Browse Items (75 total)

Tags: 2000, Adolescent, Backlog, Child, Family, Female, Gordh T, Humans, Infant, Interviews, Journal Article, Kreuger A, Ljungman G, Male, Neoplasms/physiopathology/psychology/therapy, Non-U.S. Gov't, Pain Measurement, Pain/epidemiology/physiopathology/therapy, Pediatric Hematology And Oncology, Preschool, Prevalence, Research Support, Sorensen S

Tags: 2017, Adolescent, Adult, April 2018 List, Attitude To Death, Attitude To Health, Carroll KW, Child, Child Health/statistics & numerical data, Cohort Studies, Critical Illness/epidemiology/ psychology, Decision-making, Female, Fenderson RM, Feudtner C, Health Surveys, Hill DL, Hope, hopes, Humans, Infant, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Middle Aged, Nathanson PG, Only Child, Parent-child Relations, parental concordance, Parents/ Psychology, Pediatrics, Philadelphia/epidemiology, Preschool, Prevalence, problems, Quality of Life/ psychology, Serious Illness, Terminal Care/ psychology, Young Adult

Tags: 2019, African American, Article, Attention, Caucasian, Child, Chronic Disease, Comorbidity, Complex Chronic Conditions, Controlled Study, end-of-life, Fortney C A, hcup kid, Health Care Cost, Hospital Patient, Human, Infant, Infants, Insurance, June 2019 List, Lindley L C, Neonates, Palliative Therapy, Prevalence, Regression Analysis, Serious Illness, The American Journal of Hospice & Palliative Care

Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult

Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult

Tags: 2010, 80 And Over, Active, Age Factors, Aged, Assisted/legislation & jurisprudence/statistics & numerical data, Backlog, Belgium/epidemiology, Bilsen J, Canadian Medical Association Journal, Cause Of Death, Chambaere K, Cohen J, Deliens L, Euthanasia, Euthanasia/legislation & jurisprudence/statistics & numerical data, Female, Home Care Services/statistics & Numerical Data, Humans, Journal Article, Male, Middle Aged, Mortier F, Neoplasms/therapy, Onwuteaka-Philipsen BD, Prevalence, Questionnaires, Sex Factors, Suicide, Terminal Care/statistics & Numerical Data, Time Factors, Voluntary/statistics & numerical data

Tags: 2022, Adult, Age, Article, August 2022 List, Child, Chronic Disease, Cohort Analysis, congenital disorder, Controlled Study, Cross-sectional Study, Doran T, England, Female, Fraser LK, Gibson-Smith D, Hills M, Human, Jarvis S, Journal of Pain and Symptom Management, Major Clinical Study, Male, Neefjes V, Nervous System, Observational Study, Papworth A, Pediatrics, Polypharmacy, Prevalence, Taylor J, Young Adult

Tags: 2019, Adolescent, Adult, anxiety, Article, Barker MM, Beresford B, Bland M, Child, data extraction, Depression, Embase, Female, Fraser LK, Human, Human Tissue, Incidence, Interview, JAMA Pediatrics., Male, Medline, meta analysis, Monitoring, Organisation for Economic Co-operation and Development, Prevalence, psychologic assessment, Psycinfo, Regression Analysis, September 2019 List, synthesis, Systematic Review, Young Adult

Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T

Tags: 2001, Adolescent, Adult, Backlog, Child, Child Welfare/statistics & numerical data, Child: Care, Health and Development, Chronic Disease/epidemiology/psychology, Cross-sectional Studies, Disabled Children/psychology/statistics & numerical data, Family, Great Britain/epidemiology, Human, Infant, Journal Article, Lenton S, Lewis M, Mastroyannopoulou K, Mental Health, Newborn, Non-U.S. Gov't, Parent-child Relations, Preschool, Prevalence, Stallard P, Support

Tags: 2000, Adolescent, Backlog, Child, Cross-sectional Studies, Developmental Medicine and Child Neurology, Disabled Children, Feeding and Eating Disorders of Childhood/epidemiology/etiology, Female, Ford-Adams ME, Griffiths P, Humans, Johnson A, Journal Article, Lambert B, Male, Nervous System Diseases/complications, Non-U.S. Gov't, Nutrition Disorders/epidemiology/etiology, Parent-child Relations, Preschool, Prevalence, Research Support, Rose M, Severity Of Illness Index, Sullivan P

Tags: 2012, Adolescent, Adult, Aldridge J, Backlog, Child, Critical Illness/epidemiology, England/epidemiology, Female, Fraser LK, Hain R, Humans, Infant, Journal Article, Male, McKinney PA, Miller M, Newborn, Norman P, Palliative Care, Parslow RC, Pediatrics, Preschool, Prevalence, Retrospective Studies, Terminally Ill/statistics & numerical data, Young Adult

Tags: 2009, Arron K, behavioral problems, behavioural phenotype, brachmann-delange syndrome, Children, Cornelia de Lange syndrome, De Lange syndrome, demand denial no contact, descriptive analysis, Education & Educational Research, Environment, environmental conditions, functional-analysis, Genetics & Heredity, Hall S, INDIVIDUALS, Intervention, Journal Of Intellectual Disability Research, Neurology, Neurosciences &, Oliver C, Phenomenology, Phenotype, prader-willi syndrome, Prevalence, Psychiatry, psychological intervention, Rehabilitation, self-injurious behaviour, self-injury, Sloneem J, social reinforcement, Symptoms

Tags: 2011, American Journal of Medical Genetics Part A, anamnesis, apnea, Article, Azevedo A C, Barrios P, breathing difficulties, characteristics, Child, Clinical Article, Clinical Feature, Controlled Study, Cross-sectional Study, Dalcin P, disease association, Disease Severity, Doppler echocardiography, Fagondes S, Female, Giugliani R, Glycosaminoglycans, Human, John A, Lysosomal storage diseases, lysosome storage disease, macroglossia, Male, Maroteaux Lamy syndrome, Menna-Barreto S, Morquio syndrome, MPSVI, Mucopolysaccharidosis, oxygen saturation, oxygen/ec [Endogenous Compound], physical examination, pigeon thorax, Polysomnography, Preschool Child, Prevalence, Priority Journal, Prospective Study, pulmonary hypertension, Schwartz I, Sleep apnea, sleep apnea syndrome/di [Diagnosis], sleep disorder, snoring, Trajectory, witnessed apnea

Tags: 2006, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Backlog, Child, Children W/SNI, Female, Heiskala H, Humans, Inborn Errors/complications/pathology, Journal Article, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso ML, Lindblom N, Longitudinal Studies, Male, Metabolism, Middle Aged, Preschool, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis

Tags: 2006, Acetylglucosamine, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Aspartylglucosaminuria, characteristics, Child, Child Preschool, Children W/SNI, Female, Heiskala H, Humans, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso M L, Lindblom N, Longitudinal Studies, Male, Metabolism Inborn Errors, Metabolism Inborn Errors/complications/pathology, Middle Aged, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis, sleep disturbance/disorders, Sleep Wake Disorders, Surveys And Questionnaires, Trajectory

Tags: 2009, Adolescent, Adult, Braam W, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/ep [Epidemiology], Cri-du-Chat Syndrome/ge [Genetics], Curfs L M, Didden R, Female, Genetic Testing, Humans, Infant, Infant Newborn, Journal Of Intellectual Disability Research, Korzilius H, Maas A P, Male, Middle Aged, Prevalence, Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ep [Epidemiology], Smits M G, Statistics Nonparametric, Surveys And Questionnaires, Trajectory, Young Adult

Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M

Tags: 1993, Adolescent, Adolescent Psychology/statistics & numerical data, Adolescent Transitions, Adult, Backlog, Dietz WH, Educational Status, Female, Gortmaker SL, Humans, Income/statistics & numerical data, Journal Article, Male, Marriage, Must A, Obesity/economics/epidemiology/psychology, Perrin JM, Poverty/statistics & numerical data, Prevalence, Self Concept, Sobol AM, Socioeconomic Factors, The New England Journal Of Medicine

Tags: 1997, Adolescence, Age Distribution, Anesthetics, Anticonvulsants, Backlog, Barbiturates/ad [Administration & Dosage], Chi-Square Distribution, Child, Developmental Medicine & Child Neurology, Diazepam/ad [Administration & Dosage], Drug Administration Schedule, Electroencephalography, Encephalitis/co [Complications], Eriksson KJ, Female, Follow-up Studies, Human, Infant, Intravenous/ad [Administration & Dosage], Journal Article, Koivikko MJ, Male, Meningitis, Nervous System Diseases/ep [Epidemiology], Neuropsychological Tests, Non-U.S. Gov't, Preschool, Prevalence, Retrospective Studies, Risk Factors, Septic/co [Complications], Sex Distribution, Shock, Status Epilepticus/di [Diagnosis], Status Epilepticus/dt [Drug Therapy], Status Epilepticus/ep [Epidemiology], Status Epilepticus/et [Etiology], Streptococcal Infections/co [Complications], Support, Time Factors, Treatment Outcome, Viral/co [Complications]

Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis

Tags: 2005, Adult, Age Factors, Aged, Anxiety/epidemiology/psychology, Azoulay E, Backlog, Bollaert PE, Cheval C, Coloigner M, Darmon M, Death, Depression/epidemiology/psychology, Family/psychology, Fassier T, French FAMIREA study group, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Journal of Critical Care, Merouani A, Middle Aged, Moulront S, Patient Discharge, Pigne E, Pingat J, Pochard F, Prevalence, Prospective Studies, Risk Factors, Schlemmer B, Severity Of Illness Index, Zahar JR

Tags: 2001, Anxiety/epidemiology/etiology, Azoulay E, Backlog, Canoui P, Chevret S, Critical Care Medicine, Critical Illness/therapy, Decision Making, Depressive Disorder/epidemiology/etiology, Dhainaut JF, Ethics, Euthanasia, Family/psychology, Female, France/epidemiology, Grassin M, Group French FAMIREA, Hubert P, Humans, Intensive Care Units, Journal Article, LeGall JR, Lemaire F, Life Support Care/utilization, Logistic Models, Male, Medical, Multivariate Analysis, Nonparametric, Passive, Pochard F, Prevalence, Prospective Studies, Questionnaires, Schlemmer B, Statistics, Zittoun R

Tags: 2012, adults, Aggression, Autism spectrum disorder, Bacarese-Hamilton M, behavioral problems, challenging behavior, challenging behaviors, characteristics, de-lange-syndrome, handicap, high frequency repetitive behavior, Intellectual Disability, Journal of Autism and Developmental Disorders, learning-disabilities, Mental, Oliver C, People, Petty J, Prevalence, Psychology, psychotropic medication, repetitive behavior, risk-factors, ritualistic behavior, Ruddick L, self-injury, severe intellectual disability, Stereotyped Behavior, total population, Trajectory, young-children

Tags: 2012, Adolescent, Adult, Aged, Aged 80 and over, Aggression/psychology, Attention Deficit and Disruptive Behavior, behavioral problems, Child, Child Preschool, Didden R, Disorders/diagnosis/epidemiology/psychology, Dumont E L, Female, Hastings R, Humans, Intellectual Disability/diagnosis/epidemiology/psychology, Journal Of Intellectual Disability Research, Kroes D B, Male, Matson J L, Middle Aged, Multivariate Analysis, Personality Inventory/standards/statistics & numerical data, Prevalence, Reference Values, Rojahn J, Rowe E W, scale development, Self-Injurious Behavior/diagnosis/epidemiology/psychology, Sensitivity and Specificity, Sharber A C, Stereotypic Movement Disorder/diagnosis/epidemiology/psychology, tool development, unspecified ID, Young Adult

Tags: 1994, 80 And Over, Adult, Aged, Analysis of Variance, Backlog, Coyle N, et al, European Journal Of Cancer, Female, Friedlander-Klar H, Humans, Journal Article, Karnofsky Performance Status, Kemeny N, Kiyasu E, Kornblith AB, Lepore JM, Male, Middle Aged, Neoplasms/complications, Norton L, Pain Measurement, Portenoy RK, Prevalence, Psychological, Quality Of Life, Reproducibility of Results, Severity Of Illness Index, Sobel K, Stress, Thaler HT

Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident

Tags: 2009, Adolescent, Adult, Angelman Syndrome/epidemiology/psychology, Arron K, behavioral problems, Berg K, Burbidge C, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/epidemiology/psychology, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Female, Fragile X Syndrome/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/genetics/psychology, Journal of Autism and Developmental Disorders, London, Male, Middle Aged, Moss J, Oliver C, Phenotype, Prader-Willi Syndrome/epidemiology/psychology, Prevalence, repetitive behavior, Stereotyped Behavior, Surveys And Questionnaires, Syndrome, tone and motor problems, Trajectory, Young Adult

Tags: 2008, Adolescent, Adult, Backlog, Child, Connock MJ, Demography, England/epidemiology, Humans, Journal Article, Kaplan-Meier Estimate, Lavery C, Medical, Moore D, Mucopolysaccharidosis I/epidemiology/mortality/physiopathology, Orphanet Journal Of Rare Diseases, Phenotype, Prevalence, Registries, Societies, Wales/epidemiology, Wraith E

Tags: 2003, Adaptation, Adolescent, Adult, Aged, Backlog, Beaton RD, Bereavement, Cause Of Death, Child, Chung IJ, Death, Female, Humans, Johnson LC, Journal Article, Journal Of Traumatic Stress, Male, Middle Aged, Murphy SA, Non-U.S. Gov't, P.H.S., Parent-child Relations, Post-Traumatic/epidemiology/etiology/psychology, Prevalence, Psychological, Research Support, Risk Factors, Self Concept, Sex Factors, Social Support, Stress Disorders, U.S. Gov't, Violence

Tags: 2018, Advanced Cancer, Al-Sayegh H, Article, Bona K, Cancer, Cancer Patient, Child, Cohort Analysis, Distress Syndrome, Dussel V, Female, Feudtner C, highest income group, household income, Human, Ilowite MF, Kang TI, lowest income group, Ma C, Major Clinical Study, Male, Oncology 2018 List, outcome assessment, Pain, Palliative Therapy, patient-reported outcome, Poverty, Prevalence, Quality Of Life, Rosenberg AR, Secondary Analysis, Wolfe J

Tags: 2003, Adolescent, Affective Symptoms/epidemiology/psychology, Backlog, Child, Collins JJ, Drake R, Female, Frost J, Hospitalized/psychology/statistics & numerical data, Humans, Infant, Intensive Care/psychology/statistics & numerical data, Journal Article, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Neoplasms/epidemiology/psychology, Pain/epidemiology/psychology, Palliative Care/psychology/statistics & numerical data, Preschool, Prevalence, Respiratory Insufficiency/epidemiology/psychology, Retrospective Studies

Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult

Tags:  Child,  Female,  Male, 2022, BMC Health Services Research, Doherty M, Epidemiology, Home Care, Human, Jones A, November 2022 List, Ontario, Palliative Therapy, Pilot Study, Prevalence, Thorburn-Winsor E, Vadeboncoeur C

Tags: 2023, Alexandre M, Archives de Pediatrie, Article, assisted ventilation, Brossier D, Child, Controlled Study, Disability, Duval C, February List 2024, Female, Functional Status, Human, Intensive Care, Intensive Care Unit, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrician, Porcheret F, Prevalence, Retrospective Study, Roulland C, special situation for pharmacovigilance, Therapy, Toulouse J, Viallard ML