Browse Items (298 total)
- Tags: Decision Making
The use of pediatric advance directives: a tool for palliative care physicians.
Tags: 2008, Advance Care Planning/es [Ethics], Advance Care Planning/og [Organization & Administration], Backlog, Child, Child Advocacy, Child Advocacy/es [Ethics], Child Advocacy/lj [Legislation & Jurisprudence], Child Advocacy/px [Psychology], Decision Making, DNAR, Humans, Journal Article, Minors/lj [legislation & Jurisprudence], Minors/px [Psychology], Palliative Care/es [Ethics], Palliative Care/og [Organization & Administration], Palliative Care/px [psychology], Parental Consent/es [Ethics], Parental Consent/lj [Legislation & Jurisprudence], Parental Consent/px [Psychology], Patient Participation/lj [Legislation & Jurisprudence], Patient Participation/px [Psychology], Pediatrics/es [Ethics], Pediatrics/og [Organization & Administration], Personal Autonomy, Right to Die/es [Ethics], Right to Die/lj [Legislation & Jurisprudence], The American Journal of Hospice & Palliative Care, United States, Zinner SE
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
Ethical problems in pediatric critical care: consent
Tags: 2003, Backlog, Child, Clinical, Critical Care Medicine, Decision Making, Ethics, Frader JE, Humans, ICU Decision Making, Informed Consent/ethics/legislation & jurisprudence, Intensive Care Units, Journal Article, Minors/legislation & jurisprudence, Parental Consent, Pediatric/ethics/legislation & jurisprudence, Personal Autonomy, Physician's Role, United States, Zawistowski CA
End-of-life Decisions and Practices as Viewed by Health Professionals in Pediatric Critical Care: A European Survey Study
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Tags: 2018, Artificial Ventilation, Brain Death, Cause Of Death, Child, Chuah S L, conference abstract, Controlled Study, Decision Making, developing country, Developing World 2018 List, Drug Withdrawal, Female, Gan CS, Ho AMM, Human, inotropic agent, Isa MR, Jalil R, Length Of Stay, Life Sustaining Treatment, liver failure, Lum LC, Major Clinical Study, Male, Mortality Rate, organ donor, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Prospective Study, Resuscitation, Secondary Analysis, Tang SF, Teh K H, Total Quality Management, Zainal Abidin AS
Ethnicity, race, and advance directives in an inpatient palliative care consultation service.
Tags: 2013, 80 And Over, Adult, Advance Directives/eh [Ethnology], African Americans/statistics & numerical data, Aged, Asian Continental Ancestry Group/sn [Statistics & Numerical Data], Attitude to Death/eh [Ethnology], Backlog, Cooper LB, Cross-cultural Comparison, Decision Making, DNAR, European Continental Ancestry Group/sn [Statistics & Numerical Data], Female, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Journal Article, Lesser ML, Liberman T, Male, Middle Aged, Mir Tanveer P, New York/ep [Epidemiology], Nouryan CN, Palliative & Supportive Care, Palliative Care/og [Organization & Administration], Pekmezaris R, Program Evaluation, Referral and Consultation/og [Organization & Administration], Resuscitation Orders, Sison CP, Spirituality, Terminal Care/og [organization & Administration], Wolf-Klein GP, Zaide GB
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Using industrial processes to improve patient care
Tags: 2004, Backlog, Bmj (clinical Research Ed.), Brailsford S, Connell C, Davies R, Decision Making, Great Britain, Harper P, Humans, Industry/methods/standards, Journal Article, Klein JH, Occupational Health, Patient Care/standards, Quality Of Health Care, State Medicine/standards, Waiting Lists, Young T
Treatment Decision Making and Regret in Parents of Children With Incurable Cancer
Tags: 2021, 2023 SE3 - Oncology, Article, Cancer Nursing, Cheng MH, Child, Controlled Study, Decision Making, Education, Female, Human, incurable cancer, Liang J, Liang MZ, Male, Multicenter Study, Only Child, Palliative Therapy, Propensity Score, Prospective Study, risk factor, risk perception, Sun Z, Tang Y, Ye ZJ, Yu YL, Zhang XY
Supporting the Decision Making of Children With Cancer: A Meta-synthesis
What Information Do Parents Need When Facing End-of-life Decisions For Their Child? A Meta-synthesis Of Parental Feedback
Tags: 2015, BMC Palliative Care, Communication, Decision Making, Health Knowledge Attitudes Practice, Hope, Humans, Intensive Care Units Pediatric/organization & Administration, July 2017 List, Needs Assessment, Parents/education, Parents/psychology, Sullivan J, Terminal Care/methods, Terminal Care/psychology, Time Factors, Wilkinson D, Xafis V
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Delivery Room Deaths Of Extremely Preterm Babies: An Observational Study
Many extremely preterm neonates die in the delivery room (DR) after decisions to withhold or withdraw life-sustaining treatments or after failed resuscitation. Specific palliative care is then recommended but sparse data exist about the…
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, August 2016 List, Birth, Challenge, Comfort Care, Death, Decision Making, Delivery Room, Delivery Rooms, Dying, Epipage-2, Extreme Prematurity, Infant, Management, Palliative Care, Pediatrics, Perinatal Palliative Care, Perspectives, Weeks Gestation, X Durrmeyer
Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care
Tags: 2000, Adult, Attitude To Death, Backlog, Child, Data Collection, Death and Euthanasia, Decision Making, Empirical Approach, et al, Female, Grier HE, Humans, JAMA, Journal Article, Klar N, Male, Neoplasms/mortality/therapy, Oncology at EOL, Palliative Care, Parents/psychology, Physicians/psychology, Professional Patient Relationship, Prognosis, Regression Analysis, Terminally Ill, Wolfe J
When Is It in a Child's Best Interests to Withhold or Withdraw Life-sustaining Treatment? An Evolving Australian Jurisprudence
Children's complex health: Maternal experiences of care and decision making
Tags: 2023, Advance Care Planning, Article, Child, Community Health Nursing, coronavirus disease 2019, Decision Making, Female, Godbold R, Human, Journal Of Child Health Care, Long Term Care, May List 2023, Mother, Only Child, Pandemic, Qualitative Research, Thematic Analysis, Voice, VULNERABILITY, Willis E
Dying Later, Surviving Longer
Cultural and religious considerations in pediatric palliative care
Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit
Tags: 2023, Cardiology In The Young, Child, Cinahl, conference abstract, Decision Making, Eissler AB, Female, Heart, Holistic Care, Human, Intensive Care, Intensive Care Units, Kroger Y, Male, Medline, Memory, Nursing, October List 2034, Palliative Therapy, Patient Care, Pediatric Intensive Care Unit, Rare Disease, Satisfaction, Systematic Review, Terminal Care, Wieden N
Death in the intensive care nursery: physician practice of withdrawing and withholding life support
Tags: 1997, Backlog, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Life Support Systems, Medical Futility, Newborn, Partridge JC, Passive, Pediatric, Pediatrics, Quality Of Life, San Francisco, University of California, Very Low Birth Weight, Wall SN
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Tags: 2010, Andrews B, Artificial, Backlog, Bos AF, Canada, Cross-cultural Comparison, Decision Making, Diseases/mortality, Female, Gestational Age, Humans, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Leuthner SR, Male, Meadow W, Neonatal, Netherlands, Newborn, Physician Assisted Dying PAD, Respiration, Terminal Care, The Journal Of Pediatrics, United States, Verhagen AAE, Withholding Treatment/statistics & Numerical Data
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M
Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia
Tags: 2023, Article, Australia, Bmj Open, care behavior, Child, courage, Decision Making, Gillam L, Human, Hynson J, Interpersonal Communication, Interview, Male, March List 2024, O'Neill J, Palliative Therapy, Parent, Pediatrician, Phenomenology, shared decision making, Signal Transduction, Simulation, Vemuri S, Williams K
Navigating two 'truths': a qualitative study of physician-led end-of-life decision-making for children with life-limiting conditions
Cardiopulmonary resuscitation in patients with cancer.
Impact of euthanasia on primary care physicians in the Netherlands.
Tags: 2007, Active, Active/px [Psychology], Adaptation, Attitude Of Health Personnel, Backlog, Decision Making, Emotions, Euthanasia, Female, Haverkate I, Humans, Journal Article, Male, Netherlands, Palliative Medicine, Physician Assisted Dying PAD, Physician's Role, Physician's Role/px [Psychology], Primary Health Care, Professional-patient Relations, Psychological, Qualitative Research, The Anne-Mei, van Marwijk H, van Royen P
Care for patients in the last months of life: the Belgian Sentinel Network Monitoring End-of-Life Care study
Tags: 2008, 80 And Over, Adolescent, Adult, Aged, Archives Of Internal Medicine, Backlog, Bauwens S, Belgium, Bossuyt N, Child, Decision Making, Deliens L, Delivery of Health Care, Deschepper R, Drieskens K, Female, Humans, Infant, Journal Article, Male, Middle Aged, Palliative Care, Preschool, Sentinel Surveillance, Terminal Care, Van Casteren V, Van den Block L
When to stop? Decision-making when children's cancer treatment is no longer curative: a mixed-method systematic review
Benefits of Early Referral to Pediatric Palliative Care for a Child With a Rare Disease
Tags: 2018, August 2018 List, Child, Clinical, Connective Tissue Diseases Diagnosis, Connective Tissue Diseases Familial and Genetic In Infancy and Childhood, Connective Tissue Diseases Symptoms, Connective Tissue Diseases Therapy In Infancy and Childhood, Decision Making, Dyspnea Drug Therapy, Face Pathology, Family Education, Fibrosis, Health Education, Intellectual Disability, Intensive Care Units, Male, McHardy M, Morphine Therapeutic Use, Muscle, Mutation, Pain Management, Palliative Care, Parental Attitudes, Pediatric, Pediatric Care, Pediatrics, Referral And Consultation, Skeletal Abnormalities, Vadeboncoeur C
Ethics in pediatric palliative care
Tags: 2017, Adult, Anestezi Dergisi, Child, Decision Making, Ethics, Female, Gocken C, Human, January 2018 List, Male, Palliative Therapy, Torun T
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Pediatricians' attitudes affecting decision-making in defective newborns
Tags: 1977, Abnormalities/therapy, Adult, Age Factors, Attitude Of Health Personnel, Backlog, Decision Making, Empirical Approach, Ethics, Female, Howell MC, Humans, ICU Decision Making, Infant, Journal Article, Krane D, Male, Medical, Middle Aged, Newborn, Parental Consent, Pediatrics, Pediatrics/standards, Questionnaires, Religion, Sex Factors, Shannon DC, Todres ID, Withholding Treatment
The retreat from advanced care planning
Tags: 2012, Advance Care Planning/economics/trends, Advance Directives, Backlog, Centers for Medicare and Medicaid Services (U.S.), Decision Making, Humans, Insurance Coverage/legislation & jurisprudence, JAMA, Journal Article, Journal of Palliative Medicine Briefings, Medicare/economics, Patient Protection and Affordable Care Act, Patient-centered Care, Physician-patient Relations, Terminal Care/economics/standards, Tinetti ME, United States
Decisions about life-sustaining treatment. Impact of physicians' behaviors on the family
Tags: 1995, Archives Of Internal Medicine, Backlog, Communication, Consensus, Death and Euthanasia, Decision Making, Disclosure, Empirical Approach, Family/psychology, Garland MJ, Humans, Interviews, Journal Article, Life Support Care, Nelson CA, Nurse's Role, P.H.S., Physician's Role, Practice Guidelines, Professional Patient Relationship, Professional-patient Relations, Research Support, Tilden VP, Tolle SW, U.S. Gov't, Withholding Treatment
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Tags: 2016, Cimino AN, Decision Making, Family, Health Personnel/px [psychology], Humans, Interviews As Topic, Journal of Social Work in End-of-Life & Palliative Care, Parents/px [psychology], Pediatrics, Professional-family Relations, Rueda HA, September 2017 List, Social Workers/px [psychology], Terminal Care/es [ethics], Terminal Care/px [psychology], Terminal Care/st [standards], Thieleman KJ, Wallace C, Withholding Treatment/es [ethics]