Browse Items (243 total)
- Tags: Controlled Study
Speaking a different language: Communication patterns of palliative care and pediatric intensive care unit providers during family conferences
Tags: 2017, audio recording, Ciriello A G, conference abstract, Controlled Study, December 2018 List, genetic transcription, Health Care Personnel, hopelessness, Human, Human Experiment, Language, Medical Information, October TW, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Quality Of Life, Retrospective Study, Speech, Thematic Analysis, Uncertainty
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Tags: 2018, Adult, Advance Care Planning, Awareness, Basile M, Caregiver, Chen E, Child, clinical assessment, conference abstract, Controlled Study, December 2018 List, Dellon EP, depression assessment, Education, Faro A, Female, Georgiopoulos A, Goggin JL, Goss CH, Hempstead SE, Hobler M R, Hospice, Human, Kavalieratos D, Kruskal Wallis test, lung, Major Clinical Study, Male, Pain Assessment, Palliative Therapy, Pediatric Pulmonology, Perception, Prognosis, Skill
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
A new kind of language barrier: Examining disparities in medical teams' referrals of palliative care patients to Pediatric psychology
Tags: 2018, Adult, biological product, Cancer Patient, Child, Child Psychology, Complication, conference abstract, Controlled Study, Death, December 2018 List, Education, Female, Human, Karfunkle B, Language, Male, Malignant Neoplasm, Medical Record Review, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric patient, Retrospective Study, Schneider N, Social Care, Speech, Steinberg D, United States
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
Brazilian Neonatal Nurses' Palliative Care Experiences
Tags: 2018, Article, Borges Silva AR, Brazil, Carmona EV, Cleveland LM, Clinical Article, Controlled Study, Convenience Sample, Darilek U, de Castro de Oliveira F, Developing World 2018 List, Education, Exploratory Research, Female, genetic transcription, Grief, Human, Human Experiment, Infant, Interview, Male, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Palliative Therapy, Quality Of Life, quality of nursing care, registered nurse, teaching hospital, The Journal Of Perinatal & Neonatal Nursing, Thematic Analysis, vulnerable population
Integrating palliative care into the care of paediatric patients at a referral hospital in ghana
Tags: 2018, Analgesic Agent, Asiamah C, Child, Child Health, Communication Skill, conference abstract, Controlled Study, Developing World 2018 List, doctor nurse relation, Education, Ghana, Health Care Personnel, Human, middle income country, oncology ward, Osei-Tutu L, Ossei-Sekyere B, Pain Assessment, Paintsil V, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric patient, pediatric ward, psychosocial care, teaching hospital
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Tags: 2018, Artificial Ventilation, Brain Death, Cause Of Death, Child, Chuah S L, conference abstract, Controlled Study, Decision Making, developing country, Developing World 2018 List, Drug Withdrawal, Female, Gan CS, Ho AMM, Human, inotropic agent, Isa MR, Jalil R, Length Of Stay, Life Sustaining Treatment, liver failure, Lum LC, Major Clinical Study, Male, Mortality Rate, organ donor, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Prospective Study, Resuscitation, Secondary Analysis, Tang SF, Teh K H, Total Quality Management, Zainal Abidin AS
Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand
Tags: 2018, 52-26-6 (morphine), 57-27-2 (morphine), Bereavement, Brain Tumor, cancer center, Cancer Recurrence, Cancer Survival, Cancer Therapy, Chamnanprai S, Child, Childhood Cancer, Cohort Analysis, conference abstract, Controlled Study, Counseling, Death, Developing World 2018 List, Female, Follow Up, Home Visit, Human, Leukemia, Lymphoma, Major Clinical Study, Male, median survival time, Morphine, Nuchprayoon I, Pain, Palliative Therapy, Pediatric Blood and Cancer, Quality Of Life, Raksrithong T, solid malignant neoplasm, Thailand
Challenges of palliative care in children with inborn metabolic diseases
Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult
Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Tags: 2018, Alabama, Bakitas M, Boss R, Chi Square Test, Child, conference abstract, Controlled Study, Currie E, Dionne-Odom JN, Ejem D, February 2019 List, Female, health disparity, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, Medical Record Review, Mississippi, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, race, Resuscitation, Statistics, Terminal Care, Wolfe J
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
Rapid whole-genome sequencing decreases infant morbidity and cost of hospitalization
Tags: 2018, acutely ill patient, Article, Bainbridge MN, Benson W, Cakici JA, Childhood Mortality, Chowdhury S, Clark MM, Clinical Article, Cohort Analysis, Controlled Study, Cost Control, diagnostic test accuracy study, Diagnostic Value, Dimmock D, Ding Y, Farnaes L, February 2019 List, Female, Friedman J, genetic screening, Gold JJ, Hildreth A, hospitalization cost, Human, Infant, infant disease/di [Diagnosis], infant disease/dm [Disease Management], Kaplan RH, Kingsmore SF, Kronick R, Male, mortality risk, Nahas S, NLJ Genomic Medicine, Palliative Therapy, Priority Journal, rapid whole genome sequencing, Retrospective Study, risk reduction, Sensitivity and Specificity, Sweeney NM, Veeraraghavan N, whole genome sequencing
Exploring Resident Physicians' Experiences Practicing in Pediatric Palliative Care: A Hermeneutic Method of Inquiry
Tags: 2018, Charles G, Child, Chronic Patient, conference abstract, Controlled Study, Data Analysis, Death, February 2019 List, genetic transcription, Grief, Guilt, Human, Johnson A, Journal of Pain and Symptom Management, Medical Education, Palliative Therapy, Pediatrics, Perception, Personal Experience, Phenomenology, Qualitative Research, Resident, Rotation, Semi Structured Interview, Siden H, Student
Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services
Tags: 2018, Adult, Adult Child, Article, Bennett V, Child, Controlled Study, dilution, facilitation, February 2019 List, Female, Human, Interview, joint, Journal Of Advanced Nursing, Learning, Major Clinical Study, Male, Non Profit Organization, Noyes J, Palliative Therapy, Pritchard A, Pritchard S, Qualitative Analysis, Rees S, Secondary Analysis, Sibling, Skill, Social Isolation, social media, Social Support, Total Quality Management, Transition To Adult Care
Memory-Making in Neonatal End-of-Life Care
Perceptions of barriers and facilitators to early integration of pediatric palliative care: A national survey of pediatric oncology providers
Tags: 2018, Article, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Dalberg T, Friebert S, Human, McNinch NL, Nurse Practitioner, Oncologist, Oncology 2018 List, Only Child, outcome assessment, Palliative Care, Palliative Therapy, Patient Care, Patient Education, Pediatric Blood and Cancer, Perception, Prognosis, Social Work, Software
End-of-life care in children with hematologic malignancies
Tags: 2017, 52-26-6 (morphine), 57-27-2 (morphine), Adolescent, Adult, Article, Balzer S, Blood Transfusion, Borkhardt A, Child, Child Care, Clinical Article, Cohort Analysis, Controlled Study, Fatigue, Female, hematologic malignancy/dt [Drug Therapy], hematologic malignancy/th [Therapy], Hoell JI, Home Care, Hospital Mortality, Human, Intensive Care Unit, Janßen G, Kuhlen M, Male, Morphine/dt [drug Therapy], mucosa inflammation, Oncology 2018 List, Oncotarget, Palliative Therapy, pallor, Patient Referral, petechia, prescription, Retrospective Study, somnolence, Terminal Care, treatment duration, walking difficulty, Warfsmann J
Illness and end-of-life experiences of children with cancer who receive palliative care
Tags: 2018, Article, Artificial Ventilation, Baker JN, Blazin L, cancer center, cancer susceptibility, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Cost Effectiveness Analysis, data extraction, Death, DeMarsh S, Experimental Therapy, Female, Gushue CA, Hospice, Hospital Patient, Hospitalization, Human, Intensive Care Unit, invasive procedure, Jerkins J, Johnson LM, Kaye EC, Levine DR, Life Change Events, Lu Z, Major Clinical Study, Male, Morrison RR, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Personal Experience, phase 1 clinical trial, Quality Of Life, Resuscitation, Retrospective Study, Snaman JM, Sykes A
Courageous conversations: Advance care planning and family communication
Tags: 2018, Adult, Advance Care Planning, anxiety assessment, anxiety disorder, Battles H, conference abstract, Controlled Study, Conversation, Cooperation, De Arruda Colli MNF, Donovan KA, Fasciano K, Follow Up, Heath C, Human, Leonard S, Lyon M, Oncology 2018 List, Pao M, Pediatric Blood and Cancer, social media, Wiener L, Young Adult, Zadeh BS
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
Access to Pediatric Palliative Care in the Neonatal Intensive Care Unit by Minorities and Rural-Dwellers in the Deep South: Patterns of Care from 2009-2017 (S816)
Tags: 2019, African American, Alabama, Bakitas M, Boss R, Buckingham S, Caucasian, Child, conference abstract, Controlled Study, Currie E, Data Analysis Software, Dionne-Odom J, Ejem D, Female, Hospice, Hospitalization, hospitalized infant, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, March 2019 List, McKillip K, Medicaid, Medical Record Review, Mississippi, Mortality, Neonatal Intensive Care Unit, Palliative Therapy, Perna S, Prematurity, Resuscitation, Retrospective Study, Statistics, time of death, travel, Wolfe J
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care (FR452)
Tags: 2019, bath, Child, college, Comfort, conference abstract, Controlled Study, Feasibility Study, Grossoehme D, Human, illumination, injury, Intensive Care Unit, Interview, Job Satisfaction, Journal of Pain and Symptom Management, Lane J, Light, March 2019 List, Memory, Morality, mourning, Posthumous Care, Privacy, Staff, Student, Terminal Care, Thienprayoon R, thinking
End-of-Life Decisions 20 Years after EURONIC: Neonatologists' Self-Reported Practices, Attitudes, and Treatment Choices in Germany, Switzerland, and Austria
Tags: 2018, Adolescent, Adult, Advanced Cancer, anxiety, Bradford M, cancer pain, Cancer Patient, Child, conference abstract, Controlled Study, Disease Course, Female, Human, Journal of Clinical Oncology. Conference, Lau N, Major Clinical Study, Male, May 2019 List, Nausea, Palliative Therapy, Pediatric Quality of Life Inventory, Quality Of Life, Randomized Controlled Trial, Rosenberg AR, Scott S, Secondary Analysis, Speech, Steineck A, stress management, Yi-Frazier J P, Young Adult
Development and integration of a perinatal palliative care program at a tertiary care center
Tags: 2019, Abortion, anencephalus, Child, Clergy, Comfort, conference abstract, Controlled Study, electronic medical record, Female, Fetus Malformation, Hospice, Human, Intensive Care, Journal Of Investigative Medicine, June 2019 List, May R, Neonatologist, Newborn, Nurse, Oklahoma, Palliative Therapy, Perinatal Care, Practice Guideline, Prenatal Diagnosis, Shah B A, Social Worker, tertiary care center, White L, Wlodaver A
Pediatric Complex Chronic Conditions: Does the Classification System Work for Infants?
Tags: 2019, African American, Article, Attention, Caucasian, Child, Chronic Disease, Comorbidity, Complex Chronic Conditions, Controlled Study, end-of-life, Fortney C A, hcup kid, Health Care Cost, Hospital Patient, Human, Infant, Infants, Insurance, June 2019 List, Lindley L C, Neonates, Palliative Therapy, Prevalence, Regression Analysis, Serious Illness, The American Journal of Hospice & Palliative Care
When a child becomes terminal: Discrepant adolescent and parent perspectives on discussing a terminal prognosis with adolescents with cardiomyopathy, heart failure, and heart transplant
Tags: 2018, Adolescent, Advance Care Planning, Cancer Prognosis, Cardiomyopathy, Child, Circulation. Conference, Cohen H, conference abstract, Controlled Study, Conversation, Death, Edwards L A, Halpern-Felsher B, Hansen K, Heart Failure, heart graft, Human, June 2019 List, Kaufman B, Luong R, Malignant Neoplasm, Outpatient, Perception, Prognosis, School Child, Yohannes K
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M
Palliative Care in the Pediatric Emergency Department: Findings From a Qualitative Study
Tags: 2019, Annals of Emergency Medicine., Article, Child, clinical evaluation, Controlled Study, Cote A J, Critically Ill Patient, Distress Syndrome, Emergency Ward, Female, Gaucher N, genetic transcription, Human, Intensive Care, July 2019 List, Major Clinical Study, Male, Palliative Therapy, Patient Care, Payot A, pediatric emergency medicine, Qualitative Research, Software, Thematic Analysis, theoretical study
Differences in Advance Care Planning and Circumstances of Death for Pediatric Patients Who Do and Do Not Receive Palliative Care Consults: A Single-Center Retrospective Review of All Pediatric Deaths from 2012 to 2016
Tags: 2019, Advance Care Planning, Article, Benson RJ, Brogden NK, Child, Controlled Study, do not resuscitate order, Female, Gilbertson-White S, Harmoney K, Hospice, Human, Journal of Palliative Medicine, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record Review, Mobley EM, Palliative Therapy, pediatric patient, Physician, Retrospective Study, September 2019 List, Statistics, tertiary care center, time of death
Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Tags: 2019, Adult, anxiety, Article, Bereavement, Center for Epidemiological Studies Depression Scale, Child, Controlled Study, Denmark, Depression, Education, Ekholm O, Father, Female, Human, Journal of Pain and Symptom Management., Lykke C, Major Clinical Study, Male, Mother, Olsen M, Palliative Therapy, Questionnaire, Schmiegelow K, September 2019 List, single (marital status), Sjogren P, Young Adult
Implications of Pediatric Palliative Consultation for Intensive Care Unit Stay
Tags: 2019, Adolescent, Adult, Article, Caucasian, Child, child hospitalization, Childhood Cancer, Cohort Analysis, confidence interval, Controlled Study, Demography, Female, health Insurance, Hospital Admission, Human, Humphrey LM, Infant, Journal of Palliative Medicine, Length Of Stay, Major Clinical Study, Male, Miller R, Newborn, Palliative Therapy, Patient Referral, Pediatric Hospital, Pediatric Intensive Care Unit, Retrospective Study, Rossfeld ZM, September 2019 List, Tobias JD, Tumin D
Interdisciplinary Perspectives on the Value of Massage Therapy in a Pediatric Hospice
Tags: 2019, accident prevention, Article, August 2019 List, Bainbridge L, Child, Clinical Article, Clinician, Comfort, Controlled Study, Egeli D, Female, Hospice Care, Human, Human Dignity, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association., leisure, Male, Massage, Miller T, Perception, Potts J, rest, Self Care, Semi Structured Interview, Staff, Thematic Analysis
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric study
Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease
Rapid response physiotherapy service in patients with life limiting conditions
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Child, Clinical Article, conference abstract, Controlled Study, Female, Griffin H, Hospital Admission, hospital bed, Hospitalization, Human, lower respiratory tract infection, Male, Michael A, Milner S, physiotherapist, Physiotherapy, Quality Of Life, Risk Assessment, Sample Size
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult