Cystic fibrosis and transition to adult medical care

Title

Cystic fibrosis and transition to adult medical care

Creator

Tuchman LK; Schwartz L; Sawicki GS; Britto MT

Publisher

Pediatrics

Date

2010

Subject

Humans; Young Adult; Pediatrics; Age Factors; adolescent; referral and consultation; Adolescent Transitions; Cystic Fibrosis/therapy

Description

Transition of young adults with cystic fibrosis (CF) from pediatric to adult medical care is an important priority, because many patients are living well into their fourth decade, and by 2010 more than half of all people living with CF will be older than 18 years. Transition to adulthood, a developmental process of skill-building in self-management supported by the health system, is important for the successful transfer to adult CF care. The US Cystic Fibrosis Foundation has been proactive in preparing for increasing numbers of young adults in need of specialized adult-oriented care by creating specialized clinical fellowships for physician providers and mandating establishment of adult CF programs. Despite these initiatives, how to best facilitate transition and to define and measure successful outcomes after transfer to adult care remains unclear. Many adults with CF continue to receive care in the pediatric setting, whereas others transfer before being developmentally prepared. In this state-of-the-art review we provide context for the scope of the challenges associated with designing and evaluating health care transition for adolescents and young adults with CF and implications for all youth with special health care needs.
2010

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

566-573

Issue

3

Volume

125

Citation

Tuchman LK; Schwartz L; Sawicki GS; Britto MT, “Cystic fibrosis and transition to adult medical care,” Pediatric Palliative Care Library, accessed August 5, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13960.

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