Browse Items (2112 total)
- Tags: Child
Policy statement--health equity and children's rights.
Palliative care
Progressive sensorineural hearing loss in children with mitochondrial encephalomyopathies
Tags: 2001, Acoustic Impedance Tests, Acoustic/ph [Physiology], Adolescent, Adult, Audiometry, Auditory, Backlog, Brain Stem/ph [Physiology], Child, Evoked Potentials, Female, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Hearing Loss, Humans, IM, Journal Article, Kearns-Sayer Syndrome/di [Diagnosis], Kearns-Sayer Syndrome/pp [Physiopathology], Laryngoscope, Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/pp [Physiopathology], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/pp [Physiopathology], Otoacoustic Emissions, Preschool, Pure-Tone, Reflex, Sensorineural/di [Diagnosis], Sensorineural/pp [Physiopathology], Speech, Spontaneous/ph [Physiology], Wilichowski E, Zwirner P
Unique aspects of caring for dying children and their families
Tags: 2000, American Journal of Hospice & Palliative Medicine, Backlog, Boughner A, Child, Crawford B, Davies S, Family Health, Home Care Services/organization & administration, Hospices/organization & administration, Hospitals, Human, Journal Article, Lazar L, Ohio, Pediatric/organization & Administration, Program Evaluation, Richter-Beck L, Terminal Care/organization & Administration, Tucker L, Zwerdling T
Sleep disorders in children with neurologic diseases
Tags: 2001, Anticonvulsants/therapeutic use, Backlog, Blindness/complications, Bruni O, Child, Diagnosis, Differential, Epilepsy/complications, Headache/complications, Humans, Journal Article, Melatonin/therapeutic use, Mental Retardation/complications, Muscular Dystrophies/complications, Nervous System Diseases/complications, Preschool, Q3 Scoping Review Results, Seminars In Pediatric Neurology, Sleep Disorders/etiology, Zucconi M
Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Tags: 2023, alternative medicine, Article, Bottigelli C, Burnout, Campione G, care behavior, Child, Child Psychology, Ciappina S, Clinical Practice, clinical psychology, Controlled Study, diastolic blood pressure, Emotional Stress, Fagioli F, Health Care Personnel, Heart Rate, Human, Italy, Lijoi S, March List 2024, Nurse, oxygen saturation, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Parrinello A, Pilot Projects, Pilot Study, Piu P, Psychologist, Quarello P, Reiki, Self Care, special situation for pharmacovigilance, systolic blood pressure, work environment, Workplace, Zucchetti G
Concurrent validity of the Functional Independence Measure for Children (WeeFIM) and the Pediatric Evaluation of Disabilities Inventory in children with developmental disabilities and acquired brain injuries
Tags: 2001, Astbury W, Backlog, Brain Injuries, Child, Developmental Disabilities, Disability Evaluation, Disabled Children, Female, Foreman S, Health Status Indicators, Humans, Infant, Ireland P, Journal Article, Male, Ottenbacher KJ, PEDI Study, Physical & Occupational Therapy In Pediatrics, Preschool, Psychometrics, Shephard K, Spinal Dysraphism, Ziviani J
The use of pediatric advance directives: a tool for palliative care physicians.
Tags: 2008, Advance Care Planning/es [Ethics], Advance Care Planning/og [Organization & Administration], Backlog, Child, Child Advocacy, Child Advocacy/es [Ethics], Child Advocacy/lj [Legislation & Jurisprudence], Child Advocacy/px [Psychology], Decision Making, DNAR, Humans, Journal Article, Minors/lj [legislation & Jurisprudence], Minors/px [Psychology], Palliative Care/es [Ethics], Palliative Care/og [Organization & Administration], Palliative Care/px [psychology], Parental Consent/es [Ethics], Parental Consent/lj [Legislation & Jurisprudence], Parental Consent/px [Psychology], Patient Participation/lj [Legislation & Jurisprudence], Patient Participation/px [Psychology], Pediatrics/es [Ethics], Pediatrics/og [Organization & Administration], Personal Autonomy, Right to Die/es [Ethics], Right to Die/lj [Legislation & Jurisprudence], The American Journal of Hospice & Palliative Care, United States, Zinner SE
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Tags: 2006, Adaptation, Adult, Backlog, Bmc Medical Research Methodology, Caregivers/psychology/statistics & numerical data, Cerebral Palsy, Child, Cross-sectional Studies, Disabled Children, Family/psychology, Female, Health Status, Humans, Journal Article, Linear Models, Logistic Models, Male, Ontario, Psychological, Questionnaires, Raina P, Rosenbaum P, Russell DJ, Self Concept, Social Support, Socioeconomic Factors, Telemeres, Walter SD, Zhu B
Physician Decision-Making Process about Withholding/Withdrawing Life-Sustaining Treatments in Paediatric Patients: A Systematic Review of Qualitative Evidence
Pediatric Palliative Care for Children with Cancer in a Children's Tertiary Hospital in China: Six-Year Experience of a Pediatric Palliative Care Service
Mitochondrial disorders
Tags: 2004, Adult, Backlog, Brain, Child, Di Donato S, DNA, DNA/genetics, Electron Transport/genetics, Gene Rearrangement/genetics, Humans, Journal Article, Mitochondrial Diseases/genetics/therapy, Mitochondrial/genetics, Mutation, Oxidative Phosphorylation, Point Mutation/genetics, Proteins/genetics, Zeviani M
Childhood idiopathic thrombocytopenic purpura in the Nordic countries: epidemiology and predictors of chronic disease
Tags: 2005, Acta Paediatrica, Acute Disease/epidemiology, Adolescent, Backlog, Child, Chronic Disease/epidemiology, Female, Finland/epidemiology, Hedlund-Treutiger I, Hemorrhage/epidemiology/etiology, Henter JI, Humans, Iceland/epidemiology, Idiopathic/complications/diagnosis/epidemiology, Incidence, Infant, Jonsson OG, Journal Article, Male, Newborn, Nonparametric, NOPHO ITP, Preschool, Prognosis, Prospective Studies, Purpura, Rajantie J, Risk Factors, Scandinavia/epidemiology, Statistics, Tedgard U, Thrombocytopenic, Wesenberg F, Zeller B
Palliative care of children with brain tumors: a parental perspective
Tags: 2010, Activities of Daily Living, Adaptation, Adolescent, Adult, Archives Of Pediatrics & Adolescent Medicine, Attitude To Death, Attitudes, Backlog, Bannister SL, Brain Neoplasms, Cairney A, Cataudella D, Child, Elizabeth L, Female, Focus Groups, Health Knowledge, home care services, Humans, Infant, Journal Article, Male, Middle Aged, Palliative Care, Parents, PEDI Study, Practice, Preschool, Psychological, Qualitative Research, Spirituality, Young Adult, Zelcer S
Modern approach to children with osteogenesis imperfecta
Tags: 2003, Backlog, Biopsy, Bone Density/physiology, Child, Clodronate, Combined Modality Therapy, Diphosphonates/therapeutic use, Fassier F, Female, Glorieux FH, Humans, Immunohistochemistry, Infant, Journal Article, Journal Of Pediatric Orthopaedics. Part B / European Paediatric Orthopaedic Society, Pediatric Orthopaedic Society Of North America, Male, Needle, Orthopedic Fixation Devices, Orthopedic Procedures/instrumentation/methods, Osteogenesis Imperfecta/pathology/therapy, Physical Therapy Modalities, Preschool, Prognosis, Risk Assessment, Severity Of Illness Index, Treatment Outcome, Zeitlin L
Yesterday a Child, Today a Grown-Up: Reflections on the Patient, Family, and Team Experience of an Abrupt, Non-Linear Transition from Pediatric to Adult Medicine for Young Adults with Serious Illness (FR210A)
Ethical problems in pediatric critical care: consent
Tags: 2003, Backlog, Child, Clinical, Critical Care Medicine, Decision Making, Ethics, Frader JE, Humans, ICU Decision Making, Informed Consent/ethics/legislation & jurisprudence, Intensive Care Units, Journal Article, Minors/legislation & jurisprudence, Parental Consent, Pediatric/ethics/legislation & jurisprudence, Personal Autonomy, Physician's Role, United States, Zawistowski CA
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A
Dying child and nurses' mourning
Tags: Child, Death, Human, Nurse, 2021, Anger, CARE, Child, conference abstract, Curriculum, Death, Demography, Dying, Education, European Psychiatry, Evangelou E, Guilt, Hospitalized Child, January List 2023, Koutelekos I, Kyritsi E, Lekas C, mourning, Nurse Care, Pediatric Hospital, pediatric nurse, Questionnaire, Sadness, theoretical study, Zartaloudi A
Sleep disorders in Cornelia de Lange syndrome
Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Tags: 2018, Artificial Ventilation, Brain Death, Cause Of Death, Child, Chuah S L, conference abstract, Controlled Study, Decision Making, developing country, Developing World 2018 List, Drug Withdrawal, Female, Gan CS, Ho AMM, Human, inotropic agent, Isa MR, Jalil R, Length Of Stay, Life Sustaining Treatment, liver failure, Lum LC, Major Clinical Study, Male, Mortality Rate, organ donor, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Prospective Study, Resuscitation, Secondary Analysis, Tang SF, Teh K H, Total Quality Management, Zainal Abidin AS
Sleep disordered breathing in a cohort of children with achondroplasia: correlation between clinical and instrumental findings
Tags: 2017, achondroplasia, Achondroplasia/co [Complications], Achondroplasia/ge [Genetics], Age Factors, Antoniazzi F, Cantalupo G, characteristics, Child, Child Preschool, Cohort Studies, EC 2-7-10-1 (FGFR3 protein human), EC 2-7-10-1 (Receptor Fibroblast Growth Factor Type 3), feeding difficulties, Female, Gasperi E, Humans, Incidence, Infant, Lo Tartaro P, Male, Minerva Pediatrica, Piacentini G, Polysomnography/mt [Methods], Receptor Fibroblast Growth Factor Type 3/ge [Genetics], respiratory sleep disorder, Sleep Apnea Syndromes/di [Diagnosis], Sleep Apnea Syndromes/ep [Epidemiology], Sleep Apnea Syndromes/et [Etiology], Surveys And Questionnaires, Trajectory, Zaffanello M
Osteoporosis pseudoglioma syndrome: treatment of spinal osteoporosis with intravenous bisphosphonates
Tags: 2000, Analgesics, Backlog, Bone Density/physiology, Bone/complications/physiopathology, Child, Clodronate, Clodronic Acid/administration & dosage, Cundy T, Diphosphonates/administration & dosage, Female, Fractures, Growth, Humans, Infusions, Intravenous, Journal Article, Male, Non-Narcotic/administration & dosage, Non-U.S. Gov't, Osteoporosis/complications/drug therapy/physiopathology, Pain/prevention & control, Research Support, Spine/physiopathology, Syndrome, The Journal Of Pediatrics, Vision Disorders/complications, Zacharin M
Considering quality of life in end-of-life decisions for severely disabled children
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Involvement of nurses in end-of-life discussions for severely disabled children
Tags: 2018, April 2018 List, Article, Child, Clinical Article, de Vos MA, Disabled Children, Distress Syndrome, Ewals F, Female, Handicapped Child, Human, Human Experiment, Intellectual Impairment, Journal of Intellectual Disability Research., Male, Morality, Nurse, Only Child, Qualitative Research, Quality Of Life, Retrospective Study, Semi Structured Interview, van Goudoever JB, Willems DI, Zaal-Schuller IH
Association of Mortality With the Death of a Sibling in Childhood.
Tags: 2017, Adolescent, Age Factors, Bereavement, Cause Of Death, Child, Child, Preschool, Cnattingius S, December 2017 List, Denmark/epidemiology, Family Health/ Statistics & Numerical Data, Female, Follow-up Studies, Fu B, Humans, JAMA Pediatrics, Li J, Liew Z, Life Change Events, Male, Mortality, Olsen J, Parner ET, Qin G, Registries, Risk Factors, Sex Factors, Siblings, Sweden/epidemiology, Time Factors, Vestergaard M, Yu Y, Zhao N
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Child, Chronic Disease, Communication, Critical Illness, Dixon-Woods M, Empirical Approach, Female, Heney D, Humans, Journal Article, Male, Neoplasms/psychology/therapy, Parent caregivers, Physician-patient Relations, Professional Patient Relationship, Professional-family Relations, Windridge KC, Young B
The Impact of Music Therapy in Paediatric Palliative Care in Residential Hospice
The utilization of palliative care units by children with cancer: A nationwide survey
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS