Browse Items (221 total)
- Tags: Young Adult
Palliative Care Research - A Systematic Review Of Foci, Designs And Methods Of Research Conducted In Sweden Between 2007 And 2012.
In 2007, a literature review was undertaken of palliative care research from Sweden during the 1970s-2006, paving the way for a follow-up study to explore the recent developments. The aim was to systematically examine palliative care…
Tags: 2016, Adolescent, Adult, Aged, Aged 80 And Over, Carlander I, Child, End-of-life Care, Female, Henoch I, History 21st Century, Holm M, Humans, James I, Kenne Sarenmalm E, Lundh Hagelin C, Male, March 2016 List, Middle Aged, Palliative Care, Research Design, Research Designs, Research Methods, Review, Scandinavian journal of caring sciences, Sweden, Young Adult
Association between religious and socio-economic background of parents of children with solid tumors and DNR orders
Tags: 2014, Adolescent, Adult, Backlog, Child, Decision Making, Education, Female, Follow-up Studies, Hakim F, Hileli I, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Parents, Pediatric Blood & Cancer, Postovsky S, Preschool, Prognosis, Religion, Resuscitation Orders, Retrospective Studies, Socioeconomic Factors, Survival Rate, Weyl Ben Arush M, Young Adult
Problems And Hopes Perceived By Mothers, Fathers And Physicians Of Children Receiving Palliative Care
Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult
Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study
Tags: 2017, Adolescent, Adult, April 2018 List, Attitude To Death, Attitude To Health, Carroll KW, Child, Child Health/statistics & numerical data, Cohort Studies, Critical Illness/epidemiology/ psychology, Decision-making, Female, Fenderson RM, Feudtner C, Health Surveys, Hill DL, Hope, hopes, Humans, Infant, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Middle Aged, Nathanson PG, Only Child, Parent-child Relations, parental concordance, Parents/ Psychology, Pediatrics, Philadelphia/epidemiology, Preschool, Prevalence, problems, Quality of Life/ psychology, Serious Illness, Terminal Care/ psychology, Young Adult
Preferences regarding end-of-life care among adolescents and young adults with cancer: results from a comprehensive multicenter survey in Japan
Tags: 2019, adolescent and young adult, Adult, Adverse Drug Reaction, anxiety, Article, Cancer, Cancer Prognosis, Cancer Survival, cancer survivor, Cancer Therapy, Chemotherapy, Child, Controlled Study, End-of-life Care, Female, Health Care Personnel, Higuchi A, Hirano H, Horibe K, Human, Japan, Journal of Pain and Symptom Management, Kawachi A, Major Clinical Study, Male, Multicenter Study, Oncology 2019 List, Ozawa M, Palliative Therapy, patient history of chemotherapy, preference, Prognostic Disclosure, Questionnaire, Shimizu C, Shimizu K, Side Effect, Tatara R, Terminal Care, Yoshida S, Young Adult
Challenges of palliative care in children with inborn metabolic diseases
Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult
The role of nurses in physician-assisted deaths in Belgium
Tags: 2010, Active, Active/statistics & numerical data, Adult, Assisted/statistics & numerical data, Backlog, Belgium, Bilsen J, Canadian Medical Association Journal, Confidence Intervals, Data Collection, Decision Making, Deliens L, Euthanasia, Female, home care services, Humans, Inghelbrecht E, Journal Article, Logistic Models, Male, Middle Aged, Mortier F, Nurse's Role, Odds Ratio, Questionnaires, Suicide, Terminal Care/methods/statistics & numerical data, Voluntary/statistics & numerical data, Young Adult
Causes and palliation of transfusion-associated vaginal bleeding in patients with metastatic cancer
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Tags: 2010, Adaptation, Adolescent, Adult, Anxiety/epidemiology/etiology/psychology, Backlog, Bereavement, Child, Depression/epidemiology, Female, Henter JI, Humans, Infant, Jalmsell L, Journal Article, Kreicbergs U, Male, Neoplasms/psychology, Newborn, Onelov E, Parent-child Relations, Parents/psychology, Pediatric Blood & Cancer, Preschool, Psychological, Quality Of Life, Steineck G, Sweden/epidemiology, Terminally Ill/psychology, Young Adult
Transforming Care for Young Adults with Complex and Life-Limiting Conditions
Children's experiences of cystic fibrosis: a systematic review of qualitative studies
Tags: 2014, Activities of Daily Living, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Craig JC, Cystic Fibrosis, Defense Mechanisms, Disability Evaluation, Fitzgerald D, Hanson CS, Health Services Needs And Demand, Hope, Humans, Internal-External Control, Jamieson N, Journal Article, Pediatrics, Power (psychology), Preschool, Prognosis, Psychological, Qualitative Research, Quality Of Life, Resilience, Self Care, Sick Role, Singh-Grewal D, Social Adjustment, Social Isolation, Social Support, Tong A, Young Adult
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Multiple and multidimensional life transitions in the context of life-limiting health conditions: longitudinal study focussing on perspectives of young adults, families and professionals
Tags: 2019, Adolescent, BMC Palliative Care, Cost Of Illness, Dempsey R, Family/px [psychology], Female, Gold L, Health Personnel/px [psychology], Humans, Interviews as Topic/mt [Methods], Jindal-Snape D, Johnston B, Kelly T B, Longitudinal Studies, Male, October 2019 List, Perception, Pringle J, Qualitative Research, Quality Of Life/px [psychology], Scott R, Transitional Care, Young Adult
End-of-Life Intensity for Adolescents and Young Adults With Cancer: A Californian Population-Based Study That Shows Disparities
Tags: 2017, Adolescence, Adult, Age Factors, Alvarez E, Bhatia S, California, Chamberlain LJ, Childhood Neoplasms -- Therapy -- California, Confidence Intervals, Death Certificates, Descriptive Statistics, Healthcare Disparities -- California, Hematologic Neoplasms -- Therapy -- California, Hispanics, Hospital Mortality, Hospitalization, Human, Intensive Care Units, Intubation, Johnston EE, Journal of Oncology Practice, Minority Groups, Neoplasms -- Therapy -- California, Odds Ratio, Oncologic Care -- California, Oncology 2017 List, Race Factors, Readmission, Retrospective Design, Sanders L, Saynina O, Socioeconomic Factors, Terminal Care -- California, Whites, Young Adult
Location of death and hospice use in children with cancer varies by type of health insurance
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent Adult Child, Bhatia S, Davis ES, End-of-life Care, Health, Hospice, Hospice Care, Hospices Humans Insurance, Johnston EE, Kenzik K, Location Of Death, medical intensity, Neoplasms/therapy Retrospective Studies, Pediatric Blood and Cancer, Pediatric Oncology, Terminal Care, United States, Young Adult
Life Transitions Of Adolescents And Young Adults With Life-limiting Conditions
A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions.
Methods:
The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and…
Tags: 2016, Adaptation Psychological, Adolescent, Adolescent Development, Adolescents, Adult, Brain Neoplasms, Child, Cystic Fibrosis, December 2016 List, Disease Progression, Emotions, Family, Health Status, Humans, International Journal of Palliative Nursing, Jindal-Snape, Johnston, Life Transitions, Life-limiting Conditions, Mental Health, Muscular Dystrophy Duchenne, Neurodegenerative Diseases, Pringle J, Terminally Ill, Young Adult, Young Adults
"They were here, and they still matter": A qualitative study of bereaved parents legacy experiences and perceptions
Tags: 2023, Adult, Albanese E, Altruism, Article, August List 2035, Bereavement, Boles JC, Caregiver, Child, epistemology, genetic transcription, Grief, Human, Jones MT, Language, Palliative Medicine, Palliative Therapy, Perception, Phenomenology, Qualitative Research, Quality Of Life, ritual, Semi Structured Interview, Sibling, United States, Young Adult
Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…
Tags: 2016, Adult, Counseling, Decision Making, Female, Gestational Age, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Kaempf JW, March 2016 List, Oregon, Palliative Care/organization & Administration, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Premature Birth/nursing, Resuscitation, Retrospective Studies, Tomlinson MW, Tuohey J, Young Adult
Case study: the Interact Home Telehealth Project
Tags: 2013, Adolescent, Adult, Aged, Ambulatory, Attitude Of Health Personnel, Backlog, Brain Injuries, Child, Computers, Doolan D, Female, Handheld, Health Promotion, home care services, Humans, Infant, Journal Article, Journal Of Telemedicine And Telecare, Katalinic O, Male, Middle Aged, Monitoring, New South Wales, Palliative Care, Patient Satisfaction, Pediatrics, Pilot Projects, Preschool, Stroke, Telemedicine, Young A, Young Adult
Advance care planning in adolescents with cystic fibrosis: A quality improvement project
Tags: 2016, Adolescent, Advance Care Planning, Advance Directives, Attitude To Health, Cystic Fibrosis/pp [physiopathology], Cystic Fibrosis/th [therapy], December 2017 List, Female, Forced Expiratory Volume, Humans, Kazmerski TM, Lerch W, Male, Matisko J, Maurer SH, May C, Noninvasive Ventilation, Oxygen Inhalation Therapy, Patient Care Planning, Pediatric Pulmonology, Proxy, Quality Improvement, Schachner D, Severity Of Illness Index, Surveys And Questionnaires, Terminal Care, Weiner DJ, Young Adult
An economic examination of private insurance claims among adolescents and young adults who were enrolled in hospice during the last year of life
Tags: 2018, Adolescent, Adolescent Health, Medicine and Therapeutics, Adult, Article, Cohrs AC, December 2018 List, Emergency Ward, Female, Health Care Utilization, Hospice Care, Hospital Patient, hospital service, Human, Keim-Malpass J, Length Of Stay, Leslie DL, Lindley LC, Male, preliminary data, primary medical care, private health insurance, Retrospective Study, Young Adult
Euthanasia for children and young people?
Facilitating transition from children's to adult services for young adults with life-limiting conditions (TASYL): Programme theory developed from a mixed methods realist evaluation
Tags: 2018, Adult, Article, Child, childhood, Clinical Article, December 2018 List, Decision Making, Drawing, Female, Human, Human Experiment, International Journal Of Nursing Studies, Interview, Kerr H, Male, Nicholl H, O'Halloran P, Palliative Therapy, Price J, Skill, staff training, theoretical study, Transition To Adult Care, Young Adult
A cross-sectional survey of services for young adults with life-limiting conditions making the transition from children's to adult services in Ireland
Transition from children's to adult services for young adults with life-limiting conditions: A realist review of the literature
Changing mortality in congenital heart disease
Tags: 2010, Abrahamowicz M, Adolescent, Adolescent Transitions, Age Factors, Aged, Backlog, Cardiac Surgical Procedures/methods/mortality, Cause Of Death, Child, Cohort Studies, Congenital/diagnosis/mortality/surgery, Female, Heart Defects, Humans, Infant, Ionescu-Ittu R, Journal Article, Journal of the American College of Cardiology, Khairy P, Mackie AS, Male, Marelli AJ, Middle Aged, Newborn, Pilote L, Preschool, Prognosis, Quebec, Retrospective Studies, Sex Factors, Survival Analysis, Young Adult
Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Tags: 2010, Adaptation, Adolescent, Adult, Backlog, Child, Cross-sectional Studies, Curtis CM, Female, Florida, Health Care Surveys, Humans, Infant, Journal Article, Journal of Palliative Medicine, Knapp CA, Madden VL, Male, Multivariate Analysis, Palliative Care/organization & Administration, Parent-child Relations, Pediatrics/organization & Administration, Preschool, Professional-family Relations, Program Evaluation, Psychological, Psychometrics, Quality Of Life, Regression Analysis, Shenkman EA, Sloyer P, Social Support, Telephone, Young Adult
Meeting the needs of young adults with life-limiting conditions: A UK survey of current provision and future challenges for hospices
Tags: 2018, Adult, Bray L, Content Analysis, Convenience Sample, Cross Sectional Studies, Data Analysis Software, Descriptive Research, Descriptive Statistics, Downing J, Health Services Needs And Demand, Hospice Care, Human, Jack Barbara A, Journal Of Advanced Nursing, Kirkcaldy AJ, Knighting K, Mitchell TK, O'Brien MR, Pilkington M, September 2018 List, Terminally Ill Patients -- In Adulthood, Thematic Analysis, United Kingdom, Young Adult
The Impact of Mortality on Total Costs Within the ICU
Tags: 2017, Adolescent, Adult, Age Factors, Aged, Aged 80 And Over, Bed Occupancy/economics, Critical Care Medicine, Dasta JF, Female, Hospital Costs/ Statistics & Numerical Data, Hospital Mortality, Humans, Intensive Care Units/ Economics, Kane-Gill SL, Kramer AA, Length Of Stay/economics, Male, Middle Aged, November 2017 List, Patient Discharge/economics, Respiration Artificial/economics, Retrospective Studies, Severity Of Illness Index, Sex Factors, United States, Young Adult
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Teetering On a Cliff Edge: Transitioning Between Paediatric and Adult Hospice Services
Tags: 2022, Adult, BMJ Supportive and Palliative Care, Child, Clinical Article, conference abstract, Controlled Study, Conversation, Female, Hospice, Hospice Care, Human, Human Experiment, Laidlaw S, Male, March List 2023, O'Connor J, Pediatric, Psychological Well-being, Rahman F, Scotland, Social Care, Trust, Wales, Wellbeing, Wylie F, Young Adult
Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Tags: 2017, Adult, Article, Burnout, Correlation Analysis, Cross-sectional Study, Demography, Distress Syndrome, Dryden-Palmer KD, Female, Gibbons C, health practitioner, Hospital care, Human, Intensive Care, January 2018 List, Larson CP, linear regression analysis, Major Clinical Study, Male, Maslach Burnout Inventory Depersonalization Subscale, Middle Aged, Mishel Parent Perception of Uncertainty Scale, Morality, Neonatal Intensive Care Unit, Nurse, outcome assessment, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Priority Journal, Prognosis, Questionnaire, Rating Scale, Revised Moral Distress Scale, Terminal Care, tertiary care center, Uncertainty, Work, Young Adult
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients
Tags: 2023, Adolescent, Adult, Article, Chronic Disease, Chronic Patient, Clinical Article, Collins S, Controlled Study, Data Analysis, Expectation, Female, Hart M, Human, Interview, Lebeau K, Male, Marchi E, May List 2023, Palliative And Supportive Care, Palliative Therapy, Personal Experience, Phenomenology, Pomeranz JL, psychosocial care, Qualitative Analysis, Questionnaire, solidarity, Walker D, Young Adult, Zori G
Gastrointestinal and nutritional problems occur frequently throughout life in girls and women with Rett syndrome
Tags: 2012, Adolescent, Adult, Age Factors, Annese F, Barrish J O, Bone Diseases/complications/epidemiology, Caeg E, characteristics, Child, Child Preschool, Child Nutrition Disorders/epidemiology/etiology/genetics, Constipation, dysmotility, Dysphagia, feeding difficulties, Female, Gastrointestinal Diseases/epidemiology/etiology/genetics, gastrointestinal dysmotility, Geerts S, Glaze D G, Growth Disorders/epidemiology/etiology/genetics, Health Surveys, Humans, Infant, Infant Nutrition Disorders/epidemiology/etiology/genetics, Journal Of Pediatric Gastroenterology And Nutrition, Lane J B, Lee H S, Male, McNair L, Methyl-CpG-Binding Protein 2/genetics, Motil K J, Mutation, Neul J L, Nutrition Disorders/epidemiology/etiology/genetics, Parents, Percy A K, Prevalence, Rett syndrome, Rett Syndrome/complications/genetics, Skinner S A, Surveys And Questionnaires, Trajectory, Young Adult
Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Tags: 2015, Adaptation, Adolescent, Adult, Age Factors, Backlog, Baser RE, Breitbart W, Cause Of Death, Child, Corner GW, Cross-sectional Studies, Female, Grief, Health Services Accessibility, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Kissane DW, Li Y, Lichtenthal WG, Male, Mental Health Services, Middle Aged, Minority Groups, Neoplasms, Parents, Patient Acceptance of Health Care, Preschool, Prigerson HG, Psychological, Psychotherapy, Psychotropic Drugs, Roberts KE, Self Report, Self-Help Groups, Sweeney CR, Time Factors, United States, Wiener L, Young Adult
Pediatric Primary Care Involvement In End-of-life Care For Children
Tags: 2017, Adolescent, Age Factors, American Journal of Hospice and Palliative Medicine, California, Child, Child Preschool, Female, Home Care Services/sn [statistics & Numerical Data], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Lindley LC, Male, Nageswaran S, Primary Health Care/sn [statistics & Numerical Data], Retrospective Studies, September 2017 List, Terminal Care/sn [statistics & Numerical Data], Young Adult
Who are the children using hospice care?
Tags: 2014, Adolescent, April 2019 List, California, Child, Child Preschool, Female, Health Services Needs and Demand/og [Organization & Administration], Health Services Needs and Demand/sn [Statistics & Numerical Data], Hospice Care/mt [Methods], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Infant Newborn, Journal for Specialists in Pediatric Nursing, Lindley LC, Male, Neuromuscular Diseases/nu [Nursing], Nurse-patient Relations, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Pediatric Nursing/mt [methods], Pediatric Nursing/sn [Statistics & Numerical Data], Professional-family Relations, Shaw SL, Socioeconomic Factors, Young Adult
End-of-Life Care for Hispanic Children: A Study of California Medicaid Beneficiaries
Tags: 2016, Adolescent, California, Cardiovascular Diseases/mo [Mortality], Child, Congenital Abnormalities/mo [Mortality], Delivery of Health Care, Emergency Service, Female, Health Services Accessibility, Hispanic Americans, Hispanic Health Care International, Hospice Care/ut [Utilization], Hospices/ut [Utilization], Hospital/ut [Utilization], Hospitalization, Humans, Infant, Lindley LC, Male, Medicaid, Neoplasms/mo [mortality], October 2018 List, Palliative Care/ut [Utilization], Policy, Preschool, September 2018 List, Terminal Care/mt [methods], Trujillo LV, United States, Young Adult
Utilizing a collaborative learning activity to sensitize interprofessional students to palliative care scopes of practice with adolescent and young adults
Tags: 2019, Adult, Article, collaborative learning, Education, graduate student, Health Care Personnel, Human, Interprofessional Relations, Interview, Jones B, Journal Of Interprofessional Care, Linton B, Lippe M, Malignant Neoplasm, Oncology, Oncology 2019 List, Palliative Care, Palliative Therapy, Professional, Professional Role, public relations, responsibility, Scope Of Practice, vulnerable population, Young Adult