Browse Items (93 total)
- Tags: Diagnosis
"I don't want this to be in my biography": A qualitative study of the experiences of grandparents losing a grandchild due to a neurological or oncological disease
Tags: 2018, August 2018 List, Becker G, Bergstrasser E, Cause Of Death, Child, Clinical Article, Comfort, conference abstract, Diagnosis, Flury M, friend, grandchild, grandparent, Human, literature, Male, Memory, Oncology, Orellana-Rios C, Palliative Medicine, Palliative Therapy, Qualitative Research, Semi Structured Interview, son, Switzerland, Terminal Care
"Let's bring her home first." Patient Characteristics and Place of Death in Specialized Pediatric Palliative Home Care
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
A Survey Of Perinatal Palliative Care Programs In The United States: Structure, Processes, And Outcomes.
Perinatal palliative care (PPC) programs are proliferating nationwide, but little is known about their structure, process, or desired outcomes, to inform future program development.
OBJECTIVE:
To explicate structure, processes, and…
Acute onset of X-linked adrenoleukodystrophy mimicking encephalitis
Tags: 1994, Acute Disease, Adrenoleukodystrophy/diagnosis/drug therapy/genetics, Backlog, Brain & Development, Diagnosis, Differential, Donati MA, Encephalitis/diagnosis, Erucic Acids/therapeutic use, Fanelli F, Fatty Acids/blood, Fonda C, Humans, Infant, Journal Article, Linkage (Genetics), Male, Pazzaglia R, Q3 Scoping Review Results, Tomography, Tucci F, X Chromosome, X-Ray Computed, Zammarchi E
An unusual clinical and biochemical presentation of ornithine transcarbamylase deficiency in a male patient
Tags: 2006, Amino Acid Metabolism, Amino Acids/blood, Backlog, Bellizzi A, Burlina AB, Burlina AP, Child, Di Palma A, Diagnosis, Differential, Fatal Outcome, Humans, Inborn Errors/diagnosis, Journal Article, Journal Of Inherited Metabolic Disease, Male, Morrone A, Ornithine Carbamoyltransferase Deficiency Disease/blood/diagnosis, Ornithine Carbamoyltransferase/deficiency, Orotic Acid/urine, Peduto A, Preschool, Q3 Scoping Review Results, Sperli D
An update on the leukodsytrophies
Tags: 2001, Adult, Backlog, Boespflug-Tanguy O, Brain Diseases, Child, Current Opinion in Neurology, Diagnosis, Differential, Diseases/diagnosis/genetics, Glial Fibrillary Acidic Protein/genetics, Hereditary Central Nervous System Demyelinating, Human, Inborn/diagnosis/genetics, Journal Article, Metabolic, Myelin Proteolipid Protein/genetics, P.H.S., Schiffmann R, Support, U.S. Gov't
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Aspects Of Palliative Care In Child Neurology
Tags: 2016, Bereavement Counseling, Central Nervous System Tumor, Child, Child Care, Chromosome Aberration, Controlled Study, Coordination, Diagnosis, Family Study, Germany, Human, Human Experiment, June 2017 List, Metabolic Disorder, Neurologic Disease, Neurology, Neuropediatrics, Nolte-Buchholtz S, Only Child, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Spiritual Care, Terminal Care, Von Der Hagen M
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
Attention Bias Modification Treatment for Pediatric Anxiety Disorders: A Randomized Controlled Trial
Tags: 2012, Adolescents, American Journal Of Psychiatry, Anxieties, Anxiety in children, Apter A, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child & adolescent psychiatry, childhood, Children, Clinical outcomes, Depression, Diagnosis, Eldar S, FACIAL EXPRESSIONS, Fox NA, INDIVIDUALS, Influence, Journal Article, Lotan D, Management, MANIPULATION, Naim R, Perez-Edgar K, Pine DS, Psychiatry, THREAT, VULNERABILITY
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
Bereavement follow-up: Listening and learning
Tags: 2018, Bereavement, Child, Clinical Article, conference abstract, Consterdine K, Consultation, Diagnosis, Female, Follow Up, genetic transcription, Human, Intensivist, Learning, Male, Memory, November 2018 List, Nurse, Pediatric Critical Care Medicine, Ryan C, Staff, Subramanian G, Terminal Care
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Cataplexy in variant forms of Niemann-Pick disease
Tags: 1982, Adult, Annals Of Neurology, Backlog, Cataplexy/complications/diagnosis, Child, Diagnosis, Differential, Electroencephalography, Emerson RG, Epilepsy/diagnosis, Female, Humans, Journal Article, Kandt RS, Male, Moser HW, Niemann-Pick Diseases/complications/diagnosis, Ophthalmoplegia/complications, Preschool, REM, Singer HS, Sleep, Splenomegaly/complications, Valle DL
Cerebral palsy and neurodegenerative disease
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Changing landscape of paediatric palliative care
Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
Classification and definition of disorders causing hypertonia in childhood
Tags: 2003, Backlog, Child, Delgado MR, Diagnosis, Differential, Dystonia/complications/diagnosis, Gaebler-Spira D, Hallett M, Humans, Infant, Journal Article, Mink JW, Muscle Hypertonia/classification/etiology/physiopathology, Muscle Rigidity/complications/diagnosis, Muscle Spasticity/complications/diagnosis, Pediatrics, Preschool, Reproducibility of Results, Sanger TD, Severity Of Illness Index, Task Force on Childhood Motor Disorders
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Communication and the Appraisal of Uncertainty: Exploring Parents' Communication with Credible Authorities in the Context of Chronic Childhood Illness
Decisions in diagnosing and managing chronic gastroesophageal reflux disease in children
Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management
Tags: 2010, Backlog, Birnkrant DJ, Bushby K, Case LE, Clemens PR, Constantin C, Cripe L, Diagnosis, Differential, DMD Care Considerations Working Group, Duchenne/diagnosis/genetics/therapy, Female, Finkel R, Glucocorticoids/administration & dosage/adverse effects/therapeutic use, Humans, Journal Article, Kaul A, Kinnett K, Lancet Neurology, Male, McDonald C, Muscular Dystrophy, Pandya S, Poysky J, Shapiro F, Tomezsko J
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Diagnostic yield of brain biopsies in children presenting to neurology
Tags: 2008, Backlog, Biopsy/statistics & numerical data, Brain Diseases/pathology, Brain/pathology, Child, Children W/SNI, Decision Trees, Diagnosis, Differential, Epilepsy/pathology, Female, Hawkins C, Humans, Infant, Journal Article, Journal of Child Neurology, Likelihood Functions, Male, Neurodegenerative Diseases/pathology, Odds Ratio, Outcome And Process Assessment (health Care), Predictive Value of Tests, Preschool, Retrospective Studies, Vasculitis/pathology, Venkateswaran S, Wassmer E
Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants
Tags: 2004, Advances in Neonatal Care, Backlog, Diagnosis, Differential Directories Gastroesophageal Reflux, Henry SM, Journal Article, Newborn Infant, Nursing, PedPal Lit, physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy, physiopathology, Premature, therapy Health Education Humans Infant Infant
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
Distinguishing starvation from cachexia
Dysphagia in Rett Syndrome: A Descriptive Study
Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory
Early peripheral nervous system manifestations of infantile Krabbe disease
Tags: 2003, Backlog, Biopsy, Demyelinating Diseases/pathology/physiopathology, Diagnosis, Differential, Dor-Wollman T, Family Health, Female, Globoid Cell/pathology/physiopathology, Humans, Hurvitz H, Inclusion Bodies/pathology, Infant, Journal Article, Korn-Lubetzki I, Leukodystrophy, Male, Nevo Y, Pediatric Neurology, Peripheral Nervous System/pathology/physiopathology, Raas-Rothschild A, Retrospective Studies, Schwann Cells/pathology, Soffer D
Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
End of life care experience at the peadiatic oncology unit at the uganda cancer institute: What role can oncology nurses play?
Tags: 2018, Adolescent, Adult, Advanced Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Cancer Survival, Child, Clinical Article, Clinician, conference abstract, Coordination, Developing World 2018 List, Diagnosis, Dying, Female, Human, Male, Mortality Rate, Multidisciplinary team, Mulyowa I, oncology nurse, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Quality Of Life, Terminal Care
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Evaluation Of Temporal Health System Factors Influencing Parallel Palliative Care Referral For Children With Complex Cardiorespiratory Diagnosis And Treatment
Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing
Facilitating communication in children with multiple disabilities: three case studies of girls with Rett syndrome
Tags: 2004, Abnormalities, Akermanis M, Backlog, Diagnosis, Disability And Rehabilitation, however, increased communication opportunities provided by caregivers did not elicit increased responses from the girls. CONCLUSION: There is a difference in cueing by teachers in their interactions with children with multiple disabilities. Also, Journal Article, McGregor F, means findings should be viewed cautiously and that more research is indicated., more frequent communicative interactions did not necessarily lead to increased student responses. It is suggest ed that amount and type of cueing may need to be considered to be effective in generating student responses. The small number of participants, Multiple/diagnosis/rehabilitation Child Behavior/physiology Child, Non-U.S. Gov't Rett Syndrome, PedPal Lit, Preschool Communication Disorders/diagnosis/rehabilitation Female Follow-Up Studies Humans Infant Interpersonal Relations Language Development Disorders/diagnosis/rehabilitation Research Support, Ramke M, rehabilitation Risk Factors Sampling Studies Severity of Illness Index Sickness Impact Profile Treatment Outcome, Ryan D, Southwell K, Woodyatt G
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center