Browse Items (339 total)

Tags: 2019, Article, billing and coding, Brook I, Burnout, Child, Clinical Article, clinical productivity, Convenience Sample, Female, Fossa M, Human, Human Tissue, Journal of Palliative Medicine, Kang T, Leadership, Mahoney D P, Male, October 2019 List, Palliative Therapy, Pediatric Palliative Care, productivity, Program Development, sustainability, United States, workload

Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales

Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K

Tags: 2023, Adolescent, Article, Bereavement Support, BMC Palliative Care, Canada, Child, Chronic Disease, Controlled Study, Coping Behavior, coronavirus disease 2019, family support, February List 2024, Female, Health Care Access, health care facility, Health Care Policy, Health Service, Health Status, Human, Infant, Infection Control, Interview, Male, Nicholas DB, Palliative Therapy, Pandemic, Parental Attitude, Personal Experience, physical activity, Public Health, Qualitative Research, Rapoport A, Risk Assessment, Social Support, Terminal Care, Zulla RT

Tags: 2017, Adolescent, Adult, Anesthesia, Article, Ates U, Balloon dilatation, Can O S, Child, Clinical Article, Clinical Effectiveness, colon interposition, digestive endoscope, Dindar H, Diseases of the Esophagus, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Ergun E, esophagus balloon, esophagus perforation, esophagus stenosis/co [Complication], esophagus stenosis/th [Therapy], feeding difficulties, Female, Gastrostomy, Gollu G, Human, Male, Patient Safety, Preschool Child, Priority Journal, Retrospective Study, School Child, surgical intervention, Young Adult

Tags: 2018, April 2018 List, Article, Awareness, BMC Palliative Care, Child, concrete, Expectation, Female, Grootenhuis MA, Health Care Personnel, Human, Human Experiment, Kars MC, Major Clinical Study, Male, Only Child, Palliative Care, Palliative Therapy, Patient Satisfaction, Pediatrics, Pilot Projects, Pilot Study, Schepers SA, Schouten-Van Meeteren AYN, tertiary health care, van Delden JJM, Verberne LM

Tags: 2019, Advance Care Planning, Article, Beernaert K, Chambaere K, Child, Cohen J, Consultation, Content Analysis, Conversation, Cools F, Cornette L, December 2019 List, Decision Making, Deliens L, Dombrecht L, Flanders, Goossens L, Human, Interview, Journal of Pain and Symptom Management, Law, Naulaers G, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, Newborn, Perinatal Death, Piette V, Privacy, Qualitative Research, Uncertainty

Tags: 2019, Adult, Article, Awareness, Child, Childhood Cancer, Clinical Article, Controlled Study, De Clercq E, Education, Elger B, Female, Human, Journal Of Pediatric Oncology Nursing, Male, Nurse, Oncologist, Oncology 2019 List, outpatient care, Palliative Therapy, personnel shortage, Politics, Qualitative Research, Rakic M, Reimbursement, Rost M, Social Worker, Switzerland, Thematic Analysis, Wangmo T

Tags: 2023, Agrawal AK, Article, August List 2038, Bogetz JF, Child, Communication Barrier, Controlled Study, Education, Female, Fogel AH, Human, Journal of Palliative Medicine, Lelkes E, Levine A, Life Sustaining Treatment, Major Clinical Study, Male, McPoland P, Multicenter Study, Palliative Care, Palliative Therapy, Pediatric Hospital, Perception, personnel shortage, Physician, Prognosis, Resident, Thematic Analysis, United States, Winn PA

Tags: 2018, Article, Bereavement, BMC Palliative Care, Butler AE, Child, Content Analysis, Copnell B, Death, Female, Follow Up, Grounded Theory, Hall H, Human, Interview, January 2019 List, Male, Pediatric Intensive Care Unit, Scientist, spouse

Tags: 2018, Article, Borges Silva AR, Brazil, Carmona EV, Cleveland LM, Clinical Article, Controlled Study, Convenience Sample, Darilek U, de Castro de Oliveira F, Developing World 2018 List, Education, Exploratory Research, Female, genetic transcription, Grief, Human, Human Experiment, Infant, Interview, Male, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Palliative Therapy, Quality Of Life, quality of nursing care, registered nurse, teaching hospital, The Journal Of Perinatal & Neonatal Nursing, Thematic Analysis, vulnerable population

Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS

Tags: 2019, adverse event, Article, Barrington KJ, Bourque CJ, Brazg T, Child, Clinician, Death, Decision Making, Disability, Ethics, Farlow B, Female, Human, Janvier A, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, Questionnaire, September 2019 List, Social Support, Thematic Analysis, Trisomy 13, Trisomy 18, Trust, Wilfond B

Tags: 2021, Article, August List 2041, care behavior, Child, Child Parent Relation, Demographics, encouragement, Europe, Female, Health Belief, Hinds PS, Hospice, Hospital Admission, Human, Interpersonal Communication, legal guardian, Lord B, Male, Medical Decision Making, Neumann ML, Nurse, Palliative Medicine Reports, Palliative Therapy, Parent, Patient Comfort, Physician, Priority Journal, Quality Of Life, reassurance, United States, Voice, Weaver MS, Wiener L

Tags: 2023, 2023 SE3 - Oncology, Article, Caregiver, Caregivers, Child, Childhood Cancer, Children's Health Care, Clinical Article, Conour CN, Controlled Study, Dower J, Duncan CL, Gallegos JV, Human, Ludrosky J, Nelson CI, Palliative Care, Palliative Therapy, Tomboc P

Tags: 2019, Article, Asselin J, Bartman T, Black person, Brozanski B, Cause Of Death, Central Nervous System, Child, Coghill C H, Cohort Analysis, Controlled Study, Datta A, DiGeronimo R, do not resuscitate order, Drug Withdrawal, Durand D, Dykes F, Evans J, February 2020 List, Female, Fry J T, Gestational Age, Grover T, Human, Infant, injury, Journal of Pediatrics, Leuthner S R, Life Sustaining Treatment, Major Clinical Study, Male, Matoba N, Murthy K, Natarajan G, Neonatal Intensive Care Unit, Newborn, Newborn Death, Niehaus J Z, Padula M, Pallotto E, Piazza A, Reber K, Retrospective Study, Schlegel A B, Shah A, Short B, Sullivan K M, Terminal Care, Zaniletti I

Tags: 2023, Article, Awareness, Bertok S, Child, Clinical Practice, doctor nurse relation, Education, employee, European Journal of Pediatrics, Female, Human, Kreft HI, Lepej D, Lesnik MP, library, Lisec A, Loboda T, Major Clinical Study, Male, March List 2023, Meglic A, Meglic J, Nurse, Ostir M, Palliative Care, Palliative Therapy, Physician, Ponjevic T, Psychologist, Questionnaire, Self Evaluation, Slovenia, University Hospital

Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult

Tags: 2023, Adolescent, Article, at home mortality, Child, Clinical Article, Controlled Study, Drug Withdrawal, emotional support, February List 2024, Female, Human, Intubation, Journal of Clinical Medicine, Kim YH, Kwon JE, Male, Medical Record, Palliative Therapy, Satisfaction, sex difference

Tags: 2024, Adolescent, April List 2024, Article, Bass AK, Child, Consensus, Emergency Care, evidence based practice, Human, Journal of Hospice and Palliative Nursing, Medical Society, neighborhood, Overstreet K, Palliative Therapy, pharmacology, registered nurse, Sartor N, special situation for pharmacovigilance

Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V

Tags: 2023, Advance Care Planning, Article, Child, Community Health Nursing, coronavirus disease 2019, Decision Making, Female, Godbold R, Human, Journal Of Child Health Care, Long Term Care, May List 2023, Mother, Only Child, Pandemic, Qualitative Research, Thematic Analysis, Voice, VULNERABILITY, Willis E

Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, Adult, Altruism, Article, Child, Clinical Article, Controlled Study, Deshommes T, Downing J, Female, Friebert S, Gassant PYH, genetic transcription, Grossoehme DH, Grounded Theory, Haiti, Human, Interview, Male, McPoland P, Multicenter Study, Only Child, Palliative And Supportive Care, Palliative Therapy, Qualitative Research, Religion, Sheehan DC, Sibling, Stephenson P, thinking, uganda, vocabulary

Tags: 2023, 2023 SE5 - Low Resource Setting, Achour A, Article, Ben Youssef S, bicarbonate/dt [Drug Therapy], bicarbonate/pv [Special Situation for Pharmacovigilance], calcitriol/dt [Drug Therapy], calcitriol/pv [Special Situation for Pharmacovigilance], Child, citrate potassium/dt [Drug Therapy], citrate potassium/pv [Special Situation for Pharmacovigilance], Clinical Article, Clinical Feature, Controlled Study, CTNS gene, cystine/ec [Endogenous Compound], cystinosis/di [Diagnosis], cystinosis/dt [Drug Therapy], El Younsi M, exon, Fanconi renotubular syndrome, Female, founder mutation, Gargah T, gene, Gene Deletion, gene mutation, genetic analysis, genetic trait, Hammi Y, heterozygosity, homozygosity, Human, hypothyroidism/dt [Drug Therapy], Infant, infantile nephropathic cystinosis/di [Diagnosis], infantile nephropathic cystinosis/dt [Drug Therapy], Information Processing, Kharrat M, kidney disease/di [Diagnosis], kidney disease/dt [Drug Therapy], M'Rad R, Maazoul F, Male, mercaptamine/dt [Drug Therapy], mercaptamine/pv [Special Situation for Pharmacovigilance], molecular diagnosis, molecular fingerprinting, Only Child, Ouertani I, Palliative Therapy, Pediatric Nephrology, pediatric patient, Prenatal Diagnosis, Preschool Child, Retrospective Study, RNA splicing, Sanger sequencing, thyroid hormone/dt [Drug Therapy], thyroid hormone/pv [Special Situation for Pharmacovigilance], Trabelsi M, Tunisian

Tags: 2019, Alcorn S R, Anorexia, Article, bradycardia, Brain Metastasis, Cancer Palliative Therapy, cancer radiotherapy, Cancer Survival, Chen M J, Chen Q, Child, Childhood Cancer/rt [radiotherapy], Clinical Outcome, Clinical Practice, Cohort Analysis, Figueiredo M L S, Follow Up, Human, Ladra M, leukemia/rt [Radiotherapy], lymphoma/rt [Radiotherapy], Major Clinical Study, mucosa inflammation, neuroblastoma/rt [Radiotherapy], Oncology 2019 List, Opiate/dt [drug Therapy], opiate/pv [Special Situation for Pharmacovigilance], osteosarcoma/rt [Radiotherapy], Pain/dt [drug Therapy], Palliative radiation therapy, Palliative Therapy, pediatric patient, Pediatric radiation therapy, Preschool Child, Priority Journal, radiation dermatitis, Radiation Dose Fractionation, radiation induced neoplasm, Radiotherapy and Oncology, Rao A D, rectum hemorrhage, Sehgal S, Terezakis S A, Treatment Outcome, treatment response, tumor growth, Villar R, Yegya-Raman N

Tags: 2023, 2023 SE3 - Oncology, Abdal-Rahman M, Adolescent, Adult, advanced cancer/dm [Disease Management], Ahmed F, Al-Awady S, Alajarmeh S, Alarjeh G, Alnassan A, Alrjoub W, Article, Attitude To Health, Boufkhed S, Caregiver, Child, Cross-sectional Study, doctor patient relationship, Female, Frontiers in Oncology, Guo P, Harding R, Health Care Personnel, Health Care Policy, health care practice, Human, Human Experiment, implicit bias, Information Dissemination, Jordan, Jordanian, Kutluk T, Male, Medical Information, myelodysplastic syndrome, myeloproliferative disorder, Palliative Therapy, pediatric patient, Qualitative Research, refugee, reticuloendothelial tumor, Semi Structured Interview, Shamieh O, Yurdusen S

Tags: 2019, Article, Child, childhood, Clinical Article, congenital blood vessel malformation, Diagnosis, Diagnostic Error, February 2019 List, Female, Harrington NG, Health Communication, Human, Kerr AM, Male, Scott AM, Semi Structured Interview, Terminal Care, Uncertainty

Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M

Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B

Tags: 2014, adenotonsillectomy, apnea hypopnea index, Article, Arumugam S V, breathing difficulties, Child, Clinical Effectiveness, Continuous Positive Airway Pressure, Controlled Study, CPAP device, Down Syndrome, Epworth sleepiness scale, ess-c, Female, Follow Up, Human, International Journal of Pediatric Otorhinolaryngology, Kameswaran M, Major Clinical Study, Male, MPSI, MPSII, MPSIII, MPSIIIA, MPSIIIB, MPSVI, MPSVII, Mucopolysaccharidoses, Mucopolysaccharidosis, Murali S, osa-18, outcome assessment, Paramasivan V K, Pediatric obstructive sleep apnea, physical interventions, positive end expiratory pressure, Priority Journal, Quality Of Life, radiofrequency ablation device, Randomized Controlled Trial, sleep disordered breathing/su [Surgery], sleep disordered breathing/th [Therapy], Sudarsan S S, surgical interventions, Treatment Outcome

Tags: 2018, Adult, Adult Child, Article, Bennett V, Child, Controlled Study, dilution, facilitation, February 2019 List, Female, Human, Interview, joint, Journal Of Advanced Nursing, Learning, Major Clinical Study, Male, Non Profit Organization, Noyes J, Palliative Therapy, Pritchard A, Pritchard S, Qualitative Analysis, Rees S, Secondary Analysis, Sibling, Skill, Social Isolation, social media, Social Support, Total Quality Management, Transition To Adult Care

Tags: 2019, Adolescent, Adult, Article, Blume ED, Child, Clinical Article, December 2019 List, Female, Human, Hypoplastic Left Heart Syndrome, Journal Of Palliative Care, Male, May R, Medical Care, Morell E, Palliative Therapy, Pediatric Cardiology, Perception, Prenatal Diagnosis, Rajagopal S, Thompson J, thoracic surgeon

Tags: 2023, 2023 SE3 - Oncology, Article, cancer model, Child, Clinical Article, Collura C, Consultation, Controlled Study, embedding, Female, Greenmyer JR, Health Care Delivery, Hematology, Human, Male, McCarthy SR, Medical Record Review, Ngo T, Outpatient, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, rank sum test, Referral And Consultation, Retrospective Study, Schiltz B, Smith M, solid tumor

Tags: 2022, Advance Care Planning, Article, Bereavement, Bereavement Support, care behavior, Child, Cho-Hee K, Clinical Article, Content Analysis, Controlled Study, December List 2022, diagnosis related group, Female, Hee-Young S, Human, Journal of Hospice and Palliative Nursing, Kyung-Ah K, Male, Min-Sun K, Myung-Nam L, Palliative Therapy, Qualitative Research, Semi Structured Interview, South Korea, Spiritual Care, Yi-Ji M

Tags: 2019, Article, cancer center, Child, Childhood Cancer, Clinical Article, Ethics, Female, Friedman D N, Human, invasive procedure, Male, McCabe M S, Oncology 2019 List, Pediatric Blood and Cancer, pediatric patient, Pediatrics, Physician, Resuscitation, Retrospective Study, Risk Benefit Analysis, Terminal Care, Voigt L P, Winter M C

Tags: 2019, Adolescent, Adult, Article, cardiovascular disease/dm [Disease Management], Child, Child Death, Child Health Care, child health insurance, childhood cancer/dm [Disease Management], childhood disease/dm [Disease Management], Chirico J, Cohort Analysis, community care, community-based, congenital disorder/dm [Disease Management], Cost, Cromwell P, Dawson C, Donnelly J P, Dying, family income, Female, groups by age, Gupton A, Health Care Cost, health maintenance organization, Home Care, Human, Journal of Palliative Medicine, July 2019 List, Korones D N, Major Clinical Study, Male, Medicaid, Miller M, neuromuscular disease/dm [Disease Management], newborn disease/dm [Disease Management], Palliative Therapy, Pediatric Palliative Care, pediatric patient, Prematurity/dm [disease Management], Race Difference, Retrospective Study

Tags: 2021, Article, assisted ventilation, Belarus, Child, Halasheuskaya A, Health Belief, Home Care, Hope, Human, June 2022 List, Kashliak O, Lazarchik I, Long Term Care, Only Child, Paediatrics Eastern Europe, Palliative Therapy, Pediatrics, Quality Of Life, relative, Tikhonovets M, Uncertainty, Zaitsev D

Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales

Tags: 2018, Adult, Article, assisted ventilation, Barbara D, Baumann-Hölzle R, Berger TM, Bmc Pediatrics, Brigitte S, Bucher HU, Controlled Study, enteric feeding, Fauchère JC, Female, Gudrun J, Hendriks MJ, hospital policy, Human, Infant Mortality, Jean-Claude F, Kai R, Klein SD, Legal Aspect, Liliane S, Magali C, Male, Mathias N, Matthias R, Medical Decision Making, Medical Practice, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, nurse attitude, October 2018 List, Patient Participation, Philipp M, Physician Attitude, Prematurity, Questionnaire, Religion, Renate I, Riccardo P, Roland N, Ruth D, September 2018 List, Streuli JC, Switzerland, Terminal Care, Ulrike S, work experience

Tags: 2019, Article, August 2019 List, Austria, Bmc Pediatrics, Choice context, Communication strategies, Controlled Study, Decision-making, ethicist, framing bias, Hawlik K, head, high income country, Human, Limit of viability, Neonatologist, Neonatology, nervous system malformation, Newborn, Nicu, Palliative Therapy, Pregnancy, Prematurity, Semi Structured Interview, shared decision making, Stanak M, Statistics, Systematic Review