Browse Items (161 total)
- Tags: Social Support
Parents' Experiences About Support Following Stillbirth and Neonatal Death
Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Advances in Neonatal Care, Camacho ÁM, Fernández MIM, Fernández-Sola C, Granero-Molina J, Hernández SE, Hernández-Padilla JM, Jiménez-López FR, Neonatal Death, Parent Experiences, Parental Grief, professional support, Social Support, Stillbirth
Parent-led strategies supporting personal well-being when caring for a child with a life-limiting condition: A scoping review
Utilization of Parallel Resources and Sociodemographic Factors in Treating Children with Complex Chronic Diseases: A Cross-Sectional Study
Tags: 2021, Alternative Therapies, Canca-Sánchez JC, Child Health Services, Children, complex chronic care, Gómez-González AJ, González-Cano-Caballero M, Gutiérrez-Rodríguez L, January 2022 List, Lupiáñez-Pérez I, Morales-Asencio JM, Multiple Chronic Conditions, Pediatric, Peláez-Cantero MJ, Pérez-Ardanaz B, Psychosocial Support Systems, Public Health, Social Support, Socioeconomic Factors
Mothers' Support Preferences With Their Chronically Ill Child's Health Care Team
Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth
Tags: 2020, Attitude To Health, Bhamidipalli SS, Decision Making, Fadel W, fetal viability, Financial Stress, Hoffman SM, Jeffries E, Kavanaugh K, Laitano T, October 2021 List, Paediatric and Perinatal Epidemiology, Parents, periviable delivery, Pilot Projects, Pregnancy, premature birth, Qualitative Research, Quality Of Life, Religion, Resuscitation Orders, Second Trimester Pregnancy, shared decision making, Social Support, Tucker EB, values clarification
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
"The one thing you can never take away"
Development and delivery of a one-stop multidisciplinary clinic to provide comprehensive palliative and supportive care for children with cancer
Tags: 2018, Ambulatory Care, Anis H, antibiotic agent, Arora R, Bagai P, Cancer Patient, Caregiver, Child, Chuki T, conference abstract, Crack L, dietitian, doctor nurse relation, Drug Therapy, Education, Female, financial management, Holistic Care, Hospital Patient, Human, Major Clinical Study, Male, Malignant Neoplasm, Multidisciplinary team, nutritional counseling, Oncology 2018 List, Outpatient, Pain, Palliative Therapy, patient coding, Pediatric Blood and Cancer, physiotherapist, Physiotherapy, Psychologist, Social Support, Taluja A, Terminal Care, wound
A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions
"His ears are so soft!" Animal-assisted interventions in oncology settings: Implications for oncology social work practice
Tags: 2016, 50-56-6 (oxytocin), 51-61-6 (dopamine), 54577-94-5 (oxytocin), 60118-07-2 (endorphin), 62-31-7 (dopamine), Adult, Animal Experiment, Animal Model, anxiety, Bach C, Blood Pressure, Cancer Patient, Cancer Therapy, Cerebrovascular Accident, Clinical Practice, Distress Syndrome, Dog, Dopamine, Ear, Endogenous Compound, Endorphin, Family Study, Female, Gene Expression, Happiness, Heart Rate, Hospice, Hospital Patient, Human, Human Versus Animal Comparison, Infusion, Journal Of Psychosocial Oncology, Male, Narrative, Nonhuman, Oncology, Oncology 2017 List, Oxytocin, Pain, Palliative Therapy, Pet Therapy, Program Development, Recreation, Skill, Social Support, Social Work Practice, Storytelling, Symptom, Total Quality Management, Trust, Volunteer, Waiting Room
Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
Tags: 2009, Adaptation, Affect, Aged, Ahles TA, Backlog, Bakitas M, Balan S, Brokaw FC, Byock IR, Emergency Service, Female, Health Services/utilization, Hegel MT, Hospital/utilization, Hospitalization/statistics & numerical data, Hull JG, Humans, Intensive Care Units/utilization, Intervention, Interventions, JAMA, Journal Article, Kaplan-Meiers Estimate, Length Of Stay, Li Z, Lyons KD, Male, Middle Aged, Neoplasms/mortality/nursing/psychology/therapy, Outcomes, Palliative Care/methods, Patient Care Team, Patient Education as Topic, Patient Participation, Psychological, Quality Of Life, Seville J, Sickness Impact Profile, Social Support, Terminally Ill/psychology, Tosteson TD, Treatment Outcome
Factors associated with congruence between preferred and actual place of death
Caring for kids: How to develop a home-based support program for children and adolescents with life-threatening conditions
Defining Legacy: The Perceptions of Pediatric Health Care Providers
Tags: 2020, Adaptation Psychological, Attitude To Death, Boles J, Child, Child Hospitalized/psychology, Clinical Pediatrics, Cook J, Dunbar J, February 2021 List, Female, Health Care, Humans, Jones M, legacy, Male, Parents/psychology, Pediatrics, Pediatrics/standards, perceptions, Physician's Role, Providers, Social Support, Terminal Care/psychology, Terminally Ill/psychology
The death of a twin
Parental assessment of pain coping in individuals with intellectual and developmental disabilities
Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M
The most painful estrangement: Death at birth
Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
Factors contributing to post-traumatic growth: a proposed structural equation model
Tags: 2003, Acquired Immunodeficiency Syndrome, Adaptation, Adult, Aged, Backlog, Bereavement, Bisexuality, Cadell S, Female, Hemsworth D, HIV Seropositivity, Homosexuality, Humans, Journal Article, Life Change Events, Male, Middle Aged, Orthopsychiatry/methods, Post-Traumatic/psychology, Psychological, Regehr C, Social Support, Stress Disorders, The American Journal Of Orthopsychiatry
Parents' Experiences About Support Following Stillbirth and Neonatal Death
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
What we know (and do not know) about raising children with complex continuing care needs
Tags: 2008, Backlog, Carnevale FA, Child Care, Cost Of Illness, Disabled Children, Health Services Needs And Demand, Healthcare Disparities, Home Nursing, Humans, Journal Article, Journal Of Child Health Care, Kirk S, Life Support Care, Long-Term Care, McKeever P, Parents, Patient Care Team, Pediatric Nursing, Rehm RS, Social Support, Special
Creation of a neonatal end-of-life palliative care protocol
Tags: 2002, Backlog, Carter B, Catlin A, Clinical Protocols, Counseling, Culture, Delphi Technique, Empathy, Euthanasia, Family/ethnology/psychology, Humans, Infant, Internet, Journal Article, Journal Of Perinatology, Neonatology/standards, Newborn, Non-U.S. Gov't, Palliative Care/standards, Passive/psychology, Professional-family Relations, Questionnaires, Research Support, Social Support, Terminal Care/standards, Tissue and Organ Procurement, United States, Ventilator Weaning
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Mothers' recollections of the Paediatric Intensive Care Unit: associations with psychopathology and views on follow up
Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic
Achieving Child-Centred Care for Children and Young People with Life-Limiting and Life-Threatening Conditions-A Qualitative Interview Study
Tags: Adolescent, Child, Child Care, End of Life Care, Paediatrics, Palliative Care, Qualitative Research, 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Children, Coombes L, Downing J, Ellis-Smith C, European Journal of Pediatrics, Family/psychology, Farsides B, Fraser LK, Harding R, Harðardóttir D, Humans, Murtagh FEM, Normality, November 2022 List, Parents/psychology, Roach A, Scott H, Social Support, Symptom Assessment
A New Approach to Explain the Link between Social Support and Depression in a 2-years Arthritis Rheumatoid Sample. Is there any Moderation Effect of Acceptance?
The agony of the child with complexity: Exploring the psychological impact on parents caring for children with complex healthcare needs
Tags: 2019, Archives of Disease in Childhood, Bradbury M, Caregiver, Child, conference abstract, Crothers E, Depression, disease exacerbation, Female, health care need, Human, Ireland, Lewis S, Male, medical leave, Medline, Mental Stress, meta analysis, Murphy A M, North America, O'Gorman C, October 2019 List, Parental Stress, Prevention, Psychological Well-being, publication, Qualitative Research, Sample Size, Social Isolation, Social Support, Systematic Review
Because statistics don't tell the whole story: a call for comprehensive care for children with cancer
Tags: 2014, Adaptation, Backlog, Ca: A Cancer Journal For Clinicians, Cullen J, Data Interpretation, Decision Making, Delivery of Health Care, Grief, Humans, Integrated, Journal Article, Neoplasms, Palliative Care, Pediatrics, Professional-family Relations, Psychological, Quality Of Life, Social Support, statistical
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
New understandings of parental grief: literature review
Bereavement support for families following the death of a child from cancer: experience of bereaved parents
Tags: 2006, Aoun S, Backlog, Bereavement, Child, Dadd G, Death, deCinque N, Hospital, Humans, Intensive Care Units, Journal Article, Journal Of Psychosocial Oncology, Macpherson R, Monterosso L, Neoplasms, Parents, Parents/psychology, Pediatric, Personnel, Professional-family Relations, sibling bereavement, Siblings, Siblings/psychology, Sidhu R, Social Support, SSHRC CURA
The art of healing and knowing in cancer and palliative care
Tags: 2006, Adaptation, Adult, Anger, Art Therapy/methods, Attitude To Death, Attitude To Health, Backlog, Child, Child Psychology, Color, Communication, Devlin B, Grief, Humans, International Journal of Palliative Nursing, Journal Article, Knowledge, Morale, Nurse-patient Relations, Nurse's Role/psychology, Oncologic Nursing, Palliative Care/methods/psychology, PedPal Lit, Psychological, Self Concept, Social Isolation, Social Support, Symbolism, Unconscious (Psychology)
Palliative Care In The Nicu And Why Education Matters
Tags: 2017, Discenza D, Emotional Intelligence, Humans, Infant Newborn, Intensive Care Units Neonatal/og [organization & Administration], Neonatal Network - Journal of Neonatal Nursing, Palliative Care, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents, Parents/ed [education], Parents/px [psychology], September 2017 List, Social Support
Functional ability, social support, and depression in rheumatoid arthritis
Tags: 2004, Activities of Daily Living, Adult, Aged, Arthritis, Backlog, Depressive Disorder, Doeglas DM, Humans, Journal Article, Krol B, Longitudinal Studies, Middle Aged, Netherlands, Quality Of Life, Quality of Life Research, Regression Analysis, Rheumatoid, Sanderman R, Sickness Impact Profile, Social Support, Social Support and Chronic Pain, Suurmeijer Th PBM, van den Heuvel WJA, van Leeuwen MA, van Rijswijk MH
Coping with chronic pain
Tags: 2005, Adaptation, Adult, Aged, Attitude To Health, Backlog, Chronic Disease, Depression, Dysvik Elin, Eikeland Ole-Johan, Emotions, Female, Humans, International Journal Of Nursing Studies, Journal Article, Lindstrøm TC, Male, Middle Aged, Models, Multivariate Analysis, Natvig GK, Norway, Nurse's Role, Nursing Methodology Research, Pain, Predictive Value of Tests, Problem Solving, Psychiatric Status Rating Scales, Psychological, Questionnaires, Regression Analysis, Self Concept, Social Support, Stress
The sense of coherence in early pregnancy and crisis support and posttraumatic stress after pregnancy loss: a prospective study
Tags: 2003, Abortion, Adult, Backlog, Behavioral Medicine (washington, D.C.), Crisis Intervention, Engelhard IM, Female, First/psychology, Humans, Journal Article, Post-Traumatic/epidemiology/psychology/therapy, Pregnancy, Pregnancy Trimester, Prospective Studies, Social Support, Spontaneous/psychology, Stress Disorders, van den Hout MA, Vlaeyen JW