Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

Title

Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

Creator

Rosenberg AR; Wolfe J

Publisher

The Lancet Child And Adolescent Health

Date

2017

Subject

Childhood Cancer; Bereavement; Cancer Prognosis; Child; Controlled Study; Ethnic Group; Human; Palliative Therapy; Personal Experience; Prevalence; Prognosis; Quality Of Life; Randomized Controlled Trial(topic); Sibling; Voice

Description

Paediatric palliative care (PPC) endeavours to alleviate the suffering and improve the quality of life of children with serious illnesses and their families. In the past two decades since WHO defined PPC and called for its inclusion in paediatric oncology care, rigorous investigation has provided important insights. For example, the first decade of research focused on end-of-life experiences of the child and the family, underscoring the high prevalence of symptom burden, the barriers to parent-provider concordance with regards to prognosis, as well as the need for bereavement supports. The second decade expanded PPC oncology investigation to include the entire cancer continuum and the voices of patients. Other studies identified the need for support of parents, siblings, and racial and ethnic minority groups. Promising interventions designed to improve outcomes were tested in randomised clinical trials. Future research will build on these findings and pose novel questions about how to continue to reduce the burdens of paediatric cancer.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

Oncology 2017 List

Collection

Citation

Rosenberg AR; Wolfe J, “Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions,” Pediatric Palliative Care Library, accessed July 30, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11146.

Social Bookmarking