Browse Items (243 total)
- Tags: Controlled Study
End Of Life Care In Paediatric Neurodegenerative Disease: A Regional Experience
Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G
Integrating Palliative Care Into School Communities
Tags: 2016, Bereavement, Child, Controlled Study, Cree V, Curriculum, Hospice, Hospices, Human, Human Experiment, Information Processing, Interview, May 2017 List, Model, Murray S, Only Child, Palliative Care, Palliative Medicine, Palliative Therapy, Paul S, Primary School, School Child, Scotland, Skill, Staff, Terminal Care
Mechanical Ventilation In Children With Life-limiting Conditions
Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult
Family-oriented Palliative Care: Parents' Perspective And Experience
Tags: 2016, Brain Damage, Child, Chromosome Disorder, Chromosome Disorders, Complication, Controlled Study, Dyspnea, Family Study, Gene Deletion, Hospice, Hospital, Human, June 2017 List, Length Of Stay, Life Expectancy, Medical Service, Metabolic Disorder, Neuromuscular Disease, Neuropediatrics, Only Child, Pain, Palliative Care, Palliative Therapy, Pietz J, Quality Of Life, Seizure, Spasticity, Spiritual Care, Symptom
Aspects Of Palliative Care In Child Neurology
Tags: 2016, Bereavement Counseling, Central Nervous System Tumor, Child, Child Care, Chromosome Aberration, Controlled Study, Coordination, Diagnosis, Family Study, Germany, Human, Human Experiment, June 2017 List, Metabolic Disorder, Neurologic Disease, Neurology, Neuropediatrics, Nolte-Buchholtz S, Only Child, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Spiritual Care, Terminal Care, Von Der Hagen M
Child Death And Deterioration Review Group
Tags: 2017, Adoption, Adverse Drug Reaction, Alderton M, Archives of Disease in Childhood, Case Study, Cause Of Death, Child, Child Death, Clinical Article, Controlled Study, Deterioration, Female, Health Care Quality, Human, Learning, Male, Nursing Staff, Palliative Therapy, Perception, Pryde K, September 2017 List, Side Effect, Student, Trust
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Balkin E M, Blume E D, Cardiac Surgeon, Cardiologist, Child, Clinical Study, Clinical Trial, Controlled Clinical Trial, Controlled Study, Female, Heart Failure, Human, Intensivist, Kaufman BD, Kirkpatrick J N, Life Expectancy, Male, Medical School, Multicenter Study, Palliative Therapy, Pediatric Cardiology, Pediatric cardiology., September 2017 List, Skill, Sleeper L A, Swetz K M, Terminal Care, Wolfe J
Training Pediatric Fellows In Palliative Care: A Comparison Of Simulation-based Training And Didactic Education
Tags: 2017, Brock K, Cardiology, Child, Clinical Trial, Cohen H, Comfort, Communication Skill, Controlled Clinical Trial, Controlled Study, Curriculum, Family, Female, Good J, Halamek L, Hematology, Human, Human Versus Animal Comparison, Male, Medical Education, Neonatology, Nonhuman, October 2017 List, Oncology, Palliative Therapy, Pediatric Blood and Cancer, Physician, Pilot Study, Resuscitation, Simulation, Single Blind Procedure, Sourkes B
A Prospective Study On The Characteristics And Subjects Of Pediatric Palliative Care Case Management Provided By A Hospital Based Palliative Care Team
Tags: 2017, BMC Palliative Care, Bosman DK, Caron HN, Case Management, Child, Clergy, Colenbrander DA, Controlled Study, Grootenhuis MA, Hospital, Human, Jagt Van Kampen CT, Kars MC, Major Clinical Study, March 2017 List, Nurse, Palliative Therapy, Prospective Study, Psychologist, Questionnaire, Schouten-Van Meeteren AYN, Social Worker
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
Place Of Death Of Children With Complex Chronic Conditions: Cross-national Study Of 11 Countries
Tags: 2017, Adolescent, Beernaert K, Belgium, Cancer Epidemiology, Cardenas-Turanzas M, Cause Of Death, Child, Cohen H, Controlled Study, Cultural Value, Death Certificate, Deliens L, European Journal of Pediatrics, Female, Frache S, Giovannetti L, Girl, Hakanson C, Houttekier D, Human, Kreicbergs U, Logistic Regression Analysis, Loucka M, Major Clinical Study, Male, Malignant Neoplastic Disease, March 2017 List, Mexico, Naylor W, Neuromuscular Disease, Ohlen J, Palliative Therapy, Ramos MR, Rhee Y, South Korea, Sweden, Teno J, Wilson DM
Four Steps To Eliminate Or Reduce Pain In Children Caused By Needles (part 1)
Tags: 2017, Acupuncture, Analgesia, April 2017 List, Aromatherapy, Child, Chronic Pain/co [complication], Chronic Pain/th [therapy], Clinical Study, Controlled Study, Friedrichsdorf SJ, Human, Hypnosis, Injection Pain/co [complication], Injection Pain/th [therapy], Integrative Medicine, Minnesota, Needle, Needle/am [adverse Device Effect], Note, Pain Clinic, Pain Management, Pain/co [complication], Pain/pc [prevention], Pain/th [therapy], Palliative Therapy, Priority Journal, Self Care, Treatment Planning, Vaccination
Pediatric chronic patients at outpatient clinics: A study in a Latin American University Hospital
Tags: 2017, Adolescent, Adult, Alveno RA, Cardiology, Carneiro-Sampaio M, Carvalho WB, Child, Chronic Patient, Controlled Study, Cross Sectional Study, Death, December 2017 List, Emergency Health Service, Emergency Ward, Endocrinology, Farhat SCL, Female, Hematology, Hojo ES, Hospital Admission, Hospitalization, Human, Intensive Care Unit, Jornal De Pediatria., Kidney Transplantation, Major Clinical Study, Male, Miranda CV, Nephrology, Neurology, Odone-Filho V, Oncology, Outpatient, Pain, Passone CG, Physician, Psychiatry, Rheumatology, Silva CA, Tannuri U, University Hospital, Waetge AR
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Tags: 2017, Adolescent, Adult, City, Clinical Trial, Controlled Study, D'Angelo LJ, December 2017 List, Female, Houston PE, Human, Human Dignity, Human Immunodeficiency Virus, Journal of Palliative Medicine, Justice, Kimmel AL, Lee BC, Lyon ME, Major Clinical Study, Male, Medical Decision Making, Mortality, Multicenter Study, Nonhuman, Palliative Therapy, Pediatric Hospital, Rana SR, Randomized Controlled Trial, Single Blind Procedure, Stigma
Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions
Tags: 2017, Bereavement, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Ethnic Group, Human, Oncology 2017 List, Palliative Therapy, Personal Experience, Prevalence, Prognosis, Quality Of Life, Randomized Controlled Trial(topic), Rosenberg AR, Sibling, The Lancet Child And Adolescent Health, Voice, Wolfe J
Disparities in the intensity of end-of-life care for children with cancer
Tags: 2017, Adolescent, Adult, Alvarez E, Article, Bhatia S, Cancer Chemotherapy, Caucasian, Chamberlain LJ, Child, Childhood Cancer, Childhood Mortality, Cohort Analysis, Controlled Study, Demography, Female, Health Care Disparity, Hematologic Malignancy, Hemodialysis, Hospital Admission, Hospital Mortality, Human, Infant, Intensive Care Unit, Intubation, Johnston EE, Major Clinical Study, Male, Newborn, Oncology 2017 List, Pediatrics, Population Research, Priority Journal, Resuscitation, Retrospective Study, Sanders L, Saynina O, Terminal Care
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Tags: 2017, Bindels PJE, Cancer Epidemiology, Child, Controlled Study, Cross-sectional Study, Darlington ASE, Death, Distress Syndrome, Doctor Patient Relation, Fatigue, General Practitioner, Human, Human Versus Animal Comparison, Journal of Pain and Symptom Management, Major Clinical Study, Michiels EMC, Nonhuman, Oncology 2017 List, Pain, Palliative Therapy, Panic, Pieters R, Pluijm SMF, Powerlessness, Questionnaire, Sadness, Symptom, Thermometer, van den Heuvel-Eibrink MM, van der Geest IMM, van der Heide A
Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer
Tags: 2017, Advanced Cancer, Al-Sayegh H, Ananth P, Child, Childhood Cancer, Clinical Trial, Cohort Analysis, Controlled Study, Death, Female, Health Care Utilization, Human, Ma C, Major Clinical Study, Male, Monsereenusorn C, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Rodriguez-Galindo C, Terminal Care, Wolfe J
Utilization of palliative care in pediatric oncology: An interprofessional evaluation of knowledge, beliefs, perceived barriers, and involvement of services
Tags: 2017, Adolescent, Bell C, Child, Childhood Cancer, Controlled Study, Data Analysis Software, Diagnosis, Diver J, Doctor Patient Relation, E-mail, Family, Female, Hematology, Human, Male, Nurse, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, Prince-Paul M, Professional Standard, Toly V
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries
Designing pain research from the patient's perspective: What trial end points are important to patients with chronic pain?
Tags: 2001, Adult, Aged, Article, Asch DA, Backlog, Casarett D, Chronic Pain/dt [Drug Therapy], Clinical Article, Clinical Study, Controlled Study, Demography, Disease Severity, Dose Response, Empiricism, Evaluation, Female, Health Center, Hirschman K, Human, Interview, Journal Article, Karlawish J, Male, Medical Decision Making, Medical Information, Medical Research, Methodology, Opiate/do [Drug Dose], Opiate/dt [drug Therapy], Outcomes Research, Pain Assessment, Pain Clinic, Pain Medicine, Perception, Qualitative Analysis, Rating Scale, Sankar P, Sleep, Urban Area
Parental perceptions of forgoing artificial nutrition and hydration during end-of-life care
Tags: 2013, Article, Artificial Feeding, Child Care, Child Death, Clinical Practice, Concept Formation, Controlled Study, Decision Making, Female, Human, Hydration, Male, March 2018 List, Newman C, Parental Attitude, Pediatrics, Personal Experience, Priority Journal, Qualitative Research, Quality Of Life, Rapoport A, Religion, Rugg M, Satisfaction, Shaheed J, Steele R, Terminal Care
Neurological palliative care in children
Tags: 2017, Adolescent, Adult, Child, Chromosome Aberration, Controlled Study, Female, Führer M, Home Care, Hospice, Human, Icd-10, Infant, Journal Of The Neurological Sciences, Major Clinical Study, Male, March 2018 List, Metabolic Disorder, Mortality, Neoplasm, nervous system malformation, Neurology, Palliative Therapy, Preschool Child, Retrospective Study, Statistics
Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study
Tags: 2018, April 2018 List, Article, Child, Child Parent Relation, childhood, Controlled Study, Deatrick JA, Decision Making, Female, Feudtner C, Human, Human Experiment, Interview, Journal of Palliative Medicine, Male, Meghani SH, Mooney-Doyle K, Only Child, Palliative Therapy, Perception, Problem Solving, Sibling, Social Work, Ulrich CM
Moral distress, trauma and burnout in staff in relation to changes in picu outcomes, challenging cases and media involvement in disagreements about end-of-life care
Tags: 2018, Adult, Archives of Disease in Childhood, Awareness, Berger Z, Brierley J, Burnout, Child, Colville G, conference abstract, Controlled Study, court, Death, depersonalization, Disability, Emotional Stress, Human, June 2018 List, Life Sustaining Treatment, Morality, Nurse, PostTraumatic Stress Disorder, Questionnaire, Rutt M, Staff, Terminal Care, Titman P, Wellbeing
Advance care planning and outcome in pediatric palliative home care
Tags: 2018, Advance Care Planning, Article, Balzer S, Borkhardt A, Child, Controlled Study, Danneberg M, Death, Female, Gagnon G, Hoell JI, Home Care, Hospice, Human, Janßen G, June 2018 List, Kuhlen M, Life Sustaining Treatment, Major Clinical Study, Male, medical order, Oncotarget, Palliative Therapy, Resuscitation, Retrospective Study, Trocan L, Weber HL
Making Meaning After the Death of a Child
Nurses' knowledge, beliefs, practices, and barriers to pediatric palliative care
Wrapped with love-art therapy in paediatric palliative care
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project
Tags: 2018, August 2018 List, Chambers L, Child, conference abstract, Controlled Study, Female, gardening, housekeeping, Human, Human Experiment, Leadership, Major Clinical Study, Male, McNamara K, Palliative Medicine, Palliative Therapy, Qualitative Analysis, Quality Of Life, Questionnaire, Scott R, Semi Structured Interview, shopping, Sibling, Skill, Staff, Volunteer
Little lights: Hospital bereavement photography program
Tags: 2018, August 2018 List, Bereavement, Bishop C, Bryan D, burn, Child, Child Death, conference abstract, Controlled Study, E-mail, Emergency Ward, Female, Gestational Age, hospital personnel, Human, Infant, Journal of Palliative Medicine, Light, Major Clinical Study, mourning, Nurse Practitioner, Photography, respiratory therapist, Terminal Care, Vandergrift PS, Volunteer, Work engagement
Decision-making at the limit of viability: Differing perceptions and opinions between neonatal physicians and nurses
Tags: 2018, Adult, Article, assisted ventilation, Barbara D, Baumann-Hölzle R, Berger TM, Bmc Pediatrics, Brigitte S, Bucher HU, Controlled Study, enteric feeding, Fauchère JC, Female, Gudrun J, Hendriks MJ, hospital policy, Human, Infant Mortality, Jean-Claude F, Kai R, Klein SD, Legal Aspect, Liliane S, Magali C, Male, Mathias N, Matthias R, Medical Decision Making, Medical Practice, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, nurse attitude, October 2018 List, Patient Participation, Philipp M, Physician Attitude, Prematurity, Questionnaire, Religion, Renate I, Riccardo P, Roland N, Ruth D, September 2018 List, Streuli JC, Switzerland, Terminal Care, Ulrike S, work experience
Changing times-PICU and palliative care
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Paediatric palliative care: Are we doing enough? a retrospective review of deaths over 5 years in an academic tertiary hospital paediatric intensive care unit
Tags: 2018, Adolescent, Adult, Advanced Cancer, Analgesia, Artificial Ventilation, Cancer Patient, Cause Of Death, Child, conference abstract, Controlled Study, Demography, Drug Withdrawal, Female, Human, inotropism, Koh PL, Life Sustaining Treatment, Major Clinical Study, Male, Malignant Neoplasm, Medical History, Medical Record, Neurologic Disease, Ng MCG, November 2018 List, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, pediatric patient, Resuscitation, Retrospective Study, tertiary care center
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Talking to families when death becomes a likely outcome-a pilot simulation programme to improve end of life conversations during and around PICU admission
Tags: 2018, Advanced Cancer, Bone Marrow Transplantation, Cancer Staging, Cerebrovascular Accident, Child, conference abstract, Controlled Study, Conversation, craniofacial surgery, Death, Du Pre P, Experimental Therapy, Human, Immunology, Life Sustaining Treatment, Multidisciplinary team, November 2018 List, nursing role, Oncology, Palliative Therapy, Pediatric Critical Care Medicine, pulmonary hypertension, Sidgwick P, Simulation, Skellett S, Treatment Failure