Browse Items (161 total)
- Tags: Social Support
Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach
Tags: 2015, Adolescent, Agar M, April 2019 List, Australia, Brown N, Child, Collegian: Journal of the Royal College of Nursing, Collegian: Journal of the Royal College of Nursing, Australia, Davidson PM, Green A, Humans, Information Storage and Retrieval, Luckett T, Palliative Care/og [Organization & Administration], Phillips J, Respite Care, Siblings, Social Support, Virdun C
Emotion work in the palliative nursing care of children and young people
Tags: 2006, Adaptation, Adolescent, Adolescent Psychology, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Burnout, Child, Child Psychology, Emotions, Empathy, Family/psychology, Health Services Needs And Demand, Holistic Health, Humans, International Journal of Palliative Nursing, Job Satisfaction, Journal Article, Maunder EZ, Nurse-patient Relations, Nurse's Role/psychology, Organizational Culture, Palliative Care/organization & administration/psychology, PedPal Lit, Professional/prevention & control/psychology, Psychological, Quality Of Life, Self Concept, Social Support, Work/psychology
End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines
Tags: 2001, Adolescent, Backlog, Cancer Nursing, Death and Euthanasia, Decision Making, Empirical Approach, Female, Foppiano P, Furman W, Hinds PS, Humans, Journal Article, Male, Neoplasms/nursing/psychology/therapy, Oakes L, Olson MS, Practice Guidelines As Topic, Professional Patient Relationship, Professional-family Relations, Quargnenti A, Social Support, Srivastava DK, Terminal Care
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Evaluation of Comfort and Confidence of Neonatal Clinicians in Providing Palliative Care
Tags: 2018, Adult, Age Factors, April 2020 List, Chang Y C, Clinical Competence, confidence and comfort, Cross-sectional Studies, Educational Status, Female, Humans, Journal of Palliative Medicine, Lee H Y, Liang H F, Liu H F, Male, Marital Status, Neonatal Palliative Care, neonatal professional, Neonatology, Palliative Care, Peng N H, Self Concept, Social Support, Surveys And Questionnaires, Taiwan, Wang T M
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Evidence for improving palliative care at the end of life: a systematic review
Tags: 2008, Advance Care Planning/standards, Annals Of Internal Medicine, Backlog, Caregivers/psychology, Continuity of Patient Care/standards, Depression/therapy, Dy SM, Dyspnea/therapy, Hilton LK, Hughes RG, Humans, Journal Article, Lorenz KA, Lynn J, Maglione M, Morton SC, Mularski RA, Pain/therapy, Palliative Care/standards, Patient Care Team/standards, RDF Project, Referral And Consultation, Rhodes SL, Rolon C, Shekelle PG, Shugarman LR, Social Support, Sun VC, Wilkinson A
Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians
Tags: 2008, Advance Care Planning/standards, Annals Of Internal Medicine, Assessment Subcommittee of the American College of Physicians Clinical Efficacy, Backlog, Caregivers/psychology, Casey DE, Continuity of Patient Care/standards, Cross JT, Dallas P, Depression/therapy, Dolan NC, Dyspnea/therapy, Forciea MA, Halasyamani L, Hopkins RH, Humans, Intervention, Interventions, Journal Article, Owens DK, Pain/therapy, Palliative Care/standards, Patient Care Team/standards, Qaseem A, Referral And Consultation, Shekelle PG, Snow V, Social Support
Exploring multi-agency working in services to disabled children with complex healthcare needs and their families
Tags: 2002, Abbott D, Backlog, Child, Child Health Services/organization & administration, Continuity Of Patient Care/organization & Administration, Cooperative Behavior, Disabled Children/rehabilitation, Family Health, Great Britain, Health Policy/legislation & jurisprudence, Health Services Accessibility/organization & administration, Home Care Services/organization & administration, Humans, Interprofessional Relations, Journal Article, Journal of Clinical Nursing, Models, Needs Assessment/organization & administration, Organizational, Patient Care Team/organization & administration, Social Support, Social Work/organization & administration, Townsley R, Watson D
Factors associated with congruence between preferred and actual place of death
Factors contributing to post-traumatic growth: a proposed structural equation model
Tags: 2003, Acquired Immunodeficiency Syndrome, Adaptation, Adult, Aged, Backlog, Bereavement, Bisexuality, Cadell S, Female, Hemsworth D, HIV Seropositivity, Homosexuality, Humans, Journal Article, Life Change Events, Male, Middle Aged, Orthopsychiatry/methods, Post-Traumatic/psychology, Psychological, Regehr C, Social Support, Stress Disorders, The American Journal Of Orthopsychiatry
Factors influencing death at home in terminally ill patients with cancer: systematic review
Tags: 2006, Attitude To Death, Backlog, Bmj (clinical Research Ed.), Death, Gomes B, Health Services Accessibility, Higginson IJ, Home Care Services/standards/statistics & numerical data/utilization, Hospitalization/statistics & numerical data, House Calls, Humans, Journal Article, Location Of Death, Neoplasms/psychology/therapy, Patient Satisfaction, Residence Characteristics, Risk Factors, Social Support, Terminal Care/psychology/statistics & numerical data/utilization, Terminally Ill/statistics & numerical data, Time Factors
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Tags: 2010, Adaptation, Adolescent, Adult, Backlog, Child, Cross-sectional Studies, Curtis CM, Female, Florida, Health Care Surveys, Humans, Infant, Journal Article, Journal of Palliative Medicine, Knapp CA, Madden VL, Male, Multivariate Analysis, Palliative Care/organization & Administration, Parent-child Relations, Pediatrics/organization & Administration, Preschool, Professional-family Relations, Program Evaluation, Psychological, Psychometrics, Quality Of Life, Regression Analysis, Shenkman EA, Sloyer P, Social Support, Telephone, Young Adult
Father to father: focus groups of fathers of children with cancer
Tags: 2003, Adolescent, Adult, Backlog, Caregivers, Child, Cost Of Illness, Father-child Relations, Female, Focus Groups, Humans, Jones JB, Journal Article, Male, Middle Aged, Neil-Urban S, Neoplasms/nursing/psychology, Parent caregivers, Preschool, Social Support, Social Work, Social Work in Health Care, United States
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
Functional ability, social support, and depression in rheumatoid arthritis
Tags: 2004, Activities of Daily Living, Adult, Aged, Arthritis, Backlog, Depressive Disorder, Doeglas DM, Humans, Journal Article, Krol B, Longitudinal Studies, Middle Aged, Netherlands, Quality Of Life, Quality of Life Research, Regression Analysis, Rheumatoid, Sanderman R, Sickness Impact Profile, Social Support, Social Support and Chronic Pain, Suurmeijer Th PBM, van den Heuvel WJA, van Leeuwen MA, van Rijswijk MH
Grandma's hands: parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities
Tags: 2001, Adult, Aged, Attitude To Health, Backlog, Caregivers/psychology, Child, Disabled Children/psychology, Family Relations, Florida, Green SE, Home Nursing/manpower/psychology, Humans, Intergenerational Relations, International Journal Of Aging & Human Development, Journal Article, Middle Aged, Parent caregivers, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Social Support, Socioeconomic Factors
Grief and growth in bereaved siblings: Interactions between different sources of social support
Tags: 2018, Barrera Maru, Bereavement, Compas BE, Davies B, Fairclough DL, Foster AT, Gerhardt CA, Gilmer Mary Jo, Grief, Hogan Nancy, Howard SKM, Interpersonal Interaction, Keim M, October 2018 List, Russell C, School Psychology Quarterly, September 2018 List, Siblings, Social Support, Vannatta K, Young-Saleme T
Grief reactions of couples to perinatal loss: a one-year prospective follow-up
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Tags: 1999, Ablin AR, Anxiety/prevention & control, Attitude To Death, Backlog, Bereavement, Chesler MA, Child, Child Care, Counseling, D'Angio GJ, Eden T, Family Health, Fear/psychology, Female, Human, Jankovic M, Journal Article, Male, Martins AG, Masera G, Medical & Pediatric Oncology, Mulhern RK, Neoplasms/psychology/therapy, Oppenheim D, Pain/prevention & control, Palliative Care, Parent-child Relations, Preschool, Professional-family Relations, Professional-patient Relations, Quality Of Life, Social Support, Spinetta J, Terminal Care, Topf R, Van Dongen-Melman J
Habitual somatic discomfort in a representative sample of adolescents
Having a brain tumour: A journey through life
Tags: 2002, Adolescent, Adult, Anti-Inflammatory Agents, Antineoplastic Combined Chemotherapy Protocols/tu [Therapeutic Use], Backlog, Brain Neoplasms/px [Psychology], brain Neoplasms/th [therapy], Case Report, Depression, Dexamethasone/ae [Adverse Effects], Dexamethasone/tu [Therapeutic Use], Green T, Human, Humanism, Journal Article, Male, Medical & Pediatric Oncology, Quality Of Life, Social Isolation, Social Support, Steroidal/ae [Adverse Effects], Steroidal/tu [Therapeutic Use], Weight Gain, Wit and Humor
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Human suffering: the need for relationship-based research in pediatric end-of-life care
Tags: 2004, Adaptation, Child, Coldsmith A, Health Services Needs And Demand, Hellsten MB, Humans, Interpersonal Relations, Journal Of Pediatric Oncology Nursing, Kane JR, Neoplasms/co [complications], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Psychological, Psychological/et [etiology], Psychological/nu [nursing], Psychological/px [psychology], Psychology, Quality Of Life, Sick Role, Social Support, Spirituality, Stress, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Human suffering: the need for relationship-based research in pediatric end-of-life care
Tags: 2004, Adaptation, Backlog, Child, Child Psychology, Coldsmith A, Health Services Needs And Demand, Hellsten MB, Humans, Interpersonal Relations, Journal Article, Journal Of Pediatric Oncology Nursing, Kane JR, Neoplasms/complications, Nursing Research/organization & administration, Oncologic Nursing/organization & administration, Pediatric Nursing/organization & administration, Psychological, Psychological/etiology/nursing/psychology, Quality Of Life, Sick Role, Social Support, Spirituality, Stress, Terminal Care/organization & administration/psychology
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY
Improving estimates of caregiver time cost and family impact associated with birth defects
Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Psychology, Adolescent Transitions, Adult, Age Factors, Attitude To Health, Backlog, Chronic Disease/psychology/therapy, Continuity Of Patient Care, Female, Great Britain, Humans, Interviews As Topic, Journal Article, Journal Of Child Health Care, Male, Patient Transfer, Professional-patient Relations, Qualitative Research, Soanes C, Social Support, Timmons S
Indicators of family resilience after the death of a child
Tags: 2011, Adaptation, Adult, Anecdotes as Topic, Attitude To Death, Backlog, Belgium, Child, Female, Greeff AP, Grief, Herbiest T, Humans, Infant, Journal Article, Male, Middle Aged, Newborn, Object Attachment, Omega, Parent-child Relations, Parents, Preschool, Psychological, Resilience, Self Concept, Self-Help Groups, sibling bereavement, Social Adjustment, Social Support, Survivors, Vansteenwegen A
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
Listening to Parents of Children With Cancer-Between Life and its end
Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care
Tags: 2022, Alleviation, April 2022 List, BMC Palliative Care, Child, concept, Früh EA, Health care professionals, Holmen H, Hospice And Palliative Care Nursing, Humans, Kvarme LG, Lee A, Life Limiting, Lorentsen VB, Misvær N, Paediatric, Palliative Care, Palliative Care/psychology, Pediatric, Ppc, Qualitative Research, Quality Of Life, Riiser K, Social Support, Steindal SA, Terminal Care, Winger A