Browse Items (908 total)
- Tags: Adult
Quality of end of life care in adolescent and young adults with cancer in Japan
Tags: 2018, Adolescent, Adult, Bone, Brain, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, conference abstract, Emergency Care, Female, Health Care Personnel, Human, Ishida Y, Japan, Major Clinical Study, Male, Medical Record, Noguchi-Abe K, Oncology 2018 List, Palliative Therapy, Retrospective Study, soft tissue, solid malignant neoplasm, Supportive Care In Cancer, Terminal Care, time of death, Tsumura A, Young Adult
Barbiturates in the care of the terminally ill
Tags: "Hypnotics and Sedatives", 1992, Adult, Analgesia/methods, Astrocytoma/nursing, Backlog, Barbiturates/administration & dosage, Berde CB, Child, Ethics, Ewing's/nursing, Female, Grier HE, Humans, Journal Article, Mechanical, Medical, Mitchell C, Multiple Organ Failure/nursing, Pain/drug Therapy, Palliative Care/standards, Sarcoma, Sarcoma/physiopathology/secondary, Spinal Cord Neoplasms/physiopathology/secondary, Spinal Neoplasms/nursing, Terminal Care/methods/standards, The New England Journal Of Medicine, Truog RD, Ventilators
Ethics in pediatric palliative care
Tags: 2017, Adult, Anestezi Dergisi, Child, Decision Making, Ethics, Female, Gocken C, Human, January 2018 List, Male, Palliative Therapy, Torun T
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Tags: 2002, Adult, Aged, Archives Of Pediatrics & Adolescent Medicine, Back Pain/etiology, Backlog, Caregivers/psychology, Child, Chronic Disease, Cross-sectional Studies, Depression/etiology, Disabled Persons, Female, Haig AJ, Humans, Journal Article, Kandala G, Middle Aged, Mothers/psychology, Nelson VS, Physical Fitness, Regression Analysis, Shin KY, Tong HC, Yamakawa KS
Pediatricians' attitudes affecting decision-making in defective newborns
Tags: 1977, Abnormalities/therapy, Adult, Age Factors, Attitude Of Health Personnel, Backlog, Decision Making, Empirical Approach, Ethics, Female, Howell MC, Humans, ICU Decision Making, Infant, Journal Article, Krane D, Male, Medical, Middle Aged, Newborn, Parental Consent, Pediatrics, Pediatrics/standards, Questionnaires, Religion, Sex Factors, Shannon DC, Todres ID, Withholding Treatment
Dystonia in neurodegeneration with brain iron accumulation: outcome of bilateral pallidal stimulation
Tags: 2010, Adolescent, Adult, bilateral pallidal stimulation, Brain, Brain Diseases/physiopathology/therapy, Brain/physiopathology, Child, Child Preschool, Deep Brain Stimulation/adverse effects/methods, Dystonia, Dystonia/physiopathology/therapy, Female, Functional Laterality, Gill S S, Globus Pallidus/physiopathology, Haenggeli C A, Hayflick S J, Hogarth P, Humans, IND, Infant, Iron/metabolism, Jech R, Kurlemann G, Leenders K L, Limousin P, Malanga C J, Male, Moro E, Neurodegenerative Diseases/physiopathology/therapy, Ostrem J L, Pauls K A, Peker S, Retrospective Studies, Revilla F J, Santens P, Schnitzler A, Sharma N, surgical intervention, Timmermann L, Tisch S, tone and motor problems, Treatment Outcome, Valldeoriola F, Vesper J, Volkmann J, Wieland K, Woitalla D, Young Adult
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Development, behavior, and biomarker characterization of Smith-Lemli-Opitz syndrome: An update
Tags: 2016, 7 dehydrocholesterol/ec [Endogenous Compound], 8 dehydrocholesterol/ec [Endogenous Compound], adaptive behavior, Adolescent, Adult, Aggression, Albert P, Article, Autism, automutilation, Behavior, Bianconi S, Bukelis I, Case Study, cerebrospinal fluid level, characteristics, Child, Child Rearing, childhood, cholesterol/ec [Endogenous Compound], Clinical Article, Cognition, delayed development, development, Developmental delay, Farmer C, Female, Human, Intelligence Quotient, Interpersonal Communication, Joseph L, Journal of Neurodevelopmental Disorders, Lanham D, Male, Observational Study, Parent, Porter F D, Preschool Child, Priority Journal, problem behavior, Sarphare G, Smith Lemli Opitz syndrome, Smith-Lemli-Opitz syndrome, Socialization, Stanford-Binet Intelligence Scale, Sterols, Swedo S, Thurm A, Tierney E, tone and motor problems, Trajectory, Unclassified Drug, Walking, Wassif C A, Wheeler C, Young Adult
Place of death: preferences among cancer patients and their carers
Tags: 2004, 80 And Over, Adult, Aged, Attitude To Death, Backlog, Caregivers/psychology, Clark D, Cohort Studies, Comparative Study, Female, Great Britain, Hospice Care/standards/trends, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Middle Aged, Morris SM, Neoplasms/mortality/therapy, Non-U.S. Gov't, Patient Satisfaction, Research Support, Social science & medicine, Terminally Ill, Thomas C
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
Racial and ethnic differences in hospice enrollment among children with cancer
Shutting the World Out': An Interpretative Phenomenological Analysis Exploring the Paternal Experience of Parenting a Young Adult with a Developmental Disability.
Tags: *Adult Children, *Developmental Disabilities, *Fathers/px [Psychology], *Parenting/px [Psychology], 2018, 2023 SE4 - Parent Perspectives, Adult, Eatough, Virginia, Humans, Journal Of Applied Research In Intellectual Disabilities, Male, Middle Aged, Qualitative Research, Thackeray, Lisa A, Young Adult
Talking about the End of Life, Death and Bereavement with Children's Literature
The posttraumatic growth inventory: measuring the positive legacy of trauma.
Tags: 1996, Adaptation, Adolescent, Adult, Backlog, Calhoun LG, Female, Gender Identity, Humans, Interpersonal Relations, Journal Article, Journal Of Traumatic Stress, Life Change Events, Longitudinal Studies, Male, Personality Development, Personality Inventory/statistics & numerical data, Philosophy, Post-Traumatic/diagnosis/psychology/rehabilitation, Psychological, Self Concept, Social Perception, Stress Disorders, Tedeschi RG
The 'good death' in pediatric oncology
Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult
Caregivers' perceptions following gastrostomy in severely disabled children with feeding problems
Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome
'I No Longer Feel Alone': Meeting the Needs of Bereaved Grandparents Through a Children's Hospice Support Group
Toward family-centered inpatient medical care: The role of parents as participants in medical decisions.
Tags: 2007, Adolescent, Adult, Backlog, Child, Christakis DA, Consumer Participation, Data Collection, Decision Making, Family Nursing, Female, Hospitalization, Humans, Journal Article, Logistic Models, Longitudinal Studies, Lozano P, Male, Middle Aged, Multivariate Analysis, Parents/psychology, Self Efficacy, Tarini BA, The Journal Of Pediatrics
Examining posttraumatic growth among Japanese university students
Guidelines for an acceptable euthanasia procedure
Tags: 2001, Adult, Aged, Assisted/psychology, Backlog, Best Practice & Research: Clinical Obstetrics & Gynaecology, Death and Euthanasia, Euthanasia/legislation & jurisprudence/psychology, Female, Female/psychology/therapy, Genital Neoplasms, Heintz AP, Humans, Journal Article, Middle Aged, Netherlands, Physician's Role, Practice Guidelines As Topic, Right to Die, Suicide, Swarte NB
Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy
Tags: 2008, Adolescent, Adult, Backlog, Body Temperature/physiology, Cerebral Palsy/complications/physiopathology, Child, Constipation/etiology, Data Collection, Englund E, European Journal of Paediatric Neurology, Extremities/blood supply/physiology, Female, Health Status, Humans, Journal Article, Male, Malker H, Muscle Tonus/physiology, Pain/etiology, Parents, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/etiology, Stener-Victorin E, Svedberg LE
Liver transplantation for Wilson's disease: long-term results and quality-of-life assessment
Tags: 2003, Adolescent, Adult, Backlog, Child, Dhawan A, Female, Graft Survival, Heaton ND, Hepatolenticular Degeneration/pp [Physiopathology], Hepatolenticular Degeneration/su [Surgery], Humans, IM, Immunosuppression/ae [Adverse Effects], Journal Article, Liver Transplantation, Liver Transplantation/ae [Adverse Effects], Liver Transplantation/mo [Mortality], Liver/pp [Physiopathology], Longitudinal Studies, Maguire DD, Male, Mieli-Vergani G, Muiesan P, O'Grady JG, Quality Of Life, Rela M, Survival Analysis, Sutcliffe RP, Transplantation
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Sex, drugs and chronic illness: health behaviours among chronically ill youth
Tags: 2005, Adolescent, Adolescent Behavior, Adolescent Transitions, Adult, Backlog, Chronic Disease/psychology, Cross-sectional Studies, European Journal Of Public Health, Female, Humans, Journal Article, Male, Parera N, Questionnaires, Risk-Taking, Sexual Behavior/statistics & numerical data, Spain/epidemiology, Substance-Related Disorders/epidemiology, Suris JC
Measuring Friedreich ataxia: Interrater reliability of a neurologic rating scale
Tags: 2005, Adolescent, Adult, Age of Onset, Arm/pp [Physiopathology], Ashizawa T, Brain Stem/pp [Physiopathology], Cooperative Ataxia Group, Disease Progression, Female, Fischbeck K, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Friedreich's ataxia, Friedrich's Ataxia Scale, Gait Disorders, Gomez C, Hallett M, Lynch D, May W, Neurologic/di [Diagnosis], Neurologic/et [Etiology], Neurology, scale development, Subramony S H, Taylor P, tone and motor problems, tool development, Wilson R
Changing times-PICU and palliative care
Conflict in the care of patients with prolonged stay in the ICU: types, sources, and predictors
Tags: 2003, 80 And Over, Adult, Aged, Backlog, Boston, Brennan T, Burns JP, Case-Control Studies, Communication Barriers, Decision Making, Dissent And Disputes, Family Relations, Female, Galper BZ, Humans, ICU Decision Making, Intensive Care Medicine, Intensive Care Units/statistics & numerical data, Intensive Care/statistics & numerical data, Interprofessional Relations, Journal Article, Length Of Stay, Male, Mello MM, Middle Aged, Professional-family Relations, Prospective Studies, Puopolo AL, Reproducibility of Results, Studdert DM, Time Factors, Truog RD
Pediatric utilization of rapamycin for severe cardiac allograft rejection
Tags: 2000, Acute Disease, Adult, Animals, Antilymphocyte Serum/administration &, Backlog, Child, Coles JG, Cyclosporine/administration &, derivatives, dosage, dosage/adverse effects/therapeutic use, dosage/analogs &, Female, Graft Rejection/drug therapy/etiology/pathology, Heart Transplantation/adverse effects, Humans, Immunosuppressive Agents/administration &, Journal Article, Methotrexate/administration &, Methylprednisolone/administration &, Mycophenolic Acid/administration &, Platelet Count, Prednisone/administration &, Rabbits, Safety, Sirolimus/administration &, Straatman LP, T-Lymphocytes/immunology, Tacrolimus/administration &, Transplantation
Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners
Tags: 2013, Adaptation Psychological, Adult, Aged, BMJ Supportive & Palliative Care, British Columbia, Curriculum, Data Collection, Education Medical Continuing, Female, Humans, Male, Middle Aged, Miller T, Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners, Palliative Care/ Psychology, Pediatrics/ Education, Physicians Family/ Education/ Psychology, Self Care/psychology, Straatman L, Surveys And Questionnaires
Psychosocial functioning in youth with glycogen storage disease type I
Tags: 2008, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Case-Control Studies, Child, Correia C, Diabetes Mellitus/psychology, Family Health, Female, Florida, Glycogen Storage Disease Type I/psychology, Humans, Jacob M, Journal Article, Journal of Pediatric Psychology, Keeley M, Loneliness, Male, Merlo L, Parents/psychology, Preschool, Psychological, Quality Of Life, Storch E, Weinstein D
Experience in the use of the palliative care outcome scale.
Tags: 2005, 80 And Over, A'hern R, Adult, Aged, Backlog, Broadley K, Cancer Care Facilities, DNAR, Female, Great Britain, Gwilliam B, Hardy J, Humans, Journal Article, Male, Medical Oncology, Middle Aged, Palliative Care/px [psychology], Patient Satisfaction, Pilot Projects, Quality Of Life, Questionnaires, Stevens A-M, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Treatment Outcome
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Local analgesic effect of endogenous opioid peptides
Tags: 1993, Adult, Aged, Arthroscopy, Backlog, beta-Endorphin/analysis/physiology, Biomarkers of Pain, Double-Blind Method, Dynorphins/analysis/physiology, Endorphins/analysis/physiology, Enkephalin, Giefing J, Hassan AH, Humans, Immunohistochemistry, Injections, Intra-Articular, Intravenous, Journal Article, Knee Joint/surgery, Lancet, Lehrberger K, Methionine/analysis/physiology, Middle Aged, Naloxone/administration & dosage/pharmacology, Opioid/drug effects, Pain, Postoperative/etiology, Receptors, Stein C, Synovial Membrane/chemistry, Synovitis/metabolism, Yassouridis A
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult
Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood
Tags: 2006, Adolescent, Adolescent Transitions, Adult, Backlog, Chronic Disease, Chronic/complications/psychology/rehabilitation, Deurloo JA, Esophageal Atresia/complications/psychology/rehabilitation, Grootenhuis MA, Groothoff J, Hartman EE, Health Status, Hirschsprung Disease/complications/psychology/rehabilitation, Humans, Journal Article, Kidney Failure, Life Change Events, Neoplasms/complications/psychology/rehabilitation, Netherlands, Peer Group, Quality Of Life, Risk-Taking, Stam H, Survivors, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
Bisphosphonates: from grandparents to grandchildren
Tags: 1999, Administration, Adolescent, Adult, Age Factors, Aged, Alon US, Backlog, Bone Diseases/drug therapy, Child, Clinical Pediatrics, Clodronate, Diphosphonates/administration & dosage/adverse effects/therapeutic use, Female, Humans, Hypercalcemia/drug therapy, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Oral, Osteogenesis Imperfecta/drug therapy, Osteoporosis, Postmenopausal/drug therapy, Preschool, Research Support, Srivastava T
Autism traits in children and adolescents with Cornelia de Lange syndrome
Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales
How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care
Tags: 2022, Adult, Akkermans A, Article, CARE, Cherpanath TGV, Child, Clinical, Conflict, Conversation, critically, de Vos MA, decision, Emotion, Family, Female, Genetic, Health, Human, ill, intensive, Intensive Care Medicine, literacy, making, Male, Management, Morality, Newborn, Patient, Qualitative, Research, responsibility, Schultz MJ, September 2022 List, Smets EMA, Spijkers AS, transcription, Uncertainty, Unit, van de Loo M, van Heerde M, van Kaam AH, van Woensel JBM, Willems DL