Browse Items (7199 total)
Perceived potentially inappropriate treatment in the PICU: frequency, contributing factors and the distress it triggers
Social work practice in perinatal palliative care: an overview
Tags: 2024, Adult, April List 2024, Article, Bereavement, care behavior, collaborative care team, Female, Health Care Access, Human, Knowledge, Male, Palliative Care, Palliative Therapy, Quality Of Life, Santiago-Warner S, Social Justice, Social Work, Social Work in Health Care, Social Work Practice, Social Worker
Exploring Parent Experiences With Early Palliative Care Practices in the NICU
End of life care for infants, children and young people with life-limiting conditions
Flourishing, religion, and burnout among caregivers working in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Article, Burnout, Caregiver, Child, Controlled Study, Convenience Sample, Coping, Cross-sectional Study, Doolittle BR, Dying, Female, Human, International Journal of Psychiatry in Medicine, Job Satisfaction, job stress, life satisfaction, Male, Multidisciplinary team, Oberholzer AE, Palliative Care, Palliative Therapy, Prevalence, Qualitative Analysis, Religion, South Africa, terminally Ill Patient, work environment
The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care
Tags: 2024, Adolescent, April List 2024, Article, Caregiver, Child, Clinical Article, clinical assessment tool, Clinical Practice, Clinics and Practice, Coping, Coping Strategy Questionnaire, Family, Female, grandchild, grandparent, Human, Male, Nogueira AJ, Palliative Care, Palliative Therapy, Portugal, psychologic assessment, Ribeiro MT, Semi Structured Interview, Sibling, Social Support
Psychometrics assessment of ethical decision-making around end-of-life care scale for adolescents in the final stage of life
Tags: 2023, Adolescent, April List 2024, Article, case control study, Child, confirmatory factor analysis, Cronbach alpha coefficient, Decision Making, Ethical Decision Making, exploratory factor analysis, Female, Frontiers in Pediatrics, Health Care Personnel, Hosseiny SMM, Human, Human Experiment, Internal Consistency, Iran, Khazaei S, Male, Masoumi SZ, Mohammadi F, nurse manager, Psychometrics, psychometry, Reliability, Terminal Care, Validity
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease
Consumer and provider perceptions of the specialist unit model of care: A qualitative study
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Collaboration: How does it work according to therapists and parents of young children? A systematic review
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Tags: 2024, Adaptation Psychological, April List 2024, Attention, Castor C, Child, Emotions, Hermeneutics, Humans, International Journal Of Qualitative Studies On Health And Well-being, Kittelsen TB, Kvarme LG, Lee A, Life-limiting Condition, Life-threatening Condition, lived experience, Male, paediatric palliative care, Parents, Sibling, Siblings, Winger A
Survival, short-term morbidity of extremely low gestational age infants and their predictors
Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis
How to move forward in shared decision-making in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Aris-Meijer JL, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Decision Making, Human, Infant, Joren CY, Lantos J, Palliative Care, Palliative Therapy, shared decision making, special situation for pharmacovigilance, Therapy, Verhagen AAE
Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment
Tags: 2024, Adult, April List 2024, Article, Beck AF, Child, Chronic Disease, Cohort Analysis, Controlled Study, Corley AMS, Cortezzo DE, economic inequality, Ethnicity, Female, Gestational Age, Hispanic, Human, Jones MN, Journal of Pediatrics, Major Clinical Study, Male, Medicaid, Morbidity, Mortality, Multidisciplinary team, Neurologic Examination, Only Child, Patient Referral, primary medical care, racial disparity, racism, Referral And Consultation, Retrospective Study, Simpson SL, Socioeconomic Factors, special situation for pharmacovigilance, tertiary care center, Thienprayoon R, Thomson J
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Investigation of the impact of paediatric hospices on the quality of care of paediatric nurses
A "good" death in a pediatric ICU: Is it possible?
Grieving Children' Death in an Intensive Care Unit: Implementation of a Standardized Process
Monitoring of physiologic features and treatment aspects of children on home invasive mechanical ventilation
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
The most painful estrangement: Death at birth
Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Tags: 2023, alternative medicine, Article, Bottigelli C, Burnout, Campione G, care behavior, Child, Child Psychology, Ciappina S, Clinical Practice, clinical psychology, Controlled Study, diastolic blood pressure, Emotional Stress, Fagioli F, Health Care Personnel, Heart Rate, Human, Italy, Lijoi S, March List 2024, Nurse, oxygen saturation, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Parrinello A, Pilot Projects, Pilot Study, Piu P, Psychologist, Quarello P, Reiki, Self Care, special situation for pharmacovigilance, systolic blood pressure, work environment, Workplace, Zucchetti G
Evaluation of paediatric palliative care ambulance plans: A retrospective study
Tags: 2024, ambulance, Article, Australia, Child, Coombs S, data completeness, Drug Therapy, Drug Use, Human, Jaaniste T, Journal Of Child Health Care, Male, March List 2024, New South Wales, Palliative Care, Palliative Therapy, paramedical personnel, Retrospective Studies, Retrospective Study, Scope Of Practice, Shepherd E, special situation for pharmacovigilance, Terminal Care, Trethewie S, Vaughan A, Wan J
Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia
Tags: 2023, Article, Australia, Bmj Open, care behavior, Child, courage, Decision Making, Gillam L, Human, Hynson J, Interpersonal Communication, Interview, Male, March List 2024, O'Neill J, Palliative Therapy, Parent, Pediatrician, Phenomenology, shared decision making, Signal Transduction, Simulation, Vemuri S, Williams K
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
Home-Based Pediatric Hospice and Palliative Care Provider Visits: Effects on Healthcare Utilization
The needs of healthcare personnel who provide home-based pediatric palliative care: a mixed method systematic review
Parents' experiences of palliative care decision-making in neonatal intensive care units: An interpretative phenomenological analysis
Tags: 2024, Acta Paediatrica, ambivalence, Article, Clinical Article, Decision Making, Father, Female, Human, Infant Newborn, Intensive Care Units, Interview, Lamore K, Life Sustaining Treatment, Male, March List 2024, meaning-making, Medical Ethics, Mur S, Nandrino JL, Neonatal Intensive Care Unit, Newborn Intensive Care, Palliative Therapy, Parent, Prieur C, Qualitative Research, Rethore S, SaintDenny K, shared decision making, Storme L
The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K
Increasing Access to Care: Designing a Blended Curriculum to Educate Adult Hospice Nurses in Caring for Pediatric Patients
Tags: 2024, Abdallah SM, Fisher D, Hospices, Lyons LB, March List 2024, McDonald PL, Nursing Forum
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Palliative Care in the Neonatal Intensive Care Unit: An Evolutionary Concept Analysis of Uncertainty in Anticipated Loss
Tags: 2024, Advances in Neonatal Care, Article, Complication, Concept analysis, Confusion, Diagnosis, Dick T, Drug Administration, Dudding KM, Fazeli PL, Genetic Disorder, genetic screening, Human, Infant, Infant Newborn, Lenington K, March List 2024, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Nurse, Palliative Care, Palliative Therapy, Patrician P, Prognosis, Uncertainty
Ethical, Cultural, Social, and Individual Considerations Prior to Transition to Limitation or Withdrawal of Life-Sustaining Therapies
Tags: 2018, Balit CR, Carnevale FA, Child, Child Parent Relation, Critical Illness/th [therapy], Decision Making, Ethics, Female, Human, Kirsch RE, Larcher V, Latour JM, Male, March List 2024, Patient Participation, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, social media, Terminal Care, transcultural care, Treatment Withdrawal
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Thirty-day mortality as a metric for palliative radiotherapy in pediatric patients
Tags: 2023, Adult, Article, biological marker, Child, Current Opinion in Supportive and Palliative Care, Female, Human, Johnstone PAS, Keit E, Male, March List 2024, Metronidazole, Mortality, Nanda R, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, Quality Of Life, Radiotherapy, terminally Ill Patient
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal