Browse Items (1703 total)
- Tags: Female
Videoconferencing to reduce stress among hospitalized children
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
Age-dependent change in behavioral feature in Rubinstein-Taybi syndrome
Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Natural history of trisomy 13
Tags: 1994, Adult, Archives of Disease in Childhood, Backlog, Burn J, Chromosomes, Congenital/diagnosis/genetics/mortality, England/epidemiology, Female, Fetal Diseases/diagnosis, Heart Defects, Human, Humans, Hunter S, Incidence, Infant, Journal Article, Longitudinal Studies, Male, Neural Tube Defects/diagnosis/genetics/mortality, Newborn, Pair 13, Pregnancy, Prenatal Diagnosis, Syndrome, Trisomy, Wright MJ, Wyllie JP
The impact of a palliative care team on residents' experiences and comfort levels with pediatric palliative care
Tags: 2014, Adult, Attitude Of Health Personnel, Attitudes, Backlog, Child, Female, Friderici J, Goff Sarah L, Health Knowledge, Humans, Internship And Residency, Journal Article, Journal of Palliative Medicine, Male, Palliative Care, Patient Care Team, Pediatrics, Practice, Questionnaires, United States, Wu KL
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
End of living: maintaining a lifeworld during terminal illness
Tags: 2009, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adult, Aged, Attitude To Death, Backlog, Female, Folkman S, Goodman S, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Neoplasms/psychology, New York City, Psychology & Health, Questionnaires, San Francisco, Terminally Ill/psychology, Wrubel J
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Comparing parent loss with sibling loss
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Positive change processes and post-traumatic growth in people who have experienced childhood abuse: understanding vehicles of change
Tags: 2003, Adult, Affect, Aged, Attitude, Backlog, Child, Child Abuse/psychology, Female, Humans, Interpersonal Relations, Joseph S, Journal Article, Male, Middle Aged, Narration, Post-Traumatic/diagnosis/etiology/psychology, Psychology And Psychotherapy, Social Behavior, Stress Disorders, Woodward CA
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Evaluation of a Continuous Quality Improvement Initiative for End-Of-Life Care for Older Noncancer Patients
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
Designing the physical environment for inpatient palliative care: A narrative review
Tags: Child, Hospice Care, Hospital Care, Human, Thematic Analysis, 2021, Adult, BMJ Supportive and Palliative Care, Built Environment, Cinahl, Collins A, Comfort, Conception, data extraction, Data Synthesis, Emergency Ward, Family Interaction, Family Management, Female, Furniture, Hospice Care, Hospital care, Hospital Patient, Human Dignity, January List 2023, Male, McLaughlan R, Medline, Narrative, nursing home, Nursing Home Care, Palliative Therapy, Philip J, Privacy, Psycinfo, Review, Systematic Review, Wong K
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Frequent school-based clinic utilization: a comparative profile of problems and service needs
Tags: 1993, Adolescent, Ambulatory Care Facilities/utilization, Backlog, Continental Population Groups, Educational Status, Female, Health Services Needs And Demand, Health Services Research, Humans, Journal Article, Kaplan DW, Male, Mental Health, Risk-Taking, School Health Services/utilization, Sex Factors, Socioeconomic Factors, Students/statistics & numerical data, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Wolk LI
Stress, social support, and sense of coherence
Tags: 1999, Adaptation, Adult, Age Factors, Attitude To Health, Backlog, Canada, Child, Female, Health Status, Health Surveys, Humans, Internal-External Control, Journal Article, Life Change Events, Male, Middle Aged, Models, Motivation, Predictive Value of Tests, Psychological, Psychological/prevention & control/psychology, Questionnaires, Ratner PA, Social Support, Socioeconomic Factors, Stress, Western Journal of Nursing Research, Wolff AC
Improving the Care of Children With Advanced Cancer by Using an Electronic Patient-Reported Feedback Intervention: Results From the PediQUEST Randomized Controlled Trial
Tags: 2014, Backlog, Child, Cook EF, Dussel V, Electronic Health Records, Feedback, Female, Feudtner C, Geyer JR, Humans, Intervention Studies, Journal Article, Journal Of Clinical Oncology, Kang TI, Male, Neoplasms, Orellana L, Palliative Care, Pilot Projects, Preschool, Quality Of Life, Sickness Impact Profile, Symptom Assessment, Treatment Outcome, Ullrich CK, Weeks Jane C, Wolfe J
Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care
Tags: 2000, Adult, Attitude To Death, Backlog, Child, Data Collection, Death and Euthanasia, Decision Making, Empirical Approach, et al, Female, Grier HE, Humans, JAMA, Journal Article, Klar N, Male, Neoplasms/mortality/therapy, Oncology at EOL, Palliative Care, Parents/psychology, Physicians/psychology, Professional Patient Relationship, Prognosis, Regression Analysis, Terminally Ill, Wolfe J
Pediatric Ethics and Communication Excellence (PEACE) Rounds: Decreasing Moral Distress and Patient Length of Stay in the PICU
Tags: 2017, Ackerman V, Adult, Benneyworth B, Clinical Ethics, Communication, Ethics Intervention, Female, HEC Forum, Humans, Icu Length Of Stay, Intensive Care Units Pediatric/ Ethics, Interprofessional Relations, Leland B, Length Of Stay, Life Support Care/ethics, Male, Middle Aged, Moral Distress, Nitu M, November 2017 List, Patel V, Pediatrics, Psychometrics/instrumentation/methods, Severity Of Illness Index, Stress Psychological/ Psychology, Teaching Rounds/manpower/methods, Tong Y, Unnecessary Procedures/ Ethics, Wocial L
How do teens view the physical and social impact of asthma compared to other chronic diseases?
Content review of pediatric ethics consultations at a cancer center
Tags: 2019, Article, cancer center, Child, Childhood Cancer, Clinical Article, Ethics, Female, Friedman D N, Human, invasive procedure, Male, McCabe M S, Oncology 2019 List, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Physician, Resuscitation, Retrospective Study, Risk Benefit Analysis, Terminal Care, Voigt L P, Winter M C
The economic burden of home care for children with HIV and other chronic illnesses
Tags: 2005, Acree M, American Journal Of Public Health, Backlog, California, Caregivers/economics, Child, Chronic Disease/economics, Cost Of Illness, Disabled Children, Female, Ferrando SJ, Folkman S, Harmatz P, Health Care Costs, Heyman MB, HIV Infections/economics/nursing, Home Care Services/economics, Home Nursing/economics, Humans, Interviews As Topic, Journal Article, Male, Moskowitz JT, New York City, San Francisco, Wilson L
Children's complex health: Maternal experiences of care and decision making
Tags: 2023, Advance Care Planning, Article, Child, Community Health Nursing, coronavirus disease 2019, Decision Making, Female, Godbold R, Human, Journal Of Child Health Care, Long Term Care, May List 2023, Mother, Only Child, Pandemic, Qualitative Research, Thematic Analysis, Voice, VULNERABILITY, Willis E
Use of methadone in the morphine-tolerant burned paediatric patient
Pharmacogenetics of codeine metabolism in an urban population of children and its implications for analgesic reliability
Tags: 2002, Analgesia, Analgesics, Anti-Inflammatory Agents, Backlog, British Journal Of Anaesthesia, Central Nervous System Stimulants/blood, Child, Codeine/genetics/metabolism, Diclofenac/administration & dosage, Double-Blind Method, Female, Genotype, Howard RF, Human, Journal Article, Male, Morphine Derivatives/blood, Morphine/metabolism, Non-Steroidal/administration & dosage, Non-U.S. Gov't, Opioid/metabolism, Patel A, Phenotype, Preschool, Support, Tonsillectomy, Urban Population, Vomiting/chemically induced, Williams DG
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Tags: 2002, Aged, Backlog, Caregivers/psychology, Cost-Benefit Analysis, Delivery of Health Care/trends, Female, Geography, Home Nursing/economics/psychology, Hospitalization, Humans, Journal Article, Non-U.S. Gov't, Patient-centered Care, Psychology, Research Support, Self Concept, Social, Social Change, Social Environment, Social Responsibility, Social science & medicine, Williams A, Women/psychology
Ethical Dilemmas In Postnatal Treatment Of Severe Congenital Hydrocephalus.
Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics
Transition: a conceptual analysis in the context of siblings of children with cancer
Tags: 2006, Adaptation, Adolescent, Adolescent Psychology, Attitude To Health, Backlog, Bereavement, Child, Child Psychology, Family Health, Female, Health Promotion, Human Development, Humans, Journal Article, Journal of Pediatric Nursing, Life Change Events, Models, Neoplasms, Nurse's Role, Nursing, Nursing Evaluation Research, Nursing Methodology Research, Oncology Nursing, Pediatric Nursing, Psychological, sibling bereavement, Sibling Relations, Siblings, Wilkins KL, Woodgate RL
Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child's death follow-up study
Tags: 2016, Acta Oncologica, Adolescent, Adult, Bereavement, Cernvall M, Child, Child Preschool, Fathers/psychology/statistics & numerical data, Female, Follow-up Studies, Hoven E, Humans, Infant, Infant Newborn, Ljungman G, Ljungman L, Male, Mothers/psychology/statistics & numerical data, Neoplasms/economics/mortality/psychology/therapy, Oncology 2018 List, Sick Leave/statistics & numerical data, Survival Rate, Survivors, Sweden, Treatment Outcome, von Essen L, Wikman A
Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit
Tags: 2023, Cardiology In The Young, Child, Cinahl, conference abstract, Decision Making, Eissler AB, Female, Heart, Holistic Care, Human, Intensive Care, Intensive Care Units, Kroger Y, Male, Medline, Memory, Nursing, October List 2034, Palliative Therapy, Patient Care, Pediatric Intensive Care Unit, Rare Disease, Satisfaction, Systematic Review, Terminal Care, Wieden N
Max's legacy: an evaluation of the impacts of baby loss on staff and families
Tags: 2023, Abortion, Spontaneous, After Care, Attitude Of Health Personnel, Bereavement, British Journal of Midwifery, Cater K, Crane R, Descriptive Research, Family Attitudes, Female, Focus Groups, Human, Multimethod Studies, Pregnancy, Pregnancy Trimester, First, Rostron H, Safety, Semi-Structured Interview, September List 2058, Thematic Analysis, United Kingdom, Whitehouse C
The lived experience of physicians dealing with patient death.
Tags: 2014, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, BMJ Supportive & Palliative Care, Clinical encounter, Communication, Emotions, Female, Humans, Journal Article, Male, Middle Aged, Palliative Care/psychology, Physician-patient Relations, Psychological care, Terminal Care, Terminal Care/psychology, Whitehead PR
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives
Tags: 1999, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Cross-sectional Studies, Cystic Fibrosis/rehabilitation, Female, Health Promotion, Health Transition, Henley L, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Parents, Patient Satisfaction, Preschool, Questionnaires, Westwood A, Willcox P
A systematic review of opioid conversion ratios used with methadone for the treatment of pain
Tags: 2008, Adult, Analgesics, Backlog, Bain KT, Chronic Disease, Clinical Trials as Topic, Combination, Drug Therapy, Female, Humans, Journal Article, Methadone/therapeutic use, Middle Aged, Opioid/therapeutic use, Pain Medicine (malden, Mass.), Pain/drug Therapy, Palliative Care/methods, Statistics as Topic, Weschules DJ
I am not the kind of woman who complains of everything': illness stories on self and shame in women with chronic pain
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L