Browse Items (1703 total)
- Tags: Female
Exploring fathers' experiences of pregnancy after a prior perinatal loss
AIMP1 deficiency presents as a cortical neurodegenerative disease with infantile onset
Tags: 2014, Age Factors, Armstrong L, Backlog, Biancheri R, Brain, Cytokines, Female, Humans, Infant, Journal Article, Mutation, Neoplasm Proteins, Neurodegenerative Diseases, Neurogenetics, Newborn, RNA-Binding Proteins, Ross CJ, Rossi A, Shyr C, Sinclair G, Tarailo-Graovac M, van Karnebeek CD, Wasserman WW, White Matter
Prevalence and progression of mitochondrial diseases: a study of 50 patients
Tags: 2003, Adolescent, Adult, Age of Onset, Aged, Arenas J, Arpa J, Arpa-Fernandez A, Backlog, Campos Y, Chronic Progressive External/ep [Epidemiology], Chronic Progressive External/ge [Genetics], Chronic Progressive External/pa [Pathology], Cruz-Martinez A, Del Hoyo P, Disease Progression, DNA, Electromyography, Epilepsies, Female, Garcia-Rio F, Gutierrez-Molina M, Humans, IM, Journal Article, Lactic Acid/bl [Blood], Male, Martin MA, MELAS Syndrome/ep [Epidemiology], MELAS Syndrome/ge [Genetics], MELAS Syndrome/pa [Pathology], Middle Aged, Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/ge [Genetics], Mitochondrial Diseases/pa [Pathology], Mitochondrial/ge [Genetics], Muscle, Muscle & Nerve, Myoclonic/ep [Epidemiology], Myoclonic/ge [Genetics], Myoclonic/pa [Pathology], Neural Conduction/ph [Physiology], Ophthalmoplegia, Perez-Conde C, Phenotype, Rubio JC, Skeletal/pa [Pathology], Spain/ep [Epidemiology], Survival Analysis
Do-Not-Resuscitate Orders in the Neonatal ICU: Experiences and Beliefs Among Staff
Tags: 2018, Arzuaga BH, Attitude Of Health Personnel, Attitudes, Brodsky DD, Cummings CL, Female, Health Knowledge, Hospital/psychology, Humans, Intensive Care Units, Male, Mao W, Medical Staff, Miedema D, Neonatal/statistics & Numerical Data, November 2019 List, Nursing Staff, Pediatric Critical Care Medicine, Practice, Professional-family Relations, Resuscitation Orders/psychology, Retrospective Studies, Surveys And Questionnaires, United States, Withholding Treatment/statistics & Numerical Data, Wraight CL
The ocular features of the mucopolysaccharidoses
Tags: 2006, Adolescent, Adult, Ashworth JL, Backlog, Biswas S, Child, Corneal Opacity/etiology, Eye (london, England), Eye Diseases/etiology, Female, Follow-up Studies, Humans, Infant, Journal Article, Lloyd IC, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis I/complications, Mucopolysaccharidosis VI/complications, Ocular Hypertension/etiology, Optic Atrophy/etiology, Papilledema/etiology, Preschool, Q3 Scoping Review Results, Retrospective Studies, Vision Disorders/etiology, Visual Acuity, Wraith E
Social Workers in Pediatric Intensive Care Units: A Physician Perspective
Tags: 2022, abuse, Adolescent, April List 2023, Article, Aslan K, Atakul G, Caglar A, Child, child custody, child neglect, Child Psychiatry, community mental health center, Consultation, Counseling, Demircan TO, Female, Follow Up, hospital information system, Hospitalization, Human, Infant, Intensive Care Units, Male, Ozhan P, Palliative Therapy, Pediatric Intensive Care Unit, Physician, Retrospective Study, social problem, Social Work, Social Worker, Turkey (republic), Turkish Journal of Pediatric Disease
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
Tags: 2018, Article, Aujoulat I, Bmc Pediatrics, Broux I, Brussels Capital Region, Cavatorta E, Charon A, Clinical Practice, Debauche C, Dussart A, Female, Flausch M, Gestational Age, Haumont D, Henrard S, Henrion E, Human, Infant, Johansson AB, Kalenga M, Langhendries JP, Lecart C, Major Clinical Study, Male, Marechal Y, Maton P, Mostaert A, Muller MF, Neonatologist, Neonatology, Newborn, Palliative Therapy, perinatal period, Prematurity, Qualitative Research, Questionnaire, September 2018 List, Sepulchre B, Terminal Care, Uncertainty, Van Herreweghe I, Van Overmeire B, Vanden ES, Verellen G, Vermeylen D, Vlieghe V, Wallonia
Risperidone treatment of autistic disorder: longer-term benefits and blinded discontinuation after 6 months
Tags: 2005, Adolescent, Aggression/drug effects/psychology, Antipsychotic Agents/adverse effects/therapeutic use, Autism Network Research Units on Pediatric Psychopharmacology, Autistic Disorder/diagnosis/drug therapy/psychology, Backlog, Child, Child Behavior Disorders/diagnosis/drug therapy/psychology, Drug Administration Schedule, Female, Humans, Journal Article, Longitudinal Studies, Male, Personality Inventory, Placebos, Preschool, Psychiatric Status Rating Scales, Risperidone/adverse effects/therapeutic use, Self-Injurious Behavior/diagnosis/drug therapy/psychology, Substance Withdrawal Syndrome/diagnosis/psychology, The American Journal Of Psychiatry, Treatment Outcome
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
Swedish parents' experiences of parenthood and the need for support to siblings when a baby is stillborn
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
Identifying domains of quality of life in children with cancer undergoing palliative care: A qualitative study with professionals
Tags: 2017, Adaptation Psychological, Adult, Avoine-Blondin J, Duval M, Female, Health Personnel/px [psychology], Humans, Humbert N, Lahaye M, Male, Middle Aged, Neoplasms/px [psychology], Oncology 2018 List, Palliative & Supportive Care, Palliative Care/mt [methods], Palliative Care/px [psychology], Parent V, Pediatrics/ma [Manpower], Pediatrics/st [standards], Perception, Qualitative Research, Quality Of Life/px [psychology], Quebec, Sultan S
Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, Adult, Advanced Cancer, Avoine-Blondin J, BMC Palliative Care, Child, Concept Formation, Dumont É, Duval M, Female, Humans, Male, Marquis MA, Mixed-method, Neoplasms, Palliative Care, Pediatrics, psychology/therapy, Quality Of Life, Reproducibility of Results, Sultan S, Surveys And Questionnaires
Endogenous opioids in wound-site neutrophils of sternotomy patients
Tags: 2012, Abas M, Aged, Awad H, Backlog, beta-Endorphin/blood, Bhandary S, Biomarkers of Pain, Biomarkers Reference List, Dynorphins/blood, Elgharably H, Enkephalin, Female, Flow Cytometry, Gene Expression Regulation, Humans, Inflammation/metabolism, Interleukin-10/metabolism, Interleukin-4/metabolism, Journal Article, Male, Methionine/blood, Middle Aged, Neutrophils/metabolism, Pain Management, PLoS One, Postoperative Period, Roy S, Sai-Sudhakar C, Sen CK, Sternotomy/methods, Theofilos T, Tripathi R, Wound Healing
Medical care utilization by incurable cancer patients in a Swedish county
Tags: 1997, 80 And Over, Adult, Aged, Axelsson B, Backlog, Breast Neoplasms/therapy, Christensen SB, County, European Journal Of Surgical Oncology, Female, Gastrointestinal Neoplasms/therapy, Hospital/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Journal Article, Length Of Stay/statistics & Numerical Data, Male, Marriage, Middle Aged, Neoplasms/drug therapy/radiotherapy/surgery/therapy, Outcome Assessment (health Care), Palliative Care/statistics & numerical data/utilization, Patient Admission/statistics & numerical data, Prostatic Neoplasms/therapy, Residence Characteristics, Retrospective Studies, Surgery Department, Sweden/epidemiology, Terminal Care/statistics & numerical data/utilization, Urologic Neoplasms/therapy
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Tags: 2004, Adrie C, Adult, Aged, Annane D, anxiety, Attitude Of Health Personnel, Attitude To Health, Azoulay E, Backlog, Bleichner G, Bornstain C, Bouffard Y, Chevret S, Cohen Y, Consumer Satisfaction, Critical Care Medicine, Decision Making, Depression, Family/psychology, FAMIREA Study Group, Feissel M, Female, France, Goldgran-Toledano D, Guitton C, Hayon J, Humans, ICU Decision Making, Iglesias E, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Laplace C, Lebert C, LeGall JR, Logistic Models, Male, Middle Aged, Multivariate Analysis, Pingat J, Pochard F, Poisson C, Prospective Studies, Renault A, Sanchez O, Schlemmer B, Selcer D, Timsit JF
Decisions to forgo life-sustaining therapy in ICU patients independently predict hospital death
Tags: 2003, 80 And Over, Adrie C, Aged, Analysis of Variance, APACHE, Azoulay E, Backlog, Cohen Y, Comorbidity, Critical Care/statistics & numerical data, Death and Euthanasia, Decision Making, deLassence A, Empirical Approach, Female, Garrouste-Orgeas M, Hospital Mortality, Hospitals, Humans, ICU Decision Making, Intensive Care Medicine, Intensive Care Units/statistics & numerical data, Journal Article, Life Support Care/statistics & numerical data, Male, Middle Aged, Montesino L, Moreau D, Outcomerea Study Group, Paris/epidemiology, Pochard F, Predictive Value of Tests, Proportional Hazards Models, Prospective Studies, Resuscitation Orders, Risk Factors, Severity Of Illness Index, Survival Analysis, Teaching, Timsit JF, Withholding Treatment/statistics & Numerical Data
Barriers of Palliative Care in Neonatal Intensive Care Units
Tags: 2017, Adult, Ahmadi JS, Azzizadeh Forouzi M, Banazadeh M, Clinical Competence, Cross Sectional Study, December 2017 List, Female, Health Personnel Attitude, Human, Iran, Islam, Male, Middle Aged, Neonatal Intensive Care Unit, Newborn, Nursing Staff, Organization, Organization And Management, Palliative Therapy, Psychology, Razban F, Reproducibility, Socioeconomics, Terminal Care, The American Journal of Hospice & Palliative Care
"His ears are so soft!" Animal-assisted interventions in oncology settings: Implications for oncology social work practice
Tags: 2016, 50-56-6 (oxytocin), 51-61-6 (dopamine), 54577-94-5 (oxytocin), 60118-07-2 (endorphin), 62-31-7 (dopamine), Adult, Animal Experiment, Animal Model, anxiety, Bach C, Blood Pressure, Cancer Patient, Cancer Therapy, Cerebrovascular Accident, Clinical Practice, Distress Syndrome, Dog, Dopamine, Ear, Endogenous Compound, Endorphin, Family Study, Female, Gene Expression, Happiness, Heart Rate, Hospice, Hospital Patient, Human, Human Versus Animal Comparison, Infusion, Journal Of Psychosocial Oncology, Male, Narrative, Nonhuman, Oncology, Oncology 2017 List, Oxytocin, Pain, Palliative Therapy, Pet Therapy, Program Development, Recreation, Skill, Social Support, Social Work Practice, Storytelling, Symptom, Total Quality Management, Trust, Volunteer, Waiting Room
Plasma beta-endorphin during clinical and experimental ischaemic pain
Tags: 1987, Adult, Aged, Angina Pectoris/blood, Bach FW, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Blood Specimen Collection, Dahlstrom G, Ekman R, Exertion, Fahrenkrug J, Female, Humans, Jensen K, Journal Article, Male, Middle Aged, Muscles/physiology, Myocardial Infarction/blood, Pain/blood/etiology, Radioimmunoassay/methods, Scandinavian Journal Of Clinical And Laboratory Investigation, Tourniquets
Increase of plasmatic beta-endorphin immunoreactive material in children in the perioperative period: the influence of the site of surgery
Tags: 2008, Adaptation, Adolescent, Ambulatory Surgical Procedures/adverse effects/statistics & numerical data, Analysis of Variance, Bachiocco V, Backlog, beta-Endorphin/blood/immunology, Child, European Journal Of Pediatric Surgery, Female, Gentili A, Humans, Journal Article, Lima M, Linear Models, Male, Mastrolia A, Perioperative Care/statistics & numerical data, Physiological/immunology, Pipitone E, Preschool, Stress/immunology, Time Factors
Impact of palliative care case management on resource use by patients dying of cancer at a Veterans Affairs medical center
Tags: 2005, Aged, Back AL, Backlog, Case Management/organization & administration, Comorbidity, Comparative Study, Female, Hospitals, Humans, Journal Article, Journal of Palliative Medicine, Length Of Stay, Li YF, Logistic Models, Male, Middle Aged, Neoplasms/mortality/therapy, Palliative Care/statistics & numerical data/utilization, Retrospective Studies, Sales AE, Terminal Care, Veterans
Decision making in pediatric oncology: Views of parents and physicians in two European countries
Tags: 2017, Adult, AJOB empirical bioethics, Badarau DO, Child Parent Relation, clinical protocol, Colita A, De CE, Decision Making, Doctor Patient Relation, Elger BS, Female, Human, Interpersonal Communication, Kuhne T, Male, Middle Aged, neoplasm/th [Therapy], Oncologist, Oncology, Oncology 2018 List, Parent, Patient Participation, Pediatrics, Physician, Qualitative Research, Quality Of Life, Romania, Ruhe K, Switzerland, Wangmo T
Social and behavioral problems of children with agenesis of the corpus callosum
Tags: 2007, Agenesis of Corpus Callosum, agenesis of the corpus callosum, Aggression, alertness, Andrews G L, Attention, Autistic Disorder/epidemiology, Badaruddin D H, Behavior, behavioral, Bolte S, Brown W S, characteristics, Child, Child Preschool, Child Behavior Disorders/epidemiology, Child Psychiatry and Human Development, Female, Humans, Male, Paul L K, Schilmoeller G, Schilmoeller K J, sleep disturbance, Social Behavior, Surveys And Questionnaires, Trajectory
"It's not about treatment, it's how to improve your life": The lived experience of occupational therapy in palliative care
Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly
Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit
Fathers' experiences of their child's life-limiting condition: An attachment narrative perspective.
Tags: *Chronic Disease/px [Psychology], *Father-Child Relations, *Fathers/px [Psychology], *Object Attachment, 2018, 2023 SE4 - Parent Perspectives, Adolescent, Adult, Bailey-Pearce, Oliver, Child, Clinical Child Psychology And Psychiatry, Dallos, Rudi, Davis, George, Female, Humans, Male, Middle Aged, Qualitative Research, Stedmon, Jacqui
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
Tags: 2009, Adolescent, African Continental Ancestry Group, Althoff J, Baker JN, Burghen EA, Cancer Care Facilities, Child, Decision Making, European Continental Ancestry Group, Female, Funk A, Gattuso JS, Hinds PS, Humans, Infant, Journal of Palliative Medicine, Kane JR, Liu W, Male, Medical Audit, Oncology 2017 List, Pediatrics, Preschool, Rai S, Resuscitation Orders, Srivastava K, Terminal Care, United States, West N, Zawistowski CA
Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
Tags: 2009, Adaptation, Affect, Aged, Ahles TA, Backlog, Bakitas M, Balan S, Brokaw FC, Byock IR, Emergency Service, Female, Health Services/utilization, Hegel MT, Hospital/utilization, Hospitalization/statistics & numerical data, Hull JG, Humans, Intensive Care Units/utilization, Intervention, Interventions, JAMA, Journal Article, Kaplan-Meiers Estimate, Length Of Stay, Li Z, Lyons KD, Male, Middle Aged, Neoplasms/mortality/nursing/psychology/therapy, Outcomes, Palliative Care/methods, Patient Care Team, Patient Education as Topic, Patient Participation, Psychological, Quality Of Life, Seville J, Sickness Impact Profile, Social Support, Terminally Ill/psychology, Tosteson TD, Treatment Outcome
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Development of symptom assessment service at a children's hospice
Tags: 2018, Archives of Disease in Childhood, Balfe JM, Booth A, Cassidy M, Central Nervous System, Child, Clinical Article, conference abstract, Disability, Female, Health Care Personnel, Hospice, Human, June 2018 List, Male, medical assessment, Medical Record Review, molecular recognition, Nursing, Patient Referral, Retrospective Study, Staff, Symptom Assessment, Telephone
Effects of sibling death on teenagers
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Balkin E M, Blume E D, Cardiac Surgeon, Cardiologist, Child, Clinical Study, Clinical Trial, Controlled Clinical Trial, Controlled Study, Female, Heart Failure, Human, Intensivist, Kaufman BD, Kirkpatrick J N, Life Expectancy, Male, Medical School, Multicenter Study, Palliative Therapy, Pediatric Cardiology, Pediatric cardiology., September 2017 List, Skill, Sleeper L A, Swetz K M, Terminal Care, Wolfe J
Retrospective cross-sectional review of survival rates in critically ill children admitted to a combined paediatric/neonatal intensive care unit in Johannesburg, South Africa, 2013-2015
Tags: 2016, Argent A, Ballot DE, Birth Weight, Bmj Open, Cause Of Death, Child, Chirwa T, Cooper PA, Critical Illness/ Mortality, Cross-sectional Studies, Davies VA, Female, Health services administration & management, Hospitalization/ statistics & numerical data, Humans, Infant, Infant Newborn, Infant Newborn Diseases/ mortality, Infant Very Low Birth Weight, Intensive Care Units Neonatal, January 2018 List, Male, Mer M, Neonatology, Patient Discharge/ statistics & numerical data, Population Surveillance, Retrospective Studies, Risk Factors, South Africa/epidemiology, Survival Rate/ trends
Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review
Nonheart failure-associated elevation of amino terminal pro-brain natriuretic peptide in the setting of sepsis
Tags: 2006, 80 And Over, Aged, Backlog, Bar SL, Biological Markers/blood, Brain/blood, Congestive/blood/drug therapy, Fatal Outcome, Female, Heart Failure, Humans, Ignaszewski A, Journal Article, Male, Natriuretic Peptide, Peptide Fragments/blood, Protein Precursors/blood, Sepsis/blood/drug therapy, Straatman L, Swiggum E, Telemeres, The Canadian Journal Of Cardiology
Beta-endorphin mediates behavioral despair and the effect of ethanol on the tail suspension test in mice.
Tags: 2010, Adaptation, Alcoholism, Clinical And Experimental Research, Allen SS, Animal, Animal/physiology, Animals, Backlog, Barfield ET, Barry SM, Behavior, beta-Endorphin/genetics, beta-Endorphin/physiology, Central Nervous System Depressants/pharmacology, Depression/physiopathology, Ethanol/pharmacology, Female, Grisel JE, Hindlimb Suspension/psychology, Hodgin HB, Journal Article, Male, Mice, Models, Psychological/physiology, Psychological/physiopathology, Psychological/psychology, Sex Characteristics, Stress, Thompson BM, Transgenic
Prevalence and Incidence of Anxiety and Depression among Children, Adolescents, and Young Adults with Life-Limiting Conditions: A Systematic Review and Meta-analysis
Tags: 2019, Adolescent, Adult, anxiety, Article, Barker MM, Beresford B, Bland M, Child, data extraction, Depression, Embase, Female, Fraser LK, Human, Human Tissue, Incidence, Interview, JAMA Pediatrics., Male, Medline, meta analysis, Monitoring, Organisation for Economic Co-operation and Development, Prevalence, psychologic assessment, Psycinfo, Regression Analysis, September 2019 List, synthesis, Systematic Review, Young Adult