Browse Items (58 total)
- Tags: Needs Assessment
Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care
Tags: 2003, Adolescent, Adolescent Transitions, Adult, Aging/psychology, Attitudes, Backlog, Boston, Colin AA, Continuity Of Patient Care/organization & Administration, Counseling/organization & administration, Cystic Fibrosis/psychology/therapy, Day Care/organization & administration, Emans SJ, Female, Harney K, Health Care Surveys, Health Knowledge, Humans, Jacobs CP, Journal Article, Keenan PM, Male, Massachusetts, Needs Assessment, Pediatric Pulmonology, Practice, Preventive Medicine/organization & administration, Prospective Studies, Pulmonary Disease (Specialty)/statistics & numerical data, Woods ER, Zack J
What Information Do Parents Need When Facing End-of-life Decisions For Their Child? A Meta-synthesis Of Parental Feedback
Tags: 2015, BMC Palliative Care, Communication, Decision Making, Health Knowledge Attitudes Practice, Hope, Humans, Intensive Care Units Pediatric/organization & Administration, July 2017 List, Needs Assessment, Parents/education, Parents/psychology, Sullivan J, Terminal Care/methods, Terminal Care/psychology, Time Factors, Wilkinson D, Xafis V
Family, maternal, and child health through photovoice
Tags: 2004, Adolescent, Adult, Backlog, California, Child, Child welfare, Community Networks, Family Health, Female, Health Planning, Humans, Journal Article, Male, Maternal And Child Health Journal, Maternal Welfare, Middle Aged, Needs Assessment, Non-U.S. Gov't, Photography, Pies CA, Policy Making, Research Support, Wang CC
Study protocol: evaluation of specialized outpatient palliative care (SOPC) in the German state of Hesse (ELSAH study) - work package II: palliative care for pediatric patients
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care
Tags: 2021, Allocation, Bed Occupancy, Complex health needs, England, Hospice And Palliative Care Nursing, Hospice Care/organization & administration, Hospices, Humans, International Journal of Palliative Nursing, Leadership, Martin C, May 2021 List, Moore C, Needs Assessment, Nursing Models, Palliative Care/organization & Administration, Resource Allocation, Respite Care/organization & administration, Tatterton M, Technology dependence, Walker C
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Rare essentials: drugs for rare diseases as essential medicines
Tags: 2006, Backlog, Bulletin Of The World Health Organization, Cost-Benefit Analysis, Decision Making, Drugs, Essential, Health Priorities, Health Services Accessibility, Humans, Journal Article, Leufkens HGM, Needs Assessment, Organizational, Organizational Policy, Orphan Drug Production, Policy Making, Public Health Administration, Rare Diseases, Resource Allocation, Risk Assessment, Social Justice, Stolk P, Willemen Marjolein JC, World Health Organization
Adaptation and Feasibility of the interRAI Family Carer Needs Assessment in a Pediatric Setting
[Validation of the European Portuguese Version of a Pediatric Palliative Needs Assessment Tool: The Pediatric Palliative Screening Scale]
A qualitative approach to community and provider needs assessment in a telehealth project
Pain therapy, pediatric palliative care and end-of-life care: training, experience, and reactions of pediatric residents in Italy
Tags: 2014, Adult, Agosto C, Benini F, Child, European Journal of Pediatrics, Female, Ferrante A, Humans, Internship And Residency, Italy, January 2018 List, Male, Middle Aged, Needs Assessment, Pain/dt [drug Therapy], Palliative Care, Palliative Care/st [standards], Palliative Care/td [trends], Pediatrics/ed [education], Po C, Rusalen F, Salata M, Surveys And Questionnaires, Terminal Care, Terminal Care/st [standards], Terminal Care/td [trends]
Treatment adherence of youth and young adults with and without a chronic illness
Tags: 2003, Acute Disease/psychology, Adaptation, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology, Adult, Age Factors, Attitudes, Backlog, Case-Control Studies, Child, Chronic Disease/psychology, Crisp J, Female, Health Knowledge, Humans, Internal-External Control, Journal Article, Male, Mental Health, Needs Assessment, Nursing & Health Sciences, Patient Compliance/psychology, Patient Education, Practice, Predictive Value of Tests, Psychological, Questionnaires, Rosina R, Self Care/psychology, Steinbeck K
Transition of care: health care professionals' view
Tags: 2004, Adolescent, Adolescent Health Services/standards, Adolescent Medicine/standards, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Barrow J, Burr P, Child, Child Health Services/standards, Chronic Disease/psychology/therapy, Continuity of Patient Care/standards, Dennard L, Focus Groups, Golberg B, Hospital/psychology, Hospitals, Humans, Journal Article, Journal Of Nursing Management, Lennox V, London, Needs Assessment, Nursing Methodology Research, Patient Transfer/standards, Pediatrics/standards, Personnel, Por J, Questionnaires, Teaching
The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
Tags: 1999, Adolescent, Adult, Advance Directives, Artificial, Backlog, Bereavement, Child, Continuity Of Patient Care, DNAR, Female, Humans, Journal Article, Journal of Paediatrics and Child Health, Maddocks I, Male, Muscular Atrophy, Muscular Dystrophies/th [Therapy], Needs Assessment, Nuclear Family, Palliative Care/og [Organization & Administration], Parents/px [psychology], Parker D, Respiration, Social Support, South Australia, Spinal/th [Therapy], Stern LM, Terminal Care/st [standards]
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Improving pediatric palliative care in a community-based setting through an ongoing education series
Tags: 2019, administrative personnel, Checklist, Child, Clergy, Comfort, community hospital, conference abstract, Conversation, do not resuscitate order, Dying, Education, Female, Hospice Care, Human, Likert scale, Major Clinical Study, Male, Moonat H, Needs Assessment, Nguyen L, Nurse, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pharmacist, Simulation, Social Worker, Texas
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Development of a Global Palliative Care Program
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D
Prioritization of future research topics for children's hospice care by its key stakeholders: a Delphi study
Tags: 2009, Adolescent, Attitude Of Health Personnel, Backlog, Child, Delphi Technique, Family, Focus Groups, Forbat L, Hospice Care/organization & administration, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & Administration, Palliative Medicine, Research/organization & administration, Scotland, Terminally Ill
Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care
Tags: 2008, Attitude Of Health Personnel, Backlog, Family/psychology, Focus Groups, Forbat L, Health Services Accessibility, Health Services Needs And Demand, Hospice Care/organization & administration/standards, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & administration/standards, Palliative Medicine, Qualitative Research, Research/organization & administration, Respite Care, Scotland, Terminal Care/organization & administration/psychology/standards
interRAI Pediatric Home Care (PEDS-HC) Assessment Tool: Evaluating Ontario Healthcare Workers’ Experience
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study
Hospital inpatient use in mainland Portugal by children with complex chronic conditions (2011 - 2015). [Portuguese]
Tags: 2019, Acta Médica Portuguesa, Adolescent, Article, Cancelinha C, cancer radiotherapy, Child, Controlled Study, Death, developed country, Female, Hospital Patient, Hospitalization, Human, Lacerda A F, Length Of Stay, Lopes S, Male, Mortality, national health service, Needs Assessment, Newborn, nonparametric test, October 2019 List, Oliveira G, Outpatient, Palliative Care, Palliative Therapy, pediatric patient, Portugal, Radiotherapy, Retrospective Study
Preparation for oncology settings: what hospice social workers say they need
Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education
Pain in children with cerebral palsy: a review.
Tags: 2004, Activities of Daily Living, Backlog, Cerebral Palsy/co [Complications], Child, Child welfare, Engel Joyce M, Humans, Jensen MP, Journal Article, Kieckhefer GM, Labyak S, Motor Skills, Needs Assessment, Nurse's Role, Nursing Assessment, Pain, Pain Management, Pain Measurement, Pain/di [diagnosis], Pain/et [Etiology], Risk Factors, Severity Of Illness Index, The Journal Of Neuroscience Nursing : Journal Of The American Association Of Neuroscience Nurses
Palliative communication skills training for pediatric nurse practitioners: A novel program with booster sessions
The Long-Term Care Experiences and Care Needs of Parents Caring for Children With Adrenoleukodystrophy
Tags: 2019, Descriptive Research, Guilt, Helplessness Learned, Hospice Care, Human, Individualized Medicine, Interviews, Journal of Nursing, Jui-Chun F, Long Term Care, March 2019 List, Miao-Ju C, Needs Assessment, Parental Attitudes, Peroxisomal Disorders -- Psychosocial Factors, Psychosocial Aspects of Illness, Qualitative Studies, Shu-Yuan L, Su-Fen C, Wei-Wen W U
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
The Development And Evaluation Of A Holistic Needs Assessment Within Children’s Palliative Care.
Toward youth friendly services: a survey of young people in primary care
Tags: 2007, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adult, Age Factors, Backlog, Cross-sectional Studies, Female, Haller DM, Health Care Surveys, Health Services Needs and Demand/classification/statistics & numerical data, Humans, Journal Article, Journal Of General Internal Medicine, Male, Needs Assessment, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Satisfaction, Patton GC, Physician-patient Relations, Primary Health Care/utilization, Sanci LA, Sawyer SM
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Developing a process to support perinatal nurses after a critical event
Tags: 2014, Adaptation, Attitude To Death, Backlog, Clinical Competence, Crisis Intervention, Emergencies, Family Nursing, Foreman S, Grief, Humans, Journal Article, Models, Needs Assessment, Neonatal Nursing, Nursing For Women's Health, Nursing Methodology Research, Perinatal Care, Program Development, Psychological, Risk Management, Self Care, Social Support, Staff Development, Stress, Terminal Care
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance