Browse Items (221 total)

Tags: 2014, Adolescent, Adult, anxiety, Art Therapy, Backlog, Burnout, Chan F, Cheng C, Female, Health Personnel, Humans, Hy Ho A, International Journal of Palliative Nursing, Journal Article, Lu Wang Xiao, Male, Middle Aged, Potash J, Professional, Questionnaires, Self Efficacy, Terminal Care, Young Adult

Tags: 2011, Adolescent, Backlog, care goals, Ceneviva GD, Child, Decision Making, Felker P, Female, Goals, Hahnlen NC, Health Status, Humans, Infant, Journal Article, Journal of Palliative Medicine, Life-limiting Conditions, Male, Newborn, Palliative Care, Pediatrics, Preschool, Quality Of Life, Referral And Consultation, Shaffer ML, Tamburro R F, Therapeutic Processes, treatment decision making, Young Adult

Tags: 2018, Adolescent, Adult, Caregivers/psychology, Child, Child Preschool, Death, Decision Making, Decision-making, Disabled Children, Female, Golden SL, Gower WA, Grandparents/psychology, home care services, Humans, Infant, Journal of Pediatrics, King NMP, Life-sustaining treatments, Male, May 2019 List, Middle Aged, Nageswaran S, Outcomes, Parents/psychology, Pediatrics, Qualitative Research, Quality Of Life, Tracheostomy, Young Adult

Tags: 2013, Adolescent, Adult, Aged, Ambulatory, Attitude Of Health Personnel, Backlog, Brain Injuries, Child, Computers, Doolan D, Female, Handheld, Health Promotion, home care services, Humans, Infant, Journal Article, Journal Of Telemedicine And Telecare, Katalinic O, Male, Middle Aged, Monitoring, New South Wales, Palliative Care, Patient Satisfaction, Pediatrics, Pilot Projects, Preschool, Stroke, Telemedicine, Young A, Young Adult

Tags: 2014, Adolescent, Adult, Aged, Backlog, Female, Humans, International Journal Of Gynecological Cancer, Jackson AE, Jatoi A, Journal Article, Middle Aged, Neoplasm Metastasis, Neoplasms, Palliative Care, Retrospective Studies, Stephens EK, Treatment Outcome, Uterine Hemorrhage, Young Adult

Tags: 2016, Acute Disease, Adolescent, Humans, Journal of the Royal College of Physicians of Edinburgh, June 2018 List, Patient Transfer, Pritchard AW, Rees SA, Young Adult

Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult

Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult

Tags: 2012, Acta Paediatrica, Adams S, Adolescent, Anderson G, Backlog, Child, Disease Progression, Family Health, Female, Forbat L, Gibson F, Hain R, Humans, Interviews As Topic, Journal Article, Malcolm C, Male, Medical Records, Mucopolysaccharidoses/diagnosis/psychology/therapy, Mucopolysaccharidosis I/diagnosis/therapy, Mucopolysaccharidosis III/diagnosis/therapy, Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy, Preschool, Prospective Studies, Psychological, Stress, Young Adult

Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult

Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult

Tags: 2010, Abrahamowicz M, Adolescent, Adolescent Transitions, Age Factors, Aged, Backlog, Cardiac Surgical Procedures/methods/mortality, Cause Of Death, Child, Cohort Studies, Congenital/diagnosis/mortality/surgery, Female, Heart Defects, Humans, Infant, Ionescu-Ittu R, Journal Article, Journal of the American College of Cardiology, Khairy P, Mackie AS, Male, Marelli AJ, Middle Aged, Newborn, Pilote L, Preschool, Prognosis, Quebec, Retrospective Studies, Sex Factors, Survival Analysis, Young Adult

Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult

Tags: 2014, Adolescent, American Cancer Society, Backlog, Ca: A Cancer Journal For Clinicians, Centers for Disease Control and Prevention (U.S.), Child, DeSantis C, Female, Humans, Incidence, Infant, Jemal A, Journal Article, Kohler B, Male, National Cancer Institute (U.S.), Neoplasms, Newborn, Preschool, Registries, Risk Factors, Robbins A, SEER Program, Survival Analysis, United States, Ward E, Young Adult

Tags: [No authors listed], 2016, Adolescent, August 2017 List, Charities, Child, Child Preschool, England, Healthcare Financing, Hospice And Palliative Care Nursing, Humans, Infant, Infant Newborn, Nursing Children and Young People, Palliative Care, Respite Care, State Medicine, Young Adult

Tags: 2019, Adaptation, Adolescent, Anthropology, Beecham E, Bluebond-Langner M, Brain Neoplasms/*psychology, Cancer, Child, Children, Coping, Cultural, enduring, Experiences, Female, Hargrave D, Health, Humans, Illness and Disease, Infant, Langner R, lived experience, Male, meta-ethnogrpahy, Metasynthesis, Method: interpretive methods, Oncology 2019 List, Parents/*psychology, Preschool, Psychological, psychosocial aspects, Qualitative Health Research, Qualitative Research, qualitative. Geographic: Taiwan, Quality Of Life, Quality of Life/*psychology, Resilience, Resistance, Survivorship, Young Adult

Tags: 2014, Activities of Daily Living, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Craig JC, Cystic Fibrosis, Defense Mechanisms, Disability Evaluation, Fitzgerald D, Hanson CS, Health Services Needs And Demand, Hope, Humans, Internal-External Control, Jamieson N, Journal Article, Pediatrics, Power (psychology), Preschool, Prognosis, Psychological, Qualitative Research, Quality Of Life, Resilience, Self Care, Sick Role, Singh-Grewal D, Social Adjustment, Social Isolation, Social Support, Tong A, Young Adult

Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G

Tags: 2008, Adolescent, Adolescent Transitions, Adult, Aged, Attitude Of Health Personnel, Backlog, Cabana MD, Chronic Disease/psychology/therapy, Cross-sectional Studies, Davis MM, Demonner S, Family Practice/methods/trends, Female, Heisler M, Humans, Journal Article, Journal Of General Internal Medicine, Kerr EA, Male, Middle Aged, Okumura MJ, Pediatrics/methods/trends, Physician's Role/psychology, Young Adult

Tags: 2011, Adolescent, Adult, Antineoplastic Agents/therapeutic use, Backlog, Child, Complementary Therapies, Female, Humans, Infant, Insogna IG, Journal Article, Kang T, Male, Neoplasms/therapy, Newborn, Paisley MA, Pediatric Blood & Cancer, Preschool, Questionnaires, Religion, Rheingold SR, Salvage Therapy, Survival Rate, Treatment Failure, Treatment Outcome, Young Adult

Tags: 2009, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Attitude To Health, Backlog, Buchwald D, Chronic, Chronic Disease, Comorbidity, Depressive Disorder, Emotions, Fatigue, Fatigue Syndrome, Female, Fibromyalgia, General Hospital Psychiatry, Humans, Journal Article, Major, Male, Middle Aged, Pain, Post-traumatic, Problem Solving, Psychological, Questionnaires, Regression Analysis, Self Efficacy, Severity Of Illness Index, Smith WR, Strachan ED, Stress Disorders, Young Adult

Tags: 2018, Adult, Advance Care Planning, anxiety assessment, anxiety disorder, Battles H, conference abstract, Controlled Study, Conversation, Cooperation, De Arruda Colli MNF, Donovan KA, Fasciano K, Follow Up, Heath C, Human, Leonard S, Lyon M, Oncology 2018 List, Pao M, Pediatric Blood and Cancer, social media, Wiener L, Young Adult, Zadeh BS

Tags: 2010, Adolescent, Adolescent Transitions, Age Factors, Backlog, Britto MT, Cystic Fibrosis/therapy, Humans, Journal Article, Pediatrics, Referral And Consultation, Sawicki GS, Schwartz L, Tuchman LK, Young Adult

Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult

Tags: 0 (Methyl-CpG-Binding Protein 2), 2016, Adolescent, Adult, American Journal of Medical Genetics Part A, Anderson B, Boban S, characteristics, Child, Child Preschool, Downs J, Epilepsy/di [diagnosis], Epilepsy/ge [Genetics], Epstein A, Genetic Association Studies, Genotype, Humans, Infant, Infant Newborn, Leonard H, Methyl-CpG-Binding Protein 2/ge [Genetics], Middle Aged, Murphy N, Mutation, Phenotype, Rett syndrome, Rett Syndrome/di [Diagnosis], Rett Syndrome/ge [Genetics], Rett Syndrome/pp [Physiopathology], Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ge [Genetics], Trajectory, Wong K, Young Adult

Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J

Tags: 2013, Adolescent, Arland LC, Backlog, Brain Neoplasms, Child, Colorado, Female, Foreman NK, Health Personnel, Hendricks-Ferguson VL, home care services, Hospice Care, Hospital Mortality, Humans, Infant, Journal Article, Journal for Specialists in Pediatric Nursing, Length Of Stay, Madden JR, Male, Newborn, Palliative Care, Patient Admission, Pearson J, Pediatric Nursing, Preschool, Program Development, Program Evaluation, Retrospective Studies, Terminal Care, Young Adult

Tags: 2019, Adolescent, Adult, Baccalaureate, Carreno S P, Carrillo G M, Clinical Competence, Colombia, Diaz L C, Education, February 2020 List, Female, Gomez O J, Hospice and Palliative Care Nursing/ed [Education], Humans, International Journal of Palliative Nursing, Interviews As Topic, Male, Nursing, Students, Surveys And Questionnaires, Young Adult

Tags: 2016, 7 dehydrocholesterol/ec [Endogenous Compound], 8 dehydrocholesterol/ec [Endogenous Compound], adaptive behavior, Adolescent, Adult, Aggression, Albert P, Article, Autism, automutilation, Behavior, Bianconi S, Bukelis I, Case Study, cerebrospinal fluid level, characteristics, Child, Child Rearing, childhood, cholesterol/ec [Endogenous Compound], Clinical Article, Cognition, delayed development, development, Developmental delay, Farmer C, Female, Human, Intelligence Quotient, Interpersonal Communication, Joseph L, Journal of Neurodevelopmental Disorders, Lanham D, Male, Observational Study, Parent, Porter F D, Preschool Child, Priority Journal, problem behavior, Sarphare G, Smith Lemli Opitz syndrome, Smith-Lemli-Opitz syndrome, Socialization, Stanford-Binet Intelligence Scale, Sterols, Swedo S, Thurm A, Tierney E, tone and motor problems, Trajectory, Unclassified Drug, Walking, Wassif C A, Wheeler C, Young Adult

Tags: 2011, Adaptation Psychological, Adult, Aged, Cadell S, Caregivers/ Psychology, Child, Chronic Disease, Cost Of Illness, Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses, Fathers/ Psychology, Female, Hemsworth D, Humans, Journal of Pediatric Nursing, Male, Middle Aged, Mothers/ Psychology, Palliative Care/ Psychology, Parent-child Relations, Schneider M, Sex Factors, Steele R, Stress Psychological/psychology, Young Adult

Tags: 2018, Armoiry X, Atherton H, Caregivers, Child Health, Children, Court R, digital clinical communication, Family, Griffiths F, January 2018 List, Journal Of Medical Internet Research, Phelps EE, Professional-family Relations, Sturt J, Sutcliffe P, Taggart F, Walker CL, Young Adult

Tags: 2008, Acute Disease, Adolescent, Adult, Altitude Sickness/diagnosis/etiology/physiopathology, Backlog, Brain/complications/physiopathology, Cerebral Ventricles/physiopathology, Expeditions, Experimental, Headache/etiology, Humans, Hypoxia, Implants, India, Intracranial Hypertension/diagnosis/etiology, Intracranial Pressure, Journal Article, Male, Middle Aged, Milledge J, Neurosurgery, Physical Exertion, Severity Of Illness Index, Telemetry/instrumentation, Tomography, Wilson MH, X-Ray Computed, Young Adult

Tags: 2021, Adolescent, Aftercare, BMC Health Services Research, Bratt EL, Chronic Disease, Continuity of patient care: patient transfer, Delivery of Health Care, February 2022 List, Goossens E, Health Personnel, Johansson B, Lost to follow-up, Moons P, Skogby S, Young Adult

Tags: 2013, abnormal involuntary movements, accelerometry, Adolescent, Adult, Age Factors, ataxia telangiectasia, Ataxia Telangiectasia/pp [Physiopathology], Biomechanical Phenomena, characteristics, Child, Child Preschool, Crawford T O, Cross-sectional Studies, Female, Humans, kinetic tremor, Lederman H M, Male, Mandir A S, Motor Activity, Motor Activity/ph [Physiology], Movement, Movement Disorders/pp [Physiopathology], Movement/ph [Physiology], Periodicity, PLoS One, postural tremor, Posture/ph [Physiology], resting tremor, Severity Of Illness Index, Shaikh A G, tone and motor problems, Trajectory, Tremor/pp [Physiopathology], Upper Extremity, Upper Extremity/pp [Physiopathology], Young Adult, Zee D S

Tags: 2017, Adolescent, Adult, Attitude To Death, California, Cancer, Chamberlain LJ, Death, Female, Hospices/sn [statistics & Numerical Data], Hospital Mortality, Hospital Mortality/td [Trends], Humans, Johnston EE, Male, Neoplasms, Nursing Homes/sn [Statistics & Numerical Data], Oncology 2018 List, Patient Preference/sn [Statistics & Numerical Data], Rajeshuni N, Residence Characteristics/sn [Statistics & Numerical Data], Retrospective Studies, Sanders LM, Saynina O, Young Adult

Tags: 2010, Adolescent, Adult, bilateral pallidal stimulation, Brain, Brain Diseases/physiopathology/therapy, Brain/physiopathology, Child, Child Preschool, Deep Brain Stimulation/adverse effects/methods, Dystonia, Dystonia/physiopathology/therapy, Female, Functional Laterality, Gill S S, Globus Pallidus/physiopathology, Haenggeli C A, Hayflick S J, Hogarth P, Humans, IND, Infant, Iron/metabolism, Jech R, Kurlemann G, Leenders K L, Limousin P, Malanga C J, Male, Moro E, Neurodegenerative Diseases/physiopathology/therapy, Ostrem J L, Pauls K A, Peker S, Retrospective Studies, Revilla F J, Santens P, Schnitzler A, Sharma N, surgical intervention, Timmermann L, Tisch S, tone and motor problems, Treatment Outcome, Valldeoriola F, Vesper J, Volkmann J, Wieland K, Woitalla D, Young Adult

Tags: 2009, 80 And Over, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Backlog, Bmc Musculoskeletal Disorders, Cross-sectional Studies, Emotions, Female, Finset A, Garratt A, Hagen KB, Humans, Journal Article, Male, Middle Aged, Mowinckel P, Pain Measurement, Psychological, Rheumatic Diseases, Stanton AL, Stress, Young Adult, Zangi HA

Tags: 2019, Adolescent, Adult, Article, Bakitas M, Cancer, Cancer Patient, Cancer Therapy, Controlled Study, Currie E R, Female, Friedman S, Gilbertson-White S, Hospice, Hospital Patient, Human, Insurance, Lindley L C, lowest income group, Mack J W, Male, Medical Record, Multicenter Study, Oncology 2019 List, Palliative Therapy, Patient Referral, Poverty, Retrospective Study, Roeland E J, Saeidzadeh S, Statistical Significance, Terminal Care, Young Adult

Tags: 2016, Adolescent, California, Cardiovascular Diseases/mo [Mortality], Child, Congenital Abnormalities/mo [Mortality], Delivery of Health Care, Emergency Service, Female, Health Services Accessibility, Hispanic Americans, Hispanic Health Care International, Hospice Care/ut [Utilization], Hospices/ut [Utilization], Hospital/ut [Utilization], Hospitalization, Humans, Infant, Lindley LC, Male, Medicaid, Neoplasms/mo [mortality], October 2018 List, Palliative Care/ut [Utilization], Policy, Preschool, September 2018 List, Terminal Care/mt [methods], Trujillo LV, United States, Young Adult

Tags: 2019, Adolescent, Adult, Article, Cohn R J, Controlled Study, Conversation, face cancer, Fardell J E, Human, Journal of adolescent and young adult oncology., Narrative, Oncology 2019 List, Pain, Palliative Therapy, Patterson P, Rosenberg A R, Sansom-Daly U M, Terminal Care, Wakefield C E, Wiener L, Young Adult