Browse Items (179 total)
- Tags: Major Clinical Study
The Incidence and Evolution of Parkinsonian Rigidity in Rett Syndrome: A Pilot Study
Tags: 2016, 5 hydroxyindoleacetic acid, Adolescent, Adult, Age, ankle, Article, Barrowman N, Canadian Journal of Neurological Sciences, Cerebrospinal Fluid, characteristics, Child, Cohort Analysis, Cross-sectional Study, Disease Severity, Dopamine, Dystonia, Female, genetic susceptibility, homovanillic acid, homovanillic acid/ec [Endogenous Compound], Human, Humphreys P, hva, Incidence, Major Clinical Study, mecp2, methyl CpG binding protein 2, methyl CpG binding protein 2/ec [Endogenous Compound], missense mutation, mobilization, muscle rigidity, muscle tone, musculoskeletal disease assessment, neck, parkinsonism, Pharmacokinetics, Pilot Study, Priority Journal, Prospective Study, Quantitative Study, Rett syndrome, Rett syndrome rigidity distribution score, rigidity, scoring system, Speech, tone and motor problems, Trajectory, walking difficulty
The Relationship Between Household Income and Patient-Reported Symptom Distress and Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study
Tags: 2018, Advanced Cancer, Al-Sayegh H, Article, Bona K, Cancer, Cancer Patient, Child, Cohort Analysis, Distress Syndrome, Dussel V, Female, Feudtner C, highest income group, household income, Human, Ilowite MF, Kang TI, lowest income group, Ma C, Major Clinical Study, Male, Oncology 2018 List, outcome assessment, Pain, Palliative Therapy, patient-reported outcome, Poverty, Prevalence, Quality Of Life, Rosenberg AR, Secondary Analysis, Wolfe J
A Prospective Study On The Characteristics And Subjects Of Pediatric Palliative Care Case Management Provided By A Hospital Based Palliative Care Team
Tags: 2017, BMC Palliative Care, Bosman DK, Caron HN, Case Management, Child, Clergy, Colenbrander DA, Controlled Study, Grootenhuis MA, Hospital, Human, Jagt Van Kampen CT, Kars MC, Major Clinical Study, March 2017 List, Nurse, Palliative Therapy, Prospective Study, Psychologist, Questionnaire, Schouten-Van Meeteren AYN, Social Worker
Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study
Tags: 2019, adverse event, Article, Barrington KJ, Bourque CJ, Brazg T, Child, Clinician, Death, Decision Making, Disability, Ethics, Farlow B, Female, Human, Janvier A, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, Questionnaire, September 2019 List, Social Support, Thematic Analysis, Trisomy 13, Trisomy 18, Trust, Wilfond B
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Disparities in the intensity of end-of-life care for children with cancer
Tags: 2017, Adolescent, Adult, Alvarez E, Article, Bhatia S, Cancer Chemotherapy, Caucasian, Chamberlain LJ, Child, Childhood Cancer, Childhood Mortality, Cohort Analysis, Controlled Study, Demography, Female, Health Care Disparity, Hematologic Malignancy, Hemodialysis, Hospital Admission, Hospital Mortality, Human, Infant, Intensive Care Unit, Intubation, Johnston EE, Major Clinical Study, Male, Newborn, Oncology 2017 List, Pediatrics, Population Research, Priority Journal, Resuscitation, Retrospective Study, Sanders L, Saynina O, Terminal Care
Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment
Tags: 2024, Adult, April List 2024, Article, Beck AF, Child, Chronic Disease, Cohort Analysis, Controlled Study, Corley AMS, Cortezzo DE, economic inequality, Ethnicity, Female, Gestational Age, Hispanic, Human, Jones MN, Journal of Pediatrics, Major Clinical Study, Male, Medicaid, Morbidity, Mortality, Multidisciplinary team, Neurologic Examination, Only Child, Patient Referral, primary medical care, racial disparity, racism, Referral And Consultation, Retrospective Study, Simpson SL, Socioeconomic Factors, special situation for pharmacovigilance, tertiary care center, Thienprayoon R, Thomson J
Illness and end-of-life experiences of children with cancer who receive palliative care
Tags: 2018, Article, Artificial Ventilation, Baker JN, Blazin L, cancer center, cancer susceptibility, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Cost Effectiveness Analysis, data extraction, Death, DeMarsh S, Experimental Therapy, Female, Gushue CA, Hospice, Hospital Patient, Hospitalization, Human, Intensive Care Unit, invasive procedure, Jerkins J, Johnson LM, Kaye EC, Levine DR, Life Change Events, Lu Z, Major Clinical Study, Male, Morrison RR, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Personal Experience, phase 1 clinical trial, Quality Of Life, Resuscitation, Retrospective Study, Snaman JM, Sykes A
Early Integration of Pediatric Palliative Care in Pediatric Hematopoietic Stem Cell Transplant Patients
Tags: 2023, Callard E, Child, conference abstract, Consultation, Controlled Study, Distress Syndrome, evidence based practice center, Female, Fisher J, Hematopoietic Stem Cell, Hematopoietic Stem Cells, Human, human cell, July List 2023, Kent L, Learning, Major Clinical Study, Male, Medical Record Review, Morbidity, Mortality, Palliative Care, Palliative Therapy, Pinner LA, Pyke-Grimm K, Retrospective Study, Risk Assessment, Satisfaction, staff training, Stem Cell Transplantation, Transplantation, Transplantation and Cellular Therapy, Williams M
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker
Parents' experiences of services for their child with a life-limiting neurodevelopmental disability
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Challenges to code status discussions for pediatric patients
Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care
Pediatric Cancer and Palliative Care in Conflict Affected Area
Tags: 2023, 2023 SE5 - Low Resource Setting, Awareness, cancer control, Cancer Patient, Cancer Survival, Child, conference abstract, Controlled Study, Female, health Insurance, Hospital Bed Capacity, Human, investment, Kutluk T, Major Clinical Study, Male, Medical Society, Opiate, Pain, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, Survival Rate, Turk (people), Turkey (republic), University Hospital
Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Tags: 2017, Adult, Article, Burnout, Correlation Analysis, Cross-sectional Study, Demography, Distress Syndrome, Dryden-Palmer KD, Female, Gibbons C, health practitioner, Hospital care, Human, Intensive Care, January 2018 List, Larson CP, linear regression analysis, Major Clinical Study, Male, Maslach Burnout Inventory Depersonalization Subscale, Middle Aged, Mishel Parent Perception of Uncertainty Scale, Morality, Neonatal Intensive Care Unit, Nurse, outcome assessment, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Priority Journal, Prognosis, Questionnaire, Rating Scale, Revised Moral Distress Scale, Terminal Care, tertiary care center, Uncertainty, Work, Young Adult
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Tags: 2017, Adolescent, Adult, City, Clinical Trial, Controlled Study, D'Angelo LJ, December 2017 List, Female, Houston PE, Human, Human Dignity, Human Immunodeficiency Virus, Journal of Palliative Medicine, Justice, Kimmel AL, Lee BC, Lyon ME, Major Clinical Study, Male, Medical Decision Making, Mortality, Multicenter Study, Nonhuman, Palliative Therapy, Pediatric Hospital, Rana SR, Randomized Controlled Trial, Single Blind Procedure, Stigma
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
Tags: 2023, Agrawal AK, Article, August List 2038, Bogetz JF, Child, Communication Barrier, Controlled Study, Education, Female, Fogel AH, Human, Journal of Palliative Medicine, Lelkes E, Levine A, Life Sustaining Treatment, Major Clinical Study, Male, McPoland P, Multicenter Study, Palliative Care, Palliative Therapy, Pediatric Hospital, Perception, personnel shortage, Physician, Prognosis, Resident, Thematic Analysis, United States, Winn PA
Families Are Not The Barrier: Evaluating Attitudes Toward Early Integration Of Palliative Care In Pediatric Hematopoietic Stem Cell Transplant
Tags: 2017, anxiety, Attention, Baker J, Child, Constipation, Diarrhea, Family, Female, Graft Recipient, Hematopoietic Stem Cell, Human, Levine D, Loss Of Appetite, Major Clinical Study, Male, Mandrell B, Nausea, October 2017 List, Pain, Palliative Therapy, Parental Attitude, Pediatric Blood and Cancer, Quality Of Life, School Child, Speech, Sykes A, Symptom
Impact of Palliative Care Integration on End-of-Life Outcomes in Pediatric Hematopoietic Cell Transplant
Tags: 2023, anxiety, Appetite, Baker JN, bleeding, bodily secretions, Child, conference abstract, Controlled Study, coughing, Cuviello A, Data Analysis, Demographics, Diarrhea, Distress Syndrome, do not resuscitate order, Documentation, Dyspnea, edema, Fatigue, Female, fever, hematopoietic cell, Hospice, Human, human cell, Intubation, Irritability, July List 2023, Levine DR, Lifespan, Major Clinical Study, Male, Medical Record Review, Nausea And Vomiting, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Retrospective Study, Surgery, Survival, Terminal Care, Transplantation, Transplantation and Cellular Therapy
Multiple Complex Chronic Conditions And Pediatric Hospice Utilization Among California Medicaid Beneficiaries, 2007-2010
The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries
Sign Me Up! Understanding Referral and Enrollment to Community-Based Pediatric Hospice and Palliative Care (FR420D)
Tags: 2020, Caliboso M, Child, Cohort Analysis, conference abstract, Controlled Study, Demography, Female, Hospice, Human, Insurance, Journal of Pain and Symptom Management, Lindley L, Lotstein D, Major Clinical Study, Male, March 2020 List, Neonatal Intensive Care Unit, Nervous System, Palliative Therapy, Patient Referral, Pediatric Hospital, Preschool Child, Retrospective Study, Speech, Total Quality Management, Wolfe J
Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Tags: 2019, Adult, anxiety, Article, Bereavement, Center for Epidemiological Studies Depression Scale, Child, Controlled Study, Denmark, Depression, Education, Ekholm O, Father, Female, Human, Journal of Pain and Symptom Management., Lykke C, Major Clinical Study, Male, Mother, Olsen M, Palliative Therapy, Questionnaire, Schmiegelow K, September 2019 List, single (marital status), Sjogren P, Young Adult
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
A simple system for symptom assessment in pediatric palliative care patients with cancer: A preliminary report
Tags: 2018, Anorexia, Bruera E, Caregiver, Charone M, Child, conference abstract, Controlled Study, Dibaj S, Fatigue, Female, Health Care Quality, Human, insomnia, Irritability, Journal of Clinical Oncology. Conference, Liu D, Loss Of Appetite, Madden K, Major Clinical Study, Male, Malignant Neoplasm, Mills S, nervousness, Oncology 2019 List, Pain, Palliative Therapy, Symptom Assessment, Williams J L
Symptoms and Suffering at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions (S756)
Tags: 2020, Adult, Central Nervous System, Child, Chromosome, Chronic Disease, conference abstract, Data Analysis, DeCourcey D, Dyspnea, Female, Human, Journal of Pain and Symptom Management, Kao P C, Ma C, Major Clinical Study, Male, March 2020 List, Marcus K, Medical Technology, Pain, Prospective Study, Wolfe J, Young Adult
What impedes timely pediatric palliative care consults? A preliminary report
International Children's Palliative Care Network: A Global Action Network for Children With Life-Limiting Conditions
Turning Water into Wine: A New Community Pharmacy Workforce Delivering Paediatric Palliative Care Services Across Scotland
Tags: 2018, 7732-18-5 (water), Child, community pharmacist, conference abstract, February 2019 List, Funding, Health Care Delivery, Heart, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, McCusker K, nursing theory, Palliative Therapy, pharmacy, Scotland, stakeholder engagement, summer, water, wine, workforce
Challenges in Establishing Optimal Pediatric Palliative Care at the University Hospital in Slovenia
The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early…
Tags: 2023, Article, Awareness, Bertok S, Child, Clinical Practice, doctor nurse relation, Education, employee, European Journal of Pediatrics, Female, Human, Kreft HI, Lepej D, Lesnik MP, library, Lisec A, Loboda T, Major Clinical Study, Male, March List 2023, Meglic A, Meglic J, Nurse, Ostir M, Palliative Care, Palliative Therapy, Physician, Ponjevic T, Psychologist, Questionnaire, Self Evaluation, Slovenia, University Hospital
Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
Tags: 2021, Advance Care Planning, Article, Bader P, Bereavement Counseling, Bereavement Support, Cause Of Death, Child, Children, Controlled Study, Corbacioglu S, Dalissier A, Descriptive Research, Ethics, Female, Galimard JE, Gjergji M, Hematopoietic stem cell transplantation, Hematopoietic Stem Cells, Home, Hospice, Hospital, Human, Hutt D, in-hospital mortality, July List 2023, Kenyon M, Kozijn A, Liptrott S, Major Clinical Study, Male, Mekelenkamp H, Mortality, Murray J, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Place Of Death, relapse, Retrospective Study, Schroder T, Spiritual Care, Stem Cell Transplantation, Trigoso E
Dysphagia in Rett Syndrome: A Descriptive Study
Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
Improving pediatric palliative care in a community-based setting through an ongoing education series
Tags: 2019, administrative personnel, Checklist, Child, Clergy, Comfort, community hospital, conference abstract, Conversation, do not resuscitate order, Dying, Education, Female, Hospice Care, Human, Likert scale, Major Clinical Study, Male, Moonat H, Needs Assessment, Nguyen L, Nurse, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pharmacist, Simulation, Social Worker, Texas
Influencing the national debate on medical assistance in dying (MAID): Leveraging the canadian paediatric surveillance system (CPSP) to inform the position of the canadian paediatric society (CPS)
Tags: 2018, Adult, Archives of Disease in Childhood, Canada, Canadian, Child, Complication, conference abstract, Conversation, Death, Disability, Female, Human, joint, June 2018 List, Law, Major Clinical Study, Male, Medical Care, Moore-Hepburn C, Morbidity, Palliative Therapy, Pediatrician, public figure, Public Health, Rare Disease, Young Adult