Browse Items (291 total)
- Tags: Newborn
Neonatal end-of-life care: A single-center NICU experience in Israel over a decade
Tags: 2013, adrenal insufficiency/ep [Epidemiology], anemia/ep [Epidemiology], Article, Bar-Oz B, brain edema/ep [Epidemiology], brain hemorrhage/ep [Epidemiology], Cause Of Death, Child Parent Relation, congenital malformation/ep [Epidemiology], Eventov-Friedman S, Gestational Age, Human, Incidence, Israel, Jerusalem, Kanevsky H, kidney failure/ep [Epidemiology], March 2018 List, Medical Decision Making, Middle East, necrotizing enterocolitis/ep [Epidemiology], Newborn, Newborn Care, Newborn Death, newborn hypoxia/ep [Epidemiology], Newborn Intensive Care, newborn mortality, newborn sepsis/ep [Epidemiology], Pediatrics, Practice Guideline, Prematurity, Priority Journal, Quality Of Life, Religion, respiratory failure/ep [Epidemiology], sepsis/ep [Epidemiology], shock/ep [Epidemiology], treatment duration
Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs
Tags: 2004, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Clark MJ, Family, Farmer JE, Health Services Needs And Demand, Health Services/standards, Humans, Infant, Journal Article, Journal of Pediatric Psychology, Marien WE, Newborn, Non-U.S. Gov't, Primary Health Care, Professional-family Relations, Questionnaires, Research Support, Selva TJ, Sherman A, Social Support
Hospital care for children and young adults in the last year of life: a population-based study
Tags: 2003, Adolescent, Adult, Age Factors, Backlog, Bmc Medicine, Child, Chronic Disease/classification/mortality/therapy, DiGiuseppe DL, Female, Feudtner C, Hospital Mortality, Hospitalization/statistics & numerical data, Humans, ICU Decision Making, Infant, Journal Article, Length Of Stay, Male, Neff JM, Newborn, P.H.S., Palliative Care/organization & Administration, Preschool, Research Support, Terminal Care/utilization, Terminally Ill/statistics & numerical data, U.S. Gov't, Washington/epidemiology
Shifting place of death among children with complex chronic conditions in the United States, 1989-2003
Tags: 2007, Adolescent, Attitude To Death, Backlog, Child, Chronic Disease/mortality, Feinstein JA, Female, Feudtner C, Hospitals/statistics & numerical data, Humans, Infant, Journal Article, Journal Of The American Medical Association, Kang T, Male, Newborn, Palliative Care/statistics & Numerical Data, Preschool, Residence Characteristics/statistics & numerical data, Retrospective Studies, Satchell M, Terminally Ill/statistics & numerical data, United States/epidemiology, Zhao H
Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations
Prediction of pediatric death in the year after hospitalization: a population-level retrospective cohort study
Tags: 2009, Adolescent, Backlog, Child, Cohort Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital Mortality, Humans, Infant, Journal Article, Journal of Palliative Medicine, Logistic Models, Male, Models, Mortality, Newborn, Patient Discharge, Pediatrics, Pennsylvania/epidemiology, Preschool, Prognosis, Retrospective Studies, Shabbout M, Silber JH, Sochalski J, Theoretical, Young Adult
Pediatric palliative care patients: a prospective multicenter cohort study
Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult
Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998
Tags: 2002, Adolescent, Backlog, Cause Of Death, Child, Christakis DA, Chronic Disease/mortality, Female, Feudtner C, Humans, ICU Decision Making, Infant, Journal Article, Location Of Death, Male, Newborn, P.H.S., Pediatrics, Preschool, Research Support, Retrospective Studies, Silveira MJ, Survival Analysis, U.S. Gov't, Washington/epidemiology
Distance from home when death occurs: a population-based study of Washington State, 1989-2002
Tags: 2006, Adolescent, Adult, Aged, Backlog, Child, Death, Emergency Service, Feudtner C, Health Services Accessibility, Hoskins RE, Hospital, Hospital Mortality, Hospitals, Humans, Infant, Journal Article, Location Of Death, Middle Aged, Newborn, Nursing Homes, Palliative Care, Pediatrics, Preschool, Residence Characteristics, Shabbout M, Silveira MJ, Terminal Care, Washington
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Infant deaths from congenital anomalies: novel use of Child Death Overview Panel data
Tags: 2018, Archives of Disease in Childhood, Cause Of Death, Congenital Abnormalities/mortality, congenital anomaly, Consanguinity, Death Certificates, Disabled Children, England/epidemiology, Ethnic Groups/statistics & numerical data, Ethnicity, Female, Firth C, Humans, Infant, Infant Death, Infant Mortality, Infant Mortality/ethnology, Male, Maternal Age, Newborn, Oddie SJ, Petherick E, Retrospective Studies, September 2019 List
Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Tags: 2017, Belghiti E, Brunet L, Decision Making/es [Ethics], Fournier V, France, Health Personnel/es [Ethics], Health Personnel/px [psychology], Humans, Infant, Intensive Care Units, Interviews As Topic, Medicine, Health Care & Philosophy, Morals, Neonatal/es [Ethics], Newborn, October 2018 List, Parents/px [psychology], September 2018 List, Spranzi M, Withholding Treatment/es [ethics]
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE
Place of death and palliative care following discharge from paediatric intensive care units
Tags: 2011, Adolescent, Archives of Disease in Childhood, Backlog, Child, Child Mortality, Cohort Studies, Draper ES, Female, Fraser LK, Great Britain/epidemiology, Home Care Services/statistics & Numerical Data, Hospice Care/statistics & Numerical Data, Hospitalization/statistics & numerical data, Humans, Infant, Intensive Care Units, Journal Article, Location Of Death, Male, McKinney PA, Miller M, Newborn, Paediatric Intensive Care Audit Network, Palliative Care/statistics & Numerical Data, Parslow RC, Patient Discharge/statistics & Numerical Data, Pediatric/statistics & Numerical Data, Preschool, Referral And Consultation/statistics & Numerical Data
Rising national prevalence of life-limiting conditions in children in England.
Tags: 2012, Adolescent, Adult, Aldridge J, Backlog, Child, Critical Illness/epidemiology, England/epidemiology, Female, Fraser LK, Hain R, Humans, Infant, Journal Article, Male, McKinney PA, Miller M, Newborn, Norman P, Palliative Care, Parslow RC, Pediatrics, Preschool, Prevalence, Retrospective Studies, Terminally Ill/statistics & numerical data, Young Adult
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium
Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T
Status quo of palliative care in pediatric oncology-a nationwide survey in Germany
Tags: 2005, Adolescent, Backlog, Brun S, Child, Data Collection, Female, Friedrichsdorf SJ, Germany/epidemiology, Home Care Services/statistics & numerical data/trends, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Location Of Death, Male, Medical Oncology/methods/trends, Menke A, Neoplasms/mortality/therapy, Newborn, Non-U.S. Gov't, Palliative Care/methods/statistics & numerical data/trends, Pediatrics/methods/trends, Physician's Practice Patterns/statistics & numerical data, Preschool, Research Support, Treatment Outcome, Wamsler C, Zernikow B
Center, Gestational Age, and Race Impact End-of-Life Care Practices at Regional Neonatal Intensive Care Units
Tags: 2019, Article, Asselin J, Bartman T, Black person, Brozanski B, Cause Of Death, Central Nervous System, Child, Coghill C H, Cohort Analysis, Controlled Study, Datta A, DiGeronimo R, do not resuscitate order, Drug Withdrawal, Durand D, Dykes F, Evans J, February 2020 List, Female, Fry J T, Gestational Age, Grover T, Human, Infant, injury, Journal of Pediatrics, Leuthner S R, Life Sustaining Treatment, Major Clinical Study, Male, Matoba N, Murthy K, Natarajan G, Neonatal Intensive Care Unit, Newborn, Newborn Death, Niehaus J Z, Padula M, Pallotto E, Piazza A, Reber K, Retrospective Study, Schlegel A B, Shah A, Short B, Sullivan K M, Terminal Care, Zaniletti I
Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care
Tags: 2023, Adult, Article, Bluebond-Langner M, BMC Palliative Care, Chant K, Child, Controlled Study, Delphi Study, February List 2024, Gallagher K, Health Care Personnel, Human, Interview, Male, Mancini A, Marlow N, Newborn, Newborn Death, Newborn Intensive Care, Palliative Therapy, Perinatal Death, Systematic Review, Terminal Care, Therapy, Total Quality Management
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Long-term follow-up of neonatal mitochondrial cytopathies: a study of 57 patients
Tags: 2005, Backlog, Child, De Lonlay P, Disease Progression, Diseases/blood/diagnosis/mortality, Female, Follow-up Studies, Garcia-Cazorla A, Humans, Infant, Journal Article, Lactic Acid/blood, Longitudinal Studies, Male, Mitochondrial Myopathies/blood/complications/diagnosis/mortality, Nassogne MC, Newborn, Pediatrics, Preschool, Prognosis, Rustin P, Saudubray JM, Touati G
Circumstances surrounding end of life in a pediatric intensive care unit
Tags: 2003, Adolescent, Adult, Analgesia, Attitude To Death, Backlog, Cause Of Death, Child, Cox PN, Decision Making, Female, Garros D, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Ontario, Parent-child Relations, Parents/psychology, Patient Care Team, Pediatric, Pediatrics, Physicians/psychology, Preschool, Resuscitation Orders, Rosychuk RJ, Terminal Care/psychology, Treatment Failure, Withholding Treatment
Menkes' kinky hair syndrome
Tags: 2005, Backlog, Cerebral Angiography, Ceruloplasmin/analysis, Copper/blood, George S, Histidine/administration & dosage/analogs & derivatives/therapeutic use, Humans, Indian Journal Of Pediatrics, Infant, Injections, Journal Article, Low Birth Weight, Male, Matthai SA, Menkes Kinky Hair Syndrome/blood/diagnosis/drug therapy/radiography, Newborn, Organometallic Compounds/administration & dosage/therapeutic use, Prognosis, Sosamma MM, Subcutaneous, Sukumaran TU
Palliative care in the neonatal intensive care unit: An Indian experience
Tracking neonatal nosocomial infection: the continuous quality improvement cycle
Tags: 2011, Aydon L, Backlog, Biggs S, Cross Infection/epidemiology/prevention & control, Gill AW, Humans, Incidence, Infant, Infant Care/methods/organization & administration/standards, Infection Control/methods/organization & administration/standards, Jones C, Journal Article, Keil AD, Newborn, Quality Improvement/organization & administration/standards, The Journal Of Hospital Infection
Neonatal palliative care: A single site clinical audit
Tags: 2019, Bereavement Support, Broadbent A, Cause Of Death, Child, Clinical Audit, conference abstract, Delaney A, Female, Gill K, gold, Herbert A, Hong T, Hospital Admission, Human, Journal of Paediatrics and Child Health, June 2019 List, Major Clinical Study, Male, Mickan S, Moloney S, Music Therapy, Newborn, Newborn Death, Noyes M, Nursing Staff, Palliative Therapy, Physiotherapy, Retrospective Study, Scuffham P, seashore, Social Work, Speech, Terminal Care, Weir K
Measuring parental grief after childhood cancer: potential use of the SCL-90R
Tags: 1997, Adolescent, Adult, Backlog, Bereavement, Child, Death studies, Evaluation Studies, Female, Gilliss CL, Humans, Infant, Journal Article, Longitudinal Studies, Male, Martinson IM, Middle Aged, Moore IM, Neoplasms, Newborn, Parent caregivers, Parents/psychology, Preschool, Psychological Tests, Questionnaires
Infantile systemic hyalinosis: newly recognized disorder of collagen?
Tags: 1991, Atherton DJ, Backlog, Collagen Diseases/metabolism/pathology/physiopathology, Female, Gingiva/pathology, Glover MT, Humans, Hyalin/metabolism, Hypertrophy, Infant, Jejunum/pathology, Joints/physiopathology, Journal Article, Lake BD, Movement, Newborn, Pain/etiology, Pediatrics, Prognosis, Skin/pathology/ultrastructure
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Pain management in children
Tags: 1991, Anti-Inflammatory Agents, Backlog, British Medical Bulletin, Child, Goldman A, Humans, Infant, Journal Article, Lloyd-Thomas AR, Narcotics/therapeutic use, Neoplasms/complications, Newborn, Non-Steroidal/therapeutic use, Pain, Pain Measurement/methods, Pain/drug therapy/etiology, Postoperative/drug therapy, Preschool
Pediatric acute pain management
Tags: 2000, Acute Disease, Analgesics, Anesthetics, Backlog, Child, Chronic Disease, Galloway KS, Golianu B, Human, Infant, Infusions, Intravenous, Journal Article, Krane EJ, Local/therapeutic use, Nebulizers and Vaporizers, Nerve Block/methods, Newborn, Non-Narcotic/administration & dosage/therapeutic use, Opioid/administration & dosage/blood/therapeutic use, Pain/drug therapy/physiopathology, Pediatric Clinics of North America, Preschool, Time Factors, Yaster M
Cultural Influences in Pediatric Cancer from Diagnosis to Cure/End of Life
Tags: 2014, Adaptation, Adolescent, Adult, Caregivers/px [psychology], Child, Cultural Characteristics, Gray WN, Humans, Infant, Journal Of Pediatric Oncology Nursing, Middle Aged, Neoplasms/px [psychology], Newborn, Oncology 2017 List, Pai AL, Patients/px [psychology], Preschool, Psychological, Regan SMP, Survivors/px [psychology], Szulczewski LJ, Williams JA
Indicators of family resilience after the death of a child
Tags: 2011, Adaptation, Adult, Anecdotes as Topic, Attitude To Death, Backlog, Belgium, Child, Female, Greeff AP, Grief, Herbiest T, Humans, Infant, Journal Article, Male, Middle Aged, Newborn, Object Attachment, Omega, Parent-child Relations, Parents, Preschool, Psychological, Resilience, Self Concept, Self-Help Groups, sibling bereavement, Social Adjustment, Social Support, Survivors, Vansteenwegen A
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Tags: 2015, Abortion, Adult, Aged, Alvarez-del-Rio A, Attitude Of Health Personnel, Attitude To Death, Decision Making, Euthanasia, Female, Fetal Diseases, Grether P, Humans, Induced/psychology, Infant, Lisker R, Loria A, Male, Mexico, Middle Aged, Newborn, Nurses/psychology, Palliative Care/psychology, Passive/psychology, Perinatal Care, Perinatal Death, Physicians/psychology, Pregnancy, Religion, Salud Publica De Mexico, Social Workers/psychology, Terminal Care/psychology, Young Adult