Browse Items (346 total)
- Tags: Quality Of Life
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
The course of the terminal phase in patients with amyotrophic lateral sclerosis
Tags: 2001, 80 And Over, Adult, Aged, Airway Obstruction/etiology/pathology/psychology, Amyotrophic Lateral Sclerosis/complications/pathology/psychology, anxiety, Backlog, Borasio GD, Caregivers, Cough/etiology, Death, Disease Progression, Dyspnea/etiology, Fear, Female, Health Surveys, Humans, Journal Article, Journal Of Neurology, Male, Middle Aged, Neudert C, Oliver D, Palliative Care, Quality Of Life, Retrospective Studies, Terminal Care, Wasner M
The comprehensive care team: a controlled trial of outpatient palliative medicine consultation
Tags: 2004, Advance Care Planning/statistics & Numerical Data, Aged, Archives Of Internal Medicine, Backlog, California, Chronic Obstructive/complications/psychology/therapy, Dibble SL, Female, Heart Failure/complications/psychology/therapy, Hospital/organization & administration/utilization, Humans, Journal Article, Male, McPhee SJ, Neoplasms/complications/psychology/therapy, Office Visits/statistics & numerical data, Outcome And Process Assessment (health Care), Outpatient Clinics, Palliative Care/organization & Administration, Pantilat SZ, Patient Care Team, Primary Health Care/organization & administration/utilization, Pulmonary Disease, Quality Of Life, Questionnaires, Rabow MW
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
Test-retest reliabilities of two treatment-preference instruments in measuring utilities
Tags: 1993, Adult, Aged, Backlog, de Haes HJ, Decision Making, Female, Humans, Journal Article, Kiebert GM, Kievit J, Leer JW, Life Expectancy, Male, Medical Decision Making, Middle Aged, Neoplasms/radiotherapy/surgery, Non-U.S. Gov't, Patients/psychology, Quality Of Life, Research Support, Stiggelbout AM
Synthesis of health promotion concepts in children's palliative care
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting
Supportive and palliative care of children with metabolic and neurological diseases
Tags: 2014, Advance Care Planning, Backlog, Communication, Current Opinion in Supportive and Palliative Care, Hauer JM, Hope, Humans, Journal Article, Metabolic Diseases, Nervous System Diseases, neurologic, Palliative Care, Parents, Pediatrics, Psychological, Quality Of Life, Risk Assessment, Stress, Terminal Care, Wolfe J
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Suffering indicators in terminally ill children from the parental perspective
Tags: 2013, Adaptation, Adult, Attitude To Death, Backlog, Campos-Calderón C, Child, Cruz-Quintana F, European Journal Of Oncology Nursing: The Official Journal Of European Oncology Nursing Society, Female, García-Caro MP, Humans, Interviews As Topic, Journal Article, Male, Montoya-Juárez R, Neoplasms, Parent-child Relations, Parents, Psychological, Qualitative Research, Quality Of Life, Sánchez-García R, Schmidt-Rio-Valle J, Sorroche-Navarro C, Spain, Stress, Terminal Care, Terminally Ill
Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept
Tags: Child, Humans, Palliative Care, Pediatric Palliative Care (PPC), Thematic Analysis, 2022, Bmc Palliat Care, Castor C, Früh EA, Health care professionals, Health Personnel/psychology, Holmen H, January List 2023, Kvarme LG, Lee A, Life-limiting Conditions, Life-threatening Conditions, Lorentsen VB, Misvaer N, Palliative Care/methods, Qualitative Research, Quality Of Life, Riiser K, Steindal SA, Storytelling, Terminal Care Concept, Winger A
Standards of nutritional care in pediatric oncology: results from a nationwide survey on the standards of practice in pediatric oncology. A Children's Oncology Group study
Tags: 2006, Backlog, Brophy P, Child, Clinical Trials, Guideline Adherence/standards, Guidelines/standards, Humans, Journal Article, Ladas EJ, Malnutrition/diet therapy/etiology, Neoplasms/complications/mortality, Nutrition Surveys, Nutritional Failure, Nutritional Support/methods/standards, Oncologic Nursing/standards, Pediatric Blood & Cancer, Quality Of Life, Rogers PC, Sacks N
Spinal muscular atrophy type 1: is long-term mechanical ventilation ethical?
Speaking a different language: Communication patterns of palliative care and pediatric intensive care unit providers during family conferences
Tags: 2017, audio recording, Ciriello A G, conference abstract, Controlled Study, December 2018 List, genetic transcription, Health Care Personnel, hopelessness, Human, Human Experiment, Language, Medical Information, October TW, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Quality Of Life, Retrospective Study, Speech, Thematic Analysis, Uncertainty
Social work practice in perinatal palliative care: an overview
Tags: 2024, Adult, April List 2024, Article, Bereavement, care behavior, collaborative care team, Female, Health Care Access, Human, Knowledge, Male, Palliative Care, Palliative Therapy, Quality Of Life, Santiago-Warner S, Social Justice, Social Work, Social Work in Health Care, Social Work Practice, Social Worker
Smoked cannabis for chronic neuropathic pain: a randomized controlled trial
Tags: 2010, Adult, Aged, Backlog, Bennett GJ, Canadian Medical Association Journal, Chronic Disease, Collet JP, Cross-Over Studies, Double-Blind Method, Ducruet T, Female, Gamsa A, Humans, Huynh T, Journal Article, Linear Models, Male, Marijuana Smoking, Middle Aged, Neuralgia/drug therapy, Pain Measurement, Placebos, Quality Of Life, Robinson A, Shapiro S, Sleep/drug effects, Tetrahydrocannabinol/administration & dosage/adverse effects/therapeutic use, Treatment Outcome, Wang T, Ware M
Sleep Problems in Children With Agenesis of the Corpus Callosum
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Sleep disordered breathing in childhood-onset acid maltase deficiency
Tags: 2009, Adolescent, Blood Gas Analysis, Brain and Development, breathing difficulties, Child, Female, glycogen storage disease type II, Glycogen Storage Disease Type II/pp [Physiopathology], Humans, Kagitani-Shimono K, Kato-Nishimura K, Male, Mohri I, Muscle Strength, Muscle Weakness, Nabatame S, non-invasive positive pressure ventilation, Okinaga T, Ozono K, physical intervention, Polysomnography, Positive-Pressure Respiration, Quality Of Life, Respiration, Respiration Disorders/pp [Physiopathology], Respiration Disorders/th [Therapy], Respiratory Function Tests, Retrospective Studies, Sakai N, Sleep apnea, Sleep Apnea Syndromes/pp [Physiopathology], Sleep Apnea Syndromes/th [Therapy], Sleep/ph [Physiology], Tachibana N, Taniike M
Siblings of pediatric cancer patients: the quantitative and qualitative nature of quality of life
Tags: 2005, Adaptation, Adolescent, Amylon Michael D, Backlog, Bereavement, Camping, Chesterman B, Child, Female, Fine J, Golan R, Greenhalgh J, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Neoplasms, Packman W, Personality Assessment, Personality Inventory, Psychological, Quality Of Life, Self-Help Groups, Shaffer T, sibling bereavement, Sibling Relations, Siblings, Sick Role, Van Zutphen K
Siblings of children with life‐limiting conditions: Psychological adjustment and sibling relationships
Tags: 2017, 2026 SE2 - Parent Perspectives, behavior problems, Behaviour Problems, Child: Care, Health and Development, Childhood Development, Emotional Adjustment, Fullerton JM, Hain R, Hastings RP, Impact On Siblings, Life‐limiting, Quality Of Life, Sibling Relations, Terminally Ill Patients, Totsika V
Siblings Of Children With Life‐limiting Conditions: Psychological Adjustment And Sibling Relationships
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
Self-requested euthanasia for children in Belgium
Tags: 2014, Active, Adolescent, Backlog, Belgium, Choice Behavior, Dan B, de Cléty Stéphan Clément, Decision Making, Europe, Euthanasia, Fonteyne C, Humans, Journal Article, Lancet, Mental Competency, Minors, Palliative Care, Patient Rights, Personal Autonomy, Quality Of Life, Voluntary, Wedge Argument, Young Adult
Role of palliative care in centers performing maternal-fetal interventions
Research methodology: cancer cachexia syndrome
Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness
Relationships between symptom relief, quality of life, and satisfaction with hospice care
Tags: 1998, Aged, Australia, Backlog, Cohort Studies, Female, Hannan TJ, Horton SM, Hospice Care/standards, Human, Journal Article, Male, Non-U.S. Gov't, Outcome Assessment (health Care), P.H.S., Pain Measurement, Palliative Medicine, Patient Care, Patient Satisfaction, Prospective Studies, Quality Of Life, Support, Tierney RM, Tierney WM, U.S. Gov't
Rapid response physiotherapy service in patients with life limiting conditions
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Child, Clinical Article, conference abstract, Controlled Study, Female, Griffin H, Hospital Admission, hospital bed, Hospitalization, Human, lower respiratory tract infection, Male, Michael A, Milner S, physiotherapist, Physiotherapy, Quality Of Life, Risk Assessment, Sample Size
Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer
Quantitative and qualitative analysis of gastroesophageal reflux after percutaneous endoscopic gastrostomy
Tags: 2002, Acute Disease, Airway Obstruction/diagnosis, Backlog, Child, Endoscopy, Enteral Nutrition/methods, Female, Gastroesophageal Reflux/epidemiology/etiology/therapy, Gastrointestinal/adverse effects/methods, Gastrostomy/adverse effects/methods, Holmes K, Humans, Hydrogen-Ion Concentration, Journal Article, Journal Of Pediatric Surgery, Male, Monitoring, Nervous System Diseases/rehabilitation, Physiologic/methods/statistics & numerical data, Postoperative Complications/diagnosis/epidemiology/etiology, Preschool, Quality Of Life, Samuel M, Vomiting/diagnosis, Weight Gain
Quality-of-life measures in chronic diseases of childhood
Tags: 2001, Adolescent, Backlog, Child, Chronic Disease, Disabled Children, Eiser C, Female, Great Britain, Health Services Research, Health Status Indicators, Health Technology Assessment (winchester, England), Humans, Journal Article, Male, Morse R, Preschool, Quality Of Life, Self Assessment (Psychology)