Browse Items (292 total)
- Tags: Newborn
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
Tags: 2022, alpha, Analysis, Article, Attitude, Barbosa J, CARE, Clinical, coefficient, confirmatory, consistency, controlled, convergent, Cronbach, degree, discriminant, Education, end-of-life, error, experiment, Face, factor, Female, Figueira AR, Fradique E, Freedom, Human, intensive, internal, Major, Male, mean, Neonatal, Newborn, Nurse, Nursing, October 2022 List, Of, Palliative, Palliative & Supportive Care, quantitative, Rebotim AM, Reliability, Roldao MG, root, Santos Curado MA, Scale, Software, Sousa F P, squared, study, supportive, terminal, Therapy, Unit, VALIDATION, Validity
Research in children: ethical and scientific aspects
Tags: 1999, Backlog, Child, Clinical Trials/st [Standards], Developing Countries, Ethics, Ethics Committees, Human, Infant, Informed Consent, Journal Article, Lancet, Medical, Newborn, Nontherapeutic Human Experimentation, Parental Consent, Pediatrics, Research, Research/st [Standards], Risk, Risk Assessment, Smyth RL, Weindling AM
The clinical spectrum of mitochondrial disease in 75 pediatric patients
Tags: 2003, Adolescent, Age of Onset, Backlog, Bernert G, Child, Clinical Pediatrics, Female, Humans, Infant, Journal Article, Konstantopoulou V, Male, Mitochondrial Diseases/diagnosis/epidemiology, Newborn, Plecko-Startinig B, Preschool, Q3 Scoping Review Results, Retrospective Studies, Skladal D, Sperl W, Stockler-Ipsiroglu S, Sudmeier C, Zeman J
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Pediatric extubation: "pulling the tube"
Tags: 2001, Backlog, Decision Making, Euthanasia, Gracy D, Hospice Care, Humans, Infant, Intensive Care Units, Intratracheal, Intubation, Journal Article, Journal of Palliative Medicine, Neonatal, Newborn, Passive, Patient Care Planning, Patient Transfer, Pediatrics/standards, Sine D, Sumner L, von Gunten CF
Informed dissent: the views of some mothers of severely mentally handicapped young adults
Tags: 1986, Abortion, Adult, Backlog, Congenital Abnormalities/therapy, Death and Euthanasia, Disabled Persons, Empirical Approach, Euthanasia, Female, Genetics and Reproduction, Humans, Induced, Infant, Informed Consent, Journal Article, Journal of Medical Ethics, Mental Health Therapies, Middle Aged, Mothers/psychology, Newborn, Passive, Patient Compliance, Simms M, Value of Life
Development and integration of a perinatal palliative care program at a tertiary care center
Tags: 2019, Abortion, anencephalus, Child, Clergy, Comfort, conference abstract, Controlled Study, electronic medical record, Female, Fetus Malformation, Hospice, Human, Intensive Care, Journal Of Investigative Medicine, June 2019 List, May R, Neonatologist, Newborn, Nurse, Oklahoma, Palliative Therapy, Perinatal Care, Practice Guideline, Prenatal Diagnosis, Shah B A, Social Worker, tertiary care center, White L, Wlodaver A
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Şener Taplak A, Thematic Analysis, Time Factors
Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal
Survival without disability to age 5 years after neonatal caffeine therapy for apnea of prematurity
Tags: 2012, Anderson PJ, Apnea/drug therapy, Asztalos EV, Backlog, Barrington KJ, Blindness/epidemiology/etiology/prevention & control, Caffeine/adverse effects/therapeutic use, Central Nervous System Stimulants/adverse effects/therapeutic use, Cerebral Palsy/epidemiology, Child, Child Development, Cognition Disorders/epidemiology/etiology/prevention & control, Davis PG, Deafness/epidemiology/etiology/prevention & control, Developmental Disabilities/epidemiology/etiology/prevention & control, Dewey D, Doyle LW, Female, Follow-up Studies, Grunau RE, Humans, Incidence, Infant, JAMA, Journal Article, Male, Moddemann D, N2N, Newborn, Odds Ratio, Ohlsson A, Premature, Preschool, Roberts RS, Schmidt B, Solimano A, Survival Analysis, Tin W, Treatment Outcome, Trial Investigators Caffeine for Apnea of Prematurity (CAP), Very Low Birth Weight
Niemann-Pick disease type C: From bench to bedside.
Tags: 1996, Adult, Age of Onset, Backlog, Cholesterol/metabolism, Disease Progression, Esterification, Female, Fibroblasts/pathology, Foam Cells/pathology, Genetic Counseling, Histiocytes/pathology, Humans, Infant, Intelligence Tests, JAMA, Jaundice, Journal Article, Longitudinal Studies, Male, Neonatal/etiology, Nervous System Diseases/etiology, Newborn, Niemann-Pick Diseases/diagnosis/genetics/pathology/physiopathology/therapy, Schiffmann R, Splenomegaly/etiology
Period prevalence of epilepsy in children in BC: a population-based study
Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult
Clinical spectrum, morbidity, and mortality in 113 pediatric patients with mitochondrial disease
Tags: 2004, Adolescent, Age of Onset, Backlog, Belmont JW, Cardiomyopathies/etiology/mortality, Child, Craigen WJ, DNA, Electron Transport, Electron Transport Chain Complex Proteins/deficiency, Female, Fernbach SD, Humans, Hunter JV, Infant, Journal Article, Male, Mitochondrial, Mitochondrial Diseases/complications/genetics/mortality, Mutation, Neish SR, Neuromuscular Diseases/etiology/mortality, Newborn, Non-U.S. Gov't, Pediatrics, Preschool, Research Support, Retrospective Studies, Scaglia F, Smith EO, Survival Analysis, Towbin JA, Vladutiu GD, Vogel H, Ware SM, Wong LJ
Children, cancer, and nutrition--A dynamic triangle in review
Tags: 2004, Backlog, Barr RD, Cancer, Child, Child welfare, Developing Countries, Health Status, Humans, Incidence, Infant, Journal Article, Malnutrition/epidemiology/physiopathology, Neoplasms/complications/therapy, Newborn, Non-U.S. Gov't, Nutrition Assessment, Nutritional Failure, Nutritional Status, Nutritional Support, Pencharz P, Preschool, Prognosis, Research Support, Sala A, Survival Analysis
Duration and morbidity of newly diagnosed idiopathic thrombocytopenic purpura in children: A prospective Nordic study of an unselected cohort
Tags: 2003, Adolescent, Backlog, Child, Cohort Studies, Elinder G, Female, Hedlund-Treutiger I, Hemorrhage/diagnosis/etiology/therapy, Henter JI, Humans, Idiopathic/complications/diagnosis/therapy, Infant, Jonsson OG, Journal Article, Male, Newborn, NOPHOITP Working Group, Platelet Count, Preschool, Prospective Studies, Purpura, Rajantie J, Risk Assessment, Rosthoj S, Scandinavia, Severity Of Illness Index, The Journal Of Pediatrics, Thrombocytopenic, Time Factors, Wesenberg F, Zeller B
Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children
Tags: 2018, Acheson E, Adaptation, Adolescent, burden of treatment, Central Nervous System Neoplasms/therapy, Child, Death, Elger B S, European Journal of Cancer Care (Engl), Family, Female, Hengartner H, Hospitalization, Humans, Infant, inpatient stays, Kuhne T, Length Of Stay, leukaemia, Leukemia/therapy, Male, Medical Records, Neoplasms/*therapy, Newborn, Oncology 2019 List, Paediatric oncology, Place Of Death, Preschool, Psychological, Rakic M, Retrospective Studies, Rischewski J, Rost M, Switzerland, Terminal Care, Wangmo T
Implications of Pediatric Palliative Consultation for Intensive Care Unit Stay
Tags: 2019, Adolescent, Adult, Article, Caucasian, Child, child hospitalization, Childhood Cancer, Cohort Analysis, confidence interval, Controlled Study, Demography, Female, health Insurance, Hospital Admission, Human, Humphrey LM, Infant, Journal of Palliative Medicine, Length Of Stay, Major Clinical Study, Male, Miller R, Newborn, Palliative Therapy, Patient Referral, Pediatric Hospital, Pediatric Intensive Care Unit, Retrospective Study, Rossfeld ZM, September 2019 List, Tobias JD, Tumin D
Cerebral palsy: what parents and doctors want to know
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Cerebral Palsy/diagnosis/etiology/therapy, Child, Developmental Disabilities/etiology, Forecasting, Humans, Infant, Journal Article, Newborn, Parents, Patient Education as Topic, Physician's Role, Preschool, Professional-family Relations, Research/trends, Rosenbaum P
Neonatal end-of-life spiritual support care
Tags: 2011, Attitude To Death, Backlog, Bereavement, Female, Humans, Infant, Journal Article, Neonatal Nursing/methods, Newborn, Nurse's Role, Nursing Assessment/methods, Palliative Care/methods/psychology, Parent-child Relations, Parents/psychology, Pregnancy, Pregnancy Outcome/psychology, Rosenbaum JL, Smith JR, Spirituality, The Journal Of Perinatal & Neonatal Nursing, Zollfrank R
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care
Tags: 2011, Adolescent, Backlog, Biomedical Research, Carpenter P, Child, Continuity Of Patient Care, District of Columbia, Farley J, Female, Gomez CF, Health Personnel, Holson D, Humans, Infant, Inservice Training, Journal Article, Male, Markowitz M, Newborn, Nigra Peter, Palliative Care, PEDI Study, Pediatrics, Preschool, Program Evaluation, Quality Of Health Care, Quality Of Life, Referral And Consultation, Rogers SK, Rood B, Smith K, Terminal Care, The American Journal of Hospice & Palliative Care
Early neurodevelopmental outcomes of extremely preterm infants
Tags: 2016, Adhd, Biomedical Research, Brain/embryology/ physiopathology, Cerebral Palsy, Developmental Disabilities/etiology/ physiopathology, Diseases/ physiopathology, Extremely Premature/growth & development/physiology/psychology, Fetal Organ Maturity, Hintz SR, Humans, Infant, Intellectual Impairment, intraventricular hemorrhage, March 2018 List, Neonatology, Nervous System Diseases/etiology/ physiopathology, neurodevelopment, Neurodevelopmental Outcomes, Newborn, Premature, preterm birth, Risk Factors, Rogers EE, Seminars in Perinatology, sensory impairment, Survival Rate/trends, Very Low Birth Weight/growth & development/physiology/psychology, white matter injury
Neonatal Palliative Care-alice's Journey
Tags: 2016, Bereavement, Bereavement Support, Child, Doctor Patient Relation, Halkett C, Holistic Care, Human, Infant, Infant Newborn, May 2017 List, Medical Staff, Memory, Murdoch E, Newborn, Newborn Intensive Care, Nursing Staff, Palliative Care, Palliative Medicine, Palliative Therapy, Patient Referral, Pilot Projects, Rodger E, Sibling, Terminal Care
Extreme prematurity and parental rights after Baby Doe
Tags: 2004, Abnormalities, Backlog, Child Advocacy/legislation & jurisprudence, Civil Rights/legislation & jurisprudence, Disabled Persons/legislation & jurisprudence, Euthanasia, Humans, ICU Decision Making, Infant, Journal Article, Multiple, Neonatology/legislation & jurisprudence, Newborn, Parents, Passive/legislation & jurisprudence, Prejudice, Premature, Robertson JA, Texas, The Hastings Center Report
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
A prospective investigation into the epidemiology of in-hospital pediatric cardiopulmonary resuscitation using the international Utstein reporting style
Tags: 2002, Adolescent, Adult, Backlog, Berg RA, Brazil/epidemiology, Cardiopulmonary Resuscitation/statistics & numerical data/utilization, Child, Chronic Disease, Emergency Service, Female, Grisi S, Heart Arrest/mortality/therapy, Hospital/statistics & numerical data/utilization, Hospitals, Humans, Infant, Journal Article, Male, Nadkarni V, Newborn, Pediatric/statistics & Numerical Data, Pediatrics, Perondi MB, Preschool, Prospective Studies, Reis AG, Respiratory Insufficiency/mortality/therapy, Shock/mortality/therapy, Survival Rate, Treatment Outcome
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Driscoll Children's Hospital respiratory syncytial virus database: risk factors, treatment and hospital course in 3308 infants and young children, 1991 to 2002
Tags: 2004, Antiviral Agents/therapeutic use, Backlog, Databases, Factual, Fergie J, Hospitalization, Human, Humans, Infant, Intensive Care Units, Journal Article, Length Of Stay, Mechanical, Medical Records, Newborn, Pediatrics, Premature, Purcell K, Respiratory Syncytial Virus, Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology, Respiratory Tract Infections/drug therapy/physiopathology/virology, Ribavirin/therapeutic use, Risk Factors, Severity Of Illness Index, The Pediatric Infectious Disease Journal, Ventilators
Diversity of Parent Emotions and Physician Responses During End-of-Life Conversations
Tags: 2023, Akkermans AA, Child, Child Parent Relation, Critical Illness, de Hoog M, de Vos MA, Death, Dijk PH, Emotion, Human, Kneyber MCJ, Linn AJ, Newborn, October List 2039, Pediatrics, Physician, Prins S, Psychology, Simons SHP, Smets EMA, van de Loo M, van Heerde M, van Kaam AHLC, van Woensel JBM
[Use of subcutaneous route for comfort care in neonatal palliative population: Systematic review and survey of practices in France]
Tags: 2017, Analgesia, Analgesic Agent, Archives de Pediatrie, Child, Comfort, Drug Therapy, France, Human, Medline, Neonatal Intensive Care Unit, Newborn, November 2017 List, Palliative Therapy, Pouvreau N, Practice Guideline, Renesme L, Sedation, Systematic Review, Tandonnet J, Tandonnet O, Tranquilizing Activity
Physiological changes, plasma beta-endorphin and cortisol responses to tracheal intubation in neonates
Tags: 1994, Acta Paediatrica, Alfentanil, Analgesia, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Blood Glucose/metabolism, Blood Pressure, Combination, Drug Therapy, Glycopyrrolate/therapeutic use, Heart Rate, Humans, Hydrocortisone/blood, Infant, Intratracheal/adverse effects, Intubation, Journal Article, Koivisto M, Meperidine, Newborn, Oxygen/blood, Pokela ML, Premedication, Succinylcholine
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Tags: 2019, Anales de Pediatria., Article, Barbieri G, Bellavia N, Bereavement Support, Bermudez Cortes M D M, Child, Controlled Study, Death, End-of-life Care, Female, Galera Minarro A M, Garcia-Marcos B P, Human, Human Experiment, Improvements, Male, Navarro M A, Newborn, Observational Study, October 2019 List, Paediatric, Palliative Care, Palliative Therapy, Parental Perspectives, Pediatrician, Pediatrics, Plaza Fornieles M, Questionnaire, Retrospective Study, Satisfaction, shared decision making, Survey, Terminal Care
A scale to monitor progression and treatment of mitochondrial disease in children.
Tags: 2006, Adolescent, Backlog, Bugiani M, Child, Disability Evaluation, Disease Progression, Elson JL, Female, Great Britain, Humans, Infant, Journal Article, Longitudinal Studies, Male, McFarland R, Mitochondrial Diseases/diagnosis/therapy, Mitochondrial Encephalomyopathies/diagnosis/therapy, Morava E, Neurology/methods, Neuromuscular Disorders, Newborn, Observer Variation, Pediatrics/methods, Phoenix C, Predictive Value of Tests, Preschool, Prognosis, Q3 Scoping Review Results, Reproducibility of Results, Schaefer AM, Smeitink JA, Turnbull DM, Uziel G
The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth
Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C
Socioeconomic differences in childhood hospital inpatient service utilisation and costs: prospective cohort study
Tags: 2005, Backlog, Child, England, Epidemiologic Methods, Female, Health Services Research, Hospital Costs/statistics & numerical data, Hospitalized/classification/statistics & numerical data, Hospitals/utilization, Humans, Infant, Journal Article, Journal Of Epidemiology And Community Health, Kupek E, Length Of Stay/statistics & Numerical Data, Male, Newborn, Non-U.S. Gov't, Petrou S, Preschool, Prospective Studies, Research Support, Social Class, Socioeconomic Factors
Review of pediatric autopsies performed at a university hospital in Ribeirao Preto, Brazil
Tags: 2006, Abnormalities/diagnosis, Adolescent, Adult, Archives of Pathology & Laboratory Medicine, Autopsy, Backlog, Brazil, Cause Of Death, Child, Female, Hospitals, Humans, Infant, Journal Article, Male, Newborn, PedPal Lit, Peres LC, Pregnancy, Prenatal Care, Preschool, Retrospective Studies, Stillbirth, University
New treatment paradigms in neonatal metabolic epilepsies.
Tags: 2009, Backlog, Brain Diseases, Electroencephalography, Epilepsy/cn [Congenital], Epilepsy/ge [Genetics], Epilepsy/th [Therapy], Humans, Inborn/ge [Genetics], Inborn/th [Therapy], Infant, Journal Article, Journal Of Inherited Metabolic Disease, KT Synthesis, Metabolic, Newborn, Pearl PL, Pyridoxine/ph [Physiology], Seizures/cn [Congenital], Seizures/et [Etiology], Seizures/th [Therapy], Vitamin B 6 Deficiency/ge [Genetics], Vitamin B 6 Deficiency/pp [Physiopathology]
Parental assessment of comfort in newborns affected by lifelimiting conditions treated by a standardized neonatal comfort care program
Tags: 2018, Adult, April 2018 List, Article, Byrne M, Child Parent Relation, Clinical Article, Daho M, Female, fluid intake, Foe G, Health Care Delivery, Health Care Quality, health program, Health Survey, Human, Infant, Infant Nutrition, Journal Of Perinatology, kangaroo care, Life Expectancy, life limiting disease, Male, Newborn, Newborn Care, Parental Attitude, parental behavior, Parravicini E, Patient Comfort, Peer Review, physical disease, Prospective Study, Self Report, standardization, Steinwurtzel R