Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness

Title

Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness

Creator

Teno JM; Byock I; Field MJ

Publisher

Journal Of Pain And Symptom Management

Date

1999

Subject

Palliative Care; Terminal Care; Terminally Ill; Patients; Research Design; Quality of Health Care; quality of life

Description

Despite the universality of dying, research has not focused on developing conceptual models and measurement tools for examining the quality of care and quality of life of dying patients and their loved ones. We present here a vision and research agenda for the development of a Tool Kit of Instruments to Measure End of Life Care (TIME). Instruments for inclusion in the eventual "Tool Kit" should be patient-focused and family-centered, clinically meaningful, administratively manageable, and psychometrically sound. Prioritizing domains to measure quality of care should be based on consumer input and synergistic with ongoing efforts to formulate guidelines and standards of care. For this vulnerable population, research is needed regarding the timing and sources of data collection. In order to achieve maximal benefit, ultimately measurement tools must be incorporated into existing measurement systems and consideration be given to generating informative reports which leads to institutional action to improve the quality of care. [References: 29]
1999

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

75-82

Issue

2

Volume

17

Citation

Teno JM; Byock I; Field MJ, “Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness,” Pediatric Palliative Care Library, accessed September 17, 2021, https://pedpalascnetlibrary.omeka.net/items/show/12200.

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