Browse Items (249 total)
- Tags: Infant, Newborn
Ethics at the end of life in the newborn intensive care unit: Conversations and decisions
Tags: 2023, active euthanasia, Artificial Ventilation, Bioethics, Controlled Study, Conversation, Critically Ill Patient, Decision Making, Ethics, Gillam L, Human, Hydration, hypoxic ischemic encephalopathy, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Mercurio MR, Neonatal Intensive Care Unit, Neonatologist, Newborn, Nutrition, Resuscitation, Review, Seminars in Fetal and Neonatal Medicine, Treatment Withdrawal
Ethics Roundtable: How Much is Too Much?
Tags: 2023, American Journal of Hospice and Palliative Medicine, Carmi syndrome, Carter B, DiBartolomeo M, end-of-life, epidermolysis bullosa, Ethics, February List 2023, Gastric Outlet Obstruction, Hays J, Humans, Infant, Life-limiting Condition, Newborn, Palliative Care, Premature Ectodermal Dysplasia Pylorus/abnormalities, Theodoro MF
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Experience of Perinatal Death From the Father's Perspective
Experience with neonatal palliative care consultation at the Medical College of Wisconsin-Children's Hospital of Wisconsin
Extreme prematurity and parental rights after Baby Doe
Tags: 2004, Abnormalities, Backlog, Child Advocacy/legislation & jurisprudence, Civil Rights/legislation & jurisprudence, Disabled Persons/legislation & jurisprudence, Euthanasia, Humans, ICU Decision Making, Infant, Journal Article, Multiple, Neonatology/legislation & jurisprudence, Newborn, Parents, Passive/legislation & jurisprudence, Prejudice, Premature, Robertson JA, Texas, The Hastings Center Report
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Tags: 2022, Analysis, and, Article, Beltran SJ, CARE, Experience, Family, Female, for, guideline, Hamel M N, Human, Infant, intensive, Items, Male, meta, Meta-analyses, Neonatal, Newborn, October 2022 List, Palliative, Parent, Perception, Practice, Preferred, Psychological, Quality, Reporting, Review, Reviews, Satisfaction, systematic, The American Journal of Hospice & Palliative Care, Therapy, Unit, Units
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study
Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Tags: 2015, Adolescent, Adult, Bradford N, Child, Communication, Critical Illness/px [psychology], Danby S, Ekberg S, Female, Health Personnel/px [psychology], Herbert A, Humans, Infant, Jbi Database Of Systematic Reviews And Implementation Reports, Male, March 2018 List, Newborn, Palliative Care/px [psychology], Parents/px [psychology], Preschool, Professional-family Relations, Qualitative Research, Yates P, Young Adult
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Home management of the dying NICU patient
Tags: 2003, Attitude Of Health Personnel, Backlog, Caregivers/standards, Craig F, Female, Goldman A, Holistic Health, Home Nursing, Humans, Infant, Intensive Care, Journal Article, Male, Neonatal/standards, Newborn, Palliative Care/organization & Administration, Parents/psychology, Patient Care Team/standards, Professional-family Relations, Seminars In Neonatology
Hospital care for children and young adults in the last year of life: a population-based study
Tags: 2003, Adolescent, Adult, Age Factors, Backlog, Bmc Medicine, Child, Chronic Disease/classification/mortality/therapy, DiGiuseppe DL, Female, Feudtner C, Hospital Mortality, Hospitalization/statistics & numerical data, Humans, ICU Decision Making, Infant, Journal Article, Length Of Stay, Male, Neff JM, Newborn, P.H.S., Palliative Care/organization & Administration, Preschool, Research Support, Terminal Care/utilization, Terminally Ill/statistics & numerical data, U.S. Gov't, Washington/epidemiology
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Implications of Pediatric Palliative Consultation for Intensive Care Unit Stay
Tags: 2019, Adolescent, Adult, Article, Caucasian, Child, child hospitalization, Childhood Cancer, Cohort Analysis, confidence interval, Controlled Study, Demography, Female, health Insurance, Hospital Admission, Human, Humphrey LM, Infant, Journal of Palliative Medicine, Length Of Stay, Major Clinical Study, Male, Miller R, Newborn, Palliative Therapy, Patient Referral, Pediatric Hospital, Pediatric Intensive Care Unit, Retrospective Study, Rossfeld ZM, September 2019 List, Tobias JD, Tumin D
Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
Tags: 2006, Adolescent, Backlog, Burns JP, Child, Communication, Decision Making, Humans, Infant, Intensive Care Units, Journal Article, Meyer EC, Newborn, Non-U.S. Gov't, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Pediatric, Pediatrics, PedPal Lit, Preschool, Professional-family Relations, Questionnaires, Research Support, Ritholz MD, Terminal Care/psychology, Truog RD
Incubation time required for neonatal blood cultures to become positive
Tags: 2006, Backlog, Bacteremia/blood/diagnosis/microbiology, Bacteriological Techniques/methods, Birth Weight, Blood/microbiology, Davies MW, Faoagali J, Humans, Infant, Jardine L, Journal Article, Journal of Paediatrics and Child Health, Newborn, Retrospective Studies, Sepsis/blood/diagnosis/microbiology, Time Factors
Indicators of family resilience after the death of a child
Tags: 2011, Adaptation, Adult, Anecdotes as Topic, Attitude To Death, Backlog, Belgium, Child, Female, Greeff AP, Grief, Herbiest T, Humans, Infant, Journal Article, Male, Middle Aged, Newborn, Object Attachment, Omega, Parent-child Relations, Parents, Preschool, Psychological, Resilience, Self Concept, Self-Help Groups, sibling bereavement, Social Adjustment, Social Support, Survivors, Vansteenwegen A
Infant deaths from congenital anomalies: novel use of Child Death Overview Panel data
Tags: 2018, Archives of Disease in Childhood, Cause Of Death, Congenital Abnormalities/mortality, congenital anomaly, Consanguinity, Death Certificates, Disabled Children, England/epidemiology, Ethnic Groups/statistics & numerical data, Ethnicity, Female, Firth C, Humans, Infant, Infant Death, Infant Mortality, Infant Mortality/ethnology, Male, Maternal Age, Newborn, Oddie SJ, Petherick E, Retrospective Studies, September 2019 List
Infantile systemic hyalinosis: newly recognized disorder of collagen?
Tags: 1991, Atherton DJ, Backlog, Collagen Diseases/metabolism/pathology/physiopathology, Female, Gingiva/pathology, Glover MT, Humans, Hyalin/metabolism, Hypertrophy, Infant, Jejunum/pathology, Joints/physiopathology, Journal Article, Lake BD, Movement, Newborn, Pain/etiology, Pediatrics, Prognosis, Skin/pathology/ultrastructure
Informed dissent: the views of some mothers of severely mentally handicapped young adults
Tags: 1986, Abortion, Adult, Backlog, Congenital Abnormalities/therapy, Death and Euthanasia, Disabled Persons, Empirical Approach, Euthanasia, Female, Genetics and Reproduction, Humans, Induced, Infant, Informed Consent, Journal Article, Journal of Medical Ethics, Mental Health Therapies, Middle Aged, Mothers/psychology, Newborn, Passive, Patient Compliance, Simms M, Value of Life
Italian Nurses' Attitudes Towards Neonatal Palliative Care: A Cross-Sectional Survey
Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium
Tags: 1999, Acta Paediatrica, Backlog, Biomarkers of Pain, Chace DH, Clinical Laboratory Techniques/instrumentation, DiPerna JC, Female, Forecasting, Humans, Inborn Errors/diagnosis, Infant, Journal Article, Male, Mass Spectrometry/trends/utilization, Metabolism, Naylor EW, Neonatal Screening/methods, Newborn, Sensitivity and Specificity, United States
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, Adult, August 2020 List, Female, Fetal Diseases/diagnosis/*mortality, George T, Hospice, Humans, Infant, Journal of Palliative Medicine, Kamrath H J, Mothers/*psychology, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Palliative Care/*organization & Administration, Patient Care Planning/*organization & administration, Perinatal, Perinatal Care/*organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, 2022 Special Edition 1 - Parent Perspectives, Female, Fetal Mortality, George T, Hospice, Infant, Journal of Palliative Medicine, Kamrath HJ, Mothers, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Perinatal, Perinatal Care organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Long-chain 3-hydroxyacyl-coenzyme A dehydrogenase deficiency with the G1528C mutation: clinical presentation of thirteen patients
Tags: 1997, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Backlog, Cardiomyopathies/etiology, Fatal Outcome, Female, Humans, Hypoglycemia/etiology, Inborn Errors/complications/diet therapy/genetics, Infant, Jackson S, Journal Article, Lipid Metabolism, Liver Diseases/etiology, Male, Muscle Hypotonia/etiology, Mutation, Newborn, Palotie A, Pihko H, Q3 Scoping Review Results, Retinal Diseases/etiology, Salo MK, The Journal Of Pediatrics, Tyni T, Valanne L, Venizelos N, Viinikka L, von Dobeln U, Wanders R
Long-term follow-up of neonatal mitochondrial cytopathies: a study of 57 patients
Tags: 2005, Backlog, Child, De Lonlay P, Disease Progression, Diseases/blood/diagnosis/mortality, Female, Follow-up Studies, Garcia-Cazorla A, Humans, Infant, Journal Article, Lactic Acid/blood, Longitudinal Studies, Male, Mitochondrial Myopathies/blood/complications/diagnosis/mortality, Nassogne MC, Newborn, Pediatrics, Preschool, Prognosis, Rustin P, Saudubray JM, Touati G
Long-term follow-up, neurological outcome and survival rate in 28 Nordic patients with glutaric aciduria type 1
Tags: 2004, Adolescent, Adult, Amino Acid Metabolism, Backlog, Child, Christensen E, European Journal of Paediatric Neurology, Female, Finland/epidemiology, Follow-up Studies, Glutarates/urine, Glutaryl-CoA Dehydrogenase, Hagberg G, Holme E, Humans, Inborn Errors/complications/diagnosis/mortality, Infant, Journal Article, Kyllerman M, Lonnquist T, Male, Nervous System Diseases/etiology, Newborn, Oxidoreductases Acting on CH-CH Group Donors/deficiency, Preschool, Prognosis, Q3 Scoping Review Results, Rotwelt T, Scandinavia/epidemiology, Skjeldal O, Skov L, Survival Rate, Time Factors, von Dobeln U
Long-term outcome and clinical spectrum of 73 pediatric patients with mitochondrial diseases
Tags: 2007, AIM, Backlog, Cause Of Death, Chevalier I, Child, Cohort Studies, Debray FG, Decarie JC, DNA, DNA Fragmentation, Female, Follow-up Studies, HEREDITARY, Humans, IM, Infant, Journal Article, Lambert M, Leber/di [Diagnosis], Leber/ge [Genetics], Leber/mo [Mortality], Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/mo [Mortality], MELAS Syndrome/th [Therapy], Mitchell GA, Mitochondrial Diseases/di [Diagnosis], Mitochondrial Diseases/ge [Genetics], Mitochondrial Diseases/mo [Mortality], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/mo [Mortality], Mitochondrial Encephalomyopathies/th [therapy], Mitochondrial Myopathies/di [Diagnosis], Mitochondrial Myopathies/ge [Genetics], Mitochondrial Myopathies/mo [Mortality], Mitochondrial/ge [Genetics], Newborn, Optic Atrophy, Pediatrics, Preschool, Probability, Proportional Hazards Models, Q3 Scoping Review Results, Retrospective Studies, Robinson BH, Robitaille Y, Severity Of Illness Index, Shoubridge EA, Survival Analysis, Time Factors
Massive opioid resistance in an infant with a localized metastasis to the midbrain periaqueductal gray
Tags: 1995, Analgesics, Backlog, Berde CB, Brain Neoplasms/congenital/drug therapy/pathology/secondary, Case Report, Collins J J, Dose-Response Relationship, Drug, Drug Resistance, Grier HE, Human, Hypnotics and Sedatives/therapeutic use, Infant, Journal Article, Kinney HC, Male, Mesencephalon, Morphine/therapeutic Use, Nachmanoff DB, Newborn, Non-U.S. Gov't, Opioid/therapeutic use, Pain, Palliative Care, Periaqueductal Gray, Rhabdoid Tumor/congenital/drug therapy/pathology/secondary, Support