Browse Items (247 total)
- Tags: Infant, Newborn
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE
Place of death and palliative care following discharge from paediatric intensive care units
Tags: 2011, Adolescent, Archives of Disease in Childhood, Backlog, Child, Child Mortality, Cohort Studies, Draper ES, Female, Fraser LK, Great Britain/epidemiology, Home Care Services/statistics & Numerical Data, Hospice Care/statistics & Numerical Data, Hospitalization/statistics & numerical data, Humans, Infant, Intensive Care Units, Journal Article, Location Of Death, Male, McKinney PA, Miller M, Newborn, Paediatric Intensive Care Audit Network, Palliative Care/statistics & Numerical Data, Parslow RC, Patient Discharge/statistics & Numerical Data, Pediatric/statistics & Numerical Data, Preschool, Referral And Consultation/statistics & Numerical Data
Rising national prevalence of life-limiting conditions in children in England.
Tags: 2012, Adolescent, Adult, Aldridge J, Backlog, Child, Critical Illness/epidemiology, England/epidemiology, Female, Fraser LK, Hain R, Humans, Infant, Journal Article, Male, McKinney PA, Miller M, Newborn, Norman P, Palliative Care, Parslow RC, Pediatrics, Preschool, Prevalence, Retrospective Studies, Terminally Ill/statistics & numerical data, Young Adult
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium
Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T
Status quo of palliative care in pediatric oncology-a nationwide survey in Germany
Tags: 2005, Adolescent, Backlog, Brun S, Child, Data Collection, Female, Friedrichsdorf SJ, Germany/epidemiology, Home Care Services/statistics & numerical data/trends, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Location Of Death, Male, Medical Oncology/methods/trends, Menke A, Neoplasms/mortality/therapy, Newborn, Non-U.S. Gov't, Palliative Care/methods/statistics & numerical data/trends, Pediatrics/methods/trends, Physician's Practice Patterns/statistics & numerical data, Preschool, Research Support, Treatment Outcome, Wamsler C, Zernikow B
Center, Gestational Age, and Race Impact End-of-Life Care Practices at Regional Neonatal Intensive Care Units
Tags: 2019, Article, Asselin J, Bartman T, Black person, Brozanski B, Cause Of Death, Central Nervous System, Child, Coghill C H, Cohort Analysis, Controlled Study, Datta A, DiGeronimo R, do not resuscitate order, Drug Withdrawal, Durand D, Dykes F, Evans J, February 2020 List, Female, Fry J T, Gestational Age, Grover T, Human, Infant, injury, Journal of Pediatrics, Leuthner S R, Life Sustaining Treatment, Major Clinical Study, Male, Matoba N, Murthy K, Natarajan G, Neonatal Intensive Care Unit, Newborn, Newborn Death, Niehaus J Z, Padula M, Pallotto E, Piazza A, Reber K, Retrospective Study, Schlegel A B, Shah A, Short B, Sullivan K M, Terminal Care, Zaniletti I
Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Long-term follow-up of neonatal mitochondrial cytopathies: a study of 57 patients
Tags: 2005, Backlog, Child, De Lonlay P, Disease Progression, Diseases/blood/diagnosis/mortality, Female, Follow-up Studies, Garcia-Cazorla A, Humans, Infant, Journal Article, Lactic Acid/blood, Longitudinal Studies, Male, Mitochondrial Myopathies/blood/complications/diagnosis/mortality, Nassogne MC, Newborn, Pediatrics, Preschool, Prognosis, Rustin P, Saudubray JM, Touati G
Circumstances surrounding end of life in a pediatric intensive care unit
Tags: 2003, Adolescent, Adult, Analgesia, Attitude To Death, Backlog, Cause Of Death, Child, Cox PN, Decision Making, Female, Garros D, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Ontario, Parent-child Relations, Parents/psychology, Patient Care Team, Pediatric, Pediatrics, Physicians/psychology, Preschool, Resuscitation Orders, Rosychuk RJ, Terminal Care/psychology, Treatment Failure, Withholding Treatment
Menkes' kinky hair syndrome
Tags: 2005, Backlog, Cerebral Angiography, Ceruloplasmin/analysis, Copper/blood, George S, Histidine/administration & dosage/analogs & derivatives/therapeutic use, Humans, Indian Journal Of Pediatrics, Infant, Injections, Journal Article, Low Birth Weight, Male, Matthai SA, Menkes Kinky Hair Syndrome/blood/diagnosis/drug therapy/radiography, Newborn, Organometallic Compounds/administration & dosage/therapeutic use, Prognosis, Sosamma MM, Subcutaneous, Sukumaran TU
Palliative care in the neonatal intensive care unit: An Indian experience
Tracking neonatal nosocomial infection: the continuous quality improvement cycle
Tags: 2011, Aydon L, Backlog, Biggs S, Cross Infection/epidemiology/prevention & control, Gill AW, Humans, Incidence, Infant, Infant Care/methods/organization & administration/standards, Infection Control/methods/organization & administration/standards, Jones C, Journal Article, Keil AD, Newborn, Quality Improvement/organization & administration/standards, The Journal Of Hospital Infection
Measuring parental grief after childhood cancer: potential use of the SCL-90R
Tags: 1997, Adolescent, Adult, Backlog, Bereavement, Child, Death studies, Evaluation Studies, Female, Gilliss CL, Humans, Infant, Journal Article, Longitudinal Studies, Male, Martinson IM, Middle Aged, Moore IM, Neoplasms, Newborn, Parent caregivers, Parents/psychology, Preschool, Psychological Tests, Questionnaires
Infantile systemic hyalinosis: newly recognized disorder of collagen?
Tags: 1991, Atherton DJ, Backlog, Collagen Diseases/metabolism/pathology/physiopathology, Female, Gingiva/pathology, Glover MT, Humans, Hyalin/metabolism, Hypertrophy, Infant, Jejunum/pathology, Joints/physiopathology, Journal Article, Lake BD, Movement, Newborn, Pain/etiology, Pediatrics, Prognosis, Skin/pathology/ultrastructure
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Pain management in children
Tags: 1991, Anti-Inflammatory Agents, Backlog, British Medical Bulletin, Child, Goldman A, Humans, Infant, Journal Article, Lloyd-Thomas AR, Narcotics/therapeutic use, Neoplasms/complications, Newborn, Non-Steroidal/therapeutic use, Pain, Pain Measurement/methods, Pain/drug therapy/etiology, Postoperative/drug therapy, Preschool
Pediatric acute pain management
Tags: 2000, Acute Disease, Analgesics, Anesthetics, Backlog, Child, Chronic Disease, Galloway KS, Golianu B, Human, Infant, Infusions, Intravenous, Journal Article, Krane EJ, Local/therapeutic use, Nebulizers and Vaporizers, Nerve Block/methods, Newborn, Non-Narcotic/administration & dosage/therapeutic use, Opioid/administration & dosage/blood/therapeutic use, Pain/drug therapy/physiopathology, Pediatric Clinics of North America, Preschool, Time Factors, Yaster M
Cultural Influences in Pediatric Cancer from Diagnosis to Cure/End of Life
Tags: 2014, Adaptation, Adolescent, Adult, Caregivers/px [psychology], Child, Cultural Characteristics, Gray WN, Humans, Infant, Journal Of Pediatric Oncology Nursing, Middle Aged, Neoplasms/px [psychology], Newborn, Oncology 2017 List, Pai AL, Patients/px [psychology], Preschool, Psychological, Regan SMP, Survivors/px [psychology], Szulczewski LJ, Williams JA
Indicators of family resilience after the death of a child
Tags: 2011, Adaptation, Adult, Anecdotes as Topic, Attitude To Death, Backlog, Belgium, Child, Female, Greeff AP, Grief, Herbiest T, Humans, Infant, Journal Article, Male, Middle Aged, Newborn, Object Attachment, Omega, Parent-child Relations, Parents, Preschool, Psychological, Resilience, Self Concept, Self-Help Groups, sibling bereavement, Social Adjustment, Social Support, Survivors, Vansteenwegen A
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Tags: 2015, Abortion, Adult, Aged, Alvarez-del-Rio A, Attitude Of Health Personnel, Attitude To Death, Decision Making, Euthanasia, Female, Fetal Diseases, Grether P, Humans, Induced/psychology, Infant, Lisker R, Loria A, Male, Mexico, Middle Aged, Newborn, Nurses/psychology, Palliative Care/psychology, Passive/psychology, Perinatal Care, Perinatal Death, Physicians/psychology, Pregnancy, Religion, Salud Publica De Mexico, Social Workers/psychology, Terminal Care/psychology, Young Adult
The role of the courts in disagreements over the care of seriously ill babies
Neonatal serious illness: operational definition
Tags: 2023, Article, BMJ Supportive & Palliative Care, Cause Of Death, Cohort Analysis, Controlled Study, Conversation, Female, Guttmann K, Hospital care, Human, Infant, Infant Newborn, Major Clinical Study, Male, Newborn, October List 2041, Palliative Therapy, Pediatrics, Prognosis, rank sum test, Retrospective Study, Silverman R, Terminal Care, Weintraub AS
Disease severity in children and adults with Pompe disease related to age and disease duration
Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP
Studies on nutrition in severely neurologically disabled children in an institution
Tags: 1996, Acta Paediatrica, Adolescent, Asphyxia Neonatorum/complications, Backlog, Brain Damage, Child, Chronic/complications, Ek J, Energy Intake, Epilepsy/complications, Female, Ferritin/blood, Growth Disorders/etiology, Hals J, Hemoglobins/analysis, Humans, Infant, Institutionalized, Journal Article, Male, Mental Retardation/complications, Nervous System Diseases/complications, Newborn, Nilsen H, Nutrition Disorders/complications, Nutritional Status, Preschool, Selenium/blood, Svalastog AG, Vitamin D/blood, Vitamin E/blood
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Tags: 2022, Analysis, and, Article, Beltran SJ, CARE, Experience, Family, Female, for, guideline, Hamel M N, Human, Infant, intensive, Items, Male, meta, Meta-analyses, Neonatal, Newborn, October 2022 List, Palliative, Parent, Perception, Practice, Preferred, Psychological, Quality, Reporting, Review, Reviews, Satisfaction, systematic, The American Journal of Hospice & Palliative Care, Therapy, Unit, Units
Pediatric advance care planning.
Tags: 2005, 7 died at home and 2 died at a hospital. Eight of the children's advance directives were followed during the dying process, 9 are deceased, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Backlog, Child, DNAR, DNAR Outcomes, Female, Hammes BJ, Humans, including preserving their child's quality of life and avoiding unnecessary suffering., individuals in the community raised concerns about the child's advance directive. CONCLUSIONS: Even though the topic of their child's death is difficult, Infant, Interviews As Topic, Journal Article, Journal of Palliative Medicine, Kempf M, Klevan J, Male, Newborn, Parents/psychology, Parents/px [psychology], Pediatrics, PedPal Lit, Preschool, the majority of the interviewed parents found the advance care planning process for the child helpful because it assured the best care for the child, while 1 was not. Th irteen parents were interviewed. Twelve stated that the process of advance care planning benefited their children and their family. Rarely, Williams MS, Wisconsin
Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
Tags: 2003, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Data Collection, Decision Making, Ethics, Euthanasia, Female, Hardart GE, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care, Journal Article, Legal Guardians, Male, Medical, Mental Competency, Middle Aged, Morals, Newborn, Passive, Professional-family Relations, Religion and Medicine, Teaching, Truog RD, United States
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
Survey on Neonatal End-of-Life Comfort Care Guidelines Across America
Tags: 2018, anxiety, April 2018 List, Article, bodily secretions, Canada, Carter B, Comfort, Compassion Fatigue, Farooqi S, Gastrointestinal Symptom, geographic distribution, Haug S, Hopper A, Human, Infant, Institutional Review, Intensive Care, Journal of Pain and Symptom Management, neonatal nurse practitioner, Neonatologist, Newborn, Oei G, Pain, Palliative Care, Palliative Therapy, Pediatrics, Perinatal Care, Practice Guideline, Satisfaction, Terminal Care, Wilson CG
Characteristics and Outcomes of Critical Illness in Children With Feeding and Respiratory Technology Dependence
Tags: 2019, Adolescent, Artificial/adverse effects/*statistics & numerical data, Berg R A, Biomedical Technology, Carcillo J, Case-Control Studies, Child, Critical Care/*methods, Critical Illness/therapy, Dalton H, Dean J M, Health Care/*statistics & numerical data, Heneghan J A, Humans, Infant, Intensive Care Units, July 2020 List, Meert K L, Newborn, Newth C J L, outcome assessment, Parenteral Nutrition, Pediatric Critical Care Medicine, Pediatric/statistics & Numerical Data, Pollack M M, Preschool, Prospective Studies, Reeder R W, Respiration, Severity Of Illness Index, Tamburro R, Total/adverse effects/*statistics & numerical data
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Children and young people who die from cancer: epidemiology and place of death in England (1995-9)
Tags: 2003, Adolescent, Adult, Backlog, Bmj (clinical Research Ed.), Child, England/epidemiology, Female, Higginson IJ, Humans, Infant, Journal Article, Location Of Death, Male, Multivariate Analysis, Neoplasms/mortality, Newborn, Non-U.S. Gov't, Preschool, Research Support, Residence Characteristics, Survival Analysis, Thompson M
Problems And Hopes Perceived By Mothers, Fathers And Physicians Of Children Receiving Palliative Care
Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult
Palliative care for infants, children, adolescents, and their families
Tags: 2006, Adolescent, Backlog, Child, Decision Making, Ethics, Health Services Accessibility, Himelstein BP, Humans, Infant, Journal Article, Journal of Palliative Medicine, Medical, Newborn, Palliative Care, Parent caregivers, Pediatrics, Preschool, Professional-family Relations, Professional-patient Relations
Natural history of nonketotic hyperglycinemia in 65 patients
Tags: 2004, Adolescent, Age of Onset, AIM, Anticonvulsants/tu [Therapeutic Use], Apnea/et [Etiology], Apnea/th [Therapy], Applegarth D, Artificial, Backlog, Child, Corpus Callosum/ab [Abnormalities], Disease Progression, Female, Glycine/bl [Blood], Glycine/cf [Cerebrospinal Fluid], Hamosh A, Health Surveys, Hoover-Fong JE, Humans, Hydrocephalus/ep [Epidemiology], Hydrocephalus/et [Etiology], Hyperglycinemia, IM, Infant, Journal Article, Juvenile/dt [Drug Therapy], Juvenile/ep [Epidemiology], Juvenile/et [Etiology], Male, Myoclonic Epilepsy, Neurology, Newborn, Nonketotic/co [Complications], Nonketotic/ep [Epidemiology], Nonketotic/me [Metabolism], Nonketotic/mo [Mortality], Nystagmus, Pathologic/ep [Epidemiology], Pathologic/et [Etiology], Pregnancy, Pregnancy Complications/ep [Epidemiology], Preschool, Psychomotor Disorders/ep [Epidemiology], Psychomotor Disorders/et [Etiology], Questionnaires, Registries, Respiration, Retrospective Studies, Seizures/dt [Drug Therapy], Seizures/ep [Epidemiology], Seizures/et [Etiology], Sex Factors, Shah S, Survival Analysis, Toone J, Van Hove JL
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment