Browse Items (920 total)
- Tags: Human
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Parent Priorities in End-of-Life Care for Children With Cancer
Tags: 2023, 2023 SE3 - Oncology, Ananth P, Bayes Theorem, Boyden JY, Child, Child Parent Relation, Cross-sectional Study, de Oliveira S, Death, Female, Feudtner C, Gross CP, Human, JAMA Network Open, Kirch R, Lindsay M, Ma X, McCollum S, Middle Aged, Mun S, neoplasm/th [Therapy], Pitafi S, Psychology, Shabanova V, Terminal Care, Wolfe J
Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer
Tags: 2017, Advanced Cancer, Al-Sayegh H, Ananth P, Child, Childhood Cancer, Clinical Trial, Cohort Analysis, Controlled Study, Death, Female, Health Care Utilization, Human, Ma C, Major Clinical Study, Male, Monsereenusorn C, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Rodriguez-Galindo C, Terminal Care, Wolfe J
Health Professionals' Views on Pediatric Palliative Care: A Mixed Methods Systematic Review
Tags: 2022, Anastasopoulou E, April List 2023, Attitude Of Health Personnel, Collaboration, Communication, Communities, Dousis E, Education, Evaluation, Health Services Accessibility, Hospitals, Human, International Journal of Caring Sciences, Multidisciplinary Care Team, Multimethod Studies, Palliative Care, Pediatric Care, Professional-family Relations, Professional-patient Relations, PubMed, Reward, Systematic Review, Terminal Care
Pain, sedation and morphine metabolism in cancer patients during long-term treatment with sustained-release morphine
Tags: 2002, Adult, Aged, Analgesics, Andersen G, Backlog, Christrup L, Delayed-Action Preparations, effects/pharmacokinetics, Female, Hansen SH, Human, Jensen NH, Journal Article, Male, Middle Age, Morphine Derivatives/blood, Morphine/administration & dosage/adverse effects/pharmacokinetics, Neoplasms/complications/metabolism, Opioid/administration & dosage/adverse, Pain/etiology/metabolism/prevention & control, Palliative Medicine, Sjogren P
Artificial nutrition and hydration for children and young people towards end of life: consensus guidelines across four specialist paediatric palliative care centres
Tags: 2019, Anderson AK, Article, Artificial Feeding, Bendle L, BMJ Supportive and Palliative Care, Breen M, Burke K, Child, Clinical Decision Making, December 2019 List, Drug Withdrawal, Female, Human, Hydration, Koh M, Male, McCulloch R, Multidisciplinary team, Palliative Therapy, Systematic Review, Terminal Care
The effect of L 5 hydroxytryptophan on self mutilation in Lesch Nyhan disease: a negative report
Tags: 1976, Anderson L T, automutilation, behavioral problems, carbidopa, Child, Clinical Study, Clinical Trial, Controlled Study, Dancis J, Drug Therapy, Herrmann L, Human, L-5-hydroxyl-tryptophan, Lesch Nyhan syndrome, Major Clinical Study, Neuropadiatrie, pharmacologic intervention, PLACEBO, self-mutilation, Therapy
Efficacy and safety of endoscopic dilation of esophageal strictures in epidermolysis bullosa
Tags: 2004, Adolescent, Adult, Anderson S H C, Article, Balloon dilatation, barium, Body Weight, Chappiti U, contrast enhancement, Doig L, Dysphagia, Eady R A J, endoscopic balloon dilatation, endoscopic therapy, epidermolysis bullosa, epidermolysis bullosa/th [Therapy], esophagus dilatation, esophagus stricture/th [Therapy], feeding difficulties, Female, Follow Up, Gastrointestinal Endoscopy, Human, Major Clinical Study, Male, Meenan J, Morbidity, Nutritional Status, Prinja H, Priority Journal, Propofol, School Child, scoring system, surgical intervention, Thompson R P H, Treatment Outcome, Williams K N
A pathway to advancing end-of-life education
Neuromuscular disorders of childhood
Tags: 1999, Andersson PB, Backlog, Charcot-Marie-Tooth Disease/diagnosis/physiopathology, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Human, Journal Article, Muscular Dystrophies/diagnosis/genetics, Myasthenia Gravis/diagnosis, Neuromuscular Diseases/diagnosis/physiopathology/therapy, Peripheral Nervous System Diseases/diagnosis, Rando TA, Spinal Muscular Atrophies of Childhood/diagnosis
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
A qualitative exploration of parental perspectives on quality of care for children with serious illnesses
Tags: 2023, Amin Z, Ang FJL, Article, Benchmarking, Buang SNH, Caregiver, Child, Chong PH, Chow CCT, Conceptual Framework, Finkelstein EA, Frontiers in Pediatrics, Grounded Theory, health care organization, Health Care Quality, Holistic Care, Human, Human Tissue, October List 2052, Only Child, Palliative Therapy, Pediatrics, Perception, Qualitative Research, Semi Structured Interview, Singapore, Tan TSZ, theoretical study, Total Quality Management, worker
Parent-Reported Experience Measures of Care for Children with Serious Illnesses: A Scoping Review
Tags: Child, Child Care, Chronic Disease, Systematic Review, Terminal Care, 2022, Ang FJL, Caregiver Support, Childhood Disease, Emergency Care, empowerment, Finkelstein EA, Gandhi M, Health Care Delivery, Health Care Quality, Hospice Care, Hospital care, Hospitalized Child, Human, Long Term Care, Neonatal Intensive Care Unit, November 2022 List, Palliative Therapy, Parental Attitude, patient-reported outcome, Pediatric Critical Care Medicine, Personal Experience, Review, shared decision making
Development and delivery of a one-stop multidisciplinary clinic to provide comprehensive palliative and supportive care for children with cancer
Tags: 2018, Ambulatory Care, Anis H, antibiotic agent, Arora R, Bagai P, Cancer Patient, Caregiver, Child, Chuki T, conference abstract, Crack L, dietitian, doctor nurse relation, Drug Therapy, Education, Female, financial management, Holistic Care, Hospital Patient, Human, Major Clinical Study, Male, Malignant Neoplasm, Multidisciplinary team, nutritional counseling, Oncology 2018 List, Outpatient, Pain, Palliative Therapy, patient coding, Pediatric Blood and Cancer, physiotherapist, Physiotherapy, Psychologist, Social Support, Taluja A, Terminal Care, wound
Legal and ethical issues in neonatal nursing
Newborn Care Curriculum: Palliative Care for the Newborn
Tags: 2017, Adult, Anspacher M, Burd A, Conroy R, Curriculum, Education, feedback system, Female, Human, Infant Newborn, Male, March List 2024, MedEdPORTAL, medical student, Neonatal Intensive Care Unit, Neonatology, Newborn, Organization And Management, Palliative Therapy, Procedures, Stroh J, Teaching
"It Is a Whole Different Life from the Life I Used to Live": Assessing Parents' Support Needs in Paediatric Palliative Care
Tags: 2022, Adult, Aoun SM, Article, Australia, Caregiver Support, Children, clinical monitoring, Controlled Study, Cuddeford L, Deleuil R, Emotion, emotional support, empowerment, family support, Feasibility Study, Female, Gill FJ, Hospice Care, Human, July List 2023, Lyon ME, Male, Momber S, Palliative Care, Palliative Therapy, Parent, pediatric patient, Phillips MB, psychosocial care, Public Health, Qualitative Research, Stegmann R, Terminal Care, tertiary care center, Thematic Analysis, Volunteer
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
Perinatal hypoxic-ischaemic encephalopathy: a national survey of end-of-life decisions and palliative care
Tags: 2019, Arnaez J, Article, BMJ supportive & palliative care., Consensus, Controlled Study, Decision Making, Garcia-Alix A, Gestational Age, Grief, Herranz-Rubia N, Human, hypothermia, hypoxic ischemic encephalopathy, Interview, Nervous System, Newborn, November 2019 List, Nurse, Palliative Therapy, Prognosis
Taking Memory Making to the Next Level with the Use of Resin
Social Workers in Pediatric Intensive Care Units: A Physician Perspective
Tags: 2022, abuse, Adolescent, April List 2023, Article, Aslan K, Atakul G, Caglar A, Child, child custody, child neglect, Child Psychiatry, community mental health center, Consultation, Counseling, Demircan TO, Female, Follow Up, hospital information system, Hospitalization, Human, Infant, Intensive Care Units, Male, Ozhan P, Palliative Therapy, Pediatric Intensive Care Unit, Physician, Retrospective Study, social problem, Social Work, Social Worker, Turkey (republic), Turkish Journal of Pediatric Disease
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
Tags: 2018, Article, Aujoulat I, Bmc Pediatrics, Broux I, Brussels Capital Region, Cavatorta E, Charon A, Clinical Practice, Debauche C, Dussart A, Female, Flausch M, Gestational Age, Haumont D, Henrard S, Henrion E, Human, Infant, Johansson AB, Kalenga M, Langhendries JP, Lecart C, Major Clinical Study, Male, Marechal Y, Maton P, Mostaert A, Muller MF, Neonatologist, Neonatology, Newborn, Palliative Therapy, perinatal period, Prematurity, Qualitative Research, Questionnaire, September 2018 List, Sepulchre B, Terminal Care, Uncertainty, Van Herreweghe I, Van Overmeire B, Vanden ES, Verellen G, Vermeylen D, Vlieghe V, Wallonia
Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Tags: 2023, Advance Care Planning, Analgesia, Article, Autrey AK, Cesarean Section, Child, Controlled Study, Demographics, Funding, Hospital Patient, Human, James C, Journal of Pain and Symptom Management, Kaye EC, May List 2023, Miller EG, Morvant A, Mothi SS, Outpatient, Palliative Care, Palliative Therapy, Patient Referral, Program Development, School Child, Stafford C, United States, workflow
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents
Tags: 2018, Advanced Cancer, Avoine-Blondin J, Child, conference abstract, Daoust L, Duval M, Fasse L, Human, Humbert N, Interdisciplinary Communication, Journal of Pain and Symptom Management, Lopez C, Oncology, Oncology 2019 List, Palliative Therapy, physical well-being, pleasure, Qualitative Research, quality of life assessment, Semi Structured Interview, Sultan S, Thematic Analysis
Psychometric properties of the Turkish version of the Stress Scale for Nurses Providing End-of-Life Care for Children
Tags: 2023, 2023 SE5 - Low Resource Setting, Article, Ayran G, Cevik Ozdemir HN, Checklist, Child, confirmatory factor analysis, construct validity, content validity, Controlled Study, Cronbach alpha coefficient, Human, Internal Consistency, intervention study, Nurse, Palliative And Supportive Care, pediatric nurse, Physiological stress, Psychometrics, Reliability, Terminal Care, Turkey (republic), Wellbeing
Barriers of Palliative Care in Neonatal Intensive Care Units
Tags: 2017, Adult, Ahmadi JS, Azzizadeh Forouzi M, Banazadeh M, Clinical Competence, Cross Sectional Study, December 2017 List, Female, Health Personnel Attitude, Human, Iran, Islam, Male, Middle Aged, Neonatal Intensive Care Unit, Newborn, Nursing Staff, Organization, Organization And Management, Palliative Therapy, Psychology, Razban F, Reproducibility, Socioeconomics, Terminal Care, The American Journal of Hospice & Palliative Care
"His ears are so soft!" Animal-assisted interventions in oncology settings: Implications for oncology social work practice
Tags: 2016, 50-56-6 (oxytocin), 51-61-6 (dopamine), 54577-94-5 (oxytocin), 60118-07-2 (endorphin), 62-31-7 (dopamine), Adult, Animal Experiment, Animal Model, anxiety, Bach C, Blood Pressure, Cancer Patient, Cancer Therapy, Cerebrovascular Accident, Clinical Practice, Distress Syndrome, Dog, Dopamine, Ear, Endogenous Compound, Endorphin, Family Study, Female, Gene Expression, Happiness, Heart Rate, Hospice, Hospital Patient, Human, Human Versus Animal Comparison, Infusion, Journal Of Psychosocial Oncology, Male, Narrative, Nonhuman, Oncology, Oncology 2017 List, Oxytocin, Pain, Palliative Therapy, Pet Therapy, Program Development, Recreation, Skill, Social Support, Social Work Practice, Storytelling, Symptom, Total Quality Management, Trust, Volunteer, Waiting Room
Decision making in pediatric oncology: Views of parents and physicians in two European countries
Tags: 2017, Adult, AJOB empirical bioethics, Badarau DO, Child Parent Relation, clinical protocol, Colita A, De CE, Decision Making, Doctor Patient Relation, Elger BS, Female, Human, Interpersonal Communication, Kuhne T, Male, Middle Aged, neoplasm/th [Therapy], Oncologist, Oncology, Oncology 2018 List, Parent, Patient Participation, Pediatrics, Physician, Qualitative Research, Quality Of Life, Romania, Ruhe K, Switzerland, Wangmo T
"It's not about treatment, it's how to improve your life": The lived experience of occupational therapy in palliative care
Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Development of symptom assessment service at a children's hospice
Tags: 2018, Archives of Disease in Childhood, Balfe JM, Booth A, Cassidy M, Central Nervous System, Child, Clinical Article, conference abstract, Disability, Female, Health Care Personnel, Hospice, Human, June 2018 List, Male, medical assessment, Medical Record Review, molecular recognition, Nursing, Patient Referral, Retrospective Study, Staff, Symptom Assessment, Telephone
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Balkin E M, Blume E D, Cardiac Surgeon, Cardiologist, Child, Clinical Study, Clinical Trial, Controlled Clinical Trial, Controlled Study, Female, Heart Failure, Human, Intensivist, Kaufman BD, Kirkpatrick J N, Life Expectancy, Male, Medical School, Multicenter Study, Palliative Therapy, Pediatric Cardiology, Pediatric cardiology., September 2017 List, Skill, Sleeper L A, Swetz K M, Terminal Care, Wolfe J
Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review
Prevalence and Incidence of Anxiety and Depression among Children, Adolescents, and Young Adults with Life-Limiting Conditions: A Systematic Review and Meta-analysis
Tags: 2019, Adolescent, Adult, anxiety, Article, Barker MM, Beresford B, Bland M, Child, data extraction, Depression, Embase, Female, Fraser LK, Human, Human Tissue, Incidence, Interview, JAMA Pediatrics., Male, Medline, meta analysis, Monitoring, Organisation for Economic Co-operation and Development, Prevalence, psychologic assessment, Psycinfo, Regression Analysis, September 2019 List, synthesis, Systematic Review, Young Adult
Cerebral palsy and neurodegenerative disease
A qualitative phenomenological study of nurses' experiences in caring for infants and children with life-limiting and life-threatening conditions
Tags: 2023, Article, August List 2024, avoidance behavior, Bassola B, care behavior, Child, Child Care, Cilluffo S, Destrebecq A, Emotion, Emotional Intelligence, Female, Human, Human Experiment, Infant, Interview, Journal of Pediatric Nursing, Lusignani M, Male, Neonatal Intensive Care Unit, Nurse, Nursing Care, Ongari E, Pediatric Nursing, Phenomenology, Physiological stress, Psychologist, Qualitative Research, Targa A, Terzoni S