, April 2022 List, BMC Palliative Care, Child, concept, Früh EA, Health care professionals, Holmen H, Hospice And Palliative Care Nursing, Humans, Kvarme LG, Lee A, Life Limiting, Lorentsen VB, Misvær N, Paediatric, Palliative Care, Palliative Care/psychology, Pediatric, Ppc, Qualitative Research, Quality Of Life, Riiser K, Social Support, Steindal SA, Terminal Care, Winger A
Palliative Care and Population Management: Utilization of Palliative Care in Pediatric Critical Care Nursing
Tags: 2022, April 2022 List, Child, Critical Care Nursing, Critical Care Nursing Clinics Of North America, Family-centered Care, Hospice And Palliative Care Nursing, Humans, Infant Newborn, Palliative Care/methods, Pediatric End-of-life Care, Pediatric Palliative Care, Quality Of Life, Terminal Care, Williams LJ
Valuing life and evaluating suffering in infants with life-limiting illness
Ethical Dilemmas In Postnatal Treatment Of Severe Congenital Hydrocephalus.
Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics
When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices
National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative Care
Tags: 2018, Advance Care Planning, Article, Bouffet E, Brennenstuhl S, Canada, Cancer Palliative Therapy, Child, Childhood Cancer, Clinical Practice, Friedrichsdorf S, Greenberg M, Health Care Quality, health practitioner, Human, Husain A, Journal of Palliative Medicine, Leyden M, Liben S, Medical Education, November 2018 List, Pediatrics, Pole JD, professional knowledge, Quality Of Life, Rapoport A, Self Care, Siden H, tertiary care center, Total Quality Management, Whitlock JA, Widger K, Wolfe J
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
A Plateau in Pediatric Palliative Program Prevalence
Proxy-Reported Quality of Life and Family Impact for Children Followed Longitudinally by a Pediatric Palliative Care Team
Tags: 2018, Analysis of Variance, April 2018 List, Article, Attention, Bace S, Child, daily life activity, Darnall C, Diagnosis, Female, Human, Journal of Palliative Medicine, Longitudinal Studies, longitudinal study, Macfadyen A, Major Clinical Study, Male, Metronidazole, minimal clinically important difference, Only Child, Palliative Care, Palliative Therapy, physical model, Prospective Study, Quality Of Life, Statistical Significance, Vail C, Weaver M, Wichman C
Trending Longitudinal Agreement Between Parent And Child Perceptions Of Quality Of Life For Pediatric Palliative Care Patients
A Prospective, Crossover Survey Study of Child- and Proxy-Reported Quality of Life According to Spinal Muscular Atrophy Type and Medical Interventions
Palliative Care
Tags: 103-90-2 (paracetamol), 1095-90-5 (methadone), 125-56-4 (methadone), 12794-10-4 (benzodiazepine), 137-58-6 (lidocaine), 2017, 23142-53-2 (methadone), 24847-67-4 (lidocaine), 297-88-1 (methadone), 437-38-7 (fentanyl), 53663-61-9 (opiate), 56934-02-2 (lidocaine), 60142-96-3 (gabapentin), 73-78-9 (lidocaine), 76-99-3 (methadone), 8002-76-4 (opiate), 8008-60-4 (opiate), Acute Stress Disorder, Alcohol Consumption, Anticonvulsive Agent, Appetite, Benzodiazepine, Brill P, Connelly E, Corticosteroid, Distress Syndrome, Dyspnea, Fentanyl, Gabapentin, Hair Loss, Health Care Personnel, Health Care System, Hospital, Howk T, Human, Intensive Care Unit, Lidocaine, Major Depression, Medical Staff, Methadone, Mortality, Nausea And Vomiting, Neoplasm, November 2017 List, Obesity, Opiate, Palliative Therapy, Paracetamol, Paralysis, Patient Care Planning, Pediatric Oncology, Pillai R, Postovsky S, Priority Journal, Prostaglandin/ec [endogenous Compound], Quality Of Life, Tracheostomy, Wasilewski-Masker K, Wrammert KC
Smoked cannabis for chronic neuropathic pain: a randomized controlled trial
Tags: 2010, Adult, Aged, Backlog, Bennett GJ, Canadian Medical Association Journal, Chronic Disease, Collet JP, Cross-Over Studies, Double-Blind Method, Ducruet T, Female, Gamsa A, Humans, Huynh T, Journal Article, Linear Models, Male, Marijuana Smoking, Middle Aged, Neuralgia/drug therapy, Pain Measurement, Placebos, Quality Of Life, Robinson A, Shapiro S, Sleep/drug effects, Tetrahydrocannabinol/administration & dosage/adverse effects/therapeutic use, Treatment Outcome, Wang T, Ware M
Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M
Death in the intensive care nursery: physician practice of withdrawing and withholding life support
Tags: 1997, Backlog, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Life Support Systems, Medical Futility, Newborn, Partridge JC, Passive, Pediatric, Pediatrics, Quality Of Life, San Francisco, University of California, Very Low Birth Weight, Wall SN
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R
Cardiopulmonary resuscitation in patients with cancer.
Concerns of Parents with Children Receiving Home-Based Pediatric Palliative Care
Outcomes following perinatal palliative care consultation: a retrospective review
Intravenous ketamine infusion as an adjuvant to morphine in a 2-year-old with severe cancer pain from metastatic neuroblastoma
Tags: 2004, Administration, Analgesics, Backlog, Codeine/administration & Drug Therapy, Combination, Davies D, Desai S, Dyspnea/chemically induced, Fatal Outcome, Female, Hallucinations/chemically induced, Humans, Infusions, Intractable/drug therapy/etiology, Intravenous, Journal Article, Journal Of Pediatric Hematology/oncology, Ketamine/administration & Methadone/administration & dosage/adverse effects/therapeutic use, Malherbe S, Morphine/administration & Neuroblastoma/physiopathology, Non-Narcotic/administration & dosage/therapeutic use, Non-U.S. Gov't, Opioid/administration & Child, Oral, Pain, Palliative Care, Preschool, Quality Of Life, Research Support, Tsui BC
Addressing Psychosocial Support in Children with Cancer in Low- and Middle-Income Countries
Tags: 2019, Bansal D, Cancer Mortality, Cancer Palliative Therapy, childhood cancer/dm [Disease Management], Developing World 2019 List, Health Care Personnel, health practitioner, Human, Indian Journal Of Pediatrics, low income country, middle income country, Note, Patient Care, patient counseling, Psychologist, psychosocial care, Quality Of Life, Social Worker, tertiary health care, Totadri S
Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives
Tags: 2023, Adolescent, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Cross-sectional Study, Disease Management, Drug Therapy, European Journal of Pediatrics, February List 2024, Female, Guillen M, Human, Limonero JT, Male, nonparametric test, Palliative Therapy, Parent, Perception, psychologic assessment, Quality Of Life, sociodemographics, special situation for pharmacovigilance, Toro-Perez D, Vilarrubi SN, Voice
Pediatric cardiopulmonary resuscitation: advances in science, techniques, and outcomes
Tags: 2008, Animals, Backlog, Berg RA, Blood Pressure, Cardiopulmonary Resuscitation, Child, Extracorporeal Membrane Oxygenation, Heart Arrest/epidemiology/mortality/physiopathology/therapy, Humans, Infant, Journal Article, Life Support Care, Magnetic Resonance Imaging, Nadkarni VM, Nerve Growth Factors/blood, Newborn, No-Reflow Phenomenon/physiopathology, Pediatrics, Premature, Prognosis, Quality Of Life, Regional Blood Flow, S100 Proteins/blood, Topjian AA, Vascular Resistance, Ventricular Fibrillation/epidemiology/physiopathology
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
How holistic nursing can enhance the quality of life of children with cystic fibrosis
Tags: 2016, Adolescent, August 2017 List, Child Health, Cystic Fibrosis, Cystic Fibrosis/ Nursing/psychology, Family/psychology, Female, Holistic Nursing/ Methods, Humans, Hunt J, life-limiting illness, Nursing Children and Young People, Paediatrics, Quality Of Life, Respiratory System, Siblings/psychology, Tointon K, Well-being
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Relationships between symptom relief, quality of life, and satisfaction with hospice care
Tags: 1998, Aged, Australia, Backlog, Cohort Studies, Female, Hannan TJ, Horton SM, Hospice Care/standards, Human, Journal Article, Male, Non-U.S. Gov't, Outcome Assessment (health Care), P.H.S., Pain Measurement, Palliative Medicine, Patient Care, Patient Satisfaction, Prospective Studies, Quality Of Life, Support, Tierney RM, Tierney WM, U.S. Gov't
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL